systemic?

[Guest guest]

Thanks so much for all your suport as Derrick approaches his first

appointment. Reading the posted messages really helps to calm me

down when I feel like everything is falling apart.

Derrick had quite the day here in Iowa with the weather changing. It

has been nice and warm upper 40's unusual temps for Iowa in Jan. But

its drastically changing to single digit cold temps by tomarrow and

his knees where killing him today. His older siblings went on a bike

ride earlier today before the weather turns bad and Derrick said he

just couldnt go even though he wanted to really bad. He won a $200

bike in a contest at school last September and hasnt been able to

ride it. It really gets to him sometimes.

I do have a question about the different forms of Arthritis.

Systemic in particular. From what I have read fevers and a rash are

very common in all systemic types. Well Derrick had re-occuring

fevers when he was very young ages 3-5 years of age but not really

since then. Is that possible that the fevers that long ago (7+

years) would have been from this? Also he has always and to this day

had rashy type skin that comes and goes. Doctors have always said it

was probly just dry skin and treated with a prescription lotion that

never really helped? Just wondering what the rash is like that is

associated with arthritis?

Thanks again for having this group. Dont know what I would do

without my computer for information about these types of things,

guess I would be living in a medical library LOL

Christy

[Guest guest]

Hey Christy,

My daughter had reoccuring fevers her first year of life. She was

even hospitalized with a diagnosis of fevers of unknown origin. We

never did figure out what was causing it..

When she first became ill 3 years ago she had two major flares where

she had the high spiking fevers that later would return to normal

during the day. this lasted about 10 days or so with each flare.

The fevers popped up a bit during that first year but have since

tapered off.

Aundrea has also had sensitive skin and rash issues...You can see in

the photo section under systemic the type of blotchy rash that she

still gets...When she had the high fevers she developed a rash all

over her body.

Aundrea skin rash seemed puzzling to the doctors and for two years

she was just diagnosed as unclassified autoimmune disorder and mixed

connective tissue disorder...In fact i wouldn't be surprised if the

other two docs would have stayed with those diagnosis. Her first

doc and current doc, both diagnosed her with systemic.

It is so frustrating not knowing what is wrong with your child and

you want answers...It was hard for me in the beginning to commit to

a treatment plan of drugs when I didn't feel they even knew what

they were treating...I did lots of research and discovered that many

of these autoimmune disorders are treated in the same manner..that

helped to ease my mind...

I do hope that Friday will be a very informative day for you...I

remember on our first visit I thought I would walk out of there with

a diagnosis and firm game plan in place...Instead I felt like I just

had more questions...You are better prepared though than I was...You

have your journal, questions ready, and its going to be a good

starting point.

Just 3 more days...Hang in there!

(Aundrea 10 systemic jra)--

- In , " meyerfamily8 " <meyerfamily8@y...>

wrote:

>

> Thanks so much for all your suport as Derrick approaches his first

> appointment. Reading the posted messages really helps to calm me

> down when I feel like everything is falling apart.

> Derrick had quite the day here in Iowa with the weather changing.

It

> has been nice and warm upper 40's unusual temps for Iowa in Jan.

But

> its drastically changing to single digit cold temps by tomarrow

and

> his knees where killing him today. His older siblings went on a

bike

> ride earlier today before the weather turns bad and Derrick said

he

> just couldnt go even though he wanted to really bad. He won a $200

> bike in a contest at school last September and hasnt been able to

> ride it. It really gets to him sometimes.

> I do have a question about the different forms of Arthritis.

> Systemic in particular. From what I have read fevers and a rash

are

> very common in all systemic types. Well Derrick had re-occuring

> fevers when he was very young ages 3-5 years of age but not really

> since then. Is that possible that the fevers that long ago (7+

> years) would have been from this? Also he has always and to this

day

> had rashy type skin that comes and goes. Doctors have always said

it

> was probly just dry skin and treated with a prescription lotion

that

> never really helped? Just wondering what the rash is like that is

> associated with arthritis?

> Thanks again for having this group. Dont know what I would do

> without my computer for information about these types of things,

> guess I would be living in a medical library LOL

> Christy

>