Re: Re: IT'S JUST GROWING PAINS UGHHH!!!

[Guest guest]

Bridget,

Unfortunately welcome to the world of " Kids get arthritis too " .

Your family is treating you and your daughter awful but try and cut them a

little slack for now but educate them.You can go to www.arthritis.org and print

or order pamphlets online about juvenile arthritis.

Pauci JRA can be tricky because the symptoms can be mild,but mom knows when

something doesn't seem right.Get into the Opthomologist ASAP to detect any eye

inflimation which can be far worse then the arthritis with Pauci kids.

You aren't imagining things and you are very concerned that something is

going on,far beyond growing pains.

My son has systemic JRA and at times he does have growing pains when he has

been overly active.They always happen late at night when he is resting or

asleep and are always gone by morning no matter how severe the leg pain was in

the

middle of the night.

Always go with your motherly instinct and follow your gut! It's better to be

too protective then to be in denial and just remember most people think of

arthritis as an old persons disease and commercials showing older people takeing

an NSAID or Tylenol doing great don't help.

Hugs and support

Becki and 6 systemic

[Guest guest]

Jodi I can relate to your frustation and to young Bronson daily

endevor's, living with this CRUD!

We here know! it not just growing pain!

Though I was never given a classified diagnosis in the begining, but

since I have been told by my Rheumy that my onset was classic of Stills I

have experienced the rash and I have always been subject to high fever

and swellen joints.

So it sounds like hell at times, but there is goods times as well....I

know but there is!

One benefit of this, jra, is would have never meet or become close

friends to so many, truely wonderful

people.

Though that is little comfort to a parent who sits by helplessly, as

their baby suffers from this, be their guiding force, fuel their strength

and nurture their determination through this.

my prayers be with you and Bronson!

many hugs much prayer and lots of love to you all..

hplta

Rusty

[Guest guest]

I'm not trying to be rude or anything but have you ever thought just to tell the

inlaws and any other 'well meaning' relative to kiss your butt. Seriously, you

are allowed to go off on people who after months and months of telling them what

the problem is still don't seem to have a clue. Until they go through the pain

every night with your child or have to hold them for hours because there is

nothing you can do to help them then they don't have the right to tell you

nothing is wrong. Maybe they are trying to be 'supportive' or maybe they really

believe you are overreacting but you should let them know, there is something

wrong and if they can't deal with it or accept it then they can 'kiss your

butt'. The easiest way for your child to accept is when the people around them

accept it. They don't have to understand it but if they wake up one day and

find that there grandchild can't walk they will wish they had accepted it. Just

lay it on the line and tell them like it is. If

everyone gets mad at you for being a b---- who cares its your child and they

will appreciate being inform, even if they don't know it at the time.

Alesha

7 stills

A Morse <dam755@...> wrote:

Jodi I can relate to your frustation and to young Bronson daily

endevor's, living with this CRUD!

We here know! it not just growing pain!

Though I was never given a classified diagnosis in the begining, but

since I have been told by my Rheumy that my onset was classic of Stills I

have experienced the rash and I have always been subject to high fever

and swellen joints.

So it sounds like hell at times, but there is goods times as well....I

know but there is!

One benefit of this, jra, is would have never meet or become close

friends to so many, truely wonderful

people.

Though that is little comfort to a parent who sits by helplessly, as

their baby suffers from this, be their guiding force, fuel their strength

and nurture their determination through this.

my prayers be with you and Bronson!

many hugs much prayer and lots of love to you all..

hplta

Rusty