Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 they are out thanks to the rain!! LOL so now I am back to my bitchie self about this dam hep c LOL they are sending me the copies of my genotype and blood work this time!! I asked the first time and she said oh he don't go by that, he goes by the levels or something and I damn sure know levels lie!! so this time I told her I wanted to know and she is sending it!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 they are out thanks to the rain!! LOL so now I am back to my bitchie self about this dam hep c LOL they are sending me the copies of my genotype and blood work this time!! I asked the first time and she said oh he don't go by that, he goes by the levels or something and I damn sure know levels lie!! so this time I told her I wanted to know and she is sending it!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 hell I never see him, just the nurse! there is no real hep c dr here, i perfer the blood dr's hem somthing , when I had no Ins and received free treatment at Galveston it was much better LOL and I belong to the Re: New Member Carol, I think it depends on the type, for geno type 1 they do six months of combined therapy and then another 6 months. that is what I am doing 12 months of pills and injections. YUK! Some genotypes only need 6 months I read alot about it at aol web md. I would get a second opinion maybe? It is your life not your Dr's. If you have concerns about your medical treatment then read up on the subject and ask your Dr lots and lots of questions. Bonnie > something is really bothering me!! a bunch of us are only on the program for 6 months, WHY!! Pamela and others get a year, I do not understand what is the difference! I asked the nurse and she said well if u don't respond within 6 mo. u > probably wont!! so why not put everyone on 6 mo??? why do I feel like a experiment!!!??? > carol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 hell I never see him, just the nurse! there is no real hep c dr here, i perfer the blood dr's hem somthing , when I had no Ins and received free treatment at Galveston it was much better LOL and I belong to the Re: New Member Carol, I think it depends on the type, for geno type 1 they do six months of combined therapy and then another 6 months. that is what I am doing 12 months of pills and injections. YUK! Some genotypes only need 6 months I read alot about it at aol web md. I would get a second opinion maybe? It is your life not your Dr's. If you have concerns about your medical treatment then read up on the subject and ask your Dr lots and lots of questions. Bonnie > something is really bothering me!! a bunch of us are only on the program for 6 months, WHY!! Pamela and others get a year, I do not understand what is the difference! I asked the nurse and she said well if u don't respond within 6 mo. u > probably wont!! so why not put everyone on 6 mo??? why do I feel like a experiment!!!??? > carol > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Bonnie, scared only gets your adrenalin going, and the liver has to clean it up. If you got it at work, and you are only 28, unless you are a VERY heavy drinker, you are in a panic over nothing. It is a very slow acting virus. Eat healthy. Cut your animal fat intake back as much as you can and stick to as much veggies and grains as you can. Are you Geno 1a or 1b? You have an extermely low viral load.....most of us have a load over a million, way over a million. Unless your doctor has the medication, you'll have to call scherring with your prescription and get on a waiting list for a " access assurance number " which is your garentee that you will have the medication every month of treatment. I called last march and got my number July 9th. People react differently. My first shot was a breeze for 12 hours, then it was 12 hours of the worst flu symptoms you could imagine......I am a laborer and other than normal exhaustion from working in 100 degree weather, I'm doing good. The second injection wasn't anything more than a real tired feeling. I also worked at a friends in this heat wave. I work with a friend who has large muscle fatigue, but little else for symptoms/side effects. Apparently this injection is MUCH easier on the body than the old 3 shots a week drug..... Please don't worry, and take care of your health, diet, and drink as much water as you can. there are links to Scherring Plough and access assurance .......I never saved them, but others here have I am sure. When I first found out,,,,,, I mourned my perfect health.....and couldnt believe I had something that could destroy my liver.....it's hard to comprehend all this at first. If you feel a need to cry....cry. It is not an immediate death sentence. I am sure you're doctor told you that most people die WITH it than FROM it...... It still doesnt mean we want to have it. There are some great people here.....many have been thru the old treatments.....many are waiting for their #'s. Later, Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Bonnie, scared only gets your adrenalin going, and the liver has to clean it up. If you got it at work, and you are only 28, unless you are a VERY heavy drinker, you are in a panic over nothing. It is a very slow acting virus. Eat healthy. Cut your animal fat intake back as much as you can and stick to as much veggies and grains as you can. Are you Geno 1a or 1b? You have an extermely low viral load.....most of us have a load over a million, way over a million. Unless your doctor has the medication, you'll have to call scherring with your prescription and get on a waiting list for a " access assurance number " which is your garentee that you will have the medication every month of treatment. I called last march and got my number July 9th. People react differently. My first shot was a breeze for 12 hours, then it was 12 hours of the worst flu symptoms you could imagine......I am a laborer and other than normal exhaustion from working in 100 degree weather, I'm doing good. The second injection wasn't anything more than a real tired feeling. I also worked at a friends in this heat wave. I work with a friend who has large muscle fatigue, but little else for symptoms/side effects. Apparently this injection is MUCH easier on the body than the old 3 shots a week drug..... Please don't worry, and take care of your health, diet, and drink as much water as you can. there are links to Scherring Plough and access assurance .......I never saved them, but others here have I am sure. When I first found out,,,,,, I mourned my perfect health.....and couldnt believe I had something that could destroy my liver.....it's hard to comprehend all this at first. If you feel a need to cry....cry. It is not an immediate death sentence. I am sure you're doctor told you that most people die WITH it than FROM it...... It still doesnt mean we want to have it. There are some great people here.....many have been thru the old treatments.....many are waiting for their #'s. Later, Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Carol, I was told that if you are responding AT ALL by 6 months, it is the doctors discretion wether to continue the full 54 weeks, or 48 weeks, or 28 weeks, or, the recommended # of weeks......depending on the geno type and condition of the liver, and condition(health) of the patient. hope this info helps. Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Carol, I was told that if you are responding AT ALL by 6 months, it is the doctors discretion wether to continue the full 54 weeks, or 48 weeks, or 28 weeks, or, the recommended # of weeks......depending on the geno type and condition of the liver, and condition(health) of the patient. hope this info helps. Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Hey Dragonrider.....how would you like a doctor who said drinking a few beers was ok, so long as you dont get drunk!......I have an appointment w/the team who treated Naomi Judd September 26th........and I promise......if they're a bunch of idiots......I'll be a whole lot more vocal!!!!! My taper at work has one of their doc's, and he is never EVER! put on hold........and always given a full explanation for any question, no matter how simple or silly he may think it is. Says these Doc's at St. Louis University headed the research for Sherring - Plough and don't want you GUESSING at anything.....they want you to know the facts as they stand. Baby!....I AM THERE!!!!! Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Hey Dragonrider.....how would you like a doctor who said drinking a few beers was ok, so long as you dont get drunk!......I have an appointment w/the team who treated Naomi Judd September 26th........and I promise......if they're a bunch of idiots......I'll be a whole lot more vocal!!!!! My taper at work has one of their doc's, and he is never EVER! put on hold........and always given a full explanation for any question, no matter how simple or silly he may think it is. Says these Doc's at St. Louis University headed the research for Sherring - Plough and don't want you GUESSING at anything.....they want you to know the facts as they stand. Baby!....I AM THERE!!!!! Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Dragon rider, untill I found out I had hcv, I thought I wasn't pushing me enough. Started paying attention to my sleep schedule, and realized I slept an average of 4 hours a night......now it's 6.....but still not enough. I have so much to do and no one to help.....2 kids and a full time job. Sometimes I want to runaway and sleep forever on a beach. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Dragon rider, untill I found out I had hcv, I thought I wasn't pushing me enough. Started paying attention to my sleep schedule, and realized I slept an average of 4 hours a night......now it's 6.....but still not enough. I have so much to do and no one to help.....2 kids and a full time job. Sometimes I want to runaway and sleep forever on a beach. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Hey Emo, This is Dana, not Carol, but I have a question? Did some stupid Doctor tell you you could drink? Where do you live? I have always been very interested in the treatment that Naomi Judd got. But can't seem to find allot of info on it. Dana theemoculli@... wrote:Hey Dragonrider.....how would you like a doctor who said drinking a few beers was ok, so long as you dont get drunk!......I have an appointment w/the team who treated Naomi Judd September 26th........and I promise......if they're a bunch of idiots......I'll be a whole lot more vocal!!!!! My taper at work has one of their doc's, and he is never EVER! put on hold........and always given a full explanation for any question, no matter how simple or silly he may think it is. Says these Doc's at St. Louis University headed the research for Sherring - Plough and don't want you GUESSING at anything.....they want you to know the facts as they stand. Baby!....I AM THERE!!!!! Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Hey Emo, This is Dana, not Carol, but I have a question? Did some stupid Doctor tell you you could drink? Where do you live? I have always been very interested in the treatment that Naomi Judd got. But can't seem to find allot of info on it. Dana theemoculli@... wrote:Hey Dragonrider.....how would you like a doctor who said drinking a few beers was ok, so long as you dont get drunk!......I have an appointment w/the team who treated Naomi Judd September 26th........and I promise......if they're a bunch of idiots......I'll be a whole lot more vocal!!!!! My taper at work has one of their doc's, and he is never EVER! put on hold........and always given a full explanation for any question, no matter how simple or silly he may think it is. Says these Doc's at St. Louis University headed the research for Sherring - Plough and don't want you GUESSING at anything.....they want you to know the facts as they stand. Baby!....I AM THERE!!!!! Emo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 LOL this is carol, I love wine with certain things, and my ppo said a glass once in a while would not hurt me!! it does kill me not to have one once in a while but I haven't. Guess that means no rum balls for Christmas also LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 LOL this is carol, I love wine with certain things, and my ppo said a glass once in a while would not hurt me!! it does kill me not to have one once in a while but I haven't. Guess that means no rum balls for Christmas also LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Try to get all your labs and stuff sent to you. I have copies of all my lab work. My Dr's Nurse faxes them to me at work. I keep a copy for myself and send a copy to the GI. That way I am informed and there are no suprises. Bonnie > they are out thanks to the rain!! LOL so now I am back to my bitchie self about this dam hep c LOL they are sending me the copies of my genotype and blood work this time!! I asked the first time and she said oh he don't go by that, he goes by the levels or something and I damn sure know levels lie!! so this time I told her I wanted to know and she is sending it!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Try to get all your labs and stuff sent to you. I have copies of all my lab work. My Dr's Nurse faxes them to me at work. I keep a copy for myself and send a copy to the GI. That way I am informed and there are no suprises. Bonnie > they are out thanks to the rain!! LOL so now I am back to my bitchie self about this dam hep c LOL they are sending me the copies of my genotype and blood work this time!! I asked the first time and she said oh he don't go by that, he goes by the levels or something and I damn sure know levels lie!! so this time I told her I wanted to know and she is sending it!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Don't you go to a specilist? I see the Gastrointeroligist. He specializes in problems with the liver, bowels and all that junk. My Primary Care Dr refered me and he is the onw who is now in charge of my Hep treatments. Bonnie > > something is really bothering me!! a bunch of us are only on the > program for 6 months, WHY!! Pamela and others get a year, I > do not understand what is the difference! I asked the nurse and she > said well if u don't respond within 6 mo. u > > probably wont!! so why not put everyone on 6 mo??? why do I feel > like a experiment!!!??? > > carol > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Don't you go to a specilist? I see the Gastrointeroligist. He specializes in problems with the liver, bowels and all that junk. My Primary Care Dr refered me and he is the onw who is now in charge of my Hep treatments. Bonnie > > something is really bothering me!! a bunch of us are only on the > program for 6 months, WHY!! Pamela and others get a year, I > do not understand what is the difference! I asked the nurse and she > said well if u don't respond within 6 mo. u > > probably wont!! so why not put everyone on 6 mo??? why do I feel > like a experiment!!!??? > > carol > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 She is doing that now I should have them Monday I hop then I will post them and some one can tell me what the hell they mean LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 She is doing that now I should have them Monday I hop then I will post them and some one can tell me what the hell they mean LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 yes I do!!! but he is just not patient friendly, once u start treatment, his nurse pretty well handles everything!! and I do like her!! I just think a bunch of dr's jumped on the bandwagon on this hep c thing and they really don't know that much about it! like a specialist in hep-c only!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 yes I do!!! but he is just not patient friendly, once u start treatment, his nurse pretty well handles everything!! and I do like her!! I just think a bunch of dr's jumped on the bandwagon on this hep c thing and they really don't know that much about it! like a specialist in hep-c only!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2002 Report Share Posted August 4, 2002 Thank you Emo, My Dr didn't say anything about me having a problem getting meds, I guess I better make sure they are available, thanks for the tips. I have geno type > Bonnie, scared only gets your adrenalin going, and the liver has to clean it > up. > If you got it at work, and you are only 28, unless you are a VERY heavy > drinker, you are in a panic over nothing. It is a very slow acting virus. > Eat healthy. Cut your animal fat intake back as much as you can and stick to > as much veggies and grains as you can. Are you Geno 1a or 1b? You have > an extermely low viral load.....most of us have a load over a million, way > over a million. Unless your doctor has the medication, you'll have to call > scherring with your prescription and get on a waiting list for a " access > assurance number " which is your garentee that you will have the medication > every month of treatment. I called last march and got my number July 9th. > > People react differently. My first shot was a breeze for 12 hours, then it > was 12 hours of the worst flu symptoms you could imagine......I am a laborer > and other than normal exhaustion from working in 100 degree weather, I'm > doing good. The second injection wasn't anything more than a real tired > feeling. I also worked at a friends in this heat wave. I work with a friend > who has large muscle fatigue, but little else for symptoms/side effects. > Apparently this injection is MUCH easier on the body than the old 3 shots a > week drug..... > > Please don't worry, and take care of your health, diet, and drink as much > water as you can. there are links to Scherring Plough and access assurance > ......I never saved them, but others here have I am sure. > > When I first found out,,,,,, I mourned my perfect health.....and couldnt > believe I had something that could destroy my liver.....it's hard to > comprehend all this at first. If you feel a need to cry....cry. It is not an > immediate death sentence. I am sure you're doctor told you that most people > die WITH it than FROM it...... > > It still doesnt mean we want to have it. > > There are some great people here.....many have been thru the old > treatments.....many are waiting for their #'s. > > Later, Emo > > > > > Quote Link to comment Share on other sites More sharing options...
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