Re: I start Tx next month :)

[Guest guest]

Treatment is a must.

[Guest guest]

Treatment is a must.

[Guest guest]

Treatment is a must.

[Guest guest]

Treatment is a must.

[Guest guest]

Hello everyone:

I had my esophagoscopy/gastroscopy on Friday the 4th. It turns out I do have

Varices. The doctor also mentioned he did the procedure because I have

extensive Liver Damage. I saw some of the pictures and those varices look big

to me but I don't know how bad this is considered. The Doc put me on a

medication called Propranolol HCL 10 mg. I am to take one every 12 hrs. for

two weeks and then he wants to see me to monitor my blood pressure because

this medication tends to lower blood pressure and this is one of the normal

parts of me, I usually do not have high BP. So now the only thing I need is

to push for getting treated. I need to contact the Commitment to care program

at Schering-Plow I can't afford the medication for treatment. Being 3A I

guess I need it badly. Thanks to everyone for being there and being so

supportive. Gee that medication I'm on sure keeps me feeling drowsy. I was

warned. Thanks again everyone.

Sincerely,

MEL

[Guest guest]

Hello everyone:

I had my esophagoscopy/gastroscopy on Friday the 4th. It turns out I do have

Varices. The doctor also mentioned he did the procedure because I have

extensive Liver Damage. I saw some of the pictures and those varices look big

to me but I don't know how bad this is considered. The Doc put me on a

medication called Propranolol HCL 10 mg. I am to take one every 12 hrs. for

two weeks and then he wants to see me to monitor my blood pressure because

this medication tends to lower blood pressure and this is one of the normal

parts of me, I usually do not have high BP. So now the only thing I need is

to push for getting treated. I need to contact the Commitment to care program

at Schering-Plow I can't afford the medication for treatment. Being 3A I

guess I need it badly. Thanks to everyone for being there and being so

supportive. Gee that medication I'm on sure keeps me feeling drowsy. I was

warned. Thanks again everyone.

Sincerely,

MEL

[Guest guest]

Hello everyone:

I had my esophagoscopy/gastroscopy on Friday the 4th. It turns out I do have

Varices. The doctor also mentioned he did the procedure because I have

extensive Liver Damage. I saw some of the pictures and those varices look big

to me but I don't know how bad this is considered. The Doc put me on a

medication called Propranolol HCL 10 mg. I am to take one every 12 hrs. for

two weeks and then he wants to see me to monitor my blood pressure because

this medication tends to lower blood pressure and this is one of the normal

parts of me, I usually do not have high BP. So now the only thing I need is

to push for getting treated. I need to contact the Commitment to care program

at Schering-Plow I can't afford the medication for treatment. Being 3A I

guess I need it badly. Thanks to everyone for being there and being so

supportive. Gee that medication I'm on sure keeps me feeling drowsy. I was

warned. Thanks again everyone.

Sincerely,

MEL

[Guest guest]

Hello everyone:

I had my esophagoscopy/gastroscopy on Friday the 4th. It turns out I do have

Varices. The doctor also mentioned he did the procedure because I have

extensive Liver Damage. I saw some of the pictures and those varices look big

to me but I don't know how bad this is considered. The Doc put me on a

medication called Propranolol HCL 10 mg. I am to take one every 12 hrs. for

two weeks and then he wants to see me to monitor my blood pressure because

this medication tends to lower blood pressure and this is one of the normal

parts of me, I usually do not have high BP. So now the only thing I need is

to push for getting treated. I need to contact the Commitment to care program

at Schering-Plow I can't afford the medication for treatment. Being 3A I

guess I need it badly. Thanks to everyone for being there and being so

supportive. Gee that medication I'm on sure keeps me feeling drowsy. I was

warned. Thanks again everyone.

Sincerely,

MEL

[Guest guest]

In a message dated 8/5/00 6:21:52 AM Pacific Daylight Time, gidoc@...

writes:

<< Treatment is a must.

[Guest guest]

In a message dated 8/5/00 6:21:52 AM Pacific Daylight Time, gidoc@...

writes:

<< Treatment is a must.

[Guest guest]

Dear ,

How long ago was your son's biopsy done?

Claudine

--- ld1961@... wrote:

> Hello,

> thank you for the brief advice. I also have another

> question, can you

> interpert this test result for me?

> I thought our doctor was testing for viral load, the

> last viral load he had

> was 865,000

> I get copies of all his results, THis test was just

> done a few weeks ago,

> here are the results

> HCV RNA Quanititative 11.46 MEq/mL

> WHat does this mean? Is this a viral load test?

> Why are the results so

> different?

> THere is a lot of medical background on my son,

> besides the HUS , he also

> suffered a massive storke from it, (age 7) required

> peritoneal dialysis , he

> has left sided paralysis, he has a very difficult to

> treat seizure disorder

> from the stroke, hes frail, low blood counts, WBC

> 2.4 HE weighs about 110

> soaking wet at 18...I honesly dont think his body

> could handle the treatment

> protocols available, I was hoping new treatments

> would become available soon.

> Thank you again for taking a moment to write.

>

>

=====

Claudine

claudinecrews@...

__________________________________________________

[Guest guest]

Dear ,

How long ago was your son's biopsy done?

Claudine

--- ld1961@... wrote:

> Hello,

> thank you for the brief advice. I also have another

> question, can you

> interpert this test result for me?

> I thought our doctor was testing for viral load, the

> last viral load he had

> was 865,000

> I get copies of all his results, THis test was just

> done a few weeks ago,

> here are the results

> HCV RNA Quanititative 11.46 MEq/mL

> WHat does this mean? Is this a viral load test?

> Why are the results so

> different?

> THere is a lot of medical background on my son,

> besides the HUS , he also

> suffered a massive storke from it, (age 7) required

> peritoneal dialysis , he

> has left sided paralysis, he has a very difficult to

> treat seizure disorder

> from the stroke, hes frail, low blood counts, WBC

> 2.4 HE weighs about 110

> soaking wet at 18...I honesly dont think his body

> could handle the treatment

> protocols available, I was hoping new treatments

> would become available soon.

> Thank you again for taking a moment to write.

>

>

=====

Claudine

claudinecrews@...

__________________________________________________

[Guest guest]

In a message dated 8/6/00 8:46:03 PM Pacific Daylight Time,

claudineintexas@... writes:

<< Dear ,

How long ago was your son's biopsy done?

Claudine >>

He had a biospy in Nov 98.

[Guest guest]

Claudine.

we saw our docotr this morning and we all agreed to wait for the peg to come

out, hopefully be the jan......

If my son was otherwise healthy I wouod consider treatment now, But he quite

the extensive medical history and already suffers from a supressed immune

system, and low blood counts, his WBC averages 2.4 his platelets are around

60,000 and H/H run low as well. He's frail......I really dont think he would

be able to handle the currrent protocol. FOr now, I am going to work on his

diet and try to get him to eat more, and get some meat on his bones.

I aopprecaiate your letters and advice..MY docotr felt waiting five more

months is not going to make much of a difference..

[Guest guest]

Dear ,

I'm glad to hear what his doctor had to say. I

don't think waiting 5 months will make a difference

either, I was worried you might be waiting for a

non-interferon based treatment, and that could be

another 4 or 5 years, or even more. I think you are

very smart to try and get some weight on him before

treatment, since he is bound to loose some while on

interferon, and it doesn't sound like he can afford to

loose any. Does he just not have much of an appetite?

Did his doctor have suggestions on his diet? This must

be really tough on you too, don't forget to take care

of yourself!

Claudine

--- ld1961@... wrote:

> Claudine.

> we saw our docotr this morning and we all agreed to

> wait for the peg to come

> out, hopefully be the jan......

> If my son was otherwise healthy I wouod consider

> treatment now, But he quite

> the extensive medical history and already suffers

> from a supressed immune

> system, and low blood counts, his WBC averages 2.4

> his platelets are around

> 60,000 and H/H run low as well. He's frail......I

> really dont think he would

> be able to handle the currrent protocol. FOr now, I

> am going to work on his

> diet and try to get him to eat more, and get some

> meat on his bones.

> I aopprecaiate your letters and advice..MY docotr

> felt waiting five more

> months is not going to make much of a difference..

>

>

=====

Claudine

claudinecrews@...

__________________________________________________

[Guest guest]

At 07:04 PM 08/09/2000 , you wrote:

>Yep, Marty turned me onto the Boost/Nutriment thing. Sure helps me.

Specifically Boost, not Ensure. Dona and I studied the labels for both

because someone gave me a can of Ensure. Ensure is loaded with fat and

sugar and light on protein.

Boost, OTOH, is more balanced and complete.

Gray

HBV Chronic

Cirrhosis w/some complications

Irving, TX, USA

E-Mail: <mailto:dagray@...>

ICQ: 72654171

I believe in the sun even when it does not shine.

[Guest guest]

.. thanks for the info. I'll have to read more carefully. What about

Nutriment? Or the store brands?

alley/

ICQ 12631861

alleypat@...

http://www.flash.net/~alleypat

[Guest guest]

AlleyPat,

I'm sorry, I don't know anything about either. Though I've heard of it, I

haven't looked at the label. I don't know that I've ever seen a store

brand. If they exist, I suspect it would depend on whether it's repackaged

Ensure, Boost, or Nutriment.

At 09:34 PM 08/13/2000 , you wrote:

>.. thanks for the info. I'll have to read more carefully. What about

>Nutriment? Or the store brands?

>alley/

>ICQ 12631861

>alleypat@...

>http://www.flash.net/~alleypat

>

>

>

>

>