s appointment

[Guest guest]

-Another OOO is needed!!!

Im so glad things look like they are heading in the right direction

for and the MTX is not needed.

Good ole enbrel to the rescue.. it surely has been s wonder

drug. YOu are soo right things could have spirled out of control,

but you caught it early and treated it and now its was just a mini

bump-ette in the road!!!

hugs to all

Helen and (7,systemic)

-- In , Arthurnator@w... wrote:

> Hi all,

> Everything went great today.The right wrist is as perfect as it

can get and

> the left wrist just has a smidgen of swelling.Not enough to

warrant going back

> on MTX.The increase in Enbrel has finaly started to kick in after

3 weeks and

> if it doesn't keep things in control he goes to oral MTX not the

nasty,yellow

> shots.Labs are every 4 months and we go back Dec.22

> It was nice to hear the words complete control again. is a

very lucky

> little boy.It would have been so easy for things to just have

spiraled out of

> control when we discontinued the MTX last month.

> Hugs to all

> Becki and 6 systemic

>

>

>

[Guest guest]

More good news!! Glad is doing well now, and the Enbrel has

started to do its trick. Bloodwork every 4 months - that is nice too,

instead of every month or so. One less thing to deal with. Hopefully,

he won't need the mtx. Michele ( 17, pauci & spondy)

s appointment

Hi all,

Everything went great today.The right wrist is as perfect as it can get

and

the left wrist just has a smidgen of swelling.Not enough to warrant

going back

on MTX.The increase in Enbrel has finaly started to kick in after 3

weeks and

if it doesn't keep things in control he goes to oral MTX not the

nasty,yellow

shots.Labs are every 4 months and we go back Dec.22

It was nice to hear the words complete control again. is a very

lucky

little boy.It would have been so easy for things to just have spiraled

out of

control when we discontinued the MTX last month.

Hugs to all

Becki and 6 systemic

[Guest guest]

Hi all,

The appointment went well. is back in complete control but needs to

exercise his lft wrist a little.To much time protecting it duiring floor play

and

useing his finger tips instead of letting his palm lay flat on the floor.

Not alot of height growth but he did finaly manage to hit 4 ft and a 1/4 " to

boot.His weight gain is whats incredible but he is very proportionate.First of

Oct. he was 25 kilos and now he is 27.8 kilos so he has gained close to 6

lbs.The big thing is even with the increase of Enbrel from 1.0ml to 1.1ml he is

still getting .5mg per kilo.

Asked about the funky eczema rash,turns out its not that at all(Humell is

also head allergist). is allergic to Nickel and I now have to cover all the

snaps and rivets in his blue jeans.She is also an immunologist and as far as I

could understand it's an immunological thing and the rash can appear

anywhere,not just where the exposure is.I can get all the spots cleared up and

any

exposure to Nickel can cause the rash to appear anyplace on his body.She

increased his steroid cream from .05 to .10 because some spots are yucky and

stubborn.

Stacia,I mentioned the fear of his skin thinning and she told me not to worry

unless it was his face.

All in all it was good and we are back to every 4 months again with labs

every 2months.

Helen,even though I had never heard of getting labs 24 hours after MTX to see

if you were absorbing it, I haven't given any Folic acid.His liver enzymes

after 7 weeks were in the normal high range and he is absorbing the 7.5mg

oral.Recently Georgina posted a report from a third world country that couldn't

get

any injectable MTX and they used it to their favor and did a study on patients

in remission.A dose of 7.5mg is the only dose that is absorbed the same as

injections.WE now have a script for folic acid and start tomorrow.

Hugs to all

Becki and 6 systemic

[Guest guest]

Hi Stacia,

Actualy Dr.Lovell was the first to suspect contact dermititis because right

at his snap was a HUGE rash.Dr.Hummel knew immediately what it was without skin

testing and said she thought what was on his arm was related but there was no

skin test for that type of rash.It looks differant then the others and is

much more stubborn.

I know about the jewelry thing.Mainly wears 14k CZ but has aquired some

braclets and necklesess.I have noticed with most costume jewelry now a days

is nickel free.As for me nothing but 14k goes in my ears or pain and redness

occur.10k still has to much other stuff in it.So while we do get the good stuff

it's pricey so atleast for me I don't have a large earing collection.

s putting tape on his snap every morning and so far things are clearing

up without steroid cream,so hopefuly we can try and avoid it as much as

possible.

Hugs

Becki and 6 systemic