Re: STOPPING TREATMENT

[Guest guest]

Lora I can understand how you feel. It's the pits. I

found the best thing to do is just cry yourself out,

go to bed, and then the next day is not so hard to

contend with, sometimes. Or, you could go somewhere,

like the Mall and look for Happy People.....then go

kick them or beat them up, if you want to. Beat that

smile right off their faces. Hey, you deserve

it....smile, hope you feel better soon.....Connie

--- Lorad8@... wrote:

> I guess I am not the only one who has not been on

> this week. It has been a

> rough one for me, mentally. I had my 1-month

> bloodwork done on Monday. Got

> a call Tuesday morning to stop taking Ribavirin. (I

> had not started the FULL

> dose yet, was only taking two a day because of

> hemoglobin). Apparently this

> week, my hemoglobin has dropped to 8. Not only

> that, but, my clotting time

> was also way off, I take a blood thinner, and the

> blood was very thin--INR

> was 4.4. So, can't even take my blood thinner

> medicine. AND---I have to

> have a endoscopy and colonoscopy done on October 25

> to look for internal

> bleeding.

> The story continues....today I got a call from Dr's

> nurse. " Stop ALL

> treatment. " Dr. is very concerned about the 8

> hemoglobin and INR. So, I did

> the only thing I could think of. I started crying,

> and through my tears, I

> am reaching out to you all. As I am typing this I

> am trying to think of

> humorous things. The nurse told me that aside from

> all the above, my " liver

> counts are GREAT! " Well, isn't that the purpose of

> the treatment?

> I have also received three calls from the high

> school today regarding my 16

> year old. Although they think he is a good kid, his

> grades are slipping. I

> finally decided to call the high school to let them

> know what is going on at

> home. Hopefully that will keep my son from falling

> through a crack. It was

> extremely difficult to stop from crying while

> talking to the shcool. How

> come I can't keep it together?

> The nurse told me that I still need to comein for

> blood work next week.

> After the " scopes " the Dr will decide if/when I can

> resume treatment.

> FRUSTRATING!!!

> I am going to go take a nap now. It is a bit ironic

> that the medication had

> not made me depressed, but the DR. is! LOL .

> I know this is all part of a big game plan and it

> will all work out somehow

> in the end. Wish I had a crystal ball.

> Trying to stay positive, through the tears.

> Lora

>

__________________________________________________

[Guest guest]

Lora I can understand how you feel. It's the pits. I

found the best thing to do is just cry yourself out,

go to bed, and then the next day is not so hard to

contend with, sometimes. Or, you could go somewhere,

like the Mall and look for Happy People.....then go

kick them or beat them up, if you want to. Beat that

smile right off their faces. Hey, you deserve

it....smile, hope you feel better soon.....Connie

--- Lorad8@... wrote:

> I guess I am not the only one who has not been on

> this week. It has been a

> rough one for me, mentally. I had my 1-month

> bloodwork done on Monday. Got

> a call Tuesday morning to stop taking Ribavirin. (I

> had not started the FULL

> dose yet, was only taking two a day because of

> hemoglobin). Apparently this

> week, my hemoglobin has dropped to 8. Not only

> that, but, my clotting time

> was also way off, I take a blood thinner, and the

> blood was very thin--INR

> was 4.4. So, can't even take my blood thinner

> medicine. AND---I have to

> have a endoscopy and colonoscopy done on October 25

> to look for internal

> bleeding.

> The story continues....today I got a call from Dr's

> nurse. " Stop ALL

> treatment. " Dr. is very concerned about the 8

> hemoglobin and INR. So, I did

> the only thing I could think of. I started crying,

> and through my tears, I

> am reaching out to you all. As I am typing this I

> am trying to think of

> humorous things. The nurse told me that aside from

> all the above, my " liver

> counts are GREAT! " Well, isn't that the purpose of

> the treatment?

> I have also received three calls from the high

> school today regarding my 16

> year old. Although they think he is a good kid, his

> grades are slipping. I

> finally decided to call the high school to let them

> know what is going on at

> home. Hopefully that will keep my son from falling

> through a crack. It was

> extremely difficult to stop from crying while

> talking to the shcool. How

> come I can't keep it together?

> The nurse told me that I still need to comein for

> blood work next week.

> After the " scopes " the Dr will decide if/when I can

> resume treatment.

> FRUSTRATING!!!

> I am going to go take a nap now. It is a bit ironic

> that the medication had

> not made me depressed, but the DR. is! LOL .

> I know this is all part of a big game plan and it

> will all work out somehow

> in the end. Wish I had a crystal ball.

> Trying to stay positive, through the tears.

> Lora

>

__________________________________________________

[Guest guest]

Lora I can understand how you feel. It's the pits. I

found the best thing to do is just cry yourself out,

go to bed, and then the next day is not so hard to

contend with, sometimes. Or, you could go somewhere,

like the Mall and look for Happy People.....then go

kick them or beat them up, if you want to. Beat that

smile right off their faces. Hey, you deserve

it....smile, hope you feel better soon.....Connie

--- Lorad8@... wrote:

> I guess I am not the only one who has not been on

> this week. It has been a

> rough one for me, mentally. I had my 1-month

> bloodwork done on Monday. Got

> a call Tuesday morning to stop taking Ribavirin. (I

> had not started the FULL

> dose yet, was only taking two a day because of

> hemoglobin). Apparently this

> week, my hemoglobin has dropped to 8. Not only

> that, but, my clotting time

> was also way off, I take a blood thinner, and the

> blood was very thin--INR

> was 4.4. So, can't even take my blood thinner

> medicine. AND---I have to

> have a endoscopy and colonoscopy done on October 25

> to look for internal

> bleeding.

> The story continues....today I got a call from Dr's

> nurse. " Stop ALL

> treatment. " Dr. is very concerned about the 8

> hemoglobin and INR. So, I did

> the only thing I could think of. I started crying,

> and through my tears, I

> am reaching out to you all. As I am typing this I

> am trying to think of

> humorous things. The nurse told me that aside from

> all the above, my " liver

> counts are GREAT! " Well, isn't that the purpose of

> the treatment?

> I have also received three calls from the high

> school today regarding my 16

> year old. Although they think he is a good kid, his

> grades are slipping. I

> finally decided to call the high school to let them

> know what is going on at

> home. Hopefully that will keep my son from falling

> through a crack. It was

> extremely difficult to stop from crying while

> talking to the shcool. How

> come I can't keep it together?

> The nurse told me that I still need to comein for

> blood work next week.

> After the " scopes " the Dr will decide if/when I can

> resume treatment.

> FRUSTRATING!!!

> I am going to go take a nap now. It is a bit ironic

> that the medication had

> not made me depressed, but the DR. is! LOL .

> I know this is all part of a big game plan and it

> will all work out somehow

> in the end. Wish I had a crystal ball.

> Trying to stay positive, through the tears.

> Lora

>

__________________________________________________

[Guest guest]

Lora I can understand how you feel. It's the pits. I

found the best thing to do is just cry yourself out,

go to bed, and then the next day is not so hard to

contend with, sometimes. Or, you could go somewhere,

like the Mall and look for Happy People.....then go

kick them or beat them up, if you want to. Beat that

smile right off their faces. Hey, you deserve

it....smile, hope you feel better soon.....Connie

--- Lorad8@... wrote:

> I guess I am not the only one who has not been on

> this week. It has been a

> rough one for me, mentally. I had my 1-month

> bloodwork done on Monday. Got

> a call Tuesday morning to stop taking Ribavirin. (I

> had not started the FULL

> dose yet, was only taking two a day because of

> hemoglobin). Apparently this

> week, my hemoglobin has dropped to 8. Not only

> that, but, my clotting time

> was also way off, I take a blood thinner, and the

> blood was very thin--INR

> was 4.4. So, can't even take my blood thinner

> medicine. AND---I have to

> have a endoscopy and colonoscopy done on October 25

> to look for internal

> bleeding.

> The story continues....today I got a call from Dr's

> nurse. " Stop ALL

> treatment. " Dr. is very concerned about the 8

> hemoglobin and INR. So, I did

> the only thing I could think of. I started crying,

> and through my tears, I

> am reaching out to you all. As I am typing this I

> am trying to think of

> humorous things. The nurse told me that aside from

> all the above, my " liver

> counts are GREAT! " Well, isn't that the purpose of

> the treatment?

> I have also received three calls from the high

> school today regarding my 16

> year old. Although they think he is a good kid, his

> grades are slipping. I

> finally decided to call the high school to let them

> know what is going on at

> home. Hopefully that will keep my son from falling

> through a crack. It was

> extremely difficult to stop from crying while

> talking to the shcool. How

> come I can't keep it together?

> The nurse told me that I still need to comein for

> blood work next week.

> After the " scopes " the Dr will decide if/when I can

> resume treatment.

> FRUSTRATING!!!

> I am going to go take a nap now. It is a bit ironic

> that the medication had

> not made me depressed, but the DR. is! LOL .

> I know this is all part of a big game plan and it

> will all work out somehow

> in the end. Wish I had a crystal ball.

> Trying to stay positive, through the tears.

> Lora

>

__________________________________________________

[Guest guest]

Dear Lora,

I'm sorry to hear things don't seem to be working

out for you! Well, maybe it would be better to find

out why your hemoglobin was so low to start with,

first, take care of that, and then you can concentrate

on treating the hepatitis.

I wonder if the blood thinner you were taking

could have been causing some internal bleeding

somewhere? Hopefully they will find the answer when

they do those tests, and no other testing will be

needed. Good luck!

Claudine

__________________________________________________

[Guest guest]

Lora

Hang in there girl. I wish you were not having to wait until Oct 25th to

have your tests done. You have had a set back like most people here on the

list end up having at one time or another and it is frustrating and scary

when other things start to go wrong but you have to find out what is going on

with the rest of your body to. It seems like whenever my husband is having

an especially hard time on the Combo treatment other things pop up to that

just add to it and when he is feeling half way decent nothing goes wrong to

add to it. Funny how that works isn't it? I bet your son will come around.

Its hard on the whole family when this disease hits a loved one and weighs

hard on them to. A good cry is not bad and helps sometimes to. Try to stay

positive and we are here for you remember that please. Wish I was closer so

I could help you more. Your in our prayers and your family to.

Winne

[Guest guest]

Lora,

I am so sorry to hear that they want you to stop treatment, but it is

really not a surprize since your hgb was so low before you even started,

it almost always goes down, that doesn't make it any easier for yu when

you decided to start the treatment , but there is a reason for everything

we just can not see the bigger picture all the time, not good that your

blood is so thin hope the scopes turn out okay but then you have a while

to dwell on that hopefully they will find something which would explain

your low counts.

I am sorry your child is taking it so hard also, I willl pray for both

of you and your whole family.

Myabe the crying is going around i was like that too for a couple days, At

any rate hang in there we are all with you and just let us know if there

is anything we can do

Suzy

From: Lorad8@...

Reply-Hepatitis Cegroups

Hepatitis Cegroups

Subject: STOPPING TREATMENT

Date: Thu, 5 Oct 2000 15:27:50 EDT

I guess I am not the only one who has not been on this week. It has been a

rough one for me, mentally. I had my 1-month bloodwork done on Monday. Got

a call Tuesday morning to stop taking Ribavirin. (I had not started the

FULL

dose yet, was only taking two a day because of hemoglobin). Apparently this

week, my hemoglobin has dropped to 8. Not only that, but, my clotting time

was also way off, I take a blood thinner, and the blood was very thin--INR

was 4.4. So, can't even take my blood thinner medicine. AND---I have to

have a endoscopy and colonoscopy done on October 25 to look for internal

bleeding.

The story continues....today I got a call from Dr's nurse. " Stop ALL

treatment. " Dr. is very concerned about the 8 hemoglobin and INR. So, I

did

the only thing I could think of. I started crying, and through my tears, I

am reaching out to you all. As I am typing this I am trying to think of

humorous things. The nurse told me that aside from all the above, my " liver

counts are GREAT! " Well, isn't that the purpose of the treatment?

I have also received three calls from the high school today regarding my 16

year old. Although they think he is a good kid, his grades are slipping. I

finally decided to call the high school to let them know what is going on at

home. Hopefully that will keep my son from falling through a crack. It was

extremely difficult to stop from crying while talking to the shcool. How

come I can't keep it together?

The nurse told me that I still need to comein for blood work next week.

After the " scopes " the Dr will decide if/when I can resume treatment.

FRUSTRATING!!!

I am going to go take a nap now. It is a bit ironic that the medication had

not made me depressed, but the DR. is! LOL .

I know this is all part of a big game plan and it will all work out somehow

in the end. Wish I had a crystal ball.

Trying to stay positive, through the tears.

Lora

_________________________________________________________________________

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[Guest guest]

LOL Connie. Thanks for the smile.

Lora

[Guest guest]

LOL Connie. Thanks for the smile.

Lora

[Guest guest]

You are right Claudine.

I will keep you posted.

Lora

[Guest guest]

You are right Claudine.

I will keep you posted.

Lora

[Guest guest]

You are right Claudine.

I will keep you posted.

Lora

[Guest guest]

You are right Claudine.

I will keep you posted.

Lora

[Guest guest]

Winnie,

What a sweetie you are . I hope your husband is making it through the damp

weather. It is soooo nice to have this list so that we can vent and feel

that people really understand.

This has been a rough week, but I intend to get on with it, start working out

again, and do positive things until October 25.

Thanks again.

Hugs to you hubbie

Lora

[Guest guest]

Winnie,

What a sweetie you are . I hope your husband is making it through the damp

weather. It is soooo nice to have this list so that we can vent and feel

that people really understand.

This has been a rough week, but I intend to get on with it, start working out

again, and do positive things until October 25.

Thanks again.

Hugs to you hubbie

Lora

[Guest guest]

I agree 100% that there is usually a BIG picture. It is just that sometimes

I wish I knew what the BIG picture was

I think I really needed a good cry! I cried for three days, and now feel

like fighting more than I did before. I had a good talk with my son, gave

him names and phone numbers ( counselors, priest, teacher) of people who are

there for him, and assured him that no matter how I fell, I will ALWAYS be

there for him. He gave me a hug AND A KISS!!!!!! And of course, then I

started Crying again! It was tears of joy this time though , and my son

knew it. I truely believe that my children are going to get me through this

more than any anti-depressant will.

Again, thanks for the good wishes.

Lora

[Guest guest]

I agree 100% that there is usually a BIG picture. It is just that sometimes

I wish I knew what the BIG picture was

I think I really needed a good cry! I cried for three days, and now feel

like fighting more than I did before. I had a good talk with my son, gave

him names and phone numbers ( counselors, priest, teacher) of people who are

there for him, and assured him that no matter how I fell, I will ALWAYS be

there for him. He gave me a hug AND A KISS!!!!!! And of course, then I

started Crying again! It was tears of joy this time though , and my son

knew it. I truely believe that my children are going to get me through this

more than any anti-depressant will.

Again, thanks for the good wishes.

Lora

[Guest guest]

Connie,

What kind of friends would we be if you can't tell us what happened? Hope

all is OK.

My mom told me that she was awakened at 6:00am yesterday morning to the sound

of someone happily whisteling in her house. We decided that it was my

deceased father checking up on her and glad that she is doing well.

Go with it!

Lora

[Guest guest]

Connie,

That is sooo cool about your teeth. Think of all the $$ you saved AND to

have them healed up so nicely. Again, Not to be weird, but I beleive that

SOMEONE is watching over us. I have no clue about the smells--too bad it

could not be PLEASANT odors:) It sounds TO ME that you are loved by SOMEONE

in heaven. Thank you soo much for sharing. NO I do NOT think you are

crazy....I believe that you are LOVED.

Staying positive,

Lora

[Guest guest]

I wonder also what the big pic is too. And why am I

in it. Something happened to me the other night and

if I told you I would be visited by the people in

white with a straitjacket in my size. I still can not

figure it out....... Smile, Connie

--- Lorad8@... wrote:

> I agree 100% that there is usually a BIG picture.

> It is just that sometimes

> I wish I knew what the BIG picture was

> I think I really needed a good cry! I cried for

> three days, and now feel

> like fighting more than I did before. I had a good

> talk with my son, gave

> him names and phone numbers ( counselors, priest,

> teacher) of people who are

> there for him, and assured him that no matter how I

> fell, I will ALWAYS be

> there for him. He gave me a hug AND A KISS!!!!!!

> And of course, then I

> started Crying again! It was tears of joy this

> time though , and my son

> knew it. I truely believe that my children are

> going to get me through this

> more than any anti-depressant will.

> Again, thanks for the good wishes.

> Lora

>

__________________________________________________

[Guest guest]

Well, you are really going to think I have lost it,

TOTALLY. I woke up the other morning and when I went

to brush my teeth. I was missing 2 teeth that I know

was there the night before when you floss you notice

that teeth are there. Everyone that has seen my gum

say maybe I swallowed them. That is not what weirded

me out. They were two teeth that had gone bad. I can

not have dental work because of my bleeding time.

What is really strange is my gum is healed no sign of

anything. It is fused together like they were pulled

and healed...see I told you it sounds really crazy,

also this apt.,that I am in. Has done a few other

crazy things. Odors coming from nowhere..one is an

oder of fresh onions being cut, the other is the odor

of cat urine. No, I do not have a cat, they make me

itch. I am not alone in smelling the odors, my

Daughter has smelled them also. The cat odor we were

talking and the both of us smelled it.

I almost forgot this one....cabinet doors will be open

in the kitchen...............Connie

--- Lorad8@... wrote:

> Connie,

> What kind of friends would we be if you can't tell

> us what happened? Hope

> all is OK.

> My mom told me that she was awakened at 6:00am

> yesterday morning to the sound

> of someone happily whisteling in her house. We

> decided that it was my

> deceased father checking up on her and glad that she

> is doing well.

> Go with it!

> Lora

>

__________________________________________________

[Guest guest]

try charging folks $10 a time for guided tours of your haunted apartment!!

lol lov e sylv

Re: STOPPING TREATMENT

> Well, you are really going to think I have lost it,

> TOTALLY. I woke up the other morning and when I went

> to brush my teeth. I was missing 2 teeth that I know

> was there the night before when you floss you notice

> that teeth are there. Everyone that has seen my gum

> say maybe I swallowed them. That is not what weirded

> me out. They were two teeth that had gone bad. I can

> not have dental work because of my bleeding time.

> What is really strange is my gum is healed no sign of

> anything. It is fused together like they were pulled

> and healed...see I told you it sounds really crazy,

> also this apt.,that I am in. Has done a few other

> crazy things. Odors coming from nowhere..one is an

> oder of fresh onions being cut, the other is the odor

> of cat urine. No, I do not have a cat, they make me

> itch. I am not alone in smelling the odors, my

> Daughter has smelled them also. The cat odor we were

> talking and the both of us smelled it.

> I almost forgot this one....cabinet doors will be open

> in the kitchen...............Connie

> --- Lorad8@... wrote:

> > Connie,

> > What kind of friends would we be if you can't tell

> > us what happened? Hope

> > all is OK.

> > My mom told me that she was awakened at 6:00am

> > yesterday morning to the sound

> > of someone happily whisteling in her house. We

> > decided that it was my

> > deceased father checking up on her and glad that she

> > is doing well.

> > Go with it!

> > Lora

> >

>

>

>

> __________________________________________________

>

[Guest guest]

Now that you say that it makes me think. My Father

loved cats. But he did not smell like Cat

urine..lol.. My whole, family, Mother, Father,

Grandparents, Aunts and Uncles, have passed away.

I do not know what to think of the Onion odor.

Something else happened at this a aprtment that I only

saw and heard. It was from outside in the front. It

was a big flash and the sound of an elecrtical

transformer burn out. There is no transformer

anywhere near there. People outside did not hear or

see it. It was bright enough that the walls lit up

from it.

My Mother was into the pyshic stuff. When I was a

baby someone told her that I had the gift of being

pyshic, but I would have to develop it. I will get

some things like lotto #'s and stuff. But they will

not come to me if I try it is just something that

happens. Also, will flash on things. For instance,

when my son was a baby I was drivng to his swimming

lessons and in my mind I saw him fall out the door. I

stopped and looked and the door was not shut by his

carseat.....so I am weird lol......Take Care, Connie

--- Lorad8@... wrote:

> Connie,

> That is sooo cool about your teeth. Think of all the

> $$ you saved AND to

> have them healed up so nicely. Again, Not to be

> weird, but I beleive that

> SOMEONE is watching over us. I have no clue about

> the smells--too bad it

> could not be PLEASANT odors:) It sounds TO ME that

> you are loved by SOMEONE

> in heaven. Thank you soo much for sharing. NO I do

> NOT think you are

> crazy....I believe that you are LOVED.

> Staying positive,

> Lora

>

__________________________________________________

[Guest guest]

Dear Connie,

The tooth thing is strange. But your apartment isn't. My house is haunted,

too. By the man who built it. Some really weird things have happened. Like

lit candles that we didn't light, etc. I had a long talk with (the

ghost) about that one. Explaining that if I didn't know the candles were

lit, he might burn the house down.

We have a Ghost Walk here on Halloween and we do charge. If you have same,

put your house on it.

Anne

[Guest guest]

Cool, I would like to see it. I have always seemed to

find haunted places to live. My parents home former

in La Jolla was haunted. Our former home in St Pete,

FL when I was little and growing up, my bedroom no

matter what the temp outside was, it was 50 degrees.

So I am kind of use to it and pay no attention, it

does not scare me. I also used dreams and feelings,

that I had to identify a murderer of a Mother and two

Daughters he is where he belongs now on Death Row in

Raiford FL...Connie

PS Now EVERYONE is going to think I am NUTS...Smile

--- AVansi7465@... wrote:

> Dear Connie,

> The tooth thing is strange. But your apartment

> isn't. My house is haunted,

> too. By the man who built it. Some really weird

> things have happened. Like

> lit candles that we didn't light, etc. I had a long

> talk with (the

> ghost) about that one. Explaining that if I didn't

> know the candles were

> lit, he might burn the house down.

> We have a Ghost Walk here on Halloween and we do

> charge. If you have same,

> put your house on it.

> Anne

>

__________________________________________________