Re: Pain/Medication question

September 25, 2006

Beth,

First let me say I most days can't even keep my daughter's meds straight so if

I am asking stupid questions please forgive me. What is Hannah taking for her

arthritis for meds? If her arthritis is under good control her pain should be

lessened. I personally think that they send you to pain management 'cause they

don't know what to do. They sent my daughter there aboout a year and half ago

because she was having so much pain in her spine and the rheumys couldn't figure

it out. Turned out she had a raging infection at her tailbone area that had to

be surgically removed and was a nightmare to heal. So, we told the pain guy to

jump in a lake. Amazing how when they treated the correct diagnosis her pain

lessened. I swear I will have her at our ped forever since he is the only one

who seems to make the correct diagnosis. In my opinion if they don't know what

to do with her except pass her off, I would take her to the adult rheumy for

another opinion. Narcotics in a young child

is insane if they aren't treating the underlying condition.

e, mom to joe 19 poly + lupus

Beth Yohnk <yohnkmom@...> wrote:

Hi everyone:

It has now been almost 2 weeks since Hannah saw the new rheumy. It has been 3,

almost 4 weeks since they increased her Mobic dose (currently taking 3.7ml of

7.5mg). I am supposed to check back in with the new doctor this week to let him

know how Hannah's pain has been. I have not seen any difference on the new dose

of Mobic. She still has a lot of pian in the mornings which will last anywhere

from 20 minuts to more than an hour; she gests better (not pain free) during the

day; and then has increased pain in the evening. Some times I see slight

swelling, but most times not.

Both the first rheumy and the new rheumy have suggested pain management to me

before. I am pretty confident this will come up again this week. Hannah has only

been tried on OTC Aleeve; Naproxen and now the 2 doses of Mobic. I do not feel

we have tried enough meds to warrant pain management.

I feel pain management is almost like giving up. They will either suggest

narcotics or teach her how to live with the pain. Neither option in my mind is

acceptable for an almost 10 year old child. Am I wrong in this thinking? Has

anyone used pain management? I, myself, have gone to pain management and this

has been my experience for myself.

I want to be educated before I call the doctor. Any suggestions? Do they

normally try more meds besides 2 before recommending this? I am tired of being

told how complicated she is. They are ones that went to med school and they

should be doing more find the problem. I am really concerned about this. If they

are adamant about this, I don't think I will go back to this doctor, but take

Hannah to my mom's adult rheumy who has said he would see her. He sees both my

mom & sister who have RA.

Please let me know what you all think. I will most likely call either Tuesday or

Wednesday depending on how work goes tomorrow.

Thanks!!!

Beth Yohnk

Happy Thoughts..Be Well

September 25, 2006

e:

Hannah is only on the Mobic for the arthritis. As I stated in my post she

failed aleeve & naproxen. She is on her 2nd dose of Mobic, and I see no change.

I also give her Tylenol during the day as needed. The rheumy advised against

this, but the ped and the 8 internal medicine doctors I work for said this would

not harm her.

They have not tried anything else and only have tried NSAIDS so far. So to me

pain management should be far off in Hannah's future at this point.

It sounds from the other postings I'm getting that we are not alone in this

thinking. I will let you know what happens when I call tomorrow.

Beth (Hannah, almost 10, unspecified arthritis, asthma & GERD)

bound for london <boundforlondon@...> wrote:

Beth,

First let me say I most days can't even keep my daughter's meds straight so if I

am asking stupid questions please forgive me. What is Hannah taking for her