Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 Treatment is a must. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 Treatment is a must. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 Treatment is a must. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 Treatment is a must. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 Hello everyone: I had my esophagoscopy/gastroscopy on Friday the 4th. It turns out I do have Varices. The doctor also mentioned he did the procedure because I have extensive Liver Damage. I saw some of the pictures and those varices look big to me but I don't know how bad this is considered. The Doc put me on a medication called Propranolol HCL 10 mg. I am to take one every 12 hrs. for two weeks and then he wants to see me to monitor my blood pressure because this medication tends to lower blood pressure and this is one of the normal parts of me, I usually do not have high BP. So now the only thing I need is to push for getting treated. I need to contact the Commitment to care program at Schering-Plow I can't afford the medication for treatment. Being 3A I guess I need it badly. Thanks to everyone for being there and being so supportive. Gee that medication I'm on sure keeps me feeling drowsy. I was warned. Thanks again everyone. Sincerely, MEL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 Hello everyone: I had my esophagoscopy/gastroscopy on Friday the 4th. It turns out I do have Varices. The doctor also mentioned he did the procedure because I have extensive Liver Damage. I saw some of the pictures and those varices look big to me but I don't know how bad this is considered. The Doc put me on a medication called Propranolol HCL 10 mg. I am to take one every 12 hrs. for two weeks and then he wants to see me to monitor my blood pressure because this medication tends to lower blood pressure and this is one of the normal parts of me, I usually do not have high BP. So now the only thing I need is to push for getting treated. I need to contact the Commitment to care program at Schering-Plow I can't afford the medication for treatment. Being 3A I guess I need it badly. Thanks to everyone for being there and being so supportive. Gee that medication I'm on sure keeps me feeling drowsy. I was warned. Thanks again everyone. Sincerely, MEL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 Hello everyone: I had my esophagoscopy/gastroscopy on Friday the 4th. It turns out I do have Varices. The doctor also mentioned he did the procedure because I have extensive Liver Damage. I saw some of the pictures and those varices look big to me but I don't know how bad this is considered. The Doc put me on a medication called Propranolol HCL 10 mg. I am to take one every 12 hrs. for two weeks and then he wants to see me to monitor my blood pressure because this medication tends to lower blood pressure and this is one of the normal parts of me, I usually do not have high BP. So now the only thing I need is to push for getting treated. I need to contact the Commitment to care program at Schering-Plow I can't afford the medication for treatment. Being 3A I guess I need it badly. Thanks to everyone for being there and being so supportive. Gee that medication I'm on sure keeps me feeling drowsy. I was warned. Thanks again everyone. Sincerely, MEL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2000 Report Share Posted August 5, 2000 Hello everyone: I had my esophagoscopy/gastroscopy on Friday the 4th. It turns out I do have Varices. The doctor also mentioned he did the procedure because I have extensive Liver Damage. I saw some of the pictures and those varices look big to me but I don't know how bad this is considered. The Doc put me on a medication called Propranolol HCL 10 mg. I am to take one every 12 hrs. for two weeks and then he wants to see me to monitor my blood pressure because this medication tends to lower blood pressure and this is one of the normal parts of me, I usually do not have high BP. So now the only thing I need is to push for getting treated. I need to contact the Commitment to care program at Schering-Plow I can't afford the medication for treatment. Being 3A I guess I need it badly. Thanks to everyone for being there and being so supportive. Gee that medication I'm on sure keeps me feeling drowsy. I was warned. Thanks again everyone. Sincerely, MEL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 In a message dated 8/5/00 6:21:52 AM Pacific Daylight Time, gidoc@... writes: << Treatment is a must. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 In a message dated 8/5/00 6:21:52 AM Pacific Daylight Time, gidoc@... writes: << Treatment is a must. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 Dear , How long ago was your son's biopsy done? Claudine --- ld1961@... wrote: > Hello, > thank you for the brief advice. I also have another > question, can you > interpert this test result for me? > I thought our doctor was testing for viral load, the > last viral load he had > was 865,000 > I get copies of all his results, THis test was just > done a few weeks ago, > here are the results > HCV RNA Quanititative 11.46 MEq/mL > WHat does this mean? Is this a viral load test? > Why are the results so > different? > THere is a lot of medical background on my son, > besides the HUS , he also > suffered a massive storke from it, (age 7) required > peritoneal dialysis , he > has left sided paralysis, he has a very difficult to > treat seizure disorder > from the stroke, hes frail, low blood counts, WBC > 2.4 HE weighs about 110 > soaking wet at 18...I honesly dont think his body > could handle the treatment > protocols available, I was hoping new treatments > would become available soon. > Thank you again for taking a moment to write. > > ===== Claudine claudinecrews@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 Dear , How long ago was your son's biopsy done? Claudine --- ld1961@... wrote: > Hello, > thank you for the brief advice. I also have another > question, can you > interpert this test result for me? > I thought our doctor was testing for viral load, the > last viral load he had > was 865,000 > I get copies of all his results, THis test was just > done a few weeks ago, > here are the results > HCV RNA Quanititative 11.46 MEq/mL > WHat does this mean? Is this a viral load test? > Why are the results so > different? > THere is a lot of medical background on my son, > besides the HUS , he also > suffered a massive storke from it, (age 7) required > peritoneal dialysis , he > has left sided paralysis, he has a very difficult to > treat seizure disorder > from the stroke, hes frail, low blood counts, WBC > 2.4 HE weighs about 110 > soaking wet at 18...I honesly dont think his body > could handle the treatment > protocols available, I was hoping new treatments > would become available soon. > Thank you again for taking a moment to write. > > ===== Claudine claudinecrews@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 In a message dated 8/6/00 8:46:03 PM Pacific Daylight Time, claudineintexas@... writes: << Dear , How long ago was your son's biopsy done? Claudine >> He had a biospy in Nov 98. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 Claudine. we saw our docotr this morning and we all agreed to wait for the peg to come out, hopefully be the jan...... If my son was otherwise healthy I wouod consider treatment now, But he quite the extensive medical history and already suffers from a supressed immune system, and low blood counts, his WBC averages 2.4 his platelets are around 60,000 and H/H run low as well. He's frail......I really dont think he would be able to handle the currrent protocol. FOr now, I am going to work on his diet and try to get him to eat more, and get some meat on his bones. I aopprecaiate your letters and advice..MY docotr felt waiting five more months is not going to make much of a difference.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 Dear , I'm glad to hear what his doctor had to say. I don't think waiting 5 months will make a difference either, I was worried you might be waiting for a non-interferon based treatment, and that could be another 4 or 5 years, or even more. I think you are very smart to try and get some weight on him before treatment, since he is bound to loose some while on interferon, and it doesn't sound like he can afford to loose any. Does he just not have much of an appetite? Did his doctor have suggestions on his diet? This must be really tough on you too, don't forget to take care of yourself! Claudine --- ld1961@... wrote: > Claudine. > we saw our docotr this morning and we all agreed to > wait for the peg to come > out, hopefully be the jan...... > If my son was otherwise healthy I wouod consider > treatment now, But he quite > the extensive medical history and already suffers > from a supressed immune > system, and low blood counts, his WBC averages 2.4 > his platelets are around > 60,000 and H/H run low as well. He's frail......I > really dont think he would > be able to handle the currrent protocol. FOr now, I > am going to work on his > diet and try to get him to eat more, and get some > meat on his bones. > I aopprecaiate your letters and advice..MY docotr > felt waiting five more > months is not going to make much of a difference.. > > ===== Claudine claudinecrews@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2000 Report Share Posted August 13, 2000 At 07:04 PM 08/09/2000 , you wrote: >Yep, Marty turned me onto the Boost/Nutriment thing. Sure helps me. Specifically Boost, not Ensure. Dona and I studied the labels for both because someone gave me a can of Ensure. Ensure is loaded with fat and sugar and light on protein. Boost, OTOH, is more balanced and complete. Gray HBV Chronic Cirrhosis w/some complications Irving, TX, USA E-Mail: <mailto:dagray@...> ICQ: 72654171 I believe in the sun even when it does not shine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2000 Report Share Posted August 13, 2000 .. thanks for the info. I'll have to read more carefully. What about Nutriment? Or the store brands? alley/ ICQ 12631861 alleypat@... http://www.flash.net/~alleypat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2000 Report Share Posted August 14, 2000 AlleyPat, I'm sorry, I don't know anything about either. Though I've heard of it, I haven't looked at the label. I don't know that I've ever seen a store brand. If they exist, I suspect it would depend on whether it's repackaged Ensure, Boost, or Nutriment. At 09:34 PM 08/13/2000 , you wrote: >.. thanks for the info. I'll have to read more carefully. What about >Nutriment? Or the store brands? >alley/ >ICQ 12631861 >alleypat@... >http://www.flash.net/~alleypat > > > > > Quote Link to comment Share on other sites More sharing options...
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