Guest guest Posted April 23, 2000 Report Share Posted April 23, 2000 Virginia... I'm glad you are working on your books! Since I've returned to work full time, I've not gotten any writing done. I have 3 fantasy/romance books in work. One I need to finish and polish up this year if I can. I don't push myself cause I know how I am. I could write all nite and then be too exhausted to go to work and I need the money and the insurance right now to work on this hep. Eventually our plan, hubby's and mine, is for me to quit work, prolly on disability, and write full time (as full time as a hepper can). No use in trying to do that now. Besides the money and insurance issues, my daughter, her husband and their two babies live with us and being home is NOT restful. Keep us informed! alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2000 Report Share Posted April 23, 2000 Virginia... I'm glad you are working on your books! Since I've returned to work full time, I've not gotten any writing done. I have 3 fantasy/romance books in work. One I need to finish and polish up this year if I can. I don't push myself cause I know how I am. I could write all nite and then be too exhausted to go to work and I need the money and the insurance right now to work on this hep. Eventually our plan, hubby's and mine, is for me to quit work, prolly on disability, and write full time (as full time as a hepper can). No use in trying to do that now. Besides the money and insurance issues, my daughter, her husband and their two babies live with us and being home is NOT restful. Keep us informed! alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2000 Report Share Posted July 22, 2000 Hi Alley! it's called 'Duragesic' patch. I believe it is timed release Fentanyl. My doc didn't want to try that on me. He wrote for Oxycontin instead. that is also a narcotic pain reliever (oral) that I will only take at night. it lasts (or is suppose to last..) 12 hours. It DID help me sleep better, altho' I took it much too late. I too, have tried my shots at different times...it always turns out to have the same effect at night. I hae yet to try any in the early afternoon. The earliest I've done a shot is 3:00. I'm done for this week (thank GOD!) and I know I can look forward to feeling better on Sunday and Monday. YAY!!!!!!!!!! ) I seem to be able to deal with the fatigue (so what else is new?) and I have just really started feeling nauseous (moreso than b/4 Tx) the past couple of days...but I can also deal with that. I hope you are still feeling well.........please let me know. God Bless, gee " We can do no great things; only small things with great Love. " Mother Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2000 Report Share Posted July 22, 2000 Hi Alley! it's called 'Duragesic' patch. I believe it is timed release Fentanyl. My doc didn't want to try that on me. He wrote for Oxycontin instead. that is also a narcotic pain reliever (oral) that I will only take at night. it lasts (or is suppose to last..) 12 hours. It DID help me sleep better, altho' I took it much too late. I too, have tried my shots at different times...it always turns out to have the same effect at night. I hae yet to try any in the early afternoon. The earliest I've done a shot is 3:00. I'm done for this week (thank GOD!) and I know I can look forward to feeling better on Sunday and Monday. YAY!!!!!!!!!! ) I seem to be able to deal with the fatigue (so what else is new?) and I have just really started feeling nauseous (moreso than b/4 Tx) the past couple of days...but I can also deal with that. I hope you are still feeling well.........please let me know. God Bless, gee " We can do no great things; only small things with great Love. " Mother Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 I've never actually checked this place out myself, but maybe you could and let us know how it works. I bet by the time 'paperwork' is done though your husband's insurance will be in effect! Accessing Free Medication - The Patient's Advocate < TARGET= " _blank " >http://www.themedicineprogram.com/> " This organization was established by volunteers dedicated to alleviating the plight of an ever increasing number of patients who cannot afford their prescription medication. " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 I've never actually checked this place out myself, but maybe you could and let us know how it works. I bet by the time 'paperwork' is done though your husband's insurance will be in effect! Accessing Free Medication - The Patient's Advocate < TARGET= " _blank " >http://www.themedicineprogram.com/> " This organization was established by volunteers dedicated to alleviating the plight of an ever increasing number of patients who cannot afford their prescription medication. " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 Connie ok I will check them out thanks, sorry just now getting to some old email Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 Connie ok I will check them out thanks, sorry just now getting to some old email Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 thanks for the free med thing, but too late now, hubby has insurnace thru his company oh well! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2001 Report Share Posted June 20, 2001 thanks for the free med thing, but too late now, hubby has insurnace thru his company oh well! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 He gril (as we used to say)!!!!!!!!!! Thoughts and prayers are with you. Get a good nights sleep. Daivd says it's great fun.........until the pain meds wear off. I'd just as soon take his word for it. LOL, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 He gril (as we used to say)!!!!!!!!!! Thoughts and prayers are with you. Get a good nights sleep. Daivd says it's great fun.........until the pain meds wear off. I'd just as soon take his word for it. LOL, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 Yep me too, Good Luck Alley and I hope it doesn't hurt much. You have been through so much Take Care, Connie Daivd says it's > great fun.........until the pain meds wear off. I'd > just as soon take his > word for it. > LOL, > Anne > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2001 Report Share Posted November 6, 2001 Yep me too, Good Luck Alley and I hope it doesn't hurt much. You have been through so much Take Care, Connie Daivd says it's > great fun.........until the pain meds wear off. I'd > just as soon take his > word for it. > LOL, > Anne > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2002 Report Share Posted April 8, 2002 Hi Alley, Thanks for the big hug. It is really different being the patient. I am so used to be the care giver that it is hard to let others do for me. :-)) I am slowly healing...the ortho doc is happy with my progress and all 3 doctors are working together !! The big mystery is why my leg broke. No one can find the cause. One of the great mysteries of life...LOL I will be turning 55 next month and I plan on using every little SENIOR discount that I can get ...hahaha hugs, Judy http://community.webtv.net/jcmmo/Affirmation Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 Exactamundo Alley. You stated that properly. Went to GI Doc, Canada has approved the peg....BUT, not the funding....the government won't pay for it, at least not yet. Dr. said if I had $50,000 to pay for it, he could write me a prescription right now. So the government decides who lives and dies? Not right. Not at all. Oh yeah, we don't do viral loads in Canada anymore either....guess it was too costly. Now my only option is getting on a serious sedative from my pcDoc, then try the standard combo again and see if it helps the speedy sides. Dr. did say that feeling like I was on speed is definitely not a normal side effect. I'm not a happy camper today :-( Hugggggs Carol wrote: > , true, but then we aren't turned down for specialists and if > we ask > for treatment we get it, etc (if we have insurance that is). If I > lived in > Canada, my normal liver enzymes wouldn't have even warranted a biopsy > or > genotype, maybe not even a viral load, much less treatment. From what > I > hear, a lot of Canadian doctors give no options for treatment, because > the > gov controls the restrictions. And the last thing I want in my life > is the > gov controlling what meds I can or can't have. That'd be worse than > HMO. > > I don't mean to pick on Canada. It's just the people I know are from > there. > > alley > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 Exactamundo Alley. You stated that properly. Went to GI Doc, Canada has approved the peg....BUT, not the funding....the government won't pay for it, at least not yet. Dr. said if I had $50,000 to pay for it, he could write me a prescription right now. So the government decides who lives and dies? Not right. Not at all. Oh yeah, we don't do viral loads in Canada anymore either....guess it was too costly. Now my only option is getting on a serious sedative from my pcDoc, then try the standard combo again and see if it helps the speedy sides. Dr. did say that feeling like I was on speed is definitely not a normal side effect. I'm not a happy camper today :-( Hugggggs Carol wrote: > , true, but then we aren't turned down for specialists and if > we ask > for treatment we get it, etc (if we have insurance that is). If I > lived in > Canada, my normal liver enzymes wouldn't have even warranted a biopsy > or > genotype, maybe not even a viral load, much less treatment. From what > I > hear, a lot of Canadian doctors give no options for treatment, because > the > gov controls the restrictions. And the last thing I want in my life > is the > gov controlling what meds I can or can't have. That'd be worse than > HMO. > > I don't mean to pick on Canada. It's just the people I know are from > there. > > alley > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 I have a friend in Canada who has a rough time with their medical care also. She's not a hepper but has serious candida. I'm pro socialized medicine but I think that it needs a lot of improvement. But at the same time, I believe that every person should have the right to some form of medical care...it should not be a privilege that only those with money or insurance can have. I think, and Willem will need to confirm this, that Holland has worked out the kinks in socialized medicine. My friend from Holland who lives here now, has never had a bad word to say about their medical program. But Canada has a lot of problems with their socialized medicine and I don't know why they can't get it worked out. blessings Tatezi Carol wrote: > Exactamundo Alley. You stated that properly. Went to GI Doc, Canada > > has approved the peg....BUT, not the funding....the government won't > pay > for it, at least not yet. Dr. said if I had $50,000 to pay for it, he > > could write me a prescription right now. So the government decides > who > lives and dies? Not right. Not at all. > > Oh yeah, we don't do viral loads in Canada anymore either....guess it > was too costly. Now my only option is getting on a serious sedative > from my pcDoc, then try the standard combo again and see if it helps > the > speedy sides. Dr. did say that feeling like I was on speed is > definitely not a normal side effect. I'm not a happy camper today :-( > > Hugggggs > Carol > > wrote: > > > , true, but then we aren't turned down for specialists and > if > > we ask > > for treatment we get it, etc (if we have insurance that is). If I > > lived in > > Canada, my normal liver enzymes wouldn't have even warranted a > biopsy > > or > > genotype, maybe not even a viral load, much less treatment. From > what > > I > > hear, a lot of Canadian doctors give no options for treatment, > because > > the > > gov controls the restrictions. And the last thing I want in my life > > > is the > > gov controlling what meds I can or can't have. That'd be worse than > > > HMO. > > > > I don't mean to pick on Canada. It's just the people I know are from > > > there. > > > > alley > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2003 Report Share Posted September 25, 2003 Hi Alley....your first paragraph is exactly what I'd like to know too. I even mentioned it to the GI doc about my level going down could mean this, and he agreed that a person could have normal enzymes and still be end stage. So damned if I know what's going on....I'm just a grain of sand on the beach (a larger grain, but a grain). I understand what you're saying about Overeaters Anon. I attended one meeting years ago with a friend and had to stifle my laughter....it was just so petty. When compared to AA where people battle a disease, where you can hear gut wrenching stories about someone who ran over their child while drinking and driving, to wondering if she ate too much at lunch, I just couldn't take it anymore and went outside and lmao. First and last meeting. Huggggs Carol Re: RE: I'm giving up too / Carol Ah well Carol, that explains it. Sorry I didnt remember. However, I have read that people with cirrhosis and even end stage liver disease will have normal liver enzymes because there are no more liver cells to kill (oversimplification but at 2am it'll do, you know what I mean . So, if that is your case, what do they base no treatment on then? How do they know? (curious) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 Carol, If you can possibly afford it, why not get a liver biopsy and find out, if just for your own knowledge, what is going on. At least that way you know what you are up against, and if it's time to take drastic measures, like moving to another country, or whatever it takes. Don't ever give up the fight against this dragon! Re: Alley Hi Alley....your first paragraph is exactly what I'd like to know too. I even mentioned it to the GI doc about my level going down could mean this, and he agreed that a person could have normal enzymes and still be end stage. So damned if I know what's going on....I'm just a grain of sand on the beach (a larger grain, but a grain). Carol Ah well Carol, that explains it. Sorry I didnt remember. However, I have read that people with cirrhosis and even end stage liver disease will have normal liver enzymes because there are no more liver cells to kill (oversimplification but at 2am it'll do, you know what I mean . So, if that is your case, what do they base no treatment on then? How do they know? (curious) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2003 Report Share Posted September 26, 2003 Carol, If you can possibly afford it, why not get a liver biopsy and find out, if just for your own knowledge, what is going on. At least that way you know what you are up against, and if it's time to take drastic measures, like moving to another country, or whatever it takes. Don't ever give up the fight against this dragon! Re: Alley Hi Alley....your first paragraph is exactly what I'd like to know too. I even mentioned it to the GI doc about my level going down could mean this, and he agreed that a person could have normal enzymes and still be end stage. So damned if I know what's going on....I'm just a grain of sand on the beach (a larger grain, but a grain). Carol Ah well Carol, that explains it. Sorry I didnt remember. However, I have read that people with cirrhosis and even end stage liver disease will have normal liver enzymes because there are no more liver cells to kill (oversimplification but at 2am it'll do, you know what I mean . So, if that is your case, what do they base no treatment on then? How do they know? (curious) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 Happy Easter Alley and everyone....glad you saw the hockey game...Dallas plays our team, the Vancouver Canucks...I guess we'll be cheering for different teams lol. Carol in Vancouver, Canada Hubby and I attended the Dallas Stars hockey game today and we won! (we've already lost our division title, but are in the playoffs, yipppeeee) Have a great Sunday yall! Alley www.geocities.com/dfwhcv www.alleypat.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2007 Report Share Posted April 10, 2007 <<Dallas plays our team, the Vancouver Canucks>> Cool Carol!!! I wish I could attend the Vancouver games! But we have our playoff tickets for the home games. I'm crossing my fingers!!! Good luck to us both! Hockey Alley Quote Link to comment Share on other sites More sharing options...
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