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Re: I start Tx next month :)

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Posted
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--- WebMistress <gina@...> wrote:

> He does NOT think I am sick from hep c!!! He thinks

> it is either my thyroid,

> cryo or something else, but mostly he thinks thyroid

> and he says my own

> pcp doc has to treat this stuff and follow it--I

> told him my pcp insists I am

> sick from hep c and won't even consider the

> thyroid--so here I am caught

> in the middle again :( All I know is some one better

> be watching out for this

> stuff after I start Tx!

Dear ,

While I was on treatment my GI monitored my

thyroid function tests every month, but when they got

bad he INSISTED that I see an endocrinologist,

preferably one who had experience with people on

interferon. Since your PCP doesn't want to believe

you might have thyroid problems why not ask the GI to

send him a letter asking him to refer you to an

endocrinologist? That is assuming that something is

going to show up on testing. Did he also do a thyroid

panel and TSH on you, not just the test for

auto-antibodies?

It would be so nice to be able to see only one

doctor but those days are long gone. Let's face it,

there is just too much to know for any one doctor to

be able to know EVERYTHING. He/She would have to have

a computer for a brain! I confess, I am sold on

specialists, at the very least in the early stages of

any problem. Especially since I have HCV which may

(or may not) complicate another condition.

Take care,

Claudine

=====

Claudine

claudinecrews@...

__________________________________________________

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Posted
Posted

----------

From: WebMistress <gina@...>

Saw my new hep doc today, it was very weird.

So he finally agrees to treat me....

for 6 months! Interferon A, and Ribivarin 200 mgs 5x a day? (2 morning,

3 night), 3x weekly injections.

He does NOT think I am sick from hep c!!! He thinks it is either my

thyroid, cryo or something else, viral load also went down from

1 million to 145,000 for seemingly no reason.

-

Weird indeed-doesn't sound like much of a specialist to me. He seems to be

concentrating only on the liver and not the immune problems that are a

consequence of HCV. I don't think he is a good doctor to see. Only thing

with doing daily injections unknown to the 'doctor' is with supply. I think

the prescription will only be for so much per month so you will be running

out. I am not sure about this-so don't take this comment as being written

in stone-just something to think about. As for the viral load-I think those

tests vary according to lab and technician performing the test. Sounds like

your doctors are making you sick with stress and frustration!

gail

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Posted
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----------

From: WebMistress <gina@...>

Saw my new hep doc today, it was very weird.

So he finally agrees to treat me....

for 6 months! Interferon A, and Ribivarin 200 mgs 5x a day? (2 morning,

3 night), 3x weekly injections.

He does NOT think I am sick from hep c!!! He thinks it is either my

thyroid, cryo or something else, viral load also went down from

1 million to 145,000 for seemingly no reason.

-

Weird indeed-doesn't sound like much of a specialist to me. He seems to be

concentrating only on the liver and not the immune problems that are a

consequence of HCV. I don't think he is a good doctor to see. Only thing

with doing daily injections unknown to the 'doctor' is with supply. I think

the prescription will only be for so much per month so you will be running

out. I am not sure about this-so don't take this comment as being written

in stone-just something to think about. As for the viral load-I think those

tests vary according to lab and technician performing the test. Sounds like

your doctors are making you sick with stress and frustration!

gail

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Posted
Posted

,

Three x a week dosing will prob be fine, thats what im doing and i am a 1b

which is hard to get rid of but am undectable as of 3 months, my doc only

was going to do 6 months also so who knows i have 1 montha to go will have

to try and figure it out.

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Posted
Posted

,

Three x a week dosing will prob be fine, thats what im doing and i am a 1b

which is hard to get rid of but am undectable as of 3 months, my doc only

was going to do 6 months also so who knows i have 1 montha to go will have

to try and figure it out.

________________________________________________________________________

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Dear Alley,

I have read in some recent report the

recommendation that 1's with low pre-treatment viral

loads may only need 6 months of treatment. I find

this completely unbelievable myself, especially a 1b.

Even the 2's and 3's relapse frequently! My theory is

that whoever is recommending this must be on

Schering's payroll. Just think how much more money

they can make if they can just keep selling us

medications over and over again! (I was joking when I

wrote that, but it does make you wonder!!)

Claudine

--- " Ken & Pat @home " <alleypat@...> wrote:

> I've never heard of a genotype 1b going 6months

> ever. Have yall? ones must

> go neg by 6th month is what I've heard and must do

> treatment for a year

> total. Am I getting behind the times?

=====

Claudine

claudinecrews@...

__________________________________________________

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Posted
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Dear Alley,

I have read in some recent report the

recommendation that 1's with low pre-treatment viral

loads may only need 6 months of treatment. I find

this completely unbelievable myself, especially a 1b.

Even the 2's and 3's relapse frequently! My theory is

that whoever is recommending this must be on

Schering's payroll. Just think how much more money

they can make if they can just keep selling us

medications over and over again! (I was joking when I

wrote that, but it does make you wonder!!)

Claudine

--- " Ken & Pat @home " <alleypat@...> wrote:

> I've never heard of a genotype 1b going 6months

> ever. Have yall? ones must

> go neg by 6th month is what I've heard and must do

> treatment for a year

> total. Am I getting behind the times?

=====

Claudine

claudinecrews@...

__________________________________________________

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Posted
Posted

Hello,

I just got my sons genotype back...1a...viral load 865,000

Hes had hep c since a child (hes now 18) Its a long complicated story but he

contracted that e coli 0157H7 bacteria at age 6 and developed hemolytic

uremic syndrome. He required multiple transfusions and thats how he

contracted hep C..Hes had the virus for 13 yrs...Biopsy, stage 2, mild

inflamation, some fibrosis, no necrosis or cirrhosis...NOw the dilema is to

treat or not to treat?

any feedback?

in Newport RI

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Posted
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Hello,

I just got my sons genotype back...1a...viral load 865,000

Hes had hep c since a child (hes now 18) Its a long complicated story but he

contracted that e coli 0157H7 bacteria at age 6 and developed hemolytic

uremic syndrome. He required multiple transfusions and thats how he

contracted hep C..Hes had the virus for 13 yrs...Biopsy, stage 2, mild

inflamation, some fibrosis, no necrosis or cirrhosis...NOw the dilema is to

treat or not to treat?

any feedback?

in Newport RI

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Posted
Posted

my husband is genotype 1a and his dr. Kim Gentry in Arlington took him

off combo after six months. Marjorie

Re: I start Tx next month :)

> I've never heard of a genotype 1b going 6months ever. Have yall?

ones must

> go neg by 6th month is what I've heard and must do treatment for a

year

> total. Am I getting behind the times?

> alley/

> ICQ 12631861

> alleypat@...

> http://www.flash.net/~alleypat

>

>

> --------------------------------------------------------------------

<e|-

> Help influence the future of medicine and healthcare by

participating

> in medical research surveys. Our honorariums range from $25 to

> $200 per survey.

> 1/7302/1/_/619765/_/965351960/

> --------------------------------------------------------------------

|e>-

>

>

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Posted
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my husband is genotype 1a and his dr. Kim Gentry in Arlington took him

off combo after six months. Marjorie

Re: I start Tx next month :)

> I've never heard of a genotype 1b going 6months ever. Have yall?

ones must

> go neg by 6th month is what I've heard and must do treatment for a

year

> total. Am I getting behind the times?

> alley/

> ICQ 12631861

> alleypat@...

> http://www.flash.net/~alleypat

>

>

> --------------------------------------------------------------------

<e|-

> Help influence the future of medicine and healthcare by

participating

> in medical research surveys. Our honorariums range from $25 to

> $200 per survey.

> 1/7302/1/_/619765/_/965351960/

> --------------------------------------------------------------------

|e>-

>

>

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Posted
Posted

Dear claudine,

Thank you for the advice. I feel the same way, wait for new treatment.

Hes disabled and gone through so much, I cant see putting him through the

nasty treatment knowing his chances of being a responder are slim...

MAybe the gov will finally put some money into this virus and find better

treatments soon...

Thanks

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Dear claudine,

Thank you for the advice. I feel the same way, wait for new treatment.

Hes disabled and gone through so much, I cant see putting him through the

nasty treatment knowing his chances of being a responder are slim...

MAybe the gov will finally put some money into this virus and find better

treatments soon...

Thanks

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Posted
Posted

--- ld1961@... wrote:

> Hello,

> I just got my sons genotype back...1a...viral load

> 865,000

> Hes had hep c since a child (hes now 18) Hes had the

virus for 13

> yrs...Biopsy, stage 2, mild

> inflamation, some fibrosis, no necrosis or

> cirrhosis...NOw the dilema is to

> treat or not to treat?

> in Newport RI

Dear ,

You asked for feedback, all I can really say is

what I would do if I were in your situation: Since it

will not be too long before the pegylated interferon

is out I would wait for that, along with the

ribavirin. My estimate would be 8 - 15 months, maybe

even less. It is expected that the Peg-Intron will be

approved first, without ribavirin, within 4 months,

but approval with ribavirin should occur fairly soon

thereafter. If his doctor will prescribe ribavirin

sooner, go for it! Genotype 1a can be difficult to get

rid of, and the pegylated has much better results than

the regular std. combo available now. He would just

have a much better chance of achieving a sustained

response with the pegylated. However, I would not

wait too long. He has had HCV for only 13 years and

already has stage 2 fibrosis, so it is progressing

fairly fast (for HCV, that is.) I have heard that is

fairly common in transfusion acquired HCV. Please

keep in mind, this is only my opinion, just one

viewpoint to consider. Whatever yall decide, good

luck!

Claudine

=====

Claudine

claudinecrews@...

__________________________________________________

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Posted
Posted

--- ld1961@... wrote:

> Hello,

> I just got my sons genotype back...1a...viral load

> 865,000

> Hes had hep c since a child (hes now 18) Hes had the

virus for 13

> yrs...Biopsy, stage 2, mild

> inflamation, some fibrosis, no necrosis or

> cirrhosis...NOw the dilema is to

> treat or not to treat?

> in Newport RI

Dear ,

You asked for feedback, all I can really say is

what I would do if I were in your situation: Since it

will not be too long before the pegylated interferon

is out I would wait for that, along with the

ribavirin. My estimate would be 8 - 15 months, maybe

even less. It is expected that the Peg-Intron will be

approved first, without ribavirin, within 4 months,

but approval with ribavirin should occur fairly soon

thereafter. If his doctor will prescribe ribavirin

sooner, go for it! Genotype 1a can be difficult to get

rid of, and the pegylated has much better results than

the regular std. combo available now. He would just

have a much better chance of achieving a sustained

response with the pegylated. However, I would not

wait too long. He has had HCV for only 13 years and

already has stage 2 fibrosis, so it is progressing

fairly fast (for HCV, that is.) I have heard that is

fairly common in transfusion acquired HCV. Please

keep in mind, this is only my opinion, just one

viewpoint to consider. Whatever yall decide, good

luck!

Claudine

=====

Claudine

claudinecrews@...

__________________________________________________

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