Re: Is this normal? (Another question)

[Guest guest]

Hi :

Sorry I can't answer your question about Audrey's toes, but do hope you find

the answer soon and that her pain diminishes or disappears.

Good luck on your gallbladder surgery tomorrow. I had mine removed in June

of 04. Hope all goes smoothly for you.

They thought my daughter Caitlin had infantile spasms as a baby. Turned out

to be benign myoclonic seizures that disappeared when she was one. That's

great news on your son being seizure free for 9 months. A huge relief for all

of you, I am sure.

Take care.

Patty

[Guest guest]

,

Hope Surgery goes well. started noticing her toes being different

and looking different. I had noticed it a few years ago. Some curve under

some are bent to the side.

I am thinking it is normal.

Robbin

[Guest guest]

One of my toes also curve, but just on my left foot. it's the one right

next to the big toe. The other three are starting to curve toward the right

while the second toe curves toward the left. The docs told me that it was just

part of the JRA. I will continue to pray for all the kids and parents!

~God Bless~

JRA, 22

[Guest guest]

Hi ,

How old is Audrey? I only ask because my little son Bayly has had

troubles with his foot position ever since JIA kicked in (pardon the

pun) at 13 months- right at the crucial Learning To Walk stage. As a

result, he has learnt to walk while rolling his ankle inwards quite

noticeably (trying to correct that with Orthotics).

And on the toe thing, his Physio noticed a couple of weeks back, that

he is starting to curl his big toe out a bit, to compensate for the

odd position of his ankle. She said that if he continues to do this,

it will throw his whole alignment out, and will be PERMANENT! (Oh

Dear God you can imagine my grief.) The back hurting Audrey

mentions, might be that alignment thing....

The reason I ask Audrey's age is that some Physios, doctors, etc,

just write off unnatural foot positions in toddlers as being 'goofy

footed' in the learning to walk phase. Even though I repeatedly

asked if this was 'normal'. Now they have decided it is not.

Please follow it up!! And let us know!

Good luck with the surgery, and your other little one. We have

another special needs child here too, and way too many other health

issues, so I'm hearing you, and feeling your stress!!!

Hugs,

Jo

Bayly, 3, extended oligo

>

> We noticed last night that Audrey's toes have started to curve.

They

> aren't curling under - they are turning toward the inside of her

foot.

> They kind of looked last night like little " r " and backwards " r " .

Is this

> normal for arthritis in the toes? I have a call in to her doctor,

but we

> all know how long it can take to hear back sometimes. She's been

> complaining about both hands hurting, her feet hurting, and now

she's

> starting to say her back hurts.

>

> And just to make our lives more interesting, I'm having gallbladder

surgery

> tomorrow. It's not like I don't already have enough to worry about!

>

> Thanks for all of everyone's help. I have a feeling things are not

going

> well with her arthritis, and it's nice to come here and vent my

> frustrations. I also have another child with special needs. He has

> infantile spasms, a form of epilepsy, but has been seizure free for

9

> months (40 weeks) now. Sometimes my stress level gets a bit too

high. :-)

>

>

[Guest guest]

Audrey's JRA first flared at 10 months, and she was diagnosed at 13 months

in her left wrist and right ankle. She will be 3 on May 21, so she's past

that learning to walk stage. Now it's in her toes, and all these other

problems. The doctor called me back today and they were kind of surprised

that the Enbrel hasn't kicked in and that she's still having problems and

maybe new problems.

Can't I just get a break!!!

Original Message:

-----------------

From: Jo & Grant joking70@...

Date: Mon, 17 Apr 2006 21:39:19 -0000

Subject: Re: Is this normal? (Another question)

<html><body>

<tt>

Hi ,<BR>

How old is Audrey? I only ask because my little son Bayly has had <BR>

troubles with his foot position ever since JIA kicked in (pardon the <BR>

pun) at 13 months- right at the crucial Learning To Walk stage.  As a <BR>

result, he has learnt to walk while rolling his ankle inwards quite <BR>

noticeably (trying to correct that with Orthotics).<BR>

<BR>

And on the toe thing, his Physio noticed a couple of weeks back, that <BR>

he is starting to curl his big toe out a bit, to compensate for the <BR>

odd position of his ankle.  She said that if he continues to do this, <BR>

it will throw his whole alignment out, and will be PERMANENT! (Oh <BR>

Dear God you can imagine my grief.)  The back hurting Audrey <BR>

mentions, might be that alignment thing....<BR>

<BR>

The reason I ask Audrey's age is that some Physios, doctors, etc, <BR>

just write off unnatural foot positions in toddlers as being 'goofy <BR>

footed' in the learning to walk phase.  Even though I repeatedly <BR>

asked if this was 'normal'.  Now they have decided it is not.<BR>

<BR>

Please follow it up!! And let us know!<BR>

<BR>

Good luck with the surgery, and your other little one. We have <BR>

another special needs child here too, and way too many other health <BR>

issues, so I'm hearing you, and feeling your stress!!!  <BR>

Hugs,<BR>

Jo<BR>

Bayly, 3, extended oligo<BR>

<BR>

<BR>

><BR>

> We noticed last night that Audrey's toes have started to curve.  <BR>

They<BR>

> aren't curling under - they are turning toward the inside of her <BR>

foot. <BR>

> They kind of looked last night like little " r " and backwards " r " .  <BR>

Is this<BR>

> normal for arthritis in the toes?  I have a call in to her doctor, <BR>

but we<BR>

> all know how long it can take to hear back sometimes.  She's been<BR>

> complaining about both hands hurting, her feet hurting, and now <BR>

she's<BR>

> starting to say her back hurts.<BR>

> <BR>

> And just to make our lives more interesting, I'm having gallbladder <BR>

surgery<BR>

> tomorrow.  It's not like I don't already have enough to worry about!<BR>

> <BR>

> Thanks for all of everyone's help.  I have a feeling things are not <BR>

going<BR>

> well with her arthritis, and it's nice to come here and vent my<BR>

> frustrations.  I also have another child with special needs.  He has<BR>

> infantile spasms, a form of epilepsy, but has been seizure free for <BR>

9<BR>

> months (40 weeks) now.  Sometimes my stress level gets a bit too <BR>

high.  :-)<BR>

> <BR>

> <BR>

<BR>

<BR>

<BR>

<BR>

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[Guest guest]

,

Did the doc say what their going to do now? Are they going to hold

off a bit and see if the meds kick it...What were his thoughts on

the current problems she is having with her toes?

(Aundrea 10 systemic jra)

<BR>

> ><BR>

> > We noticed last night that Audrey's toes have started to curve. 

<BR>

> They<BR>

> > aren't curling under - they are turning toward the inside of her

<BR>

> foot. <BR>

> > They kind of looked last night like little " r " and

backwards " r " .  <BR>

> Is this<BR>

> > normal for arthritis in the toes?  I have a call in to her

doctor, <BR>

> but we<BR>

> > all know how long it can take to hear back sometimes.  She's

been<BR>

> > complaining about both hands hurting, her feet hurting, and now

<BR>

> she's<BR>

> > starting to say her back hurts.<BR>

> > <BR>

> > And just to make our lives more interesting, I'm having

gallbladder <BR>

> surgery<BR>

> > tomorrow.  It's not like I don't already have enough to worry

about!<BR>

> > <BR>

> > Thanks for all of everyone's help.  I have a feeling things are

not <BR>

> going<BR>

> > well with her arthritis, and it's nice to come here and vent

my<BR>

> > frustrations.  I also have another child with special needs.  He

has<BR>

> > infantile spasms, a form of epilepsy, but has been seizure free

for <BR>

> 9<BR>

> > months (40 weeks) now.  Sometimes my stress level gets a bit too

<BR>

> high.  :-)<BR>

> > <BR>

> > <BR>

> <BR>

> <BR>

> <BR>

> <BR>

> </tt>

>

>

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