Re: Hep C Free Hall of Fame.. If you are undectible...Let us know!!

[Guest guest]

Hi Group,

I am sorry if I should not have posted about my new website for

Hep C FreeHall of Fame.

I am also sorry that tatez took it so hard.

Honey, we are looking for answers here....Wouldn't ever want anyones feelings

hurt but exclusion sometimes can bring answers to the service faster.

The Dr's certainly aren't always talking to us and if these people are

sustained, relapsed,

undectible... have suggestions, I am gonna listen.. These people are

extreamly important for us

who are fighting with the treatment or without treatment.

I personally feel it is the beginning of a VITAL website loaded with

information that we could all use.

Hope this makes it clearer...

Anita

In a message dated 5/17/03 3:12:53 AM, tatezi@... writes:

<< It's very nice that you have formed a group that excludes those people who

don't respond to treatment...but this is not the forum for advertising such

a thing. We are here to support one another through diagnosis, treatment and

post treatment...along with living life with HCV.

And I find it in extreme bad taste to form a group only for those who are

sustained responders or those who responded and relapsed, but not for those

who never responded.

Please do not advertise other groups in this forum. Doc has sent messages

before that this is not a forum for advertising other groups and I'm sure

when he sees this post he too will have something to say.

Blessings

Tatezi

Hep C Free Hall of Fame.. If you are

undectible...Let us know!!

ANNOUNCING A BRAND NEW WEB SITE!

HEP C FREE HALL OF FAME!

If you are UNDECTIBLE! Please take your spot at the the head of the

class...... check out our new web site!

HepCFreeHallOfFame

HepCFreeHallOfFame

It's A list for folks who have:

1. Responded and sustained

2. Redponded and relapsed

Go to boast of their success and

Go share -- should they relaps

A place where the rest of us can go cheer for those who have

Eliminated the " C " in them....!!! YAY!

PLEASE POST A PIC IN THE PHOTOS TOO!

CONGRATULATIONS!

You are our hero!

Knowledge is power...

Please take a moment and let others know things that have helped you Kill

your dragon...

THANKS

Anita and ~

Please distribute far and wide.... thanks so much!

Most Recent Messages View all Messages (1)

May 16 DAVIS SAPPER --UNDECTIBLE - APRIL 2003 - ddsap2525

Please take a moment and let others know things that have helped

you Kill your dragon!

[Guest guest]

Hi Group,

I am sorry if I should not have posted about my new website for

Hep C FreeHall of Fame.

I am also sorry that tatez took it so hard.

Honey, we are looking for answers here....Wouldn't ever want anyones feelings

hurt but exclusion sometimes can bring answers to the service faster.

The Dr's certainly aren't always talking to us and if these people are

sustained, relapsed,

undectible... have suggestions, I am gonna listen.. These people are

extreamly important for us

who are fighting with the treatment or without treatment.

I personally feel it is the beginning of a VITAL website loaded with

information that we could all use.

Hope this makes it clearer...

Anita

In a message dated 5/17/03 3:12:53 AM, tatezi@... writes:

<< It's very nice that you have formed a group that excludes those people who

don't respond to treatment...but this is not the forum for advertising such

a thing. We are here to support one another through diagnosis, treatment and

post treatment...along with living life with HCV.

And I find it in extreme bad taste to form a group only for those who are

sustained responders or those who responded and relapsed, but not for those

who never responded.

Please do not advertise other groups in this forum. Doc has sent messages

before that this is not a forum for advertising other groups and I'm sure

when he sees this post he too will have something to say.

Blessings

Tatezi

Hep C Free Hall of Fame.. If you are

undectible...Let us know!!

ANNOUNCING A BRAND NEW WEB SITE!

HEP C FREE HALL OF FAME!

If you are UNDECTIBLE! Please take your spot at the the head of the

class...... check out our new web site!

HepCFreeHallOfFame

HepCFreeHallOfFame

It's A list for folks who have:

1. Responded and sustained

2. Redponded and relapsed

Go to boast of their success and

Go share -- should they relaps

A place where the rest of us can go cheer for those who have

Eliminated the " C " in them....!!! YAY!

PLEASE POST A PIC IN THE PHOTOS TOO!

CONGRATULATIONS!

You are our hero!

Knowledge is power...

Please take a moment and let others know things that have helped you Kill

your dragon...

THANKS

Anita and ~

Please distribute far and wide.... thanks so much!

Most Recent Messages View all Messages (1)

May 16 DAVIS SAPPER --UNDECTIBLE - APRIL 2003 - ddsap2525

Please take a moment and let others know things that have helped

you Kill your dragon!

[Guest guest]

Hi Group,

I am sorry if I should not have posted about my new website for

Hep C FreeHall of Fame.

I am also sorry that tatez took it so hard.

Honey, we are looking for answers here....Wouldn't ever want anyones feelings

hurt but exclusion sometimes can bring answers to the service faster.

The Dr's certainly aren't always talking to us and if these people are

sustained, relapsed,

undectible... have suggestions, I am gonna listen.. These people are

extreamly important for us

who are fighting with the treatment or without treatment.

I personally feel it is the beginning of a VITAL website loaded with

information that we could all use.

Hope this makes it clearer...

Anita

In a message dated 5/17/03 3:12:53 AM, tatezi@... writes:

<< It's very nice that you have formed a group that excludes those people who

don't respond to treatment...but this is not the forum for advertising such

a thing. We are here to support one another through diagnosis, treatment and

post treatment...along with living life with HCV.

And I find it in extreme bad taste to form a group only for those who are

sustained responders or those who responded and relapsed, but not for those

who never responded.

Please do not advertise other groups in this forum. Doc has sent messages

before that this is not a forum for advertising other groups and I'm sure

when he sees this post he too will have something to say.

Blessings

Tatezi

Hep C Free Hall of Fame.. If you are

undectible...Let us know!!

ANNOUNCING A BRAND NEW WEB SITE!

HEP C FREE HALL OF FAME!

If you are UNDECTIBLE! Please take your spot at the the head of the

class...... check out our new web site!

HepCFreeHallOfFame

HepCFreeHallOfFame

It's A list for folks who have:

1. Responded and sustained

2. Redponded and relapsed

Go to boast of their success and

Go share -- should they relaps

A place where the rest of us can go cheer for those who have

Eliminated the " C " in them....!!! YAY!

PLEASE POST A PIC IN THE PHOTOS TOO!

CONGRATULATIONS!

You are our hero!

Knowledge is power...

Please take a moment and let others know things that have helped you Kill

your dragon...

THANKS

Anita and ~

Please distribute far and wide.... thanks so much!

Most Recent Messages View all Messages (1)

May 16 DAVIS SAPPER --UNDECTIBLE - APRIL 2003 - ddsap2525

Please take a moment and let others know things that have helped

you Kill your dragon!

[Guest guest]

Hi Group,

I am sorry if I should not have posted about my new website for

Hep C FreeHall of Fame.

I am also sorry that tatez took it so hard.

Honey, we are looking for answers here....Wouldn't ever want anyones feelings

hurt but exclusion sometimes can bring answers to the service faster.

The Dr's certainly aren't always talking to us and if these people are

sustained, relapsed,

undectible... have suggestions, I am gonna listen.. These people are

extreamly important for us

who are fighting with the treatment or without treatment.

I personally feel it is the beginning of a VITAL website loaded with

information that we could all use.

Hope this makes it clearer...

Anita

In a message dated 5/17/03 3:12:53 AM, tatezi@... writes:

<< It's very nice that you have formed a group that excludes those people who

don't respond to treatment...but this is not the forum for advertising such

a thing. We are here to support one another through diagnosis, treatment and

post treatment...along with living life with HCV.

And I find it in extreme bad taste to form a group only for those who are

sustained responders or those who responded and relapsed, but not for those

who never responded.

Please do not advertise other groups in this forum. Doc has sent messages

before that this is not a forum for advertising other groups and I'm sure

when he sees this post he too will have something to say.

Blessings

Tatezi

Hep C Free Hall of Fame.. If you are

undectible...Let us know!!

ANNOUNCING A BRAND NEW WEB SITE!

HEP C FREE HALL OF FAME!

If you are UNDECTIBLE! Please take your spot at the the head of the

class...... check out our new web site!

HepCFreeHallOfFame

HepCFreeHallOfFame

It's A list for folks who have:

1. Responded and sustained

2. Redponded and relapsed

Go to boast of their success and

Go share -- should they relaps

A place where the rest of us can go cheer for those who have

Eliminated the " C " in them....!!! YAY!

PLEASE POST A PIC IN THE PHOTOS TOO!

CONGRATULATIONS!

You are our hero!

Knowledge is power...

Please take a moment and let others know things that have helped you Kill

your dragon...

THANKS

Anita and ~

Please distribute far and wide.... thanks so much!

Most Recent Messages View all Messages (1)

May 16 DAVIS SAPPER --UNDECTIBLE - APRIL 2003 - ddsap2525

Please take a moment and let others know things that have helped

you Kill your dragon!

[Guest guest]

It's very nice that you have formed a group that excludes those people who

don't respond to treatment...but this is not the forum for advertising such

a thing. We are here to support one another through diagnosis, treatment and

post treatment...along with living life with HCV.

And I find it in extreme bad taste to form a group only for those who are

sustained responders or those who responded and relapsed, but not for those

who never responded.

Please do not advertise other groups in this forum. Doc has sent messages

before that this is not a forum for advertising other groups and I'm sure

when he sees this post he too will have something to say.

Blessings

Tatezi

Hep C Free Hall of Fame.. If you are

undectible...Let us know!!

ANNOUNCING A BRAND NEW WEB SITE!

HEP C FREE HALL OF FAME!

If you are UNDECTIBLE! Please take your spot at the the head of the

class...... check out our new web site!

HepCFreeHallOfFame

HepCFreeHallOfFame

It's A list for folks who have:

1. Responded and sustained

2. Redponded and relapsed

Go to boast of their success and

Go share -- should they relaps

A place where the rest of us can go cheer for those who have

Eliminated the " C " in them....!!! YAY!

PLEASE POST A PIC IN THE PHOTOS TOO!

CONGRATULATIONS!

You are our hero!

Knowledge is power...

Please take a moment and let others know things that have helped you Kill

your dragon...

THANKS

Anita and ~

Please distribute far and wide.... thanks so much!

Most Recent Messages View all Messages (1)

May 16 DAVIS SAPPER --UNDECTIBLE - APRIL 2003 - ddsap2525

Please take a moment and let others know things that have helped

you Kill your dragon!

[Guest guest]

It's very nice that you have formed a group that excludes those people who

don't respond to treatment...but this is not the forum for advertising such

a thing. We are here to support one another through diagnosis, treatment and

post treatment...along with living life with HCV.

And I find it in extreme bad taste to form a group only for those who are

sustained responders or those who responded and relapsed, but not for those

who never responded.

Please do not advertise other groups in this forum. Doc has sent messages

before that this is not a forum for advertising other groups and I'm sure

when he sees this post he too will have something to say.

Blessings

Tatezi

Hep C Free Hall of Fame.. If you are

undectible...Let us know!!

ANNOUNCING A BRAND NEW WEB SITE!

HEP C FREE HALL OF FAME!

If you are UNDECTIBLE! Please take your spot at the the head of the

class...... check out our new web site!

HepCFreeHallOfFame

HepCFreeHallOfFame

It's A list for folks who have:

1. Responded and sustained

2. Redponded and relapsed

Go to boast of their success and

Go share -- should they relaps

A place where the rest of us can go cheer for those who have

Eliminated the " C " in them....!!! YAY!

PLEASE POST A PIC IN THE PHOTOS TOO!

CONGRATULATIONS!

You are our hero!

Knowledge is power...

Please take a moment and let others know things that have helped you Kill

your dragon...

THANKS

Anita and ~

Please distribute far and wide.... thanks so much!

Most Recent Messages View all Messages (1)

May 16 DAVIS SAPPER --UNDECTIBLE - APRIL 2003 - ddsap2525

Please take a moment and let others know things that have helped

you Kill your dragon!

[Guest guest]

It's very nice that you have formed a group that excludes those people who

don't respond to treatment...but this is not the forum for advertising such

a thing. We are here to support one another through diagnosis, treatment and

post treatment...along with living life with HCV.

And I find it in extreme bad taste to form a group only for those who are

sustained responders or those who responded and relapsed, but not for those

who never responded.

Please do not advertise other groups in this forum. Doc has sent messages

before that this is not a forum for advertising other groups and I'm sure

when he sees this post he too will have something to say.

Blessings

Tatezi

Hep C Free Hall of Fame.. If you are

undectible...Let us know!!

ANNOUNCING A BRAND NEW WEB SITE!

HEP C FREE HALL OF FAME!

If you are UNDECTIBLE! Please take your spot at the the head of the

class...... check out our new web site!

HepCFreeHallOfFame

HepCFreeHallOfFame

It's A list for folks who have:

1. Responded and sustained

2. Redponded and relapsed

Go to boast of their success and

Go share -- should they relaps

A place where the rest of us can go cheer for those who have

Eliminated the " C " in them....!!! YAY!

PLEASE POST A PIC IN THE PHOTOS TOO!

CONGRATULATIONS!

You are our hero!

Knowledge is power...

Please take a moment and let others know things that have helped you Kill

your dragon...

THANKS

Anita and ~

Please distribute far and wide.... thanks so much!

Most Recent Messages View all Messages (1)

May 16 DAVIS SAPPER --UNDECTIBLE - APRIL 2003 - ddsap2525

Please take a moment and let others know things that have helped

you Kill your dragon!

[Guest guest]

It's very nice that you have formed a group that excludes those people who

don't respond to treatment...but this is not the forum for advertising such

a thing. We are here to support one another through diagnosis, treatment and

post treatment...along with living life with HCV.

And I find it in extreme bad taste to form a group only for those who are

sustained responders or those who responded and relapsed, but not for those

who never responded.

Please do not advertise other groups in this forum. Doc has sent messages

before that this is not a forum for advertising other groups and I'm sure

when he sees this post he too will have something to say.

Blessings

Tatezi

Hep C Free Hall of Fame.. If you are

undectible...Let us know!!

ANNOUNCING A BRAND NEW WEB SITE!

HEP C FREE HALL OF FAME!

If you are UNDECTIBLE! Please take your spot at the the head of the

class...... check out our new web site!

HepCFreeHallOfFame

HepCFreeHallOfFame

It's A list for folks who have:

1. Responded and sustained

2. Redponded and relapsed

Go to boast of their success and

Go share -- should they relaps

A place where the rest of us can go cheer for those who have

Eliminated the " C " in them....!!! YAY!

PLEASE POST A PIC IN THE PHOTOS TOO!

CONGRATULATIONS!

You are our hero!

Knowledge is power...

Please take a moment and let others know things that have helped you Kill

your dragon...

THANKS

Anita and ~

Please distribute far and wide.... thanks so much!

Most Recent Messages View all Messages (1)

May 16 DAVIS SAPPER --UNDECTIBLE - APRIL 2003 - ddsap2525

Please take a moment and let others know things that have helped

you Kill your dragon!

[Guest guest]

Apology accepted but please be warned that if you are sending any promotional

material have it checked with me first as we do not allow that on the List.

Dr Sharat Misra MD, DM, FACG

Consultant Gastroenterologist

List Owner

----- Original Message -----

From: AnitaAnd@...

Hi Group,

I am sorry if I should not have posted about my new website for

Hep C FreeHall of Fame.

I am also sorry that tatez took it so hard.

[Guest guest]

Apology accepted but please be warned that if you are sending any promotional

material have it checked with me first as we do not allow that on the List.

Dr Sharat Misra MD, DM, FACG

Consultant Gastroenterologist

List Owner

----- Original Message -----

From: AnitaAnd@...

Hi Group,

I am sorry if I should not have posted about my new website for

Hep C FreeHall of Fame.

I am also sorry that tatez took it so hard.

[Guest guest]

Apology accepted but please be warned that if you are sending any promotional

material have it checked with me first as we do not allow that on the List.

Dr Sharat Misra MD, DM, FACG

Consultant Gastroenterologist

List Owner

----- Original Message -----

From: AnitaAnd@...

Hi Group,

I am sorry if I should not have posted about my new website for

Hep C FreeHall of Fame.

I am also sorry that tatez took it so hard.

[Guest guest]

Apology accepted but please be warned that if you are sending any promotional

material have it checked with me first as we do not allow that on the List.

Dr Sharat Misra MD, DM, FACG

Consultant Gastroenterologist

List Owner

----- Original Message -----

From: AnitaAnd@...

Hi Group,

I am sorry if I should not have posted about my new website for

Hep C FreeHall of Fame.

I am also sorry that tatez took it so hard.

[Guest guest]

Hi,

I just started the group so I imagine there will be things to work out and I

am open to suggestions. So your feedback is good.

In our personal walk with tx and HCV we find a lack of GREAT FEEDBACK about

successful tx. My thoughts are that a general site, kind of a " Central House

of Data " of nothing but the good news of recovery does not exist. We are

always thrilled about a success story in each of our groups but often the

post get lost and one really has to search it out to find the the sustained

responders.

The other thing we've noticed, is a lot of folks get " clear " and then go

about their life away from our community. This may be a way to lasso the

stories for all of us to be inspired by when we need to. I would like to

send each person an electic card or placque and hopefully it can become

something wonderful for each of us to strive for ...

Becoming Undectable... and getting to finally be on this great list of honor.

Like a star on your forhead...

For the folks that do tx a few times to get clear as examples may be the shot

in the arm that someone needs when they have perhaps not responded to a

certain tx.. to keep going.

Don't think it has to be a site of dialog, back and forth just a site of

success. We can dialog on our own private choices of web sites like this one

or my other site. I don't know but I am open.. I think all sites should

gather together and promote this Hall of Fame Idea....

Inspiration, positive feedback, something to aspire to, something to help non

believers belive... Can't help but think it is a fabulous idea...

How can it help? Just seeing the 3 that have already posted has helped

greatly as I have gotten several happy letters saying it made their day.

I am totally open to anything that will make that exciting concept work.

tatezi@... writes:

<< But how will that hall of fame help people find hope in their battle when

people who are non responders are not allowed to join the group. That's my

question and that's my objection to a group like this.>>

I think its fine for people in all walks to Join... but the posting should

just be for the success stories... I think? Or maybe not? I am open.

What do you think?

Thanks for brainstorming this with me.

Anita

Anyway, I don't think that a

> hall of fame for people who respond to treatment is a bad idea at

> all. It's refreshing to see something positive rather than negative.

> And there is no such thing as TOO much support!

> Claudine

> >>

[Guest guest]

Hi,

I just started the group so I imagine there will be things to work out and I

am open to suggestions. So your feedback is good.

In our personal walk with tx and HCV we find a lack of GREAT FEEDBACK about

successful tx. My thoughts are that a general site, kind of a " Central House

of Data " of nothing but the good news of recovery does not exist. We are

always thrilled about a success story in each of our groups but often the

post get lost and one really has to search it out to find the the sustained

responders.

The other thing we've noticed, is a lot of folks get " clear " and then go

about their life away from our community. This may be a way to lasso the

stories for all of us to be inspired by when we need to. I would like to

send each person an electic card or placque and hopefully it can become

something wonderful for each of us to strive for ...

Becoming Undectable... and getting to finally be on this great list of honor.

Like a star on your forhead...

For the folks that do tx a few times to get clear as examples may be the shot

in the arm that someone needs when they have perhaps not responded to a

certain tx.. to keep going.

Don't think it has to be a site of dialog, back and forth just a site of

success. We can dialog on our own private choices of web sites like this one

or my other site. I don't know but I am open.. I think all sites should

gather together and promote this Hall of Fame Idea....

Inspiration, positive feedback, something to aspire to, something to help non

believers belive... Can't help but think it is a fabulous idea...

How can it help? Just seeing the 3 that have already posted has helped

greatly as I have gotten several happy letters saying it made their day.

I am totally open to anything that will make that exciting concept work.

tatezi@... writes:

<< But how will that hall of fame help people find hope in their battle when

people who are non responders are not allowed to join the group. That's my

question and that's my objection to a group like this.>>

I think its fine for people in all walks to Join... but the posting should

just be for the success stories... I think? Or maybe not? I am open.

What do you think?

Thanks for brainstorming this with me.

Anita

Anyway, I don't think that a

> hall of fame for people who respond to treatment is a bad idea at

> all. It's refreshing to see something positive rather than negative.

> And there is no such thing as TOO much support!

> Claudine

> >>

[Guest guest]

Hi,

I just started the group so I imagine there will be things to work out and I

am open to suggestions. So your feedback is good.

In our personal walk with tx and HCV we find a lack of GREAT FEEDBACK about

successful tx. My thoughts are that a general site, kind of a " Central House

of Data " of nothing but the good news of recovery does not exist. We are

always thrilled about a success story in each of our groups but often the

post get lost and one really has to search it out to find the the sustained

responders.

The other thing we've noticed, is a lot of folks get " clear " and then go

about their life away from our community. This may be a way to lasso the

stories for all of us to be inspired by when we need to. I would like to

send each person an electic card or placque and hopefully it can become

something wonderful for each of us to strive for ...

Becoming Undectable... and getting to finally be on this great list of honor.

Like a star on your forhead...

For the folks that do tx a few times to get clear as examples may be the shot

in the arm that someone needs when they have perhaps not responded to a

certain tx.. to keep going.

Don't think it has to be a site of dialog, back and forth just a site of

success. We can dialog on our own private choices of web sites like this one

or my other site. I don't know but I am open.. I think all sites should

gather together and promote this Hall of Fame Idea....

Inspiration, positive feedback, something to aspire to, something to help non

believers belive... Can't help but think it is a fabulous idea...

How can it help? Just seeing the 3 that have already posted has helped

greatly as I have gotten several happy letters saying it made their day.

I am totally open to anything that will make that exciting concept work.

tatezi@... writes:

<< But how will that hall of fame help people find hope in their battle when

people who are non responders are not allowed to join the group. That's my

question and that's my objection to a group like this.>>

I think its fine for people in all walks to Join... but the posting should

just be for the success stories... I think? Or maybe not? I am open.

What do you think?

Thanks for brainstorming this with me.

Anita

Anyway, I don't think that a

> hall of fame for people who respond to treatment is a bad idea at

> all. It's refreshing to see something positive rather than negative.

> And there is no such thing as TOO much support!

> Claudine

> >>

[Guest guest]

Hi,

I just started the group so I imagine there will be things to work out and I

am open to suggestions. So your feedback is good.

In our personal walk with tx and HCV we find a lack of GREAT FEEDBACK about

successful tx. My thoughts are that a general site, kind of a " Central House

of Data " of nothing but the good news of recovery does not exist. We are

always thrilled about a success story in each of our groups but often the

post get lost and one really has to search it out to find the the sustained

responders.

The other thing we've noticed, is a lot of folks get " clear " and then go

about their life away from our community. This may be a way to lasso the

stories for all of us to be inspired by when we need to. I would like to

send each person an electic card or placque and hopefully it can become

something wonderful for each of us to strive for ...

Becoming Undectable... and getting to finally be on this great list of honor.

Like a star on your forhead...

For the folks that do tx a few times to get clear as examples may be the shot

in the arm that someone needs when they have perhaps not responded to a

certain tx.. to keep going.

Don't think it has to be a site of dialog, back and forth just a site of

success. We can dialog on our own private choices of web sites like this one

or my other site. I don't know but I am open.. I think all sites should

gather together and promote this Hall of Fame Idea....

Inspiration, positive feedback, something to aspire to, something to help non

believers belive... Can't help but think it is a fabulous idea...

How can it help? Just seeing the 3 that have already posted has helped

greatly as I have gotten several happy letters saying it made their day.

I am totally open to anything that will make that exciting concept work.

tatezi@... writes:

<< But how will that hall of fame help people find hope in their battle when

people who are non responders are not allowed to join the group. That's my

question and that's my objection to a group like this.>>

I think its fine for people in all walks to Join... but the posting should

just be for the success stories... I think? Or maybe not? I am open.

What do you think?

Thanks for brainstorming this with me.

Anita

Anyway, I don't think that a

> hall of fame for people who respond to treatment is a bad idea at

> all. It's refreshing to see something positive rather than negative.

> And there is no such thing as TOO much support!

> Claudine

> >>

[Guest guest]

Hummm...

I think you are making this harder than it really needs to be.

Let's look at any hall of fame.

Gromans Chinese theater where the stars who have obtained a status are

put into a permanent star in the side walk.

The grammys.

The s.

You ask....

<< How can it help non responders if it is only open to those who are

sustained

responders and those who responded but relapsed? >>>

Not every movie star will get a star on the side walk, not every actor gets

a grammy, not every singer gets a number 1 hit....

But they all learn from the ones who have...

What in the world is having you get stuck in that I am excluding Non

responders? Everyone can join the site, everyone can read what others

did...so they can benifit from " Success Stories " coming their way to remind

them --THEY CAN DO IT..

AND IT IS BEING DONE!

Honey nobody is being excluded. Everyone can read the success stories. Only

the Sustained responders will post however, as I don't think we need another

dialog list. Private discussions are for list like this one. If there are

100 postings on that site, I want it to be 100 stories we can all learn from.

The good, the bad and the ugly of tx..

The pharm companys are gathering the data to tell us...

I also think, if thier are other sits dedicated to Hep C Free Stars that I

would like to link to them... as well...

Why are yo saying that the list would only welcome folks with successful tx

and that all others are not welcome, I never said that. Geeezzze.

YOU SAID...

>>

after reading your several posts, my take is that non-responders don't count

in this group>>

The most important people on this list IS THE NON RESPONDERS!!! They are the

ones who could probably benefit more than ANYONE from reading from real live

people a true account of how things went for them. Maybe there is a regime

that someone has followed that they are not aware of that may help.. Maybe

there is a new drug that helped someone, that may beneifit a persons

decisions about tx...

Maybe after reading the dilegence that some folks apply to finally reach SVR

(some as you know doing tx 3 and 4 + times ) will remind them not to give

up.

You are not reading things right honey.. You are set against it and I am not

exactly sure what your situation is...

But, I assure you... creating a Central House Of Data whereby important

roads of recovery are shared for all is nothing but a benefit to all.

Now, more than ever I am certain of it.

We all know not all list are for everyone... So, if you reading a bunch of

great news concerning peoples success stories which include Sustained Viral

Response stories, Relaps stories, and even sharinng stories about tx that

was NOT successful is not for you then so be it.

The success stories will be shared among those who have

responded and with those who need to hear the success to know that if

they keep fighting they too might eventually beat this dragon.

Good for you that by not ever hearing success stories would

sure make you want to keep fighting.

I would venture to say that most people who hear a success story or a few

hundred would be even more mentally prepared to keep on keeping on.

I agree that it will be quite comforting to know that those

who have responded graduate from a general support group to a " special "

group where non responders are of course allowed.

That is all I have been trying to say...

Warm regards,

Anita

> Hi,

>

> I just started the group so I imagine there will be things to work out

and I

> am open to suggestions. So your feedback is good.

>

> In our personal walk with tx and HCV we find a lack of GREAT FEEDBACK

about

> successful tx. My thoughts are that a general site, kind of a " Central

House

> of Data " of nothing but the good news of recovery does not exist. We are

> always thrilled about a success story in each of our groups but often the

> post get lost and one really has to search it out to find the the

sustained

> responders.

>

> The other thing we've noticed, is a lot of folks get " clear " and then go

> about their life away from our community. This may be a way to lasso the

> stories for all of us to be inspired by when we need to. I would like to

> send each person an electic card or placque and hopefully it can become

> something wonderful for each of us to strive for ...

>

> Becoming Undectable... and getting to finally be on this great list of

honor.

> Like a star on your forhead...

>

> For the folks that do tx a few times to get clear as examples may be the

shot

> in the arm that someone needs when they have perhaps not responded to a

> certain tx.. to keep going.

>

> Don't think it has to be a site of dialog, back and forth just a site of

> success. We can dialog on our own private choices of web sites like this

one

> or my other site. I don't know but I am open.. I think all sites should

> gather together and promote this Hall of Fame Idea....

>

> Inspiration, positive feedback, something to aspire to, something to help

non

> believers belive... Can't help but think it is a fabulous idea...

>

> How can it help? Just seeing the 3 that have already posted has helped

> greatly as I have gotten several happy letters saying it made their day.

>

> I am totally open to anything that will make that exciting concept work.

>

> tatezi@... writes:

>

> << But how will that hall of fame help people find hope in their battle

when

>

> people who are non responders are not allowed to join the group. That's my

>

> question and that's my objection to a group like this.>>

>

> I think its fine for people in all walks to Join... but the posting

should

> just be for the success stories... I think? Or maybe not? I am open.

>

> What do you think?

> Thanks for brainstorming this with me.

> Anita

>

>

> Anyway, I don't think that a

>

> > hall of fame for people who respond to treatment is a bad idea at

>

> > all. It's refreshing to see something positive rather than negative.

>

> > And there is no such thing as TOO much support!

>

> > Claudine

>

> > >>

>

>

>

>

[Guest guest]

Hummm...

I think you are making this harder than it really needs to be.

Let's look at any hall of fame.

Gromans Chinese theater where the stars who have obtained a status are

put into a permanent star in the side walk.

The grammys.

The s.

You ask....

<< How can it help non responders if it is only open to those who are

sustained

responders and those who responded but relapsed? >>>

Not every movie star will get a star on the side walk, not every actor gets

a grammy, not every singer gets a number 1 hit....

But they all learn from the ones who have...

What in the world is having you get stuck in that I am excluding Non

responders? Everyone can join the site, everyone can read what others

did...so they can benifit from " Success Stories " coming their way to remind

them --THEY CAN DO IT..

AND IT IS BEING DONE!

Honey nobody is being excluded. Everyone can read the success stories. Only

the Sustained responders will post however, as I don't think we need another

dialog list. Private discussions are for list like this one. If there are

100 postings on that site, I want it to be 100 stories we can all learn from.

The good, the bad and the ugly of tx..

The pharm companys are gathering the data to tell us...

I also think, if thier are other sits dedicated to Hep C Free Stars that I

would like to link to them... as well...

Why are yo saying that the list would only welcome folks with successful tx

and that all others are not welcome, I never said that. Geeezzze.

YOU SAID...

>>

after reading your several posts, my take is that non-responders don't count

in this group>>

The most important people on this list IS THE NON RESPONDERS!!! They are the

ones who could probably benefit more than ANYONE from reading from real live

people a true account of how things went for them. Maybe there is a regime

that someone has followed that they are not aware of that may help.. Maybe

there is a new drug that helped someone, that may beneifit a persons

decisions about tx...

Maybe after reading the dilegence that some folks apply to finally reach SVR

(some as you know doing tx 3 and 4 + times ) will remind them not to give

up.

You are not reading things right honey.. You are set against it and I am not

exactly sure what your situation is...

But, I assure you... creating a Central House Of Data whereby important

roads of recovery are shared for all is nothing but a benefit to all.

Now, more than ever I am certain of it.

We all know not all list are for everyone... So, if you reading a bunch of

great news concerning peoples success stories which include Sustained Viral

Response stories, Relaps stories, and even sharinng stories about tx that

was NOT successful is not for you then so be it.

The success stories will be shared among those who have

responded and with those who need to hear the success to know that if

they keep fighting they too might eventually beat this dragon.

Good for you that by not ever hearing success stories would

sure make you want to keep fighting.

I would venture to say that most people who hear a success story or a few

hundred would be even more mentally prepared to keep on keeping on.

I agree that it will be quite comforting to know that those

who have responded graduate from a general support group to a " special "

group where non responders are of course allowed.

That is all I have been trying to say...

Warm regards,

Anita

> Hi,

>

> I just started the group so I imagine there will be things to work out

and I

> am open to suggestions. So your feedback is good.

>

> In our personal walk with tx and HCV we find a lack of GREAT FEEDBACK

about

> successful tx. My thoughts are that a general site, kind of a " Central

House

> of Data " of nothing but the good news of recovery does not exist. We are

> always thrilled about a success story in each of our groups but often the

> post get lost and one really has to search it out to find the the

sustained

> responders.

>

> The other thing we've noticed, is a lot of folks get " clear " and then go

> about their life away from our community. This may be a way to lasso the

> stories for all of us to be inspired by when we need to. I would like to

> send each person an electic card or placque and hopefully it can become

> something wonderful for each of us to strive for ...

>

> Becoming Undectable... and getting to finally be on this great list of

honor.

> Like a star on your forhead...

>

> For the folks that do tx a few times to get clear as examples may be the

shot

> in the arm that someone needs when they have perhaps not responded to a

> certain tx.. to keep going.

>

> Don't think it has to be a site of dialog, back and forth just a site of

> success. We can dialog on our own private choices of web sites like this

one

> or my other site. I don't know but I am open.. I think all sites should

> gather together and promote this Hall of Fame Idea....

>

> Inspiration, positive feedback, something to aspire to, something to help

non

> believers belive... Can't help but think it is a fabulous idea...

>

> How can it help? Just seeing the 3 that have already posted has helped

> greatly as I have gotten several happy letters saying it made their day.

>

> I am totally open to anything that will make that exciting concept work.

>

> tatezi@... writes:

>

> << But how will that hall of fame help people find hope in their battle

when

>

> people who are non responders are not allowed to join the group. That's my

>

> question and that's my objection to a group like this.>>

>

> I think its fine for people in all walks to Join... but the posting

should

> just be for the success stories... I think? Or maybe not? I am open.

>

> What do you think?

> Thanks for brainstorming this with me.

> Anita

>

>

> Anyway, I don't think that a

>

> > hall of fame for people who respond to treatment is a bad idea at

>

> > all. It's refreshing to see something positive rather than negative.

>

> > And there is no such thing as TOO much support!

>

> > Claudine

>

> > >>

>

>

>

>

[Guest guest]

Hummm...

I think you are making this harder than it really needs to be.

Let's look at any hall of fame.

Gromans Chinese theater where the stars who have obtained a status are

put into a permanent star in the side walk.

The grammys.

The s.

You ask....

<< How can it help non responders if it is only open to those who are

sustained

responders and those who responded but relapsed? >>>

Not every movie star will get a star on the side walk, not every actor gets

a grammy, not every singer gets a number 1 hit....

But they all learn from the ones who have...

What in the world is having you get stuck in that I am excluding Non

responders? Everyone can join the site, everyone can read what others

did...so they can benifit from " Success Stories " coming their way to remind

them --THEY CAN DO IT..

AND IT IS BEING DONE!

Honey nobody is being excluded. Everyone can read the success stories. Only

the Sustained responders will post however, as I don't think we need another

dialog list. Private discussions are for list like this one. If there are

100 postings on that site, I want it to be 100 stories we can all learn from.

The good, the bad and the ugly of tx..

The pharm companys are gathering the data to tell us...

I also think, if thier are other sits dedicated to Hep C Free Stars that I

would like to link to them... as well...

Why are yo saying that the list would only welcome folks with successful tx

and that all others are not welcome, I never said that. Geeezzze.

YOU SAID...

>>

after reading your several posts, my take is that non-responders don't count

in this group>>

The most important people on this list IS THE NON RESPONDERS!!! They are the

ones who could probably benefit more than ANYONE from reading from real live

people a true account of how things went for them. Maybe there is a regime

that someone has followed that they are not aware of that may help.. Maybe

there is a new drug that helped someone, that may beneifit a persons

decisions about tx...

Maybe after reading the dilegence that some folks apply to finally reach SVR

(some as you know doing tx 3 and 4 + times ) will remind them not to give

up.

You are not reading things right honey.. You are set against it and I am not

exactly sure what your situation is...

But, I assure you... creating a Central House Of Data whereby important

roads of recovery are shared for all is nothing but a benefit to all.

Now, more than ever I am certain of it.

We all know not all list are for everyone... So, if you reading a bunch of

great news concerning peoples success stories which include Sustained Viral

Response stories, Relaps stories, and even sharinng stories about tx that

was NOT successful is not for you then so be it.

The success stories will be shared among those who have

responded and with those who need to hear the success to know that if

they keep fighting they too might eventually beat this dragon.

Good for you that by not ever hearing success stories would

sure make you want to keep fighting.

I would venture to say that most people who hear a success story or a few

hundred would be even more mentally prepared to keep on keeping on.

I agree that it will be quite comforting to know that those

who have responded graduate from a general support group to a " special "

group where non responders are of course allowed.

That is all I have been trying to say...

Warm regards,

Anita

> Hi,

>

> I just started the group so I imagine there will be things to work out

and I

> am open to suggestions. So your feedback is good.

>

> In our personal walk with tx and HCV we find a lack of GREAT FEEDBACK

about

> successful tx. My thoughts are that a general site, kind of a " Central

House

> of Data " of nothing but the good news of recovery does not exist. We are

> always thrilled about a success story in each of our groups but often the

> post get lost and one really has to search it out to find the the

sustained

> responders.

>

> The other thing we've noticed, is a lot of folks get " clear " and then go

> about their life away from our community. This may be a way to lasso the

> stories for all of us to be inspired by when we need to. I would like to

> send each person an electic card or placque and hopefully it can become

> something wonderful for each of us to strive for ...

>

> Becoming Undectable... and getting to finally be on this great list of

honor.

> Like a star on your forhead...

>

> For the folks that do tx a few times to get clear as examples may be the

shot

> in the arm that someone needs when they have perhaps not responded to a

> certain tx.. to keep going.

>

> Don't think it has to be a site of dialog, back and forth just a site of

> success. We can dialog on our own private choices of web sites like this

one

> or my other site. I don't know but I am open.. I think all sites should

> gather together and promote this Hall of Fame Idea....

>

> Inspiration, positive feedback, something to aspire to, something to help

non

> believers belive... Can't help but think it is a fabulous idea...

>

> How can it help? Just seeing the 3 that have already posted has helped

> greatly as I have gotten several happy letters saying it made their day.

>

> I am totally open to anything that will make that exciting concept work.

>

> tatezi@... writes:

>

> << But how will that hall of fame help people find hope in their battle

when

>

> people who are non responders are not allowed to join the group. That's my

>

> question and that's my objection to a group like this.>>

>

> I think its fine for people in all walks to Join... but the posting

should

> just be for the success stories... I think? Or maybe not? I am open.

>

> What do you think?

> Thanks for brainstorming this with me.

> Anita

>

>

> Anyway, I don't think that a

>

> > hall of fame for people who respond to treatment is a bad idea at

>

> > all. It's refreshing to see something positive rather than negative.

>

> > And there is no such thing as TOO much support!

>

> > Claudine

>

> > >>

>

>

>

>

[Guest guest]

Hummm...

I think you are making this harder than it really needs to be.

Let's look at any hall of fame.

Gromans Chinese theater where the stars who have obtained a status are

put into a permanent star in the side walk.

The grammys.

The s.

You ask....

<< How can it help non responders if it is only open to those who are

sustained

responders and those who responded but relapsed? >>>

Not every movie star will get a star on the side walk, not every actor gets

a grammy, not every singer gets a number 1 hit....

But they all learn from the ones who have...

What in the world is having you get stuck in that I am excluding Non

responders? Everyone can join the site, everyone can read what others

did...so they can benifit from " Success Stories " coming their way to remind

them --THEY CAN DO IT..

AND IT IS BEING DONE!

Honey nobody is being excluded. Everyone can read the success stories. Only

the Sustained responders will post however, as I don't think we need another

dialog list. Private discussions are for list like this one. If there are

100 postings on that site, I want it to be 100 stories we can all learn from.

The good, the bad and the ugly of tx..

The pharm companys are gathering the data to tell us...

I also think, if thier are other sits dedicated to Hep C Free Stars that I

would like to link to them... as well...

Why are yo saying that the list would only welcome folks with successful tx

and that all others are not welcome, I never said that. Geeezzze.

YOU SAID...

>>

after reading your several posts, my take is that non-responders don't count

in this group>>

The most important people on this list IS THE NON RESPONDERS!!! They are the

ones who could probably benefit more than ANYONE from reading from real live

people a true account of how things went for them. Maybe there is a regime

that someone has followed that they are not aware of that may help.. Maybe

there is a new drug that helped someone, that may beneifit a persons

decisions about tx...

Maybe after reading the dilegence that some folks apply to finally reach SVR

(some as you know doing tx 3 and 4 + times ) will remind them not to give

up.

You are not reading things right honey.. You are set against it and I am not

exactly sure what your situation is...

But, I assure you... creating a Central House Of Data whereby important

roads of recovery are shared for all is nothing but a benefit to all.

Now, more than ever I am certain of it.

We all know not all list are for everyone... So, if you reading a bunch of

great news concerning peoples success stories which include Sustained Viral

Response stories, Relaps stories, and even sharinng stories about tx that

was NOT successful is not for you then so be it.

The success stories will be shared among those who have

responded and with those who need to hear the success to know that if

they keep fighting they too might eventually beat this dragon.

Good for you that by not ever hearing success stories would

sure make you want to keep fighting.

I would venture to say that most people who hear a success story or a few

hundred would be even more mentally prepared to keep on keeping on.

I agree that it will be quite comforting to know that those

who have responded graduate from a general support group to a " special "

group where non responders are of course allowed.

That is all I have been trying to say...

Warm regards,

Anita

> Hi,

>

> I just started the group so I imagine there will be things to work out

and I

> am open to suggestions. So your feedback is good.

>

> In our personal walk with tx and HCV we find a lack of GREAT FEEDBACK

about

> successful tx. My thoughts are that a general site, kind of a " Central

House

> of Data " of nothing but the good news of recovery does not exist. We are

> always thrilled about a success story in each of our groups but often the

> post get lost and one really has to search it out to find the the

sustained

> responders.

>

> The other thing we've noticed, is a lot of folks get " clear " and then go

> about their life away from our community. This may be a way to lasso the

> stories for all of us to be inspired by when we need to. I would like to

> send each person an electic card or placque and hopefully it can become

> something wonderful for each of us to strive for ...

>

> Becoming Undectable... and getting to finally be on this great list of

honor.

> Like a star on your forhead...

>

> For the folks that do tx a few times to get clear as examples may be the

shot

> in the arm that someone needs when they have perhaps not responded to a

> certain tx.. to keep going.

>

> Don't think it has to be a site of dialog, back and forth just a site of

> success. We can dialog on our own private choices of web sites like this

one

> or my other site. I don't know but I am open.. I think all sites should

> gather together and promote this Hall of Fame Idea....

>

> Inspiration, positive feedback, something to aspire to, something to help

non

> believers belive... Can't help but think it is a fabulous idea...

>

> How can it help? Just seeing the 3 that have already posted has helped

> greatly as I have gotten several happy letters saying it made their day.

>

> I am totally open to anything that will make that exciting concept work.

>

> tatezi@... writes:

>

> << But how will that hall of fame help people find hope in their battle

when

>

> people who are non responders are not allowed to join the group. That's my

>

> question and that's my objection to a group like this.>>

>

> I think its fine for people in all walks to Join... but the posting

should

> just be for the success stories... I think? Or maybe not? I am open.

>

> What do you think?

> Thanks for brainstorming this with me.

> Anita

>

>

> Anyway, I don't think that a

>

> > hall of fame for people who respond to treatment is a bad idea at

>

> > all. It's refreshing to see something positive rather than negative.

>

> > And there is no such thing as TOO much support!

>

> > Claudine

>

> > >>

>

>

>

>

[Guest guest]

Hi.It.s better if you join forces with us.I.am undetectible but I hve no need

of a hall of fame to brag about my slaying the dragon.My thoughts are with those

who are still fighting the dragon,they are the ones who should be in a hall of

fame and they need all the support and knowledge we can muster.All of these

things are readily avaiable in this group.So why another one?.If you join our

group you get a bonus,a free ticket for the statue of liberty.Willem.

Hep C Free Hall of Fame.. If you are

undectible...Let us know!!

ANNOUNCING A BRAND NEW WEB SITE!

HEP C FREE HALL OF FAME!

If you are UNDECTIBLE! Please take your spot at the the head of the

class...... check out our new web site!

HepCFreeHallOfFame

HepCFreeHallOfFame

It's A list for folks who have:

1. Responded and sustained

2. Redponded and relapsed

Go to boast of their success and

Go share -- should they relaps

A place where the rest of us can go cheer for those who have

Eliminated the " C " in them....!!! YAY!

PLEASE POST A PIC IN THE PHOTOS TOO!

CONGRATULATIONS!

You are our hero!

Knowledge is power...

Please take a moment and let others know things that have helped you Kill

your dragon...

THANKS

Anita and ~

Please distribute far and wide.... thanks so much!

Most Recent Messages View all Messages (1)

May 16 DAVIS SAPPER --UNDECTIBLE - APRIL 2003 - ddsap2525

Please take a moment and let others know things that have helped

you Kill your dragon!

[Guest guest]

Hi.It.s better if you join forces with us.I.am undetectible but I hve no need

of a hall of fame to brag about my slaying the dragon.My thoughts are with those

who are still fighting the dragon,they are the ones who should be in a hall of

fame and they need all the support and knowledge we can muster.All of these

things are readily avaiable in this group.So why another one?.If you join our

group you get a bonus,a free ticket for the statue of liberty.Willem.

Hep C Free Hall of Fame.. If you are

undectible...Let us know!!

ANNOUNCING A BRAND NEW WEB SITE!

HEP C FREE HALL OF FAME!

If you are UNDECTIBLE! Please take your spot at the the head of the

class...... check out our new web site!

HepCFreeHallOfFame

HepCFreeHallOfFame

It's A list for folks who have:

1. Responded and sustained

2. Redponded and relapsed

Go to boast of their success and

Go share -- should they relaps

A place where the rest of us can go cheer for those who have

Eliminated the " C " in them....!!! YAY!

PLEASE POST A PIC IN THE PHOTOS TOO!

CONGRATULATIONS!

You are our hero!

Knowledge is power...

Please take a moment and let others know things that have helped you Kill

your dragon...

THANKS

Anita and ~

Please distribute far and wide.... thanks so much!

Most Recent Messages View all Messages (1)

May 16 DAVIS SAPPER --UNDECTIBLE - APRIL 2003 - ddsap2525

Please take a moment and let others know things that have helped

you Kill your dragon!

[Guest guest]

Hi.It.s better if you join forces with us.I.am undetectible but I hve no need

of a hall of fame to brag about my slaying the dragon.My thoughts are with those

who are still fighting the dragon,they are the ones who should be in a hall of

fame and they need all the support and knowledge we can muster.All of these

things are readily avaiable in this group.So why another one?.If you join our

group you get a bonus,a free ticket for the statue of liberty.Willem.

Hep C Free Hall of Fame.. If you are

undectible...Let us know!!

ANNOUNCING A BRAND NEW WEB SITE!

HEP C FREE HALL OF FAME!

If you are UNDECTIBLE! Please take your spot at the the head of the

class...... check out our new web site!

HepCFreeHallOfFame

HepCFreeHallOfFame

It's A list for folks who have:

1. Responded and sustained

2. Redponded and relapsed

Go to boast of their success and

Go share -- should they relaps

A place where the rest of us can go cheer for those who have

Eliminated the " C " in them....!!! YAY!

PLEASE POST A PIC IN THE PHOTOS TOO!

CONGRATULATIONS!

You are our hero!

Knowledge is power...

Please take a moment and let others know things that have helped you Kill

your dragon...

THANKS

Anita and ~

Please distribute far and wide.... thanks so much!

Most Recent Messages View all Messages (1)

May 16 DAVIS SAPPER --UNDECTIBLE - APRIL 2003 - ddsap2525

Please take a moment and let others know things that have helped

you Kill your dragon!

[Guest guest]

Hi.It.s better if you join forces with us.I.am undetectible but I hve no need

of a hall of fame to brag about my slaying the dragon.My thoughts are with those

who are still fighting the dragon,they are the ones who should be in a hall of

fame and they need all the support and knowledge we can muster.All of these

things are readily avaiable in this group.So why another one?.If you join our

group you get a bonus,a free ticket for the statue of liberty.Willem.

Hep C Free Hall of Fame.. If you are

undectible...Let us know!!

ANNOUNCING A BRAND NEW WEB SITE!

HEP C FREE HALL OF FAME!

If you are UNDECTIBLE! Please take your spot at the the head of the

class...... check out our new web site!

HepCFreeHallOfFame

HepCFreeHallOfFame

It's A list for folks who have:

1. Responded and sustained

2. Redponded and relapsed

Go to boast of their success and

Go share -- should they relaps

A place where the rest of us can go cheer for those who have

Eliminated the " C " in them....!!! YAY!

PLEASE POST A PIC IN THE PHOTOS TOO!

CONGRATULATIONS!

You are our hero!

Knowledge is power...

Please take a moment and let others know things that have helped you Kill

your dragon...

THANKS

Anita and ~

Please distribute far and wide.... thanks so much!

Most Recent Messages View all Messages (1)

May 16 DAVIS SAPPER --UNDECTIBLE - APRIL 2003 - ddsap2525

Please take a moment and let others know things that have helped

you Kill your dragon!

[Guest guest]

In a message dated 5/17/03 7:01:01 PM, greglnewman@... writes:

<< I agree it's important to have one over-arching group to keep us all

united responders, nonresponders and non-treated/in treatment etc etc. We

don't want anyone to lose good information due to any reason. >>

Yes Greg, I agree as well... The Hep C Free Hall of Fame in not about taking

away any support.. AT ALL..

Just offering a collection of stories from people who are where we all wanna

be.

Hep C Free...

Regards,

Anita