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Need Help Re:Remicade

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Posted

> > >

> > > Hello,

> > > Last year many of you were so helpful when I wrote asking for

> help

> > with

> > > my 9 year old granddaughter who has Pauci JRA. She has been

> > receiving

> > > Metheltrexate injections that are very difficult for her to

take

> > > without vomiting and fear. You offered many wise suggestions

for

> > me to

> > > use in helping her through a difficult time and from the

bottom

> of

> > my

> > > heart, I thank you. Now, I have just learned that Alix will

need

> > to

> > > start Remicade infusions on Monday and I am very concerned.

Alix

> > is

> > > now 10 years old and is trying to be brave about this but I am

> > > sceptical about this drug (Remicade). Alix's parents (her

mother

> > is my

> > > daughter) have consulted with Alix's physicians and feel that

> they

> > have

> > > no other choice, and I support their decisions, but we all

would

> > feel

> > > much better knowing informtion from those who have " been

there,

> > done

> > > that " . I would be very grateful if you would provide me with

any

> > first

> > > hand information you have.

> > > Sincerely,

> > > Cook

> > > Grandmother to Alix, Pauci, age 10

> > >

> >

>

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