Re: alia...how's caroline

[Guest guest]

Hi Ashlee -

Thanks for thinking of us!! I wasn't sure the infusion was doing

anything until this past week. This past week she has been so

extremely tired and I think that it might be IVIG related... Not

sure though. It seems like the IVIG gave her an extra boost that has

now worn off after two weeks. She's slept at least 13 hours the last

two nights and she was asleep by 5:45pm again tonight... We'll see..

I am sure JAM took a toll on her, but she's been going downhill

since last week. Hopefully, we'll see a difference with each

infusion.

I will keep you updated.

Alia and Caroline, age 4, poly and iritis

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> How is Caroline since her infusion...how long is it supposed to be

to

> tell a difference??

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> Just wondering...hope all is well! :-)

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> Ashlee (Madison, 3 1/2, Poly and Iritis)

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[Guest guest]

Alia,

How often are they going to be doing the ivig??? When holly first

started she would go weekly............talk to you soon.

Luv and hugs,

Aj and Holly (12 yrs old, systemic jra since 9/94)

_www.caringbridge.org/visit/holly_ (http://www.caringbridge.org/visit/holly)

[Guest guest]

Hi AJ - We are scheduled to do the IVIG every 28 days.. She is on a low

dosage, but I think we are slowly increasing the dosage as we go..

Alia and Caroline, age 4, poly and iritis

________________________________

From: [mailto: ] On

Behalf Of ajaomom@...

Sent: Tuesday, March 14, 2006 5:26 AM

Subject: Re: Re: alia...how's caroline

Alia,

How often are they going to be doing the ivig??? When holly first

started she would go weekly............talk to you soon.

Luv and hugs,

Aj and Holly (12 yrs old, systemic jra since 9/94)

_www.caringbridge.org/visit/holly_

(http://www.caringbridge.org/visit/holly)