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Re: Helen/Alia/TV Show

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Guest guest
Posted

-Hi patty,

The TV show went great. I'll post some pictures in the photo album.

They had all the kids in their JAM shirts sitting at the news desk

and opened with them all waving and yelling hi. Allie then told

about the walk next saturday. Later in the show they sat down and

had an interview with Nick and Allies doctor and with Alia. Alia did

awesome. She talked about the walk and was ask a lot of questions

about how JRA has affected Caroline etc. It lasted about 5-6 minutes.

It was good exposure for juvenile arthritis.

hugs Helen and (8,systemic)

-- In , ThreeMayEmeralds@... wrote:

>Hi p

>

> Hi Ladies:

>

>

> How did the TV show turn out?

>

> Alia..........how's Miss Caroline doing? Did you see an

improvement after

> her first treatment?

>

> Take care.

> Patty

>

>

>

Guest guest
Posted

Hi Patty - The kids did great!! Allie spoke and she did a wonderful

job! I was super nervous but I think it turned out okay.

Caroline is doing okay. She had a terrible reaction to the IVIG on

Wednesday, but she has fully recovered from that now. We are

planning on premedicating her a little more prior to her next

infusion..

Thanks for asking! How are the girls?

Alia and Caroline, age 4, poly and uveitis

-- In , ThreeMayEmeralds@... wrote:

>

>

> Hi Ladies:

>

>

> How did the TV show turn out?

>

> Alia..........how's Miss Caroline doing? Did you see an

improvement after

> her first treatment?

>

> Take care.

> Patty

>

>

>

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