Guest guest Posted September 15, 2006 Report Posted September 15, 2006 Hey all, remember when i told you back in July that Nick got stung by 2 wasps/hornets/bees ( not sure which) and had a funky reaction and ended up with what the rheumy called ulcers on his legs. Well I got a phone call from the school nurse yesterday saying nick was in her office with a sore hand because he got stung the night before. I knew nothing about this so I called Nick over and low and behold his hand was red and swollen. This morning when he got up it was 10 times worse, he couldnt move his fingers or make a fist, the swelling was that bad. His PIP joints looked like they each had a golf ball under the skin, I have never seen anything look so huge. So off to the ped we went. The ped is concerned about the reactions and how bad this one was compared to the 2 in July that didnt swell. So we now have an Epi- pen, one here at the house and one at school. He also put Nick on an anti-biotic as he thinks it could/is becoming infected and doesnt want us going into the weekend without him being on something hes also on benadryl and lots of icing of the hand. If the swelling goes any further up the arm we have to take him back in. We also talked about Nicks weight and height and labs were drawn for a celiac panel and the ped has also ordered an upper GI study ( anyone know what that entails??) Nick is now at school, making frequent trips to the nurses office for ice packs. Hopwfully he will make it though the rest of the day. TGIF hugs Helen and (9,systemic) Quote
Guest guest Posted September 15, 2006 Report Posted September 15, 2006 An upper GI study involves drinking contrast (not so great tasting) and then they use xrays to follow it down the esophogus and into the stomach. Not the most horrible thing, but not the most pleasant either. Most childrens hospitals will mix the barium with coco powder or tang. I hope that they can figure out what is going on with Nick.. With Love (JAS, 21) hburger64 <hburger64@...> wrote: Hey all, remember when i told you back in July that Nick got stung by 2 wasps/hornets/bees ( not sure which) and had a funky reaction and ended up with what the rheumy called ulcers on his legs. Well I got a phone call from the school nurse yesterday saying nick was in her office with a sore hand because he got stung the night before. I knew nothing about this so I called Nick over and low and behold his hand was red and swollen. This morning when he got up it was 10 times worse, he couldnt move his fingers or make a fist, the swelling was that bad. His PIP joints looked like they each had a golf ball under the skin, I have never seen anything look so huge. So off to the ped we went. The ped is concerned about the reactions and how bad this one was compared to the 2 in July that didnt swell. So we now have an Epi- pen, one here at the house and one at school. He also put Nick on an anti-biotic as he thinks it could/is becoming infected and doesnt want us going into the weekend without him being on something hes also on benadryl and lots of icing of the hand. If the swelling goes any further up the arm we have to take him back in. We also talked about Nicks weight and height and labs were drawn for a celiac panel and the ped has also ordered an upper GI study ( anyone know what that entails??) Nick is now at school, making frequent trips to the nurses office for ice packs. Hopwfully he will make it though the rest of the day. TGIF hugs Helen and (9,systemic) Quote
Guest guest Posted September 15, 2006 Report Posted September 15, 2006 Helen: That is incredibly scary!!! Good thing the nurse called you. I can't believe he did not tell you (although if he is a sick of going to doctors as Hannah, I can understand..LOL). Epi pen is a good thing, but he will have to tell someone immediately in order for it to be most effective. Keep us posted on the labs. I think (and I may be wrong) an upper GI is a scope that he wold be sedated for, but it not painful. He will most likely feel like his throat is scratchy for a few days. I think this is what my mom had done earlier this year and she said it was pretty easy. Sending Happy Thoughts, Beth (Hannah, 10 in 3 weeks, unspecified arthritis) hburger64 <hburger64@...> wrote: Hey all, remember when i told you back in July that Nick got stung by 2 wasps/hornets/bees ( not sure which) and had a funky reaction and ended up with what the rheumy called ulcers on his legs. Well I got a phone call from the school nurse yesterday saying nick was in her office with a sore hand because he got stung the night before. I knew nothing about this so I called Nick over and low and behold his hand was red and swollen. This morning when he got up it was 10 times worse, he couldnt move his fingers or make a fist, the swelling was that bad. His PIP joints looked like they each had a golf ball under the skin, I have never seen anything look so huge. So off to the ped we went. The ped is concerned about the reactions and how bad this one was compared to the 2 in July that didnt swell. So we now have an Epi- pen, one here at the house and one at school. He also put Nick on an anti-biotic as he thinks it could/is becoming infected and doesnt want us going into the weekend without him being on something hes also on benadryl and lots of icing of the hand. If the swelling goes any further up the arm we have to take him back in. We also talked about Nicks weight and height and labs were drawn for a celiac panel and the ped has also ordered an upper GI study ( anyone know what that entails??) Nick is now at school, making frequent trips to the nurses office for ice packs. Hopwfully he will make it though the rest of the day. TGIF hugs Helen and (9,systemic) Quote
Guest guest Posted September 15, 2006 Report Posted September 15, 2006 Hi, Helen. Those allergic reactions to the stings are awfully scary sounding! I'm glad you have the epi pen. When they tested for Crohns, he had an upper GI where he drank the thick liquid (barium I believe) and then waited a bit. They then watched it move through his upper digestive track. With his metabolism is so fast the test was done in under an hour. They had originally told us it could take at least 2. He drank the liquid then walked around to get it moving. Hope this helps, Michele (19,spondy) ________________________________ From: [mailto: ] On Behalf Of hburger64 Sent: Friday, September 15, 2006 1:17 PM Subject: Nick and wasps Hey all, remember when i told you back in July that Nick got stung by 2 wasps/hornets/bees ( not sure which) and had a funky reaction and ended up with what the rheumy called ulcers on his legs. Well I got a phone call from the school nurse yesterday saying nick was in her office with a sore hand because he got stung the night before. I knew nothing about this so I called Nick over and low and behold his hand was red and swollen. This morning when he got up it was 10 times worse, he couldnt move his fingers or make a fist, the swelling was that bad. His PIP joints looked like they each had a golf ball under the skin, I have never seen anything look so huge. So off to the ped we went. The ped is concerned about the reactions and how bad this one was compared to the 2 in July that didnt swell. So we now have an Epi- pen, one here at the house and one at school. He also put Nick on an anti-biotic as he thinks it could/is becoming infected and doesnt want us going into the weekend without him being on something hes also on benadryl and lots of icing of the hand. If the swelling goes any further up the arm we have to take him back in. We also talked about Nicks weight and height and labs were drawn for a celiac panel and the ped has also ordered an upper GI study ( anyone know what that entails??) Nick is now at school, making frequent trips to the nurses office for ice packs. Hopwfully he will make it though the rest of the day. TGIF hugs Helen and (9,systemic) Quote
Guest guest Posted September 15, 2006 Report Posted September 15, 2006 Hi Helen. Her tests were not positive for Chron's or Celiac. The doctor saw granulomas during the endoscopy, but in the end, they attributed it to the NSAIDS she was on. We added Cytotec to the Zantac she was taken. I hope everything goes well with NIck's testing. I am not sure if you saw my earlier post, but a friend I work with, son has Celiac, if you have any questions I can ask her. Kim In a message dated 9/15/2006 7:18:31 PM Central Standard Time, hburger64@... writes: how did your daughters tests turn out, was anything found?? hugs Helen and (9,systemic) Quote
Guest guest Posted September 15, 2006 Report Posted September 15, 2006 -Thanks for the info . Nick HATES drinking any kind of liquid meds, he can take shots and blood draws no problem, but getting him to drink is zithromax is like pulling teeth. This could prove very interesting. , I am so sorry to read that the news on your mom is not better, never give up hope though, theres always miracles happening. I am happy though that you mom is getting to enjoy her new grandkids, thats got to be the best medicine! Please remember to take care of too, you have had such a stressful year, remember YOU! hugs Helen and (9,systemic) -- In , Salvucci <lisa_salvucci@...> wrote: > > An upper GI study involves drinking contrast (not so great tasting) and then they use xrays to follow it down the esophogus and into the stomach. Not the most horrible thing, but not the most pleasant either. Most childrens hospitals will mix the barium with coco powder or tang. I hope that they can figure out what is going on with Nick.. > > With Love > (JAS, 21) > > hburger64 <hburger64@...> wrote: > Hey all, > > remember when i told you back in July that Nick got stung by 2 > wasps/hornets/bees ( not sure which) and had a funky reaction and > ended up with what the rheumy called ulcers on his legs. > > Well I got a phone call from the school nurse yesterday saying nick > was in her office with a sore hand because he got stung the night > before. I knew nothing about this so I called Nick over and low and > behold his hand was red and swollen. This morning when he got up it > was 10 times worse, he couldnt move his fingers or make a fist, the > swelling was that bad. His PIP joints looked like they each had a > golf ball under the skin, I have never seen anything look so huge. > So off to the ped we went. > > The ped is concerned about the reactions and how bad this one was > compared to the 2 in July that didnt swell. So we now have an Epi- > pen, one here at the house and one at school. He also put Nick on an > anti-biotic as he thinks it could/is becoming infected and doesnt > want us going into the weekend without him being on something hes > also on benadryl and lots of icing of the hand. If the swelling goes > any further up the arm we have to take him back in. > > We also talked about Nicks weight and height and labs were drawn for > a celiac panel and the ped has also ordered an upper GI study ( > anyone know what that entails??) > > Nick is now at school, making frequent trips to the nurses office > for ice packs. Hopwfully he will make it though the rest of the day. > > TGIF > > hugs Helen and (9,systemic) > > > > > > > Quote
Guest guest Posted September 15, 2006 Report Posted September 15, 2006 --Beth, Nick seems to think bee stings are no worse that mosquito bites. Its no big deal and he doesn't tell us. We had a long talk at school with the nurse this morning that if he gets stung at school its so important that he tells a adult ASAP. The school will be administering the pen as soon as he gets stung and not waiting for a reaction. The key is getting him to tell someone assoon as it happens. My yard is just full of hornets, they are really bad this year. time to hit the store to find someting to help get rid of them. Hugs Helen and (9,systemic) - In , Beth Yohnk <yohnkmom@...> wrote: > > Helen: > > That is incredibly scary!!! Good thing the nurse called you. I can't believe he did not tell you (although if he is a sick of going to doctors as Hannah, I can understand..LOL). Epi pen is a good thing, but he will have to tell someone immediately in order for it to be most effective. > > Keep us posted on the labs. I think (and I may be wrong) an upper GI is a scope that he wold be sedated for, but it not painful. He will most likely feel like his throat is scratchy for a few days. I think this is what my mom had done earlier this year and she said it was pretty easy. > > Sending Happy Thoughts, > > Beth (Hannah, 10 in 3 weeks, unspecified arthritis) > > hburger64 <hburger64@...> wrote: > Hey all, > > remember when i told you back in July that Nick got stung by 2 > wasps/hornets/bees ( not sure which) and had a funky reaction and > ended up with what the rheumy called ulcers on his legs. > > Well I got a phone call from the school nurse yesterday saying nick > was in her office with a sore hand because he got stung the night > before. I knew nothing about this so I called Nick over and low and > behold his hand was red and swollen. This morning when he got up it > was 10 times worse, he couldnt move his fingers or make a fist, the > swelling was that bad. His PIP joints looked like they each had a > golf ball under the skin, I have never seen anything look so huge. > So off to the ped we went. > > The ped is concerned about the reactions and how bad this one was > compared to the 2 in July that didnt swell. So we now have an Epi- > pen, one here at the house and one at school. He also put Nick on an > anti-biotic as he thinks it could/is becoming infected and doesnt > want us going into the weekend without him being on something hes > also on benadryl and lots of icing of the hand. If the swelling goes > any further up the arm we have to take him back in. > > We also talked about Nicks weight and height and labs were drawn for > a celiac panel and the ped has also ordered an upper GI study ( > anyone know what that entails??) > > Nick is now at school, making frequent trips to the nurses office > for ice packs. Hopwfully he will make it though the rest of the day. > > TGIF > > hugs Helen and (9,systemic) > > > > > > > Quote
Guest guest Posted September 15, 2006 Report Posted September 15, 2006 -Thanks , I can read the kids medical records from the peds office online now and I saw the tests ordered so I looked them up and thats exactly what Nicks having. Hopefully we will get some answers. hugs Helen and (9-systemic) - In , " Tepper, Michele " <MTepper@...> wrote: > > Hi, Helen. Those allergic reactions to the stings are awfully scary > sounding! I'm glad you have the epi pen. > > When they tested for Crohns, he had an upper GI where he drank the > thick liquid (barium I believe) and then waited a bit. They then watched > it move through his upper digestive track. With his metabolism is > so fast the test was done in under an hour. They had originally told us > it could take at least 2. He drank the liquid then walked around to get > it moving. Hope this helps, Michele (19,spondy) > > > > ________________________________ > > From: [mailto: ] On > Behalf Of hburger64 > Sent: Friday, September 15, 2006 1:17 PM > > Subject: Nick and wasps > > > > Hey all, > > remember when i told you back in July that Nick got stung by 2 > wasps/hornets/bees ( not sure which) and had a funky reaction and > ended up with what the rheumy called ulcers on his legs. > > Well I got a phone call from the school nurse yesterday saying nick > was in her office with a sore hand because he got stung the night > before. I knew nothing about this so I called Nick over and low and > behold his hand was red and swollen. This morning when he got up it > was 10 times worse, he couldnt move his fingers or make a fist, the > swelling was that bad. His PIP joints looked like they each had a > golf ball under the skin, I have never seen anything look so huge. > So off to the ped we went. > > The ped is concerned about the reactions and how bad this one was > compared to the 2 in July that didnt swell. So we now have an Epi- > pen, one here at the house and one at school. He also put Nick on an > anti-biotic as he thinks it could/is becoming infected and doesnt > want us going into the weekend without him being on something hes > also on benadryl and lots of icing of the hand. If the swelling goes > any further up the arm we have to take him back in. > > We also talked about Nicks weight and height and labs were drawn for > a celiac panel and the ped has also ordered an upper GI study ( > anyone know what that entails??) > > Nick is now at school, making frequent trips to the nurses office > for ice packs. Hopwfully he will make it though the rest of the day. > > TGIF > > hugs Helen and (9,systemic) > > > > > > Quote
Guest guest Posted September 15, 2006 Report Posted September 15, 2006 --Thanks for the info Kim. Nick will be having the test at Childrens Mpls so if he needs to follow up with the GI doctor then we would likely see one at Childrens. Nicks cardiologist, rheumy and genecitst are all at Childrens so I would like to keep them all together if I can.But its always good to hear recommendations just in case ) how did your daughters tests turn out, was anything found?? hugs Helen and (9,systemic) - In , mnmomof1@... wrote: > > Hi Helen. Nick's reaction sounds very scary! When my daughter was tested for > Celiac, at the U of MN, she had an upper endoscopy. She was also being tested > for Chrons, so I don't know if they use a different test otherwise. Don't know > if you are looking, but if f you need an excellent GI doc, Dr. Schwarzenberg > at the U is wonderful. Kim in MN > > In a message dated 9/15/2006 1:31:38 PM Central Standard Time, > hburger64@... writes: > We also talked about Nicks weight and height and labs were drawn for > a celiac panel and the ped has also ordered an upper GI study ( > anyone know what that entails??) > > > Quote
Guest guest Posted September 15, 2006 Report Posted September 15, 2006 That is good and I hope he realizes how serious the stings can be. We have tons of them here in SE Wisconsin too. In fact hubby got stung on the hand driving yesterday. Lets hope the epi pens won't even be needed! hburger64 <hburger64@...> wrote: --Beth, Nick seems to think bee stings are no worse that mosquito bites. Its no big deal and he doesn't tell us. We had a long talk at school with the nurse this morning that if he gets stung at school its so important that he tells a adult ASAP. The school will be administering the pen as soon as he gets stung and not waiting for a reaction. The key is getting him to tell someone assoon as it happens. My yard is just full of hornets, they are really bad this year. time to hit the store to find someting to help get rid of them. Hugs Helen and (9,systemic) - In , Beth Yohnk <yohnkmom@...> wrote: > > Helen: > > That is incredibly scary!!! Good thing the nurse called you. I can't believe he did not tell you (although if he is a sick of going to doctors as Hannah, I can understand..LOL). Epi pen is a good thing, but he will have to tell someone immediately in order for it to be most effective. > > Keep us posted on the labs. I think (and I may be wrong) an upper GI is a scope that he wold be sedated for, but it not painful. He will most likely feel like his throat is scratchy for a few days. I think this is what my mom had done earlier this year and she said it was pretty easy. > > Sending Happy Thoughts, > > Beth (Hannah, 10 in 3 weeks, unspecified arthritis) > > hburger64 <hburger64@...> wrote: > Hey all, > > remember when i told you back in July that Nick got stung by 2 > wasps/hornets/bees ( not sure which) and had a funky reaction and > ended up with what the rheumy called ulcers on his legs. > > Well I got a phone call from the school nurse yesterday saying nick > was in her office with a sore hand because he got stung the night > before. I knew nothing about this so I called Nick over and low and > behold his hand was red and swollen. This morning when he got up it > was 10 times worse, he couldnt move his fingers or make a fist, the > swelling was that bad. His PIP joints looked like they each had a > golf ball under the skin, I have never seen anything look so huge. > So off to the ped we went. > > The ped is concerned about the reactions and how bad this one was > compared to the 2 in July that didnt swell. So we now have an Epi- > pen, one here at the house and one at school. He also put Nick on an > anti-biotic as he thinks it could/is becoming infected and doesnt > want us going into the weekend without him being on something hes > also on benadryl and lots of icing of the hand. If the swelling goes > any further up the arm we have to take him back in. > > We also talked about Nicks weight and height and labs were drawn for > a celiac panel and the ped has also ordered an upper GI study ( > anyone know what that entails??) > > Nick is now at school, making frequent trips to the nurses office > for ice packs. Hopwfully he will make it though the rest of the day. > > TGIF > > hugs Helen and (9,systemic) > > > > > > > Quote
Guest guest Posted September 16, 2006 Report Posted September 16, 2006 Helen, An upper GI series involves drinking barium(it is whit and chalky tasting) that caots the upper part of the gastrointestinal system. Then xrays are taken. Hope info helps, Teri hburger64 <hburger64@...> wrote: Hey all, remember when i told you back in July that Nick got stung by 2 wasps/hornets/bees ( not sure which) and had a funky reaction and ended up with what the rheumy called ulcers on his legs. Well I got a phone call from the school nurse yesterday saying nick was in her office with a sore hand because he got stung the night before. I knew nothing about this so I called Nick over and low and behold his hand was red and swollen. This morning when he got up it was 10 times worse, he couldnt move his fingers or make a fist, the swelling was that bad. His PIP joints looked like they each had a golf ball under the skin, I have never seen anything look so huge. So off to the ped we went. The ped is concerned about the reactions and how bad this one was compared to the 2 in July that didnt swell. So we now have an Epi- pen, one here at the house and one at school. He also put Nick on an anti-biotic as he thinks it could/is becoming infected and doesnt want us going into the weekend without him being on something hes also on benadryl and lots of icing of the hand. If the swelling goes any further up the arm we have to take him back in. We also talked about Nicks weight and height and labs were drawn for a celiac panel and the ped has also ordered an upper GI study ( anyone know what that entails??) Nick is now at school, making frequent trips to the nurses office for ice packs. Hopwfully he will make it though the rest of the day. TGIF hugs Helen and (9,systemic) --------------------------------- All-new - Fire up a more powerful email and get things done faster. Quote
Guest guest Posted September 16, 2006 Report Posted September 16, 2006 Gosh Helen!!! I am glad they gave Nick the Epi-pen. After Caroline's reaction to the Remicade they gave us one also. We keep one at daycare, in each car, and I always carry one in my pocketbook.... Hopefully you never have to use it, but it's nice to have it there! Alia and Caroline, age 4, poly and uveitis Quote
Guest guest Posted September 17, 2006 Report Posted September 17, 2006 hey Alia, The intructions with the pens said NOT to keep them in the car, they have to be kept between 59 and 86 degs and NOT to freeze them. The car would seem like a great place to keep them, but it would'nt work. I will get 2 more pens next month and keep one in my purse and then 2 at home. I was reading that sometimes you might have to administer 2 shots. If you go to the epi-pen website they have a lot of good info there. I have had Nick practice with the trainer that came in the kit and I have also had his older brothers learn what to do in case they are home alone with him. Hugs Helen and (9,systemic) p.s The swelling is still there but has gone down a LOT. I am still pushing the benedryl and hopefully it will continue to go down. > > Gosh Helen!!! I am glad they gave Nick the Epi-pen. After Caroline's > reaction to the Remicade they gave us one also. We keep one at daycare, in each car, > and I always carry one in my pocketbook.... > > Hopefully you never have to use it, but it's nice to have it there! > > Alia and Caroline, age 4, poly and uveitis > > > Quote
Guest guest Posted September 17, 2006 Report Posted September 17, 2006 My son had an allergic reaction to Remicade also but no one ever talked about an " Epi-pen " or anything else, much less gave me anything. Is there some reason that the reaction to Remicade would indicate a possible allergic reaction to insects or anything else? My understanding is that it is probably the mouse protein in the Remicade that usually causes the allergic reaction. Pat Ben, 6 pauci/uveitis Quote
Guest guest Posted September 19, 2006 Report Posted September 19, 2006 The reason they gave us the Epi-Pen is because Caroline didn't have her initial reaction until about an hour after the infusion. She was covered head to toe in a blotchy rash. At the time they were not positive that it was the Remicade so they gave us the Epi-pen. However during her next few infusions she broke out during the infusions... Anyways - we now have the Epi pens for any unexpected reactions that could happen... Alia and Caroline, age 4, poly and uveitis Quote
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