Re: Systemic JRA--Humira--Need info

[Guest guest]

I know there is a little five year old boy on it that goes to the ped rheumy

in Portland, Oregon. My brother is on it, and he has had a much better

response on it than on enbrel. It hurts a lot at the time of injection

though. He says that it really burns, and he hasn't found anything to

alleviate that pain. Good luck . (n, 15, systemic)

Systemic JRA--Humira--Need info

>

> I don't get on here often but my son (, 6yrs old) has had JRA since

he

> was almost three. We have been through a lot of meds...now we are

switching

> from Enbrel to Humira.

> Has anyony had any experience with this med for someone so young? Help!

>

>

>

[Guest guest]

My daughter is on it and it seems to be working quite well. We have

never been on Enbrel. To eliminate the pain, my daughter uses emla

cream and then we ice her spot. The ice needs to be very cold and

direct on the spot. We use a very thin cloth and ice it intensely...if

that makes sense. She injects herself and then we count to ten. She is

on a study, so she has to rate her shots every time...she is pretty

tough too, but she typically says they are between a 2to4 on a scale of

10. I think it really does help. She injects her leg and not her

stomach, maybe that would make a difference, and we use an " injector. "

It actually pokes the needle in her skin (she controls all the buttons

and the injections) and then she pushes the medicine into her body. It

really has taken the arthritis moved it closer to normal, but we aren't

there yet.

Good Luck! We really like the fact is is only once every 2 weeks too.

and Allie (8 poly)

________________________________

From: WILLIAM PRICE [mailto:bc.price@...]

Sent: Thursday, November 11, 2004 2:30 PM

Subject: Re: Systemic JRA--Humira--Need info

I know there is a little five year old boy on it that goes to the ped

rheumy

in Portland, Oregon. My brother is on it, and he has had a much better

response on it than on enbrel. It hurts a lot at the time of injection

though. He says that it really burns, and he hasn't found anything to

alleviate that pain. Good luck . (n, 15, systemic)

Systemic JRA--Humira--Need info

>

> I don't get on here often but my son (, 6yrs old) has had JRA

since

he

> was almost three. We have been through a lot of meds...now we are

switching

> from Enbrel to Humira.

> Has anyony had any experience with this med for someone so young?

Help!

>

>

>

[Guest guest]

Thanks for the info on Humira. Atleast I'll be able to tell about the

pain when he asks, " Will it hurt? " I have always been honest with

about procedures & pain. That way he knows I'll always tell him the truth.

Sometimes his daddy is in denial and wants to spare him the pain/panic that

comes

with new meds. Thank you so much!!!

[Guest guest]

Please remember I think the first time it hurts the worst. I think my

daughter started to feel so much better that she look forward to the

shot...because she knew subconsciously she felt so much better. Take it

slow. The more my daughter is in control the easier it is.

and Allie (8 poly)

________________________________

From: colemantree@... [mailto:colemantree@...]

Sent: Monday, November 15, 2004 5:01 PM

Subject: Re: Systemic JRA--Humira--Need info

Thanks for the info on Humira. Atleast I'll be able to tell

about the

pain when he asks, " Will it hurt? " I have always been honest with

about procedures & pain. That way he knows I'll always tell him the

truth.

Sometimes his daddy is in denial and wants to spare him the pain/panic

that comes

with new meds. Thank you so much!!!