Re: [Hepatitis C Support Group]

[Guest guest]

Hi ....you said in your letter that you've had hep c for a very long

time...may I ask how long?

I just found out at Christmas that I have chronic hep c and the biopsy

showed I was one stage before cirrhosis....Maybe I will start the peg

treatment soon. I am disabled with a spinal probem and have medicare and

medicaid....my husband took his ss early retirement to care for me. Now we

are told we are $80 over the income limit for the medicaid assistance....we

have no other insurance.....so I don't know how we will pay for

treatment....I'm really worried about this.....

I believe my hep dates back to blood transfusions when my children were

born in the late 70's.

Anyone have any ideas of financial help with the treatment I would

appreciate the information........judy

[Guest guest]

Hi ....you said in your letter that you've had hep c for a very long

time...may I ask how long?

I just found out at Christmas that I have chronic hep c and the biopsy

showed I was one stage before cirrhosis....Maybe I will start the peg

treatment soon. I am disabled with a spinal probem and have medicare and

medicaid....my husband took his ss early retirement to care for me. Now we

are told we are $80 over the income limit for the medicaid assistance....we

have no other insurance.....so I don't know how we will pay for

treatment....I'm really worried about this.....

I believe my hep dates back to blood transfusions when my children were

born in the late 70's.

Anyone have any ideas of financial help with the treatment I would

appreciate the information........judy

[Guest guest]

Hi Judy! I believe I contracted hep c in 1982, a blood transfusion after

childbirth. I recieved a letter from the health department in 1986 saying I

may have received tainted blood. They had me get tested for hiv, 3 times and

negative. Now here in New York, if you are ill and over the limit by say 80

dollars, you can pay the $80 for medicai. You have your insurance at least.

Let me know how that works out for you.

[Guest guest]

Hi Judy! I believe I contracted hep c in 1982, a blood transfusion after

childbirth. I recieved a letter from the health department in 1986 saying I

may have received tainted blood. They had me get tested for hiv, 3 times and

negative. Now here in New York, if you are ill and over the limit by say 80

dollars, you can pay the $80 for medicai. You have your insurance at least.

Let me know how that works out for you.

[Guest guest]

I applied for medicare and am still waiting to hear

from them. They usually turn everyone down the first

time and you have to appeal. I never heard of a

" limit " as a reason for denial. They told me they

wouldnt pay for the peg treatment. The reason I

applied was in case I had to get a translant. The

cost is high and so are the drugs. Regular health

insurance has a million dollar ceiling. The wouldnt

give me monthly benefits because of my disability

pension but did say I qualified for the medicare. I

too have a spine injury that disabled me. Appeal the

ruling.

mark

--- " Judy A. McKee " <tmckee@...> wrote:

> Hi ....you said in your letter that you've had

> hep c for a very long

> time...may I ask how long?

> I just found out at Christmas that I have chronic

> hep c and the biopsy

> showed I was one stage before cirrhosis....Maybe I

> will start the peg

> treatment soon. I am disabled with a spinal probem

> and have medicare and

> medicaid....my husband took his ss early retirement

> to care for me. Now we

> are told we are $80 over the income limit for the

> medicaid assistance....we

> have no other insurance.....so I don't know how we

> will pay for

> treatment....I'm really worried about this.....

> I believe my hep dates back to blood transfusions

> when my children were

> born in the late 70's.

> Anyone have any ideas of financial help with the

> treatment I would

> appreciate the information........judy

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

[Guest guest]

I applied for medicare and am still waiting to hear

from them. They usually turn everyone down the first

time and you have to appeal. I never heard of a

" limit " as a reason for denial. They told me they

wouldnt pay for the peg treatment. The reason I

applied was in case I had to get a translant. The

cost is high and so are the drugs. Regular health

insurance has a million dollar ceiling. The wouldnt

give me monthly benefits because of my disability

pension but did say I qualified for the medicare. I

too have a spine injury that disabled me. Appeal the

ruling.

mark

--- " Judy A. McKee " <tmckee@...> wrote:

> Hi ....you said in your letter that you've had

> hep c for a very long

> time...may I ask how long?

> I just found out at Christmas that I have chronic

> hep c and the biopsy

> showed I was one stage before cirrhosis....Maybe I

> will start the peg

> treatment soon. I am disabled with a spinal probem

> and have medicare and

> medicaid....my husband took his ss early retirement

> to care for me. Now we

> are told we are $80 over the income limit for the

> medicaid assistance....we

> have no other insurance.....so I don't know how we

> will pay for

> treatment....I'm really worried about this.....

> I believe my hep dates back to blood transfusions

> when my children were

> born in the late 70's.

> Anyone have any ideas of financial help with the

> treatment I would

> appreciate the information........judy

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

[Guest guest]

Carol,

Let me know how it goes, sounds interesting!

Dana

--- dragonrider <dragonrider@...> wrote:

> I think I will sign up for this!!

>

>

>

>

>

>

> Hosted by: Hepatitis Magazine

> American Liver Foundation

> Texas Liver Coalition

> Where: Marriott North at Greenspoint near

> airport

> 255 N Sam Houston Parkway East free parking

> Houston, TX 77060

> Rooms: Special conference rate: $69.00/night

> 800 228-9290

> When: Friday, November 8, 2002

> Saturday, November 9, 2002

> Who for: Program for patients, families,

> friends and caregivers. Special training for support

> group leaders.

> Registration: Pre-registration: only $95.00

> On site: $125.00

> Program: Two days of informative sessions, a

> full set of conference materials, conference bags,

> Friday lunch, Saturday breakfast,Saturday lunch

> banquet, refreshment breaks and free one year's

> subscription to Hepatitis magazine.

> Information: Daigle - 281 272-2744 x

> 133

> Email: info@...

> Sponsorship Opportunities: Heidi Lummus - 281

> 272-2744 x 149

> Email: hlummus@...

> CE credits for nurses: Contact hours applied

> for through the UT Health Sciences Center at the

> Houston School of Nursing

> CE credits for drug counselors: Pending

>

> CAROL

> Dear Lord, Either Quiet The Waves

> Or Lift Me Above Them;

> It's Too Late To Learn To Swim.

>

> Crowley

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Carol,

Let me know how it goes, sounds interesting!

Dana

--- dragonrider <dragonrider@...> wrote:

> I think I will sign up for this!!

>

>

>

>

>

>

> Hosted by: Hepatitis Magazine

> American Liver Foundation

> Texas Liver Coalition

> Where: Marriott North at Greenspoint near

> airport

> 255 N Sam Houston Parkway East free parking

> Houston, TX 77060

> Rooms: Special conference rate: $69.00/night

> 800 228-9290

> When: Friday, November 8, 2002

> Saturday, November 9, 2002

> Who for: Program for patients, families,

> friends and caregivers. Special training for support

> group leaders.

> Registration: Pre-registration: only $95.00

> On site: $125.00

> Program: Two days of informative sessions, a

> full set of conference materials, conference bags,

> Friday lunch, Saturday breakfast,Saturday lunch

> banquet, refreshment breaks and free one year's

> subscription to Hepatitis magazine.

> Information: Daigle - 281 272-2744 x

> 133

> Email: info@...

> Sponsorship Opportunities: Heidi Lummus - 281

> 272-2744 x 149

> Email: hlummus@...

> CE credits for nurses: Contact hours applied

> for through the UT Health Sciences Center at the

> Houston School of Nursing

> CE credits for drug counselors: Pending

>

> CAROL

> Dear Lord, Either Quiet The Waves

> Or Lift Me Above Them;

> It's Too Late To Learn To Swim.

>

> Crowley

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

I could have shot the doctor who did it ! I too had incredible pain, and he

took two biopsies, one right after the other... I did scream, I remember that.

Princess

www.studioreflections.com

Well I just got back from the liver biopsy. I had one about 6 yr ago, they

went through the back. I had a relaxer only, and there was no pain. This one

they went in from the front, they gave me 2 pills to relax me, and a shot, when

he got in there I thought I would die, the pain was awful-- also in my right

shoulder. I broke out in a sweat all over my body, and they gave me another shot

morphine, and then when I got back to my room another shot and it finely started

easing!! it hurt to even breath. NO MORE UNLESS THEY KNOCK ME OUT!!! I have

viciodene if it start's hurting tonight. If I had had a gun I would have shot

myself!!!

carol

[Guest guest]

I could have shot the doctor who did it ! I too had incredible pain, and he

took two biopsies, one right after the other... I did scream, I remember that.

Princess

www.studioreflections.com

Well I just got back from the liver biopsy. I had one about 6 yr ago, they

went through the back. I had a relaxer only, and there was no pain. This one

they went in from the front, they gave me 2 pills to relax me, and a shot, when

he got in there I thought I would die, the pain was awful-- also in my right

shoulder. I broke out in a sweat all over my body, and they gave me another shot

morphine, and then when I got back to my room another shot and it finely started

easing!! it hurt to even breath. NO MORE UNLESS THEY KNOCK ME OUT!!! I have

viciodene if it start's hurting tonight. If I had had a gun I would have shot

myself!!!

carol

[Guest guest]

Great recipes!!

[Guest guest]

I just got the Peg-interfuron in the mail. Oh dear! Mic

[Guest guest]

ok, I'll let you know when I begin. Mic

[Guest guest]

Mic,

Good luck. I'll be praying for you. I'm still waiting for mine to come in

the mail. Let me know how everything goes.

Mrie

At 04:50 PM 01/08/2003 -0600, you wrote:

><html><body>

>

>

><tt>

>I just got the Peg-interfuron in the mail. Oh dear! & nbsp; Mic<BR>

><BR>

></tt>

>

>

[Guest guest]

Thanx Deb. I plan on Sunday night for my first shot and I'll start the

Ribavirin Sunday morning. Mic

[Guest guest]

Hi ,

That weakness is a drag, isn't it. I can usually get through the fever,

aches and pains, but I hate to feel so weak. Oh, well, we go on....

I have beginning stage cirrhosis, too. And I just found out that I'm

genotype 1A. So, it'll be a long journey.

Glad to hear that your blood work is good.

Marie

At 12:01 PM 02/07/2003 -0600, you wrote:

><html><body>

>

>

[Guest guest]

please tell me what is the difference between type 1b and 1a . i was tested

possitive in sept. and will go on peg in 2 weeks. i am so scared. please let

me know what to expect. do you still work cause i have too.

thankyou

nancy

[Guest guest]

Yes I get tired of being tired. I'm okay at times though but then

wham!! I got to lay down. You'll beat that dragon!! Mic

[Guest guest]

I don't know that there is a whole lot of difference between the genotypes 1.

But please don't be scared, I think from the research that I have done, only 20%

of us have severe problems.

I am happy now that I have found out that I have Hep C. I'm 1B, not good odds

for treatment, but I had a liver biopsy that showed no damage, learned to

exercise, drink tons of water and take a good multivitamin without iron in it.

I have more energy now than I have had in years. I think a good part of it is

that I have had an attitude adjustment, now I know it isn't all in my mind, and

I have some control over what is happening to me.

I truly think that the most important thing is not to let the disease control

you. I look at people like Judy and , and take strength from them and what

they are going through. I also say special prayers for them, they are such

special angels through this for me.

Marilyn

Re:

please tell me what is the difference between type 1b and 1a . i was tested

possitive in sept. and will go on peg in 2 weeks. i am so scared. please let

me know what to expect. do you still work cause i have too.

thankyou

nancy

[Guest guest]

the big guns tx doesn't cure either, just beats it back to varying

degrees... some, a few, kill it pretty dead with tx but most relapse in a

year or three. also, some clear it for good with nothing at all. there's a

lot of factors. the things seems to be to work with as many as possible,

prioritizing & continuing each according to noted results.

holding at bay is fine with me. as long as i can remain symptom &

progression of damage free, or close to it, i'll wait for a real

breakthrough cure to try. i have other more pressing problems & a few

unfulfilled desires to deal with & only a couple decades left anyways.

> Re:

>

>

> >From what research I have done, (aplenty) many claim to have " cures " ,

> but where is the PROOF of that? I've never seen one iota of

> evidence that anyone has

> cured using Alternative meds, simply held the Dragon at bay.

> Anyone with a good gift of gab can talk the talk..Personally,

> I'd like to see Lab

> reports at the least...

>

>

>

> nmilover <nmilover@...> wrote:

> Also, if you are into a proven herbal remedy. This man

> is also a medical

> Doctor. I am sure you have heard of him. He is world re known.... Dr.

> Zhang you can emaill him at DrZhang@... or google him. It costs

> about $200 a month depending on condition. He can, has and does clear the

> virus. He will need new labs, talk to you, know all your medical

> conditions and make a program just for you. He has been around curing

> people from Hepc for over 10 yrs....... give a look. hugz, sally

>

> I do not like these cleansing agents. They are rough on the system. They

> are over the counter. They don't know YOU your conditions and your

> bloodwork. Lots of herbs are very very harmful for liver if other

> conditions persist and you don't know cuz it says liver cleanse. Be

> careful..... consult professional........

>

> hepper hugs, sally

>

> " and the beat goes on....... " Sonny Bono --------------Learn the

> art of patience. Apply discipline to your thoughts when

> theybecome anxious over the outcome of a goal. Impatience breeds

> anxiety,fear, discouragement and failure. Patience creates

> confidence,decisiveness, and a rational outlook, which eventually

> leads tosuccess. --

>

> __________________________________________________________

> Cheap talk?

> Check out Messenger's low PC-to-Phone call rates.

> http://voice.

>

>

>

>

>

> ---------------------------------

> Want to start your own business? Learn how on Small Business.

>

>

[Guest guest]

I chose not to treat my disease. I was diagnose with Hep C just last March

" 07 " . I am also a Vietnam Vet. but I had experimented with I.V. drugs a few time

in 1977 so I've had it for 30 years or more. I have not giving it to anyone,my X

or my children. I have mild liver damage.I think the stigma is far worse than

the disease. No one wants cirrhosis of the liver but you can live a long time

with cirrhosis.I think those who continue in drugs, drink or have other diseases

don't do well with hep c. So until they come up with a sure fire way of getting

rid of hep c, I'm just going to try to keep her between the lines.I am healthy

now. No one can predict who will become ill. I very well may tomorrow but hasn't

it always been like that regardless of my disease. I wish you all well.

I need to know when you should start treatment and if you really have to do it

or not.? I would like to hear from people who choose not too.? I am type 1 no

liver damage.?Need help with this.? Also how expensive is the treatment. Do not

have the funds if I ever decided to?do this.? Can people still work while they

do....

Please Help?? Thank You???

____________ _________ _________ _________ _________ _________ _

AOL now offers free email to everyone. Find out more about what's free from AOL

at AOL.com.

[Guest guest]

I am going to start treatment on 9/14. I have Stage 1 liver disease, mild liver

scarring. I received a blood transfusion back in 1960. I have talked with 2

specialist and both say that because I am only in my late 40's and in fairly

good health that my chances of knocking this out as undectitable are very high,

due to the early liver disease detected. I have read many of the emails on

this board. A part of me is really scarred. I have to continue working. I

have heard that some of you were able to work while others were so sick they

could not. I have a very good, positive attitude, and I think that is really

important. I wish all of you starting treatment or thinking about treatment the

best. Please keep the board posted with updates. I too am interested in the

liver cleansing diet. I have stopped drinking. (I was only a social drinker, 2

or 3 on the weekend). (Lost 8 lbs though!). The cost of the drugs is high. I

have insurance that pays for it. The

Peg-intron once a week shots are $1571.00 for a 4 shots, once a week. The

Ribavirin is $785.00 for a one month supply. Those are the discounted prices

from Rite Aid. I only hope that they have something out there for the

uninsured, as there are many people without insurance. Good luck to all!

hotsoz1 <hotsaucey13@...> wrote: I am scheduled for a liver

biopsy in a few weeks. Today I have decided

that I am going to work this out on my own first. I had a blood

transfusion in 1978 so I have had this a long time and I am never sick

nor do I catch any colds or flus. My white blood cell count is very low

which makes me prone for any kind of bug going around. However I

haven't been sick since the late 80's. This makes me think just having

a healthy attitude and no more partying will help me stop the progress

of the disease. I am going to start taking liver cleansing drinks and

am starting a workout routine. I plan on eating as much organic or

natural foods that I can to cleanse my blood. There are many books on

these options, I can't remember the name of the author, but I think the

book is called the liver cleansing diet. I do not want a biopsy nor do

I want to ingest all those drugs. They make you sick and you can't

really work for awhile. I hope this gives you something to think about.

So many people have this disease and dont even know it, I didn't!!

>

> I need to know when you should start treatment and if you really have

to do it or not.? I would like to hear from people who choose not too.?

I am type 1 no liver damage.?Need help with this.? Also how expensive

is the treatment. Do not have the funds if I ever decided to?do this.?

Can people still work while they do....

>

> Please Help?? Thank You???

>

__________________________________________________________

> AOL now offers free email to everyone. Find out more about what's

free from AOL at AOL.com.

>

>

>

[Guest guest]

About not taking treatment:

I have not taken treatment first of all because currently I am pregnant and can

not anyway. I will continue to get the lab tests I need and continue to follow

up with my Gastro doc as required.

All in all I am taking this one day at a time. Asking God for mercy for all of

us with this disease.

I NEED HELP DECIDING IF I SHOULD TAKE TREAMENT OR NOT??? HOW DOES ANYONE FEEL

ABOUT NOT TAKING TREATMENT????

__________________________________________________________

Email and AIM finally together. You've gotta check out free AOL Mail! -

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[Guest guest]

1)I personally am afraid of the treatment.2)It dosen't seem to work well with my

genotype.3) I'm not ill,my liver is fine so I think I can afford to wait until

they come up with a better treatment4)I don't think I could do my job while

under treatment......I wish you well,God bless

I NEED HELP DECIDING IF I SHOULD TAKE TREAMENT OR NOT??? HOW DOES ANYONE FEEL

ABOUT NOT TAKING TREATMENT??? ?

____________ _________ _________ _________ _________ _________ _

Email and AIM finally together. You've gotta check out free AOL Mail! -

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[Guest guest]

Hi everyone,

   I'm going to keep this short cause I am very exhausted. Bloodwork is still

looking good and all is going well as far as the medicine working, I have

learned one major thing in the last couple of days and that is if your tired go

rest especially if your doing the treatments. I took my shot as usual on tuesday

and we ended up having a tornado that evening of course instead of taking

shelter I was getting sick in the bathroom the entire time praying that

everything was going to be fine. I got so worked up over the whole thing that it

totally wore me out and I was still sick wednesday and into thursday really bad,

it ended up that my body couldn't take the stress anymore and shut down. I could

not move anything but my eyes, of course we didn't know what was happening so I

was taken to the hospital and spent the night. Finally after a full night of

sleep, with the help of medicine they gave me I regained the ability to move

around 10am today and was

released to come home just a short time ago with the promise of taking things

slow from now on and not doing anything the next few days. I am feeling better

but like I said just really exhausted so I'm going to rest. So PLEASE don't end

up like I just did, it's a very scary feeling and just go in and rest for a

little bit.

Sheri

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