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I truly feel your pain and heartache. We had much the same result with

our 2nd opinion rheumy. He thought that Rob was hypermobile and that

there was a 'psychological component' to his pain. He said that Rob

needed to exercise more. He said that with Rob (at that time) having

osteopenia that it must be the cause of the pain. He did not even attempt

to explain why he had effusions in both hip joints. Didn't offer to do

any further testing to find out why he hurt. This was the low point of

Rob's journey. I already had another appointment scheduled with the third

rheumatologist and when we kept that appt we began to get answers.

I know this is of little comfort right now, but you truly are a fighter

and I know that you will find the right doctor for your child. I will be

praying for you.

In the meantime, I heartily agree with Robbin. needs to have a

wonderful birthday! I hope that you all can get past this and help her

celebrate.

I'll be praying for you tonight.

and Rob 18 Spondy

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