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  • 2 weeks later...

Hi everyone,

I got the results of my viral load yesterday. Not what I had

hoped for. It was positive. Viral load was 1,100,000, more than

when I started treatment. The doctor wants me to start over, and I

just can't do it. I was terribly sick the whole time and I still

have terrible headaches, not true migranes. The doc won't prescribe

a migrane medication. He says it won't help. Dr. Vanphiel is coming

to town next month. He wants me to see this doctor. He says he is

working on a new kind of interferon, not even sure if it works. Does

anyone know anything about this doctor or what the new medication

might be? Meghan

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Hi Meghan, I am not happy at all about your news.How is your ALT and AST?

My heart goes out to you not wanting to go through treatment again but...You

need to have all the facts to make a good decision.

Donna

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HI.Sorry to hear that.I know how you feel.I hvn.t heard about a new kind of

interferon apart from the PEG and PEGASYS. What I do know is they.re working on

protease inhibitors and it.s very promising,also the side-effects are

minimal.There.re trials commencing in the US mabye you should get some info on

this.Goodluck,.

post treatment blues

Hi everyone,

I got the results of my viral load yesterday. Not what I had

hoped for. It was positive. Viral load was 1,100,000, more than

when I started treatment. The doctor wants me to start over, and I

just can't do it. I was terribly sick the whole time and I still

have terrible headaches, not true migranes. The doc won't prescribe

a migrane medication. He says it won't help. Dr. Vanphiel is coming

to town next month. He wants me to see this doctor. He says he is

working on a new kind of interferon, not even sure if it works. Does

anyone know anything about this doctor or what the new medication

might be? Meghan

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Hi Meghan...

I've never heard of that doctor and don't know of any new type of interferon

beyond Schering's peg or Roche's Pegasys. A lot of work is being done with

protease inhibitors but that's not interferon.

It seems to me that if your doctor won't prescribe anything for your headaches,

you need to find a doctor who will. Alley had a terrible time with migraines

during treatment too. Is your doctor a headache specialist (guess they are

neurologists that specialize in headaches) that he knows your headaches are not

migraines. And if they aren't migraines, there are still medications for all

types of headaches. No one should suffer unnecessarily...and headaches are

treatable...even if you have to try several different meds before you find one

that works for you. You might try getting obstinate with your doctor about

finding a medication for your headaches. Sometimes we have to remind them that

they don't know everything, that they aren't god and that we know what we are

experiencing much better than they do.

You might also try accupuncture. I find accupuncture to be wonderful for a wide

variety of things. It got me through treatment relatively side effect free and

would even help clear the brain fog. It's definitely helps with aches and

pains....and I've gone in with severe headaches and walked out with no headache

at all. Might be worth a try for you if it's financially feasible and you are

willing to believe that it can help.

Sorry about your viral load, but I think that 1.1 million is still considered a

moderate range. Prior to losing my job over a year ago when I had my last PCR,

my viral load was 4.2 million and that was mid range as I recall. I have no idea

what it is now....the job I got as my unemployment was running out doesn't offer

insurance so I have been unable to have any tests done.

Good luck with everything Meghan....and fight for yourself and treatment for

those headaches.

Blessings

Tatezi

post treatment blues

Hi everyone,

I got the results of my viral load yesterday. Not what I had

hoped for. It was positive. Viral load was 1,100,000, more than

when I started treatment. The doctor wants me to start over, and I

just can't do it. I was terribly sick the whole time and I still

have terrible headaches, not true migranes. The doc won't prescribe

a migrane medication. He says it won't help. Dr. Vanphiel is coming

to town next month. He wants me to see this doctor. He says he is

working on a new kind of interferon, not even sure if it works. Does

anyone know anything about this doctor or what the new medication

might be? Meghan

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Meghan

So sorry to hear about your test results

My doctor wanted me to do tx again also and I just could'nt, don't think my

body would have lasted. I am now feeling a little worse again think it is

being brought on by stress. think that makes the symptoms worse. so no

wonder Tat is having such a hard time

Take care

Suzy

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  • 4 weeks later...

Hi Tatezi,

Thanks for trying to help. I have been to accupuncture for eight weeks

straight. My daughter is a physical therapist, and has more knowledge than a

chiropractor. Nothing helped. I would think you were right about buried

feelings, if I was a headache sufferer before treatment, but I wasn't,

inspite of burying a son and nearly burying a husband. My diet is fairly

healthy, lots a fruits and some vegetables. Sugar, however is my downfall,

and I know that is bad. I am trying to cut back in that area. I am 1 b and

was negative at 3 months, but positive at 6 months post treatment. I still

have no strength to speak of. I wish I would hear from DB. He wrote about

changes he made and I didn't understand what he meant, which helped him with

his back and sinus problems. It is so frustrating after so long, my life is

still so messed up. The new drugs , whatever they are will be better than

the narcotics I am taking, and not getting much help from. Eventually, maybe

they will stop and I can get back to normal, whatever that is. Thanks, Meghan

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Hi Tatezi,

Thanks for trying to help. I have been to accupuncture for eight weeks

straight. My daughter is a physical therapist, and has more knowledge than a

chiropractor. Nothing helped. I would think you were right about buried

feelings, if I was a headache sufferer before treatment, but I wasn't,

inspite of burying a son and nearly burying a husband. My diet is fairly

healthy, lots a fruits and some vegetables. Sugar, however is my downfall,

and I know that is bad. I am trying to cut back in that area. I am 1 b and

was negative at 3 months, but positive at 6 months post treatment. I still

have no strength to speak of. I wish I would hear from DB. He wrote about

changes he made and I didn't understand what he meant, which helped him with

his back and sinus problems. It is so frustrating after so long, my life is

still so messed up. The new drugs , whatever they are will be better than

the narcotics I am taking, and not getting much help from. Eventually, maybe

they will stop and I can get back to normal, whatever that is. Thanks, Meghan

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Hi Tatezi,

Thanks for trying to help. I have been to accupuncture for eight weeks

straight. My daughter is a physical therapist, and has more knowledge than a

chiropractor. Nothing helped. I would think you were right about buried

feelings, if I was a headache sufferer before treatment, but I wasn't,

inspite of burying a son and nearly burying a husband. My diet is fairly

healthy, lots a fruits and some vegetables. Sugar, however is my downfall,

and I know that is bad. I am trying to cut back in that area. I am 1 b and

was negative at 3 months, but positive at 6 months post treatment. I still

have no strength to speak of. I wish I would hear from DB. He wrote about

changes he made and I didn't understand what he meant, which helped him with

his back and sinus problems. It is so frustrating after so long, my life is

still so messed up. The new drugs , whatever they are will be better than

the narcotics I am taking, and not getting much help from. Eventually, maybe

they will stop and I can get back to normal, whatever that is. Thanks, Meghan

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Hi Tatezi,

Thanks for trying to help. I have been to accupuncture for eight weeks

straight. My daughter is a physical therapist, and has more knowledge than a

chiropractor. Nothing helped. I would think you were right about buried

feelings, if I was a headache sufferer before treatment, but I wasn't,

inspite of burying a son and nearly burying a husband. My diet is fairly

healthy, lots a fruits and some vegetables. Sugar, however is my downfall,

and I know that is bad. I am trying to cut back in that area. I am 1 b and

was negative at 3 months, but positive at 6 months post treatment. I still

have no strength to speak of. I wish I would hear from DB. He wrote about

changes he made and I didn't understand what he meant, which helped him with

his back and sinus problems. It is so frustrating after so long, my life is

still so messed up. The new drugs , whatever they are will be better than

the narcotics I am taking, and not getting much help from. Eventually, maybe

they will stop and I can get back to normal, whatever that is. Thanks, Meghan

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If the headaches are because of built up toxins, adding more chemicals may

or may not help. I would suggest that whether or not you take the suggested

treatment, you do something every day that causes you to sweat.

I had a friend who had persistent headaches, nondiagnosable, who lived a

very sedentary life. he started walking a couple of miles a day, and they

cleared up.

One effect of excercise is sweating. The skin is the body's largest pathway

for shedding toxins. We dump them in urine, feces, and sweat. If you are

not sweating regularly, the buildup can cause headaches.

You can sweat thru excercise, herbs like cayenne and peppermint, hot

baths, saunas, it really doesn't matter, but you should sweat everyday,

profusely at least a few times a week.

I make no guarantuees it will help your particular case, but other than the

cold sweat of terror, there is no type of way of inducing sweating that is

bad for you. Unless of course you are a total couch potato, don't go run

five miles the first day and all that. Even in the terror, the sweating is

good, jsut probably the stress will off set the benefit :-)

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If the headaches are because of built up toxins, adding more chemicals may

or may not help. I would suggest that whether or not you take the suggested

treatment, you do something every day that causes you to sweat.

I had a friend who had persistent headaches, nondiagnosable, who lived a

very sedentary life. he started walking a couple of miles a day, and they

cleared up.

One effect of excercise is sweating. The skin is the body's largest pathway

for shedding toxins. We dump them in urine, feces, and sweat. If you are

not sweating regularly, the buildup can cause headaches.

You can sweat thru excercise, herbs like cayenne and peppermint, hot

baths, saunas, it really doesn't matter, but you should sweat everyday,

profusely at least a few times a week.

I make no guarantuees it will help your particular case, but other than the

cold sweat of terror, there is no type of way of inducing sweating that is

bad for you. Unless of course you are a total couch potato, don't go run

five miles the first day and all that. Even in the terror, the sweating is

good, jsut probably the stress will off set the benefit :-)

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If the headaches are because of built up toxins, adding more chemicals may

or may not help. I would suggest that whether or not you take the suggested

treatment, you do something every day that causes you to sweat.

I had a friend who had persistent headaches, nondiagnosable, who lived a

very sedentary life. he started walking a couple of miles a day, and they

cleared up.

One effect of excercise is sweating. The skin is the body's largest pathway

for shedding toxins. We dump them in urine, feces, and sweat. If you are

not sweating regularly, the buildup can cause headaches.

You can sweat thru excercise, herbs like cayenne and peppermint, hot

baths, saunas, it really doesn't matter, but you should sweat everyday,

profusely at least a few times a week.

I make no guarantuees it will help your particular case, but other than the

cold sweat of terror, there is no type of way of inducing sweating that is

bad for you. Unless of course you are a total couch potato, don't go run

five miles the first day and all that. Even in the terror, the sweating is

good, jsut probably the stress will off set the benefit :-)

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If the headaches are because of built up toxins, adding more chemicals may

or may not help. I would suggest that whether or not you take the suggested

treatment, you do something every day that causes you to sweat.

I had a friend who had persistent headaches, nondiagnosable, who lived a

very sedentary life. he started walking a couple of miles a day, and they

cleared up.

One effect of excercise is sweating. The skin is the body's largest pathway

for shedding toxins. We dump them in urine, feces, and sweat. If you are

not sweating regularly, the buildup can cause headaches.

You can sweat thru excercise, herbs like cayenne and peppermint, hot

baths, saunas, it really doesn't matter, but you should sweat everyday,

profusely at least a few times a week.

I make no guarantuees it will help your particular case, but other than the

cold sweat of terror, there is no type of way of inducing sweating that is

bad for you. Unless of course you are a total couch potato, don't go run

five miles the first day and all that. Even in the terror, the sweating is

good, jsut probably the stress will off set the benefit :-)

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Hi.For sweating try the sauna,also good for other things,make sure you stay

inside long enough for your organs to sweat,may take some practice,it also gives

you a wonderfull relaxed feeling after you take the cold shower.Willem.

Re: post treatment blues

If the headaches are because of built up toxins, adding more chemicals may

or may not help. I would suggest that whether or not you take the suggested

treatment, you do something every day that causes you to sweat.

I had a friend who had persistent headaches, nondiagnosable, who lived a

very sedentary life. he started walking a couple of miles a day, and they

cleared up.

One effect of excercise is sweating. The skin is the body's largest pathway

for shedding toxins. We dump them in urine, feces, and sweat. If you are

not sweating regularly, the buildup can cause headaches.

You can sweat thru excercise, herbs like cayenne and peppermint, hot

baths, saunas, it really doesn't matter, but you should sweat everyday,

profusely at least a few times a week.

I make no guarantuees it will help your particular case, but other than the

cold sweat of terror, there is no type of way of inducing sweating that is

bad for you. Unless of course you are a total couch potato, don't go run

five miles the first day and all that. Even in the terror, the sweating is

good, jsut probably the stress will off set the benefit :-)

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Hi.For sweating try the sauna,also good for other things,make sure you stay

inside long enough for your organs to sweat,may take some practice,it also gives

you a wonderfull relaxed feeling after you take the cold shower.Willem.

Re: post treatment blues

If the headaches are because of built up toxins, adding more chemicals may

or may not help. I would suggest that whether or not you take the suggested

treatment, you do something every day that causes you to sweat.

I had a friend who had persistent headaches, nondiagnosable, who lived a

very sedentary life. he started walking a couple of miles a day, and they

cleared up.

One effect of excercise is sweating. The skin is the body's largest pathway

for shedding toxins. We dump them in urine, feces, and sweat. If you are

not sweating regularly, the buildup can cause headaches.

You can sweat thru excercise, herbs like cayenne and peppermint, hot

baths, saunas, it really doesn't matter, but you should sweat everyday,

profusely at least a few times a week.

I make no guarantuees it will help your particular case, but other than the

cold sweat of terror, there is no type of way of inducing sweating that is

bad for you. Unless of course you are a total couch potato, don't go run

five miles the first day and all that. Even in the terror, the sweating is

good, jsut probably the stress will off set the benefit :-)

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Hi.For sweating try the sauna,also good for other things,make sure you stay

inside long enough for your organs to sweat,may take some practice,it also gives

you a wonderfull relaxed feeling after you take the cold shower.Willem.

Re: post treatment blues

If the headaches are because of built up toxins, adding more chemicals may

or may not help. I would suggest that whether or not you take the suggested

treatment, you do something every day that causes you to sweat.

I had a friend who had persistent headaches, nondiagnosable, who lived a

very sedentary life. he started walking a couple of miles a day, and they

cleared up.

One effect of excercise is sweating. The skin is the body's largest pathway

for shedding toxins. We dump them in urine, feces, and sweat. If you are

not sweating regularly, the buildup can cause headaches.

You can sweat thru excercise, herbs like cayenne and peppermint, hot

baths, saunas, it really doesn't matter, but you should sweat everyday,

profusely at least a few times a week.

I make no guarantuees it will help your particular case, but other than the

cold sweat of terror, there is no type of way of inducing sweating that is

bad for you. Unless of course you are a total couch potato, don't go run

five miles the first day and all that. Even in the terror, the sweating is

good, jsut probably the stress will off set the benefit :-)

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Hi.For sweating try the sauna,also good for other things,make sure you stay

inside long enough for your organs to sweat,may take some practice,it also gives

you a wonderfull relaxed feeling after you take the cold shower.Willem.

Re: post treatment blues

If the headaches are because of built up toxins, adding more chemicals may

or may not help. I would suggest that whether or not you take the suggested

treatment, you do something every day that causes you to sweat.

I had a friend who had persistent headaches, nondiagnosable, who lived a

very sedentary life. he started walking a couple of miles a day, and they

cleared up.

One effect of excercise is sweating. The skin is the body's largest pathway

for shedding toxins. We dump them in urine, feces, and sweat. If you are

not sweating regularly, the buildup can cause headaches.

You can sweat thru excercise, herbs like cayenne and peppermint, hot

baths, saunas, it really doesn't matter, but you should sweat everyday,

profusely at least a few times a week.

I make no guarantuees it will help your particular case, but other than the

cold sweat of terror, there is no type of way of inducing sweating that is

bad for you. Unless of course you are a total couch potato, don't go run

five miles the first day and all that. Even in the terror, the sweating is

good, jsut probably the stress will off set the benefit :-)

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