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Hi

I agree with both Lamar and Becky. CMT is so totally unpredictable. July 98 I

walked around Amsterdam with a cane and in April 99 I was pushed round Paris in

a wheelchair unable to walk unaided for more than a few feet. The only trouble

was I didn't know then what was wrong with me and the doctors could give me no

explaination why I couldn't walk. That experience has really freaked me out and

I wouldn't wish it on anyone.

Even discovering about CMT although it helps to understand what has happened to

me the whole experience and the battle that continues has left scars that will

never heal.

Love

Sue

The important thing is never to stop questioning.

Website www.horder-mason.freeserve.co.uk

Freelance Writer and CMTer

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  • 1 year later...

----- Original Message -----

From: joshua12

Joyce Dow

Sent: Monday, December 09, 2002 4:28 PM

Subject: CMT Article

Mom,

Here's the edited article. Let me know if it looks okay.

" Never doubt that a small group of thoughtful, committed citizens can change

the world; indeed, it is the only thing that ever has. "

-Dr. Margaret Mead

Hear the music

By Eden Robins

~For my mother, Joyce, and all the courageous women and men in her CMT group~

I hear the music in my head,

I close my eyes and feel its melody running through me.

Each note, each beat makes me want to tap my feet, strum my fingers, and shrug

my shoulders to its magical sound.

But I can't.

I hear the music in my head,

I can't dance to it.

But I can close my eyes and let it take me far away.

I can let it fill me so completely that the beauty of it

Makes tears of happiness come to my eyes.

I see my grandchildren running joyful and free,

As the air fills with the sound of their laughter.

I want to rise up and join in the fun, twirl them around as I watch their faces

light up with happiness.

But I can't.

I see my grandchildren running joyful and free,

I can't run with them.

But I can fill their heads with amazing stories and their pockets with sweet

treats.

I can hold them close and give them the hugs and kisses that let them know how

much I love them.

I see my children walk rapidly ahead of me,

Engaged in the earnest conversation that is so typical of their age.

I want to catch up to them, and join in, so that I may add my two cents worth.

But I can't.

I see my children, deep in conversation, walk ahead of me,

I can't keep up.

But when we are seated together in my home or theirs,

I can give them the kind of advice that only love, age, and experience will

lend.

I want to wake up in the morning without pain.

I want to wake up in the morning able to feel my fingers and hands.

I want to throw out the pain pills, icepacks, and heating pads once and for all.

But I can't.

I want to wake up each day, without pain and numbness,

Most mornings I can't,

But I can face the new dawn with the knowledge that this day is mine,

And I will make of it what I want it to be.

I want to be able to explain my condition

Without feeling like I have to defend the fact that

Even though I look perfectly fine, I AM NOT.

But I can't

I want to explain my condition without feeling like I have to defend myself,

I just can't.

But, wait, I can.

I can talk about it with confidence,

In the knowledge that my friends also fight this battle with me,

I am not imagining it, I am not crazy, I am not alone.

Eden Robins is a romance author. Visit her at: www.edenwrites.com

NEVER UNTIL TOMORROW, her time travel romance, is available through

www.barnesandnoble.com,

YESTERDAY'S PROMISE, her paranormal romance, is available in March 2003 through

www.wings-press.com

Eden Robins

NEVER UNTIL TOMORROW ISBN 0-595-15422-0 www.iUniverse.com January 2001

YESTERDAY'S PROMISE www.wings-press.com March 2003

E-book ISBN 1-59088-156-7 Trade paperback ISBN 1-59088-824-3

www.edenwrites.com

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  • 10 months later...

Deb, this is great news! Any chance you can scan it and send it to me

for the group files; or any chance you can snail mail it to me and I

will scan it and put it in our files for everyone to see.

~ Gretchen

dgooodwin@... wrote:

> the local newspaper did my story on nov.23

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