Re: Phew!!/warning, long post!

[Guest guest]

Hi Rose!!! I am still fairly new to this group!! Your post caught my

attention due to the birth brain abnormality of your sons frontal

lobes!! My son was also born with a brain defect called " agenesis of

the corpus callosum " (missing the fibers/wires that connects the two

sides of the brain) and enlarged lateral ventricals. Im not to

familar with the cortex but do recognize it due to my sons

condition. Your story rings familiar to me and my sons situation. I

can say my sons seizures are nothing compared to what your little

guy is going through and I know with your determination he well

overcome a lot!!

At 5yrs old my son had a round of vacs to be able to get in school.

He had an imediate allergic reaction and ended up in hospital!! He

became very ill for several months, severe gi damage, loss of little

speech he did have, weight loss, regression in all areas including

walking, etc, and daily severe gi pain with self destructive

behaiviour of headbanging, scratching, screaming. Docs wanted to

medicate him with pshyc drugs, I kept saying NO, that I know it is

gi pain causing these symptoms(he is non verbal). Finally after

10mths of him suffering, the gastro finally got his bowels working

(barely)and the self destructive behaiviour almost completely

stopped. He is gaining weight and even has started some baby babble

(he is almost 7yrs)He had started baby babble as an infant and this

change after his mmr vac. Anyways through this nightmare he went

through it caused me to obssesivly research vaccines. In this time I

went back and compared my sons vac records to his medical records to

discover a shocking surprise!!! After each round of vacs, within a

month, a new medical condition appeared: B vac- vision loss,

considered blind for 1st year of life. 1st DTAP- regression,

CONSTIPATION started and got worse with each DTaP round, 1st MMR-

siezures started, there is a whole list of conditions and most

started just after vacs with each round being worse each time. His

last round 1yr ago did the most damage and know has almost no bowel

control or little use!! We had always just pressumed his birth

defect of ACC was always the cause of most of his medical issues. I

could never understand why there are so many people out there that

have the same condition of ACC and live normal healthy lives, now I

know!! It is because, vacs dont always have such a dramatic affect

on all but did with all 3 of my kids!!! Severe colic as infants with

my two oldest was the first red flag!

I also agree with you that meds can be worse than the condition!

Sometimes we dont have a choice for them to be able to survive! As

this is our situation with our sons bowel condition for the time

being. I do completely agree and know that with natural remedies we

can hopefully get him off of the meds he is on. I feel the meds are

just a bandage and not the cure. Now that my son is finally feeling

and doing better I need to research and find the alternatives for

his healing. It seems you have found the mental time to do this for

your son and I admire you for that!! He is a lucky child!! One of

the meds my son is on I feel is very toxic- loaded with PEG!! If the

medications wouldnt work they was going to tube him! Thank GOD they

got things working!(barely) Now no tube!!

As far as the constipation. I am condident that his first DTap

started the whole thing and with each round there after, it got

worse!! Not with his last round, lost most use of his bowels. Dont

let them jab your son anymore with the vacs. It might get worse each

time and the docs well always just say it is his brain condition and

then the true help well not be there!! If you havent tried yet,

there are many things that well naturally help with the

constipation!! Mineral oil orally only when needed for worse case

(internal lubricant). Make sure to use hours after any meds due to

the fact it can interfere with them.(this is nuero advice). Prunes,

apricots, peaches, help. Of coarse EXTRA water!! Magnesium citrate

is good for severe backup or blockage. We see progression in all

areas with him each time we give him this. There is a mild powder

form I just recently was told about called " magna calm " that can be

used daily for softer stools. Can be found in health food stores.We

havent been able to get yet, but am anxious to try(we live out in

the middle of know where)! There are many natural supplements. Of

coarse take out foods that do constipate for example bananas, rice,

escpecially be cautious of the infant foods, they have a lot of rice

in them! It seems you are way ahead on all this already. We used to

think the lack of crawling etc was the cause also, it does play a

big role, especially if they are inmobile, but it is not the main

cause. Our son didnt sit or craw until around 2yrs, started to walk

around 3yrs and still suffered with constipation. You are write in

that it makes a difference on the mobility though. Nightly back

massages on his side helps relieve alot of the gas from being little

mobil. Sorry this is so long, but yours really caught my attention

and I hope that I can converse occaissionally with you about

healing/natural cures. I am just now starting to have a somewhat

clear mind and need to do for my son!! Take care and as you already

know, no more VACS!!! Jennie<><

>

> That was hard, just read the last years' postings to get a feel

for

> this group. Have spent a lot of time here bc all I've read (even

Don

> Vance's infomercials) seems really positive. I recommend that

people

> new to the group do this as it may save you waiting for all your

> questions to be answered.

>

> So my story here and I hope people can provide me with feedback

and

> advice on what I am doing.

>

> My son is 8 mths old. Was dx with Polymicrogyria which we are

> told is a birth abnormality where part of his cortex (frontal

lobes)

> has malformed.

> Yet, was developing normally until 4 mths when he had his

first

> seizure.

> The first 2 mths after this we spent in Royal Children's Hospital

> (Melbourne, Australia), with seizures every hour 24 hrs a day. We

> tried phenobarb, dilantin, tegretol, topomax and vigabatrin. All

> AED's had severe side effects.

>

> Anyways the past two mths and a bit we have been at home and have

> changed our approach. We have weaned off all AED's/meds and

> have supplemented with the following:

>

> 6mls Bacopa Tinture per day.

>

> 2mls DHA per day

>

> 2.5mls DMG per day.

>

> Taurine

>

> As stopped eating orally since seizures we make our own

> formula. We adapted the recipe from Westonprice.com.

> It includes 2 cups goats milk, 2 cups filtered water, 2 tsp

> nutritional yeast, 2 tsp coconut oil, I tsp coldpressed olive oil,

1

> tsp cold pressed sunflower seed, 2 tsp lactose, 2 egg yolks, 1 tsp

> cod liver oil,acidophilus, and Vit C. This lasts 24 hrs.

>

> Now we see a reiki healer, a chiropractor, a cranio sacral

> osteopath, and this amazing Dr in Melbourne called Dr Gruba who

> specialises in Bioenergetic (bio-logical) medicine and who uses

MORA

> therepy (a type of mechanical accupuncture) on weekly. He

also

> prescribes homoepathic remedies which we apply on tongue or skin.

We

> also uses sml magnets on and use skin cleansing patches

nightly

> on his feet to draw toxins from the skin.

>

> Sounds like a lot, but I will do anything for my boy who is the

> light of my life.

>

> still has seizures daily but one or two not 24 and has only

had

> one or two seizure free days since this ordeal began. However

since

> off the drugs he is slowly coming back to us as was out of it for

so

> long. Many of the drugs he was on are not recomended for babies

but

> he was on such high doses.

>

> I belong to a Polymicrogyria support group where everyone seems to

> tell me that the seizures are more dangerous than the medications

> but instictively I can't buy this.

> I also feel that 's seizures started after vaccinations and Dr

> Gruba has found he has high levels of mercury, not to mention

> radiation (after all the CT scans, MRI's x-rays).

>

> What do people think? Am I doing anything that sticks out as

harmful

> or wrong? Also is always constipated and this may be due to

his

> limited movements (doesn't crawl, creep, sit up yet).

>

> Ok well I hope that those of you who have more knowledge than I

can

> help or maybe find this useful, I am happy to answer any

questions,

> apologies for such a long post.

>

> Rose

>

>

> PS Has anyone actually tried Don Vance's product, just curious.

>

[Guest guest]

Hey Jennie,

Great to get your reply, but its really horrible to hear about your

son's vaccination experience. It is so unfair!!

has had only 2 rounds of vaccs and is having no more ever, and

we are starting to investigate detoxing/chelation of heavy metals

from his body!!!

I'd be happy to talk to you anytime about alternatives and now I

have found this group I want to share my journey with healing

(I have to beleive its possible) in the hope of helping others.

> >

> > That was hard, just read the last years' postings to get a feel

> for

> > this group. Have spent a lot of time here bc all I've read (even

> Don

> > Vance's infomercials) seems really positive. I recommend that

> people

> > new to the group do this as it may save you waiting for all your

> > questions to be answered.

> >

> > So my story here and I hope people can provide me with feedback

> and

> > advice on what I am doing.

> >

> > My son is 8 mths old. Was dx with Polymicrogyria which we

are

> > told is a birth abnormality where part of his cortex (frontal

> lobes)

> > has malformed.

> > Yet, was developing normally until 4 mths when he had his

> first

> > seizure.

> > The first 2 mths after this we spent in Royal Children's

Hospital

> > (Melbourne, Australia), with seizures every hour 24 hrs a day.

We

> > tried phenobarb, dilantin, tegretol, topomax and vigabatrin. All

> > AED's had severe side effects.

> >

> > Anyways the past two mths and a bit we have been at home and

have

> > changed our approach. We have weaned off all AED's/meds and

> > have supplemented with the following:

> >

> > 6mls Bacopa Tinture per day.

> >

> > 2mls DHA per day

> >

> > 2.5mls DMG per day.

> >

> > Taurine

> >

> > As stopped eating orally since seizures we make our own

> > formula. We adapted the recipe from Westonprice.com.

> > It includes 2 cups goats milk, 2 cups filtered water, 2 tsp

> > nutritional yeast, 2 tsp coconut oil, I tsp coldpressed olive

oil,

> 1

> > tsp cold pressed sunflower seed, 2 tsp lactose, 2 egg yolks, 1

tsp

> > cod liver oil,acidophilus, and Vit C. This lasts 24 hrs.

> >

> > Now we see a reiki healer, a chiropractor, a cranio sacral

> > osteopath, and this amazing Dr in Melbourne called Dr Gruba who

> > specialises in Bioenergetic (bio-logical) medicine and who uses

> MORA

> > therepy (a type of mechanical accupuncture) on weekly. He

> also

> > prescribes homoepathic remedies which we apply on tongue or

skin.

> We

> > also uses sml magnets on and use skin cleansing patches

> nightly

> > on his feet to draw toxins from the skin.

> >

> > Sounds like a lot, but I will do anything for my boy who is the

> > light of my life.

> >

> > still has seizures daily but one or two not 24 and has only

> had

> > one or two seizure free days since this ordeal began. However

> since

> > off the drugs he is slowly coming back to us as was out of it

for

> so

> > long. Many of the drugs he was on are not recomended for babies

> but

> > he was on such high doses.

> >

> > I belong to a Polymicrogyria support group where everyone seems

to

> > tell me that the seizures are more dangerous than the

medications

> > but instictively I can't buy this.

> > I also feel that 's seizures started after vaccinations and

Dr

> > Gruba has found he has high levels of mercury, not to mention

> > radiation (after all the CT scans, MRI's x-rays).

> >

> > What do people think? Am I doing anything that sticks out as

> harmful

> > or wrong? Also is always constipated and this may be due to

> his

> > limited movements (doesn't crawl, creep, sit up yet).

> >

> > Ok well I hope that those of you who have more knowledge than I

> can

> > help or maybe find this useful, I am happy to answer any

> questions,

> > apologies for such a long post.

> >

> > Rose

> >

> >

> > PS Has anyone actually tried Don Vance's product, just curious.

> >

>