Re: update from Oz

[Guest guest]

Jo,

Wow, Your right never a dull moment. lolol. I hope all goes well with the

Needles. Now what kind of surgery are you going to have? Your envy of

everyone coming to Atlanta? I wish you were coming. We went to the Office

Depot

here. I seen a Globe and said ok now I want to find out where Alstrailya is. (

Ok its the southern thing with the spelling) but I knew the word when I seen

it lololol. My brother was looking to. YES we found it. Dang you know your

along way from me. lololol. I told my brother to look and he said that's

along way. He asked who I knew there and I told him Jo lolol. Ohhh you know a

guy

there I see. He was making fun. I said no its a girl. Then we looked for the

Phillines dang that's along way aways too. lolol. Wish y'all were coming

though. But maybe next time.

Robbin

[Guest guest]

Jo,

I was wondering where you were lately.

Sounds like quite the performance with the MTX shot. I'm sure the

get up must have freaked Bayly out more than the shot.

I hope your surgery goes well this week, i will be thinking of you.

hugs Helen and (8,systemic)

>

> Hey all,

> You may see I've been a bit quiet lately- online only, I can

assure

> you! Life here is NEVER quiet, or dull, or even peaceful.

>

> Bayly had his first Methtorexate injection on Friday afternoon. 5

> weeks after his Paed Rheumy prescribed the switch from Mtx

tablets, we

> finally had the Community Nurse come from the hospital to show us

how.

> She was well and truly rigged up in apron, gloves, glasses- I'm

> surprised she didn't have a hair net on! She also said we have to

be

> careful for the 24 hours or so after Bayly's shots. Wear gloves

for

> toileting or nappy changes, separate baths for him and Violet,

even

> isolate his clothes in the laundry if he wets his pants or

whatever.

> And how's this- the gloves she gave us don't fit Grant's hands, so

> guess who gets nappy duty??

>

> I also had to hold the little fella on my lap while the Nurse gave

him

> the needle. Grant held Bayly's legs as he was really kicking. But

> about two seconds afterwards, he was fine. Gave him a Toy Story

> bandaid for his tummy, some Jumpys to eat (kids' kangaroo-shaped

puffy

> potato chips) and he was happy again.

>

> This Friday I'll take him up to hospital so I can give the needle

> while they watch. And next week the Nurse will come here again for

> Grant to do it. I have to have an operation next week and will be

in

> hospital overnight, so it's up to needle-phobic Grant.

>

> Told you life was never dull!

>

> Hope all is well with everyone. Am REALLY feeling envious of those

> going to Atlanta, as I just can't get the Powerball numbers to

fall my

> way, so it looks like we won't be coming over. :-(

>

> Jo

> Bayly, 4, Extended Oligo

>

[Guest guest]

Jo,

How did the mtx shot go? Hoping both you and Bayly did well. I gave

Madi hers all by myself last week (hubby usually does it while I hold

her down.) All in all it went ok, she cried a bit more, and I had to

do it twice-YIKES! Wondering if they made you put on the " suit " or

not. Also curious why the changes in diapering and such-doesn't the

oral mtx carry the same risks as injected? Hope your hubby does ok

this week with the shot, and that your surgery goes well.

Thinking of you,

Tracey & Madi (15mo, systemic)

[Guest guest]

Just wanted to let you know that we are thinking of you and praying for you. I

pray that you get some relief for yourself soon and also for the kids.

Veri & Jaye 14 poly

update from Oz

Well G'day all! Long time, no hear.

Things have been weird since the car accident in November- I am still on

a walking stick, getting physio and acupuncture when I can fit it in, I

had an MRI today for the whiplash in my neck (see if there's any nerve

involvement causing the pain and weakness in my right arm), and I have

to go back to the Orthopod because the epidural steroid shot I had

hasn't done a lot in the relief department for my slipped disc.

Bayly also had another doctor's appointment today to do a follow-up

report for the insurance company. (Plus Physio and Hydro for the little

fella.)

Life is ... interesting to say the least.

Bayly and Violet have been having mega nightmares ever since the

accident, and Bay is bedwetting like it's going out of style. Me, I

have insomnia nearly every night, and you can bet the nights I am

actually sleeping is when Bay or Vi need me most! LOL. They both are

also having real behavioural issues, and the doc suggested we all go see

a Psychologist about it.

But I'm still plugging away at JIA awareness here in Oz. We did a TV

news story last Friday, and will be in the newspaper sometime this week,

promoting the Camp that I've been flat out organising. Camp Twinkletoes

is going to be a weekend for families of kids 8 and under (or those

newly diagnosed or too shy to go to the older Camp Footloose for over

8s) We're having it the first weekend of March at the Breakway campsite

( www.breakaway.org.au <http://www.breakaway.org.au> if you want to

check it out)

I've also been chasing companies for donations for the Kids Get

Arthritis Too branch that I'm President for, so far just a little

trickle coming in, but that's a start! And still after my politicians

to do the right thing for JIA. I got word today that there is to be a

meeting with myself, the State MP, and the CEO of our major regional

hospital here, to further push for regional JIA Clinics so families

don't have to travel to the capital cities for Specialist attention.

Plus I'm applying for a scholarship so that I can actually get paid for

all this work for JIA. Wouldn't THAT be great?

What else... oh, I'm in the middle of 13 days' straight at the radio

station, and trying to have a social life and spend some quality time

with Grant on occasion. LOL. At the moment we play tag with the kids,

since one of us is usually coming from or going to work.

I'm not even going to go into the whole stepson B & E thing and

relationship issues with the in-laws.

See, told you life was interesting!

Hugs to all our friends, Jo

Bayly, 5, extended oligo