Guest guest Posted June 3, 2006 Report Posted June 3, 2006 Hi Everyone, Below is what emailed me. She wanted you to see it. It may help you understand how your child may feel and how they deal with thing's. Robbin This world is so big but yet I've seen most of this world through TV or by plane or car But I know I am lucky in someway's I understand why I am lucky, I'm alive and I am able to move There are kids even adults are just their not able to see or move, or even feel Don't get me wrong I have my days where I have been in their place even worse But I don't think about the days I am in a wheelchair ,a bed or even a hospital All I think about is what I haven't seen and what I have missed or been missing I love places far a way to me it's as close to heaven I wanna be right now All I want to do is live life to the fullest Animals are most dearest to me because all they care about is your love for them Not that you can't walk or even what you look like but that you are there for them I have 4 cats and when I am in pain they know just what to do to make me feel better People don't Know how animals affect people like me It's a feeling we can't explain just like the pain You can feel it but you sometimes can't say how it feels and all you know is that it hurts just like some one told me once You can feel the wind, But yet you can't see it It's kind of like the pain I have I can feel it but no one can see it People feel in closed when they feel pain They feel as if they are the only ones with pain But I know how this works I have been there a few times but I have found a place of peace of mind and that is to fight back Because living life weak is feeling Angry,Self in closed and Depression People have to fight Emotions, Pain, And even doctors People have to try and make pain work in your life and that takes time Pain is something people don't like and they don't like seeing or watching it You have to be strong to fight the pain One thing I hate the most is to feel helpless I think that most kids and people feel the same way I hate it when I can't do nothing for myself You get angry at yourself when this happens How I sometimes avoid this is by music and god's earth and animals I love watching birds fly, To me birds are the symbol of freedom Horses are a symbol of freedom and spirit of courage and strength A Deer is a symbol of peace. You ever wonder why we get caught looking into a deer's eyes it's the feeling of freedom Just like other animals every animal has a meaning of something or a symbol It's whats inside of the animal that draws you to it All of this leads to something I don't know why animals are there for us but whatever it is works All I can say about having pain is that it's not easy and it gets worse as the years go by I used to be able to do a lot of things like play football, skate, play baseball, volley ball,a whole lot more then this but now all I can do is sleep, walk around a little, watch animals and listen to music and swim every day. Something new happens to me and If i walk or do something big like going to a concert i will be in pain for days or even weeks but I get up I walk a little even if I am in pain and basic stuff i normally do until my JRA knocks me down But my main saying is STAND- which means stand until you can't stand anymore I have seen people that are dying and have cancer and are dying they have all said to me never give up Stand for what you believe in Always, Quote
Guest guest Posted June 3, 2006 Report Posted June 3, 2006 Robbin: I printed this off and had Hannah read it. She is not feeling so great tonight and in fact read it while she was getting her nebulizer treatment. She LOVED it! She wanted to thank for describing so well how she often feels. Beth Happy Thoughts..Be Well Robbin40@... wrote: Hi Everyone, Below is what emailed me. She wanted you to see it. It may help you understand how your child may feel and how they deal with thing's. Robbin This world is so big but yet I've seen most of this world through TV or by plane or car But I know I am lucky in someway's I understand why I am lucky, I'm alive and I am able to move There are kids even adults are just their not able to see or move, or even feel Don't get me wrong I have my days where I have been in their place even worse But I don't think about the days I am in a wheelchair ,a bed or even a hospital All I think about is what I haven't seen and what I have missed or been missing I love places far a way to me it's as close to heaven I wanna be right now All I want to do is live life to the fullest Animals are most dearest to me because all they care about is your love for them Not that you can't walk or even what you look like but that you are there for them I have 4 cats and when I am in pain they know just what to do to make me feel better People don't Know how animals affect people like me It's a feeling we can't explain just like the pain You can feel it but you sometimes can't say how it feels and all you know is that it hurts just like some one told me once You can feel the wind, But yet you can't see it It's kind of like the pain I have I can feel it but no one can see it People feel in closed when they feel pain They feel as if they are the only ones with pain But I know how this works I have been there a few times but I have found a place of peace of mind and that is to fight back Because living life weak is feeling Angry,Self in closed and Depression People have to fight Emotions, Pain, And even doctors People have to try and make pain work in your life and that takes time Pain is something people don't like and they don't like seeing or watching it You have to be strong to fight the pain One thing I hate the most is to feel helpless I think that most kids and people feel the same way I hate it when I can't do nothing for myself You get angry at yourself when this happens How I sometimes avoid this is by music and god's earth and animals I love watching birds fly, To me birds are the symbol of freedom Horses are a symbol of freedom and spirit of courage and strength A Deer is a symbol of peace. You ever wonder why we get caught looking into a deer's eyes it's the feeling of freedom Just like other animals every animal has a meaning of something or a symbol It's whats inside of the animal that draws you to it All of this leads to something I don't know why animals are there for us but whatever it is works All I can say about having pain is that it's not easy and it gets worse as the years go by I used to be able to do a lot of things like play football, skate, play baseball, volley ball,a whole lot more then this but now all I can do is sleep, walk around a little, watch animals and listen to music and swim every day. Something new happens to me and If i walk or do something big like going to a concert i will be in pain for days or even weeks but I get up I walk a little even if I am in pain and basic stuff i normally do until my JRA knocks me down But my main saying is STAND- which means stand until you can't stand anymore I have seen people that are dying and have cancer and are dying they have all said to me never give up Stand for what you believe in Always, Quote
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