Guest guest Posted January 8, 2006 Report Posted January 8, 2006 > > > > > > Hello, > > > Last year many of you were so helpful when I wrote asking for > help > > with > > > my 9 year old granddaughter who has Pauci JRA. She has been > > receiving > > > Metheltrexate injections that are very difficult for her to take > > > without vomiting and fear. You offered many wise suggestions for > > me to > > > use in helping her through a difficult time and from the bottom > of > > my > > > heart, I thank you. Now, I have just learned that Alix will need > > to > > > start Remicade infusions on Monday and I am very concerned. Alix > > is > > > now 10 years old and is trying to be brave about this but I am > > > sceptical about this drug (Remicade). Alix's parents (her mother > > is my > > > daughter) have consulted with Alix's physicians and feel that > they > > have > > > no other choice, and I support their decisions, but we all would > > feel > > > much better knowing informtion from those who have " been there, > > done > > > that " . I would be very grateful if you would provide me with any > > first > > > hand information you have. > > > Sincerely, > > > Cook > > > Grandmother to Alix, Pauci, age 10 > > > > > > Quote
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