Caroline's Remicade

[Guest guest]

Hey everyone. We are at the hospital right now getting Caroline's

Remicade. We bumped up her dosage to 10mg/kilo for today's infusion.

Our infusion last month was 4mg/kilo so we went up quite a but from

last time. We had a LOT of problems with the IV. They tried three

times with no success. She was throwing herself and kicking and

screaming. I have never seen such a reaction from her. The switched

arms and I think her veins were " rolling " so they were unable to do

that arm either. They finally sedated her, brought in a new IV nurse

and got it in. They are thinking they will sedate her every time now...

So, far we haven't had any reactions. She did wake up once and puked,

but that was about an hour ago..

The good news is that we don't have to go back for 6 weeks - depending

on her eyes!!!!

We also get to stop the oral prednisone after today!!! Yeah! Hopefully

the Remicade is enough and we won't ever have to use that stuff again!!

We see Dr. at the end of May and then Dr. Akin in June.

Alia and Caroline, age 4, poly and uveitis