Re: Moving on to Enbrel~~ to Helen

[Guest guest]

No problem, Helen. also needed a lot of folic when she was on higher

doses of methotrexate, so the leucovorin was a real blessing. was off

methotrexate for 17 months, but started up again about 3 weeks ago as we

made the switch from Enbrel to Remicade. Her methotrexate dose is much lower

this time. only 7.5mg per week. but her rheumy had her start with leucovorin

again just because of her past history.

Liz

RE: Moving on to Enbrel.

> >

> >

> > I have been so busy lately, I haven't had a chance to write to

> anyone here

> > or read much. I am very interested in how will respond

> to Enbrel.

> > Sami may need to add it or another biologic (Remicade or

something

> else) in

> > January.

> >

> > So far she is on Pred, MTX (pill form), folic acid, naprosyn,

and

> zantac.

> > We have been holding off on injectibles. But alas -- we may

have

> to succumb

> > because the MTX is not working. Are injections hard to give?

> What is

> > ' reaction to them? If we don't do Enbrel, then we have

> to go to

> > infusions. Sami is only 10.23 kg. It's very hard to find a

vein

> just for

> > the testing aspect (every 6 weeks). She will also start

physical

> therapy in

> > January as a few of her muscles are atrophying.

> >

> > Please let me know how it goes. I hope feels better

for

> the

> > holidays.

> >

> > Gramma Deb (Sami, 2.5 yrs, poly)

> > California

> >

> >

[Guest guest]

-Thanks Liz... Hows doing with the remicade???

Hugs Helen and (7,systemic)

-- In , " liz smith " <liz_smith@c...> wrote:

> No problem, Helen. also needed a lot of folic when she was

on higher

> doses of methotrexate, so the leucovorin was a real blessing.

was off

> methotrexate for 17 months, but started up again about 3 weeks ago

as we

> made the switch from Enbrel to Remicade. Her methotrexate dose is

much lower

> this time. only 7.5mg per week. but her rheumy had her start with

leucovorin

> again just because of her past history.

>

>

>

> Liz

>

> RE: Moving on to Enbrel.

> > >

> > >

> > > I have been so busy lately, I haven't had a chance to write to

> > anyone here

> > > or read much. I am very interested in how will

respond

> > to Enbrel.

> > > Sami may need to add it or another biologic (Remicade or

> something

> > else) in

> > > January.

> > >

> > > So far she is on Pred, MTX (pill form), folic acid, naprosyn,

> and

> > zantac.

> > > We have been holding off on injectibles. But alas -- we may

> have

> > to succumb

> > > because the MTX is not working. Are injections hard to give?

> > What is

> > > ' reaction to them? If we don't do Enbrel, then we

have

> > to go to

> > > infusions. Sami is only 10.23 kg. It's very hard to find a

> vein

> > just for

> > > the testing aspect (every 6 weeks). She will also start

> physical

> > therapy in

> > > January as a few of her muscles are atrophying.

> > >

> > > Please let me know how it goes. I hope feels better

> for

> > the

> > > holidays.

> > >

> > > Gramma Deb (Sami, 2.5 yrs, poly)

> > > California

> > >

> > >

[Guest guest]

Hi Helen

seems to be doing well on the Remicade, but has only had one infusion.

The next one is on Monday. It has been interesting since the first infusion

on the 6th~~ She's had such sparkle and energy again. My husband even wanted

to know what kind of " happy drug " was mixed in with the Remicade! We had

thought she was doing pretty well on the Enbrel (the biggest reason for the

switch was to see if it would make a difference with her hair). Anyway, my

dad and I were talking the other day and I told him, when he asked, what I

told you about the sparkle and the energy. With great relief he told me how

worried he and my mother were at Thanksgiving. He said they just didn't

think she looked well at all. I guess seeing her every day we just didn't

see what others were seeing.

Okay, long answer to an easy question!

How's Nick today? I so hope that the Enbrel will work wonders for him.

Liz

RE: Moving on to Enbrel.

> > >

> > >

> > > I have been so busy lately, I haven't had a chance to write to

> > anyone here

> > > or read much. I am very interested in how will

respond

> > to Enbrel.

> > > Sami may need to add it or another biologic (Remicade or

> something

> > else) in

> > > January.

> > >

> > > So far she is on Pred, MTX (pill form), folic acid, naprosyn,

> and

> > zantac.

> > > We have been holding off on injectibles. But alas -- we may

> have

> > to succumb

> > > because the MTX is not working. Are injections hard to give?

> > What is

> > > ' reaction to them? If we don't do Enbrel, then we

have

> > to go to

> > > infusions. Sami is only 10.23 kg. It's very hard to find a

> vein

> > just for

> > > the testing aspect (every 6 weeks). She will also start

> physical

> > therapy in

> > > January as a few of her muscles are atrophying.

> > >

> > > Please let me know how it goes. I hope feels better

> for

> > the

> > > holidays.

> > >

> > > Gramma Deb (Sami, 2.5 yrs, poly)

> > > California

> > >

> > >

[Guest guest]

-Liz..

Im glad that is doing well on the remicade. I hope this is the

answer to her hair loss problem too...

I know EXACTLY what you mean about the sparkle and energy...I have

soo missed that in Nick lately.. He's lost his " spunk " , I sure hope

it returns soon....

I wish continued good fortune with the remicade.....

Hugs Helen and (7,systemic)

-- In , " liz smith " <liz_smith@c...> wrote:

> Hi Helen

>

>

>

> seems to be doing well on the Remicade, but has only had one

infusion.

> The next one is on Monday. It has been interesting since the first

infusion

> on the 6th~~ She's had such sparkle and energy again. My husband

even wanted

> to know what kind of " happy drug " was mixed in with the Remicade!

We had

> thought she was doing pretty well on the Enbrel (the biggest

reason for the

> switch was to see if it would make a difference with her hair).

Anyway, my

> dad and I were talking the other day and I told him, when he

asked, what I

> told you about the sparkle and the energy. With great relief he

told me how

> worried he and my mother were at Thanksgiving. He said they just

didn't

> think she looked well at all. I guess seeing her every day we just

didn't

> see what others were seeing.

>

>

>

> Okay, long answer to an easy question!

>

>

>

> How's Nick today? I so hope that the Enbrel will work wonders for

him.

>

>

>

> Liz

>

>

>

> RE: Moving on to Enbrel.

> > > >

> > > >

> > > > I have been so busy lately, I haven't had a chance to write

to

> > > anyone here

> > > > or read much. I am very interested in how will

> respond

> > > to Enbrel.

> > > > Sami may need to add it or another biologic (Remicade or

> > something

> > > else) in

> > > > January.

> > > >

> > > > So far she is on Pred, MTX (pill form), folic acid,

naprosyn,

> > and

> > > zantac.

> > > > We have been holding off on injectibles. But alas -- we may

> > have

> > > to succumb

> > > > because the MTX is not working. Are injections hard to

give?

> > > What is

> > > > ' reaction to them? If we don't do Enbrel, then we

> have

> > > to go to

> > > > infusions. Sami is only 10.23 kg. It's very hard to find a

> > vein

> > > just for

> > > > the testing aspect (every 6 weeks). She will also start

> > physical

> > > therapy in

> > > > January as a few of her muscles are atrophying.

> > > >

> > > > Please let me know how it goes. I hope feels

better

> > for

> > > the

> > > > holidays.

> > > >

> > > > Gramma Deb (Sami, 2.5 yrs, poly)

> > > > California

> > > >

> > > >