Re: I spoke with Val this afternoon...

[Guest guest]

Hello all:

I spoke with Val this afternoon. As you may remember Robbie is in the hospital

with a systemic flare. He is doing ok, day 2 of steroid pulse. They are giving

him over 600 mg each pulse. Needless to say it is causing mood swings! But he is

doing very well despite all that. When we spoke he was working on his homework!

He is quite an amazing kid. He did have some leg pain this morning despite all

the solumedrol. Val sounded tired but upbeat, because the new ped rheumy appt is

monday! She is very hopeful that this is going to change everything for Robbie.

I am too! We have just all got to think that they'll jump on new meds and

aggressively try to get things under control.

He'll get the third and final steroid pulse tomorrow and hopefully then go home.

Please keep them in your prayers!

and Rob 15 Spondy

[Guest guest]

Thanks for the update. I have been praying for Robbie and Val

and hoping that everything was going safely for them.

I am sure that Val must be anxious for the Monday appointment. I

hope they come up with a good plan of attack for Robbie.

Thanks again for keeping us informed.

(drea 9 systemic)-

-- In , " snooksmama@j... " <snooksmama@j...>

wrote:

>

> Hello all:

> I spoke with Val this afternoon. As you may remember Robbie is in

the hospital with a systemic flare. He is doing ok, day 2 of steroid

pulse. They are giving him over 600 mg each pulse. Needless to say it

is causing mood swings! But he is doing very well despite all that.

When we spoke he was working on his homework! He is quite an amazing

kid. He did have some leg pain this morning despite all the

solumedrol. Val sounded tired but upbeat, because the new ped rheumy

appt is monday! She is very hopeful that this is going to change

everything for Robbie. I am too! We have just all got to think that

they'll jump on new meds and aggressively try to get things under

control.

> He'll get the third and final steroid pulse tomorrow and hopefully

then go home. Please keep them in your prayers!

> and Rob 15 Spondy

[Guest guest]

,

Please give Val and Robbie phone hugs from us. I pray that he

finally gets more aggressive treatment that won't interfere with the

kidneys and all that other stuff, after all the numerous doctor run-

arounds (for various reasons).

Holy bugaboo--600mg steroid pulse!!!! I pray so hard it works this

time.

Stacia and Hunter 8 systemic, iritis

[Guest guest]

Hi,

, I just wanted to say Thank You, so very much, for taking the time

to send us all an update on Robbie and Val's hospital stay.

It really touches my heart, to see the caring and thoughtfulness shared

amongst our group's members. I used to be so actively involved here for

the first five years and with all the events and changes of this past

year, I've basically taken a back-seat sort of role. It brings me so

much joy to see how people such as yourself (and others, far too many to

list all but you know who you are, old members as well as new friends)

have stepped right up to offer a helping hand and keep everything

running so smoothly ... and most especially, to witness the bonds and

friendships that have been formed. Not in my absence, per se, as I'm

still here and still read all the messages but it's so wonderful to know

that there are so many kind and generous people who are so willing to

share their time, their knowledge, and their selves with others who are

struggling with arthritis, to help however they can.

Thank you, all of you.

With Much Aloha,

Georgina

snooksmama@... wrote:

>

> Hello all:

> I spoke with Val this afternoon. As you may remember Robbie is in the hospital

with a systemic flare. He is doing ok, day 2 of steroid pulse. They are giving

him over 600 mg each pulse. Needless to say it is causing mood swings! But he is

doing very well despite all that. When we spoke he was working on his homework!

He is quite an amazing kid. He did have some leg pain this morning despite all

the solumedrol. Val sounded tired but upbeat, because the new ped rheumy appt is

monday! She is very hopeful that this is going to change everything for Robbie.

I am too! We have just all got to think that they'll jump on new meds and

aggressively try to get things under control.

> He'll get the third and final steroid pulse tomorrow and hopefully then go

home. Please keep them in your prayers!

> and Rob 15 Spondy