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Hi

Welcome to the group. I have recently joined and have found it to a wonderful

group. I take 15mg of lexapro and 1000mg of depakote and 100mg of trazadone.

Last night my psych was discussing fish oil with me. He wants me to read the

book and then let him know what I think. It would replace the depakote in the

event of pregnancy.

I have gained weight and am tired on the meds. I usually go to the gym after

work and then to an AA meeting and now I just go home from work. I have managed

to hit the gym a little though. How are you feeling? Write back and let me

know.

Kim

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In a message dated 12/8/02 1:27:06 PM Pacific Standard Time,

runyonc2001@... writes:

> If the tax season is something

> you must work through,(I'm assuming you are an accountant), then I

> would wait until after the season to start. No point is adding

> additional stress to your life.

Ah, well , it is a little late for that, I started last Friday. I will

just have to see how it goes, and hopefully get through both!

Hugs,

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  • 2 months later...

> Hello:

>

> My name is Rayne (say " rain " ). I am 48, happily married for 11

years; mom

> to 2: 10 & 28; grandmom to 3: 7, 4, & 1; & mom to 4 furbabies: 1

sheltie &

> 3 cats. I live in SW MO.

>

> I am bipolar and have just started lexapro 10mg 4 days ago. Prior

to that

> I was on paxilCR for about 4 months - before that I was on regular

paxil

> for about a year. I am also on geodon 20mg 2x daily, and topamax

100mg 2x

> daily. I'm on other meds, but they're for other medical conditions.

>

> I'm anxious to learn what I can expect from lexapro. How quick does

it

> kick in? What dosages are people using? I've been on celexa and it

really

> didn't do much for me. Left me feeling not happy/not sad. What does

it do

> for/to your libido? (Or does anyone remember what that is, lol?)

I've also

> been on prozac, wellbutrin (regular & SR), effexorXR, & zoloft

(which also

> didn't do anything for me). I was probably on some others, but I

don't

> remember.

>

> And is anyone else here bipolar?

>

> hugs,

> rayne

>

> " No one can make you feel inferior without your consent. " -

Eleanor Roosevelt

Welcome Rayne

I have been on Lexapro since Oct.Before that I was on Celexa.I

Take 5mg.

I found so far that Lexapro works better for me then Celexa did.I

feel more on an even keel and have less up and down moods.

Though lately i find myself in more of a downmode ,I am going

through alot now,my mothers recent death,other life coping dilemmas!

I think if I continue this way i may talk to my psy and see about

upping the dose.

But overall I do like Lexapro.....as for my libido....it

definitely has decreased.It started with the Celexa.

Oh yes,I have furbabies too...two dogs collies, 4 cats.I have

been married for 21 yrs and have a daughter.

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> Hello:

>

> My name is Rayne (say " rain " ). I am 48, happily married for 11

years; mom

> to 2: 10 & 28; grandmom to 3: 7, 4, & 1; & mom to 4 furbabies: 1

sheltie &

> 3 cats. I live in SW MO.

>

> I am bipolar and have just started lexapro 10mg 4 days ago. Prior

to that

> I was on paxilCR for about 4 months - before that I was on regular

paxil

> for about a year. I am also on geodon 20mg 2x daily, and topamax

100mg 2x

> daily. I'm on other meds, but they're for other medical conditions.

>

> I'm anxious to learn what I can expect from lexapro. How quick

does it

> kick in? What dosages are people using? I've been on celexa and it

really

> didn't do much for me. Left me feeling not happy/not sad. What

does it do

> for/to your libido? (Or does anyone remember what that is, lol?)

I've also

> been on prozac, wellbutrin (regular & SR), effexorXR, & zoloft

(which also

> didn't do anything for me). I was probably on some others, but I

don't

> remember.

>

> And is anyone else here bipolar?

>

> hugs,

> rayne

>

> " No one can make you feel inferior without your consent. " -

Eleanor Roosevelt

Hi Rayne and welcome,

I am not bipolar but a PMS'er. Sure some days we have a lot in

common! I tried Celexa and Lex in the past months and am now back

on Prozac. I was on Prozac for about 3 years prior to switching to

Celexa. I am seriously thinking the Celexa did more for me than the

Prozac is doing now and might just go back to it. Once more....all

the nasty downtime but if it would do more than this is doing, it

would be worth it. I don't feel I gave it a long enough trial and

have had that same response from some of the people on the Celexa

board. Lex just didn't seem to do as much for me as the Celexa did

so I should have just jumped back on the bandwagon ASAP.

I see you are in SW Missouri. I have a few friends down that way

towards Springfield.

I am in Arizona now; grew up in Iowa. Animal person also...4

horses, 6 cats, 1 dog and one rabbit. I had more in Iowa but also

worked for a Vet back there so made things a little easier on the

pocketbook.

Welcome to our group. Everyone here is so helpful and they put up

with my complaining so feel free to do the same!

Shauna

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  • 1 month later...
Guest guest

> These are some of my problems: constantly cold hands, lack of

> confidence/self esteem, lack of self identity, unable to talk

> openly about my emotions, lack of energy and motivation,

inability

> to make decisions, foggy brain (difficulty thinking clearly

Hi Doris,

Your list of symtoms 'rung a few bells' for me! I am currently

getting treatment for an overgrowth of Candida Albicans, and I know

that some of what you are struggling with is often a sign of this

condition. Particularly the difficulty in making decisions and foggy

brain. Candida can also give rise to different emotional

difficulties, such as anxiety , depression, and general fatigue. I am

not so sure that it actually CAUSES these difficulties at their very

root, but I am certain it is probably hard to get over them if

untreated Candida is present.If you have pretty strong sugar/carb

cravings (as I do) then I would be suspicious! There is plently of

info on the www if you would like to find out more, or if you already

know about it please disregard what I have said! It's just that when

i saw your words 'foggy brain' I just HAD to write to you, as I can

soooo relate!

BTW, I am not discounting the fact that EFT will probably help

greatly with the emotional causes of whatever difficulties you are

experiencing.

Love,

Carly in Australia.

Perhaps some of the other list members have some experience with this

syndrome?

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Guest guest

Hi Carly and all

I wanted to jump in here, Doris is my wife.

For 6 months she has been on a very healing diet. I often drive many

hours to get the best food available, because I believe good food is

the best medicine. She has eaten low carb and very little sugar. As

a result she has experienced astounding health improvements. Her

sugar cravings are gone, her hypoglycemia she lived with all her life

is gone, and all the menstrual problems she lived with (excessive

bleeding, pain, irregularity, etc) since in her teens are completely

gone. We eat a lot of natural probiotics like kefir, kambucha,

kimchi, and yoghurt. If she did have a candida problem I would be

cleared up now because she has taken all the necessary steps.

However, the problems she listed persist. The only time she has

relief from these problems is when she taps or addresses emotional

problems in some way. We think it all comes down to her belief that

it is wrong to express emotions. She has lived this way all her

life. It seems all the fear and pain was just eating away at her all

her life, and she felt she could not express it to anyone. We also

think that constant low level stress has put wear on her adrenal

glands because she was on a constant state of fear. All of her

symptoms seem to indicate adrenal wear and maybe some hypothyroidism

as a result. so at the moment we think until she can learn to

express emotions, stop being affraid, and acheive some inner piece,

she will continue to be stressed and these things will not go away.

As she mentioned, most of the problems have gone away at some points

when tapping, if not for only a couple of hours. It is truly

amazing.

However, I also think this outward calmness has become her identity

to others, and she has always been concerned about what others think

of her, not what she thinks. That if she gets rid of that she has no

identity. This may be her block. But now she also realizes that by

doing this she has been hurting herself.

One of the strange things she experiences when tapping are changes in

the temperature of her hands. Sometimes the left is cold and right

is hot, sometimes reverse. Often both are cold, occasionaly both

become hot. Maybe this is just part of the adrenal issue.

Thanks to everyone

-Joe

>

> > These are some of my problems: constantly cold hands, lack of

> > confidence/self esteem, lack of self identity, unable to talk

> > openly about my emotions, lack of energy and motivation,

> inability

> > to make decisions, foggy brain (difficulty thinking clearly

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Guest guest

Hi Joe...

Have you tapped on blood circulation? When the hands go cold like that I'm

pretty sure it means that the blood has been redirected somewhere else. My guess

is the heart. The inner organs. This is a survival mechanism of the body when it

is shutting down. Hypothermia is a good example.

The other thing that comes to mind would be to ask you...when did the hands

start behaving this way? Was it prior to EFT? ...and what was going on in your

wives life at that time?

I was just wondering...if one is having these symptoms...and might be upset or

stuffing...or in denial or whatever, might it not be a fine way to redirect

attention away from what is really going on? I think you mentioned emotions

seem to play a part?

Some people choose to obsess...some choose to compulse...some choose to have

pain somewhere, some choose anxiety or fear for similar reasons et al. It takes

the " heat " off. Does this ring any bells? I'm only speculating.

Just some thoughts...Syena.

Message: 4

Date: Mon, 24 Mar 2003 15:28:50 -0000

From: " Joe " <jzbozzi@...>

Subject: Re: intro

Hi Carly and all

I wanted to jump in here, Doris is my wife.

For 6 months she has been on a very healing diet.

I often drive many

hours to get the best food available, because I

believe good food is

the best medicine. She has eaten low carb and

very little sugar. As

a result she has experienced astounding health

improvements. Her

sugar cravings are gone, her hypoglycemia she

lived with all her life

is gone, and all the menstrual problems she lived

with (excessive

bleeding, pain, irregularity, etc) since in her

teens are completely

gone. We eat a lot of natural probiotics like

kefir, kambucha,

kimchi, and yoghurt. If she did have a candida

problem I would be

cleared up now because she has taken all the

necessary steps.

However, the problems she listed persist. The

only time she has

relief from these problems is when she taps or

addresses emotional

problems in some way. We think it all comes down

to her belief that

it is wrong to express emotions. She has lived

this way all her

life. It seems all the fear and pain was just

eating away at her all

her life, and she felt she could not express it

to anyone. We also

think that constant low level stress has put wear

on her adrenal

glands because she was on a constant state of

fear. All of her

symptoms seem to indicate adrenal wear and maybe

some hypothyroidism

as a result. so at the moment we think until she

can learn to

express emotions, stop being affraid, and

acheive some inner piece,

she will continue to be stressed and these things

will not go away.

As she mentioned, most of the problems have gone

away at some points

when tapping, if not for only a couple of hours.

It is truly

amazing.

However, I also think this outward calmness has

become her identity

to others, and she has always been concerned

about what others think

of her, not what she thinks. That if she gets

rid of that she has no

identity. This may be her block. But now she

also realizes that by

doing this she has been hurting herself.

One of the strange things she experiences when

tapping are changes in

the temperature of her hands. Sometimes the left

is cold and right

is hot, sometimes reverse. Often both are cold,

occasionaly both

become hot. Maybe this is just part of the

adrenal issue.

Thanks to everyone

-Joe

*In depth study of Trika * innerbliss

---------------------------------

Post your free ad now! Canada Personals

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  • 5 weeks later...
Guest guest

Hi Joe and Doris,

You have been on my mind for a long time now, but I never got around

to answering this post till now. My apologies.

Comment: Congratulations! You seem to be dealing pretty well with

following a Candida elimination programme...I do a lot of this with

my clients, so I am familiar with what works.

Question: Are you also working on a good programme for eliminating

other parasites from the body? That might make a very very very big

difference as well.

With a Candida/Hypoglycemia client, I do a lot of work on the Solar

Plexus - chakra balancing, making sure the minerals for the spleen/

pancreas are sufficent and using herbs to support this organ, doing

yogic abdominal breathing, lots and lots of relaxation, handling self-

esteem issues, boundary issues, learning how to keep one's energy

field intact and free of interference from other people's energy

fields..in other words, learning how NOT to pick up other people's

energy and " stuff " !!! If Doris is always concerned and affected by

what other people think, then her boundaries with that person/those

people need strengthening....they need to be brought up to 100% for

each person who affects her that way. A 100% boundary is when one

has no knee-jerk reactions to another, but can come from freedom of

choice in one's response.

Energy Balancing, Brain Integration and dyslexia work help

tremendously too.

I have a whole bunch of other stuff to share, but usually I work with

muscle-testing, then I know what each individual needs....it's not

always the same in each case. It is very important to work on the

emotional root cause - the causal potency of what causes the

spleen/pancreas to overwork....it helps to do an age capacity process

and see where it originated, and clear that. I work with 10

different priorities for healing in Kalos - structural, nutritional,

emotional, electrical, exercise and rest, cleanse, Bach Flowers,

chakras, spiritual and reactives - the muscle-testing guides us to

the priorities in their order of importance. The EP modalities come

in very handy too.

Let me know if I can be of any further assistance...and please keep

us informed of Doris' ongoing progress.

Sincerely,

Daya

---------------------------------------------------

Dayawanti D'Sa, BBA [Fin & Bkg], CKHFT [Dip - A.K.]

Applied Kinesiologist

Certified Kalos Health Facilitator Trainer www.kalos.org

EFT, BSFF, TAT, iSt 9x9, Silva Method, Allergy Antidotes/Energy

Toxins,

Light Language, Reiki, Cranio-Sacral, Meditation enthusiast:

www.sos.org

Member: Nat'l Assoc of Naturopaths, Montreal, Canada

Moderator: [Tap 'n B Free]

www./group/EmotionalFreedomTechniques

Moderator: [inTheFlowResearch]

InTheFlowResearch

International Phone Consultations: 1 (786) 293-8123

sequoia40@..., innerlight_sound@...

To Schedule Appointments, contact Debbie djac705877@...

> >

> > > These are some of my problems: constantly cold hands, lack of

> > > confidence/self esteem, lack of self identity, unable to talk

> > > openly about my emotions, lack of energy and motivation,

> > inability

> > > to make decisions, foggy brain (difficulty thinking clearly

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  • 1 year later...
Guest guest

I feel like, since I feel like crap everyday and I still muster up

the strength to crawl out of bed make to work and get my job done

everyday, the healthy people I work with should suck it up too, lol.

(guess I might need to work on that).

>

Oh , you sound just like me!! I can be a real bitch a lot of

the time...I blame the damn hormones...and frustration! Hang in

there...sounds like you are having a heckuva time...dont'cha HATE

dealing with doctors!? ugh...

Rhonda

> Thank you Rhonda for the welcome,

>

> I went to the hospital this morning and saw some quack! I have

been having dizzy spells all week and they are getting worse, I have

been sooo tired all the time for about the past three weeks! I have

to nap when I get home from work, if I don't give in to a nap I feel

very sick like I'm gonna puke or pass out! My fingers/hands are

peeling, I have no energy, feel like I'm 105 years old, but according

to the doc I saw, nothing is wrong with me. The idiot I saw this

morning, said I have Vertigo, they don't know, so they just name it

whatever sounds close.

>

> I was laying in the hospital bed for 4 hours this morning, come to

find out the doc was waiting for pregnancy test results! I told the

idiot that my tubes were tied 5 years ago and not having my period

since mid April is normal for having my dosage off! I thought he

only ordered tyroid tests! I have to pay for a pregnancy test too!

I figured at least when I get into my OB, I could have a copy of the

tests to show him, since he would have to order them before he makes

a decision anyway. This doc didn't even know what tests to order, he

said he didn't want the TSH, because I already know I am hypo and

that wouldn't tell him anything. He wasn't sure which T3, T4 tests

to order, so he had the receptionist call the lab and ask. They told

her to order the T3, T4 and TSH. He refused the TSH and replaced it

with a pregnancy test! (I know what the lab said, because I listened

to the two receptionists debate whether they should do what the doc

said or what the lab said). I was sooooo mad!

>

> By the way, of course the preg. test was neg. I'm gonna try to

fight paying for that! Now when I see the OB, I'm still not gonna

have all the info he will need to make his diagnosis! I'm still

gonna have to wait for more tests before I can get a referral!

> The quack at the hospital also said that my results are within the

normal range, so nothing is wrong with me.

>

> As for being labled a whiner, I don't even bother mentioning it

anymore. No one I know understands anyway. I do notice that I am

harder on those I work with. > Thanks again for the welcome

> Hugs,

>

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  • 6 months later...

Hi & Welcome!

I'm is (24), I have a 2 yr old son. I have been on Lexapro

since November 15th...I am on 20mg a day. So far its helped

tremendously!!!!!

You found a great group of people! Make yourself at home!

is

>

> Hello,

>

> My name is Poppy, I'm a 33 year old married female w/one 10y.o.

son.

> I have mild depression, does not come anywhere close to what some

of

> you guys are going through! To those of you who struggle with

severe

> depression, my heart goes out to you. My sister is severely

> depressed, and is on at least eight medications simultaneously, so

> while I feel lucky not to be so severely afflicted, I do recognize

> the pain you face, and I wish you strength.

>

> I take 5mgs Lexapro daily, which keeps me from being irritable,

> having mood swings and panic episodes, and helps me endure my lame

> job, which I do need to keep, for the sake of myself, the family,

and

> my community.

>

> My doctor started me off on a low dose of Paxil, which made me

> completely unable to sleep, and I quit completely after taking it

for

> four days. After this I was still being witchy, so she prescribed

> 10mgs Lexapro, which I have secretly been cutting in half, since I

> know I do not need that much for it to be effective. It really is

> effective for me, and I do not worry too much about side effects

from

> quitting later, because the dose is already low.

>

> I will probably not post too frequently, but I wanted to let you

know

> that I am here. If anyone would like to contact me with comments

or

> questions, please email me personally, as I work full time and may

> not read all of the digests.

>

> I hope all of you find the support you need, especially during the

> holidays, when family and finances (or lack of same) can drive us

> more nuts than we already are. Please take care.

>

> Poppy

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Hi & Welcome!

I'm is (24), I have a 2 yr old son. I have been on Lexapro

since November 15th...I am on 20mg a day. So far its helped

tremendously!!!!!

You found a great group of people! Make yourself at home!

is

Hi is, did you suffer any side effects with it. Terry

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  • 4 weeks later...

I also would like to add this question. How will the condition of

his ankles affect his hip usage? The doc/surgeon said that he may

not be a candidate for ankle replacement. He did not say why,

specifically, but he did mention that there was deformaty and

swelling in the ankle.

Any feedback would be appreciated.

Sincerely, Jenni

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  • 2 weeks later...

Hi, Lynneanne,

I've had Hepatitis C, genotype 1B, for what we can figure is about 47 years,

from a blood transfusion I had as a child. I was diagnosed almost three years

ago. I've chosen (for now) not to do treatment.

Has your mom had a liver biopsy? What did it show? A liver biopsy is the only

true way to know what damage Hepatitis C has done. My biopsy showed no damage,

so I chose not to go through the treatment. Treatment can be pretty rough, and

a lot of the side effects can be permanent. That said, some people go through

it just fine, and are perfectly healthy afterwards. We just never know how it

will go for us.

Genotypes 1 have the least success with treatment than do other genotypes. 40%

is a generous estimate. But if your mom does have liver damage, she needs to do

what she feels she has to, for her health. It is a decision *she* has to make,

please let her know that a lot of doctors will try to railroad us into

treatment, when it sometimes goes against everything we feel about it.

This is a great list, with a lot of caring people on it. They have lots of good

advice. There are things people with Hepatitis C can do to feel better in

general. I don't know if she's having the symptoms of fatigue and brain fog

that can accompany the virus, but they are common. Just in case, I'll share a

few. The people on this list and another really helped me to cope with my

symptoms. They gave me suggestions that worked beautifully. Here are a few for

your mom: Drink water! One oz. of water for every 2# of body weight per day.

You're going to get up at night a lot at first, but your body learns to deal

with it. I carry a water bottle with me everywhere. It's just good to do for

general health, to keep flushing toxins from your body. Get enough protein.

We're tired, we're draggy, we just don't feel like cooking so we grab whatever

is easy. The foods that give us energy are protein-based. We need 60 grams of

protein a day. Get a book on nutritional values - most even include Mcs

and Burger King. Seek out protein first, if you can't get it from food, you can

get drinks from health food stores. Just be sure that they have NO Iron.

People with Hep C cannot process Iron, it gets stored in the liver and causes

damage.

Take a good multivitamin every day that is also without iron. The " silver " or

" senior " vitamins generally have no iron because as we age, we don't need it.

You can have foods with iron in them, if you make sure you don't have vitamin C

with them. For instance, I love spinach salad. I can have one, if I don't have

tomatoes, mandarin oranges or strawberries on it, too. Your body will just pass

any iron you eat, unless there is vitamin C there to process it. Then it goes

straight to the liver.

Exercise! (Ok, I can hear the wild laughter about that one!) When I first

joined this list, and people were helping me to have a healthier life, one of

the men on this list told me to exercise (Glenn? I don't remember now). He

said that if I walked to the corner and back and came home and took a 2 hour

nap, that was ok, because it was exercise. The next day, I might even be able

to go around the corner, and someday I might even be able to go around the block

and only need a 20 minute nap when I got home!

And I was told not to beat myself up if I was tired and wanted to lay down. If

I got up at 8:30 and by 9:30, needed to sleep some more, go for it. I would

feel like I *shouldn't* be tired after sleeping all night, so would fight it

until late afternoon, and then crash for a couple of hours. If I lay down at

9:30 when I first felt tired, I might sleep for 20 minutes, or even an hour, but

then I had energy for the rest of the day, instead of feeling like a zombie all

the time.

I feel better than I have in years. I just attributed what was happening to me

to getting older - so not the case! Just by making these changes, I hardly ever

nap now, I have energy, and I am enjoying life like I haven't in years. My dog

is loving the walks I am taking him on anymore!

I just wanted to give you the perspective of someone living with Hep C who isn't

doing treatment. There are lots of wonderful people here, some of which are

repeating the treatment more than once or twice. I hope you get feedback from

them, too. Most of us live with Hep C, and won't die from it. And we all know

how scared you and your mom are to hear this diagnosis, we have all been through

it. When my doctor called me with the results, I thought, well, now I know what

is going to kill me. I don't think that way any more.

You are a loving daughter, you must have a great mom. Please stick with this

list, in spite of a lot of junk science studies that a couple of people post

(right, Magge?). There are caring people here. They might not answer right

away because they are dealing with their virus, but know that they are with you

and your mom in spirit.

Best to your mom,

Marilyn

Intro

Hello, just thought I would introduce myself to the group. I

recently found out that my mother has tested positive for Hep C. She

contracted it from a blood transfusion approx. 20 years ago. She has

type 1A, and is considering treatment. I was wondering if anyone has

gone through the treatment, or know of someone who has gone through

the treatment. I know that there are several side effects from the

treatment. I was interested in what the outcome was from the

treatment, seeing as how it is only 40% effective. Any information

would be greatly appreciated.

Thank you,

lynneannne

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hello, thank you so much for your reply. It has given me alot of

hope and really good info.

My mother was initially diagnosed with the hep c in 95. At that time

she had a biopsy, and the doctor said there was no damage and that he

was incorrect in his diagnosis. So nothing else was done.

Recently, my mother started to have syptoms (ie. fatigue, body ache

etc). She went back in about a month ago, to a differnt doc, he ran

blood and confirmed hep c. This doc, then sent her to a specialist.

She has had a biopsy, as well as, a sonigram. There is no evidence

of liver damage, nor did she have elevated liver function. The

specialist advised her, in so many words, not to do the treatment.

My mother is 50 years old, however, she is more like a 30 year old in

health. My concern is that if she doesn't get treatment, what will

her quality of life be like for the next 40 years? Also, what if the

disease does progress, and then she really will be too old for

treatment.

I know that I am asking alot of " what if " questions and that there is

really no way of knowing what the outcome will be. I just want the

best for my mother, and not to sound too selfish, I would like her to

be around for the next 40 or 50 years.

It is very difficult for me, for the fact that she lives in another

state, and I can't speak to her doctor. The only thing that I can do

is read up on the disease online. It's very frustrating to say the

least.

I just wanted to say thank you again for your support and

information. I will pass it along to my mother.

Best wishes to you and yours.

lynneannne

> Hi, Lynneanne,

>

> I've had Hepatitis C, genotype 1B, for what we can figure is about

47 years, from a blood transfusion I had as a child. I was diagnosed

almost three years ago. I've chosen (for now) not to do treatment.

>

> Has your mom had a liver biopsy? What did it show? A liver biopsy

is the only true way to know what damage Hepatitis C has done. My

biopsy showed no damage, so I chose not to go through the treatment.

Treatment can be pretty rough, and a lot of the side effects can be

permanent. That said, some people go through it just fine, and are

perfectly healthy afterwards. We just never know how it will go for

us.

>

> Genotypes 1 have the least success with treatment than do other

genotypes. 40% is a generous estimate. But if your mom does have

liver damage, she needs to do what she feels she has to, for her

health. It is a decision *she* has to make, please let her know that

a lot of doctors will try to railroad us into treatment, when it

sometimes goes against everything we feel about it.

>

> This is a great list, with a lot of caring people on it. They have

lots of good advice. There are things people with Hepatitis C can do

to feel better in general. I don't know if she's having the symptoms

of fatigue and brain fog that can accompany the virus, but they are

common. Just in case, I'll share a few. The people on this list and

another really helped me to cope with my symptoms. They gave me

suggestions that worked beautifully. Here are a few for your mom:

Drink water! One oz. of water for every 2# of body weight per day.

You're going to get up at night a lot at first, but your body learns

to deal with it. I carry a water bottle with me everywhere. It's

just good to do for general health, to keep flushing toxins from your

body. Get enough protein. We're tired, we're draggy, we just don't

feel like cooking so we grab whatever is easy. The foods that give

us energy are protein-based. We need 60 grams of protein a day. Get

a book on nutritional values - most even include Mcs and Burger

King. Seek out protein first, if you can't get it from food, you can

get drinks from health food stores. Just be sure that they have NO

Iron. People with Hep C cannot process Iron, it gets stored in the

liver and causes damage.

>

> Take a good multivitamin every day that is also without iron.

The " silver " or " senior " vitamins generally have no iron because as

we age, we don't need it. You can have foods with iron in them, if

you make sure you don't have vitamin C with them. For instance, I

love spinach salad. I can have one, if I don't have tomatoes,

mandarin oranges or strawberries on it, too. Your body will just

pass any iron you eat, unless there is vitamin C there to process

it. Then it goes straight to the liver.

>

> Exercise! (Ok, I can hear the wild laughter about that one!) When

I first joined this list, and people were helping me to have a

healthier life, one of the men on this list told me to exercise

(Glenn? I don't remember now). He said that if I walked to the

corner and back and came home and took a 2 hour nap, that was ok,

because it was exercise. The next day, I might even be able to go

around the corner, and someday I might even be able to go around the

block and only need a 20 minute nap when I got home!

>

> And I was told not to beat myself up if I was tired and wanted to

lay down. If I got up at 8:30 and by 9:30, needed to sleep some

more, go for it. I would feel like I *shouldn't* be tired after

sleeping all night, so would fight it until late afternoon, and then

crash for a couple of hours. If I lay down at 9:30 when I first felt

tired, I might sleep for 20 minutes, or even an hour, but then I had

energy for the rest of the day, instead of feeling like a zombie all

the time.

>

> I feel better than I have in years. I just attributed what was

happening to me to getting older - so not the case! Just by making

these changes, I hardly ever nap now, I have energy, and I am

enjoying life like I haven't in years. My dog is loving the walks I

am taking him on anymore!

>

> I just wanted to give you the perspective of someone living with

Hep C who isn't doing treatment. There are lots of wonderful people

here, some of which are repeating the treatment more than once or

twice. I hope you get feedback from them, too. Most of us live with

Hep C, and won't die from it. And we all know how scared you and

your mom are to hear this diagnosis, we have all been through it.

When my doctor called me with the results, I thought, well, now I

know what is going to kill me. I don't think that way any more.

>

> You are a loving daughter, you must have a great mom. Please stick

with this list, in spite of a lot of junk science studies that a

couple of people post (right, Magge?). There are caring people

here. They might not answer right away because they are dealing with

their virus, but know that they are with you and your mom in spirit.

>

> Best to your mom,

>

> Marilyn

>

>

> Intro

>

>

>

> Hello, just thought I would introduce myself to the group. I

> recently found out that my mother has tested positive for Hep C.

She

> contracted it from a blood transfusion approx. 20 years ago. She

has

> type 1A, and is considering treatment. I was wondering if anyone

has

> gone through the treatment, or know of someone who has gone

through

> the treatment. I know that there are several side effects from

the

> treatment. I was interested in what the outcome was from the

> treatment, seeing as how it is only 40% effective. Any

information

> would be greatly appreciated.

>

> Thank you,

>

> lynneannne

>

>

>

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Thanks, Lynneanne! You sound a lot like my son did when I got my diagnosis - he

really wanted me to take the treatment and " fix it " . I know it's really

frightening when you hear the diagnosis, we've all been there. Some of us are

fortunate enough that our immune systems can handle these viruses, even if we

may not be able to get rid of them.

If your mother monitors her health with her Hep C doctor, they will know in

plenty of time that the virus is starting to do damage, and can make the

decision about treatment at that time. So few people actually die from Hep C,

usually something else gets them first. It's learning about the worst case

scenario that is hard to get used to.

Marilyn

Re: Intro

hello, thank you so much for your reply. It has given me alot of

hope and really good info.

My mother was initially diagnosed with the hep c in 95. At that time

she had a biopsy, and the doctor said there was no damage and that he

was incorrect in his diagnosis. So nothing else was done.

Recently, my mother started to have syptoms (ie. fatigue, body ache

etc). She went back in about a month ago, to a differnt doc, he ran

blood and confirmed hep c. This doc, then sent her to a specialist.

She has had a biopsy, as well as, a sonigram. There is no evidence

of liver damage, nor did she have elevated liver function. The

specialist advised her, in so many words, not to do the treatment.

My mother is 50 years old, however, she is more like a 30 year old in

health. My concern is that if she doesn't get treatment, what will

her quality of life be like for the next 40 years? Also, what if the

disease does progress, and then she really will be too old for

treatment.

I know that I am asking alot of " what if " questions and that there is

really no way of knowing what the outcome will be. I just want the

best for my mother, and not to sound too selfish, I would like her to

be around for the next 40 or 50 years.

It is very difficult for me, for the fact that she lives in another

state, and I can't speak to her doctor. The only thing that I can do

is read up on the disease online. It's very frustrating to say the

least.

I just wanted to say thank you again for your support and

information. I will pass it along to my mother.

Best wishes to you and yours.

lynneannne

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Hi Lynneanne,

It is really great that you are taking this time to learn more about

your mom's infection.

As Marilyn mentioned not everyone does treatment, or needs to right

now. About 15% of those exposed to the virus will clear it with no

chronic infection (chronic means an infection lasting 6 months or

more). The community uses a 20-20-20 guide. It takes 20 or more

years for symptoms to show up; 20% of those with chronic infection

will develop cirrhosis: 20% of those will develop End Stage Liver

Disease or HCC, cancer. So, what does that look like? Out of 1,000

people, 850 will be chronically infected; of those, 170 will develop

cirrhosis; and of those, 34 will develop ESLD or HCC. That means

there are 680 infected people, two thirds, who will not have long-

term problems with hepatitis C. They will die WITH it not FROM it.

Check the HCV Advocate, Hepatitis Magazine, Hepatitis Foundation

International and the National Hepatitis Collation websites to find a

support group in your area.

Glenn

> > Hi, Lynneanne,

> >

> > I've had Hepatitis C, genotype 1B, for what we can figure is

about

> 47 years, from a blood transfusion I had as a child. I was

diagnosed

> almost three years ago. I've chosen (for now) not to do treatment.

> >

> > Has your mom had a liver biopsy? What did it show? A liver

biopsy

> is the only true way to know what damage Hepatitis C has done. My

> biopsy showed no damage, so I chose not to go through the

treatment.

> Treatment can be pretty rough, and a lot of the side effects can be

> permanent. That said, some people go through it just fine, and are

> perfectly healthy afterwards. We just never know how it will go

for

> us.

> >

> > Genotypes 1 have the least success with treatment than do other

> genotypes. 40% is a generous estimate. But if your mom does have

> liver damage, she needs to do what she feels she has to, for her

> health. It is a decision *she* has to make, please let her know

that

> a lot of doctors will try to railroad us into treatment, when it

> sometimes goes against everything we feel about it.

> >

> > This is a great list, with a lot of caring people on it. They

have

> lots of good advice. There are things people with Hepatitis C can

do

> to feel better in general. I don't know if she's having the

symptoms

> of fatigue and brain fog that can accompany the virus, but they are

> common. Just in case, I'll share a few. The people on this list

and

> another really helped me to cope with my symptoms. They gave me

> suggestions that worked beautifully. Here are a few for your mom:

> Drink water! One oz. of water for every 2# of body weight per

day.

> You're going to get up at night a lot at first, but your body

learns

> to deal with it. I carry a water bottle with me everywhere. It's

> just good to do for general health, to keep flushing toxins from

your

> body. Get enough protein. We're tired, we're draggy, we just

don't

> feel like cooking so we grab whatever is easy. The foods that give

> us energy are protein-based. We need 60 grams of protein a day.

Get

> a book on nutritional values - most even include Mcs and

Burger

> King. Seek out protein first, if you can't get it from food, you

can

> get drinks from health food stores. Just be sure that they have NO

> Iron. People with Hep C cannot process Iron, it gets stored in the

> liver and causes damage.

> >

> > Take a good multivitamin every day that is also without iron.

> The " silver " or " senior " vitamins generally have no iron because as

> we age, we don't need it. You can have foods with iron in them, if

> you make sure you don't have vitamin C with them. For instance, I

> love spinach salad. I can have one, if I don't have tomatoes,

> mandarin oranges or strawberries on it, too. Your body will just

> pass any iron you eat, unless there is vitamin C there to process

> it. Then it goes straight to the liver.

> >

> > Exercise! (Ok, I can hear the wild laughter about that one!)

When

> I first joined this list, and people were helping me to have a

> healthier life, one of the men on this list told me to exercise

> (Glenn? I don't remember now). He said that if I walked to the

> corner and back and came home and took a 2 hour nap, that was ok,

> because it was exercise. The next day, I might even be able to go

> around the corner, and someday I might even be able to go around

the

> block and only need a 20 minute nap when I got home!

> >

> > And I was told not to beat myself up if I was tired and wanted to

> lay down. If I got up at 8:30 and by 9:30, needed to sleep some

> more, go for it. I would feel like I *shouldn't* be tired after

> sleeping all night, so would fight it until late afternoon, and

then

> crash for a couple of hours. If I lay down at 9:30 when I first

felt

> tired, I might sleep for 20 minutes, or even an hour, but then I

had

> energy for the rest of the day, instead of feeling like a zombie

all

> the time.

> >

> > I feel better than I have in years. I just attributed what was

> happening to me to getting older - so not the case! Just by making

> these changes, I hardly ever nap now, I have energy, and I am

> enjoying life like I haven't in years. My dog is loving the walks

I

> am taking him on anymore!

> >

> > I just wanted to give you the perspective of someone living with

> Hep C who isn't doing treatment. There are lots of wonderful

people

> here, some of which are repeating the treatment more than once or

> twice. I hope you get feedback from them, too. Most of us live

with

> Hep C, and won't die from it. And we all know how scared you and

> your mom are to hear this diagnosis, we have all been through it.

> When my doctor called me with the results, I thought, well, now I

> know what is going to kill me. I don't think that way any more.

> >

> > You are a loving daughter, you must have a great mom. Please

stick

> with this list, in spite of a lot of junk science studies that a

> couple of people post (right, Magge?). There are caring people

> here. They might not answer right away because they are dealing

with

> their virus, but know that they are with you and your mom in

spirit.

> >

> > Best to your mom,

> >

> > Marilyn

> >

> >

> > Intro

> >

> >

> >

> > Hello, just thought I would introduce myself to the group. I

> > recently found out that my mother has tested positive for Hep

C.

> She

> > contracted it from a blood transfusion approx. 20 years ago.

She

> has

> > type 1A, and is considering treatment. I was wondering if

anyone

> has

> > gone through the treatment, or know of someone who has gone

> through

> > the treatment. I know that there are several side effects from

> the

> > treatment. I was interested in what the outcome was from the

> > treatment, seeing as how it is only 40% effective. Any

> information

> > would be greatly appreciated.

> >

> > Thank you,

> >

> > lynneannne

> >

> >

> >

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Hello, Blynneanne!

Just wanted to give you a thumbs up on treatment (tx) for genotype

1s. I am genotype one, undifferentiated...meaning that I have no A

or B mutation attached. Very low success rates. I had the virus

for 32 years before doing tx. I responded to the chemo and am now,

for now, virusfree ( I like that word better than

negative/nondetectable/zero; my doctor used it and I like it).

Call me, virusfree

Suzy

>

> Hello, just thought I would introduce myself to the group. I

> recently found out that my mother has tested positive for Hep C.

She

> contracted it from a blood transfusion approx. 20 years ago. She

has

> type 1A, and is considering treatment. I was wondering if anyone

has

> gone through the treatment, or know of someone who has gone

through

> the treatment. I know that there are several side effects from the

> treatment. I was interested in what the outcome was from the

> treatment, seeing as how it is only 40% effective. Any

information

> would be greatly appreciated.

>

> Thank you,

>

> lynneannne

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  • 5 months later...
Guest guest

TONEI

i HOPE YOU MADE AN INCIDENT REPORT AT WORK ON THIS. i WORKED IN NURSING AS WELL TILL 3 YRS AGo. I hate to hear you are suffering in pain so much. Sounds like you have a good man. Assure him that you are not fragile---and yes you are in pain, but there are ways to make it work in the sex department .

Its hard to loose a job you love--i worked in nursing for 19 years and had to resign due to my back and told i needed further surgery. I had a difficult time for about 2 yrs after that emotionally---i loved working with the elderly. It was my life--i knew nothing else. I wasnt ready to be a housewife----i do part time medical billing from home now--just a thought for you when you get treated and hopefully get some pain control. I cant sit long, etc... but i do billing for 1 psycologist who understands my situation and we work well with this. My prayers are with you. Im here if you need and info.

Beverly

-- Intro

I was injured in 1995 while helping to turn a severly obese patient. At the time I didn't know I was injured. I felt what I later described as a pop in my upper back, but no pain or discomfort. So I continued on my morning nursely routine. It wasn't until I went to hold a cup of milk up to a patients mouth that I lost all feeling in my left arm. That's when I felt the most horrible pain in my upper and lower back. It has been down hill every since. At first I was diagnosed with a Severe cervical strain. Later spondylosis was added. Then pertruding disk in my neck with degeneration/osteoarthritis in my upper and lower back. I'm now 37 y/o. I had just started dating this man 3 mths before all this happened. He being the man that He is immediately fell into the whatever I can do to help you routine. I had to retire, there was nothing that my job could do to accomodate such an injury. That in itself was bad enough, but over the years this wonderful man has become totally afraid to touch me. The constant pain I live in is nothing compared to seeing the person you adore pull away from you. How can I help Him, when there are days that I can barely help myself?

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Guest guest

Thanks Beverly, and yes my job did retire me. I guess more than anything just knowing that someone understands. He is a good man, and I know that. I wish that I could do so much more. He works 3 jobs. I guess that sometimes I just need a hug, and I find that he's not there at my most difficult times, and when He is home I try very hard not to show my pain.

-- Intro

I was injured in 1995 while helping to turn a severly obese patient. At the time I didn't know I was injured. I felt what I later described as a pop in my upper back, but no pain or discomfort. So I continued on my morning nursely routine. It wasn't until I went to hold a cup of milk up to a patients mouth that I lost all feeling in my left arm. That's when I felt the most horrible pain in my upper and lower back. It has been down hill every since. At first I was diagnosed with a Severe cervical strain. Later spondylosis was added. Then pertruding disk in my neck with degeneration/osteoarthritis in my upper and lower back. I'm now 37 y/o. I had just started dating this man 3 mths before all this happened. He being the man that He is immediately fell into the whatever I can do to help you routine. I had to retire, there was nothing that my job could do to accomodate such an injury. That in itself was bad enough, but over the years this wonderful man has become totally afraid to touch me. The constant pain I live in is nothing compared to seeing the person you adore pull away from you. How can I help Him, when there are days that I can barely help myself?

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Guest guest

Hi Tonei

My name is Janine I am 34 years old and have been in pain since 1994. The man I am with now is the man I was with when I hurt myself. Lets just say my life is not an easy one even to this day. I do however have one good response to your question. Eat up the caring the man gives you and open up to him and let him know when your pain is low. As most people know in the group I have struggles at times with my hubby. I have noticed though that since our last falling out we had he is morein tune to what I am feeling. He has asked that I let him know how I am doing and that I try for a change to make the first move. He feels better if he knew for sure that I was feeling ok and no better way to know than for me to make the first move. If you need to talk email me anytime. There are many other people in here that can help you too and if they cant help they can listen and try and give great advice. You have come to the right group I hope that you have a better day today.

Sincerely Janine IN Calitonei1224 <sabrcach@...> wrote:

I was injured in 1995 while helping to turn a severly obese patient. At the time I didn't know I was injured. I felt what I later described as a pop in my upper back, but no pain or discomfort. So I continued on my morning nursely routine. It wasn't until I went to hold a cup of milk up to a patients mouth that I lost all feeling in my left arm. That's when I felt the most horrible pain in my upper and lower back. It has been down hill every since. At first I was diagnosed with a Severe cervical strain. Later spondylosis was added. Then pertruding disk in my neck with degeneration/osteoarthritis in my upper and lower back. I'm now 37 y/o. I had just started dating this man 3 mths before all this happened. He being the man that He is immediately fell into the whatever I can do to help you routine. I had to retire, there was

nothing that my job could do to accomodate such an injury. That in itself was bad enough, but over the years this wonderful man has become totally afraid to touch me. The constant pain I live in is nothing compared to seeing the person you adore pull away from you. How can I help Him, when there are days that I can barely help myself?

Sell on Auctions - No fees. Bid on great items.

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Guest guest

Hi Janine, thanks for the words of encouragement. I took your advice and had a long heart to heart with my Hubby. I guess even though I thought he couldn't notice at times just how bad the pain was. It turns out that He could. I agreed to let him know when I was in pain, and he agreed to be more available for me. I also found out that he was feeling just as left out as I was. Thanks

-- Re: Intro

Hi Tonei

My name is Janine I am 34 years old and have been in pain since 1994. The man I am with now is the man I was with when I hurt myself. Lets just say my life is not an easy one even to this day. I do however have one good response to your question. Eat up the caring the man gives you and open up to him and let him know when your pain is low. As most people know in the group I have struggles at times with my hubby. I have noticed though that since our last falling out we had he is morein tune to what I am feeling. He has asked that I let him know how I am doing and that I try for a change to make the first move. He feels better if he knew for sure that I was feeling ok and no better way to know than for me to make the first move. If you need to talk email me anytime. There are many other people in here that can help you too and if they cant help they can listen and try and give great advice. You have come to the right group I hope that you have a better day today.

Sincerely Janine IN Calitonei1224 <sabrcach@...> wrote:

I was injured in 1995 while helping to turn a severly obese patient. At the time I didn't know I was injured. I felt what I later described as a pop in my upper back, but no pain or discomfort. So I continued on my morning nursely routine. It wasn't until I went to hold a cup of milk up to a patients mouth that I lost all feeling in my left arm. That's when I felt the most horrible pain in my upper and lower back. It has been down hill every since. At first I was diagnosed with a Severe cervical strain. Later spondylosis was added. Then pertruding disk in my neck with degeneration/osteoarthritis in my upper and lower back. I'm now 37 y/o. I had just started dating this man 3 mths before all this happened. He being the man that He is immediately fell into the whatever I can do to help you routine. I had to retire, there was nothing that my job could do to accomodate such an injury. That in itself was bad enough, but over the years this wonderful man has become totally afraid to touch me. The constant pain I live in is nothing compared to seeing the person you adore pull away from you. How can I help Him, when there are days that I can barely help myself?

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Click a photo to view a larger version on Photos. See links above for more options.

Hi

I am glad that you have talked with your hubby. It makes all the difference in the world when you can communicate with your loved one and you can also learn what they are feeling as well. I am glad that what I said helped and it makes me ffel good that you let me know. Sometimes I wonder if what I say really works for others in the same situation I am in or have been in. I also wonder if others really take me seriously and try what I suggest. Thanks so much for leting me know and I am so happy that things are going better for you. It kinda makes you feel better to know that he was actually in the same boat you were in (feeling left out) this whole time and just talking with him has let you see that. I know that the pain that we deal with on a daily basis is something that only we and others that have this pain can understand. But what if the shoe were on the other foot could we understand what our mate is feeling emotionally because of what we are going through and putting

them through. ( all the worrying,all the burden that they try not to show so we wont feel bad, all the sadness of not being able to make us better, and lastly at least for my hubby he always worries if he is doing the right thing hoping that my mood is a good one and that I can show appreciation for him trying to make me feel better in the only ways he knows how) I am not saying that this is happening to all of us but I know it is happening to some and I think if we were able to put ourselves in their shoe for a minnute and they put their selves in ours we would all get along so much better. I think that is why communication is so important even though it may be the HARDEST thing someone who was never taught to do but it really pans out for the most part for all of us. Well enough of the heart felt convictions I am having I just want to say a BIG THANK YOU what you have wirtten helps me more than you will ever know. My goal in life is to always be there to help my friends and that

has made my day what you have shared with me. Have a great night and try and get some good rest..My prayers are with you all

Sincerely Janine IN Cali" D. Archie" <sabrcach@...> wrote:

Hi Janine, thanks for the words of encouragement. I took your advice and had a long heart to heart with my Hubby. I guess even though I thought he couldn't notice at times just how bad the pain was. It turns out that He could. I agreed to let him know when I was in pain, and he agreed to be more available for me. I also found out that he was feeling just as left out as I was. Thanks

-- Re: Intro

Hi Tonei

My name is Janine I am 34 years old and have been in pain since 1994. The man I am with now is the man I was with when I hurt myself. Lets just say my life is not an easy one even to this day. I do however have one good response to your question. Eat up the caring the man gives you and open up to him and let him know when your pain is low. As most people know in the group I have struggles at times with my hubby. I have noticed though that since our last falling out we had he is morein tune to what I am feeling. He has asked that I let him know how I am doing and that I try for a change to make the first move. He feels better if he knew for sure that I was feeling ok and no better way to know than for me to make the first move. If you need to talk email me anytime. There are many other people in here that can help you too and if they cant help they can listen and try and give great advice. You have come to the right group I hope that you have a better day today.

Sincerely Janine IN Calitonei1224 <sabrcach@...> wrote:

I was injured in 1995 while helping to turn a severly obese patient. At the time I didn't know I was injured. I felt what I later described as a pop in my upper back, but no pain or discomfort. So I continued on my morning nursely routine. It wasn't until I went to hold a cup of milk up to a patients mouth that I lost all feeling in my left arm. That's when I felt the most horrible pain in my upper and lower back. It has been down hill every since. At first I was diagnosed with a Severe cervical strain. Later spondylosis was added. Then pertruding disk in my neck with degeneration/osteoarthritis in my upper and lower back. I'm now 37 y/o. I had just started dating this man 3 mths before all this happened. He being the man that He is immediately fell into the whatever I can do to help you routine. I had to retire, there was

nothing that my job could do to accomodate such an injury. That in itself was bad enough, but over the years this wonderful man has become totally afraid to touch me. The constant pain I live in is nothing compared to seeing the person you adore pull away from you. How can I help Him, when there are days that I can barely help myself?

Sell on Auctions - No fees. Bid on great items.

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  • 6 months later...

Oops I saw your second intro and you answered the questions I asked you

there LOL!

I had the same worries of not qualifying when I first started the process

too. From what I can see the main reasons a person would not qualify is if:

1) They are getting good benefit from conventional hearing aids (yeah

right!)

2) The cochlear structure is malformed making surgery difficult (CT scan and

MRI tests for this)

3) Non functioning auditory nerve (my surgeon tested my nerve using a probe

in the ear. If nerve is damaged then a brain stem implant can be done)

Hope that helps,

_____

From: [mailto: ] On Behalf Of

suzimq

Sent: Friday, 27 January 2006 6:10 AM

Subject: Intro

Hi, I'm new to the group, thought I'd introduce myself.

I'm another , but from San Diego. I just became deaf on October 1,

2005 OverNight!! Nothing was wrong with my hearing before than and I'm now

profoundly deaf with no measurable hearing in either ear. I was diagnosed

with a very rare autoimmune disease called Cogan's Syndrome.

I'm trying to adjust to my hearing loss, learning communication skills etc.,

but am very excited about getting an implant.

I've been told I'm an excellent candidate, I have a full two day evaluation

in March at the clinic I've chosen. and am taking it from there. I'm just

starting to review the different implant types etc.

My biggest worry is if I don't qualify!! What would cause a person not to

be elgible? (I have the hearing loss, motivation, etc.)

Anyway, nice to meet you. (I just started a Sign Class and that's one of

the first sign phrases I know so I'm used to saying it all the time now.!)

(San Diego)

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