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Posted

Sophie,

Thanks for the kind words.

also got healthy last spring once school was out.The only time he seen

a Dr. was for a thumb x-ray from playing baseball.As soon as school started

back up the infections began again.ugh and to top it off right before Christmas

break the school sent me an attendance letter and this whole No Child Left

Behind Crap about how they had to have a 90% attendendance record.

I had to write a detailed letter about his disease and his meds which is all

crap because he has IDEA and is protected by their laws.

Sorry to vent but even my hubby doesn't get it.

Becki and 7 systemic

Posted

Your message really touched me. is also on Enbrel and last

winter, she had chronic sinus infections. All winter long, she was on

antibiotic after antibiotic. Nothing cleared it up until Spring came

along. She was on antibiotics from October through May. I got so

overwhelmed just giving her the meds she was prescribed. AT one point

she was taking a prescription decongestant, claritin, prescription

cough med, antibiotic, Naprosyn, MTX, Enbrel and folic acid. I kept

thinking to myself that pumping her full of drugs probably is harming

her. It was really depressing and overwhelming.

Know that you are not alone in this. I get really consumed by the

disease. It affects my concentration at work, ability to parent my

other kids, my marriage, etc. I hope you feel better soon.

Take care of yourself!

Sophie

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