Re: Homeopathic treatment help!

[Guest guest]

Tamara,

Forget it and put it out of your mind.JRA is an auto immune disease and has

nothing to do with diet or food allergies.There is no magic cure or a cure

period.It's best to follow your ped rheumies advise and just simply tell people

that try and talk you into things that while they mean well,you trust your

doctor and there is ABSOLUTELY no proof that any of those things do any good and

could cause harm and they are not FDA regulated.

If you ever feel the need to try any of those things please talk to your

rheumy first.

Hugs

Becki and 6 systemic

[Guest guest]

I have heard that JRA is allergy linked, but not specifically food

allergy linked. As a matter of fact, when we last had allergy

tested, he showed no food allergies, just enviromental ones (trees,

grass, mold, dust). Some feel that diet does help arthritis and I do

know that it does help gout - another type of arthiritis. Have you had

McKenna tested for allergies? Perhaps if you did, you would feel better

knowing what she is allergic to. There are people on this list who have

used alternative methods - hopefully they will post soon. Sorry I can't

help more, I am more of a traditional meds type of person. You need to

do what you feel will work best for your child. I don't think that

anything is guaranteed cure for this. Don't feel guilty - we are all in

the same boat. If the alternatives sound interesting, research them and

see if you feel comfortable with them. Hope this helps, Michele (

17, pauci & spondy)

Homeopathic treatment help!

Ok I have been told by several people to have McKenna take things

like coral calcium, and flex seeds... I have also been told

that " JRA " is linked to food allergies. As anyone ever been told

this and have they tried any alternative methoods? Right now McKenna

is doing extremly well. She is just on Motrin, but somehow I keep

getting in the line of fire of what long term use of any drug will

do to her and how I could " cure " her all together if i just figure

out what food allergy she has " It could be as simple as milk "

Im tired of feeling guilty for not wanting to try but to scared to

make a change and have a long term mistake. Thanks for all the imput

in advance! - Tamara

[Guest guest]

Tamara. I agree with Becki. Some people will swear up and down that taking

away dairy or adding this herbal supplement changed their kid. It could

happen, but more than likely it was a fluke or they didn't have very serious

symptoms. There are waay too many unknowns with homeopathic treatments.

Stick to what is known. If you really want to try something consult your

rheumy first. Also, remember most people who have arthritis or know someone

who have arthritis do not have Rheumatoid Arthritis. They are two completely

different beasts and cannot be thought of or treated the same.

Good luck

Alia and Caroline, age 2, poly and uveitis

Re: Homeopathic treatment help!

Tamara,

Forget it and put it out of your mind.JRA is an auto immune disease and has

nothing to do with diet or food allergies.There is no magic cure or a cure

period.It's best to follow your ped rheumies advise and just simply tell

people

that try and talk you into things that while they mean well,you trust your

doctor and there is ABSOLUTELY no proof that any of those things do any good

and

could cause harm and they are not FDA regulated.

If you ever feel the need to try any of those things please talk to your

rheumy first.

Hugs

Becki and 6 systemic

[Guest guest]

Tamara,

There are some on this list that are either still in progress of

investigating alternative approaches or are using them. I hope they

chime in for you.

Whatever you try, please take every precaution that it is not a

scam. We all know there is no cure as of today. You could spend a

lot of money chasing solutions in the dark. Be careful.

Maybe you should get McKenna allergy tested. We go to a good ped.

allergist at St. Luke's Meridian. Let me know if you want his name

and contact info. (He was actually instrumental in pointing us in

the right direction [finally] in getting Hunter diagnosed).

Also, maybe you should give DawnL a call (from our local support

group). I know she mentioned she was interested in trying anything.

Stacia and Hunter 8 systemic, iritis

[Guest guest]

Hi Tamara,

I tend to agree with Becki - only because when I read about scientific studies

about things like the coral calcium - (the coral calcium is no better than

regular calcium - Robbie takes 1000 mgs of calcium a day - and still flares) -

anyway the studies usually prove that much of these things that our well meaning

friends try to get us to use to help our kids. I am not saying that homeopathic

medicine doesn't have it's place - and I believe that a healthy diet is very

important to our overall health (ask Robbie how much I have increased his daily

fruit since his recent GI symptoms - although he already ate a fairly well

balanced diet before) - beyond that I don't think that avenue would be very

successful. There are some on the list who feel that the steps the have taken

that way has been successful - and I don't mean to take away from where they are

with it - it just isn't the right choice in my opinion, for my son. Do speak

with the rheumy and pediatrician before adding anything new in the treatment of

your child - many of these things can have side affects that you may not be

aware of - just because they are derived from " natural sources " doesn't mean

that it's safe - cocaine and opium are derived from natural sources too. (not

to say that these items would be as devastating - just to illustrate the need to

talk to the doctors before making a decision.)

Concern over any medicine long term is a valid concern. Motrin as much as any

other - is your child taking Motrin daily? I would be concerned about that. If

Motrin is needed daily & is the only medication your child is on for their

arthritis - then eventually another medication will more than likely be the

answer.

This is overwhelming at first, and very difficult. I was blown away by the

amounts and types of medications I was giving my son after he was first

diagnosed - and continue to be at time - but his health and well being - and his

quality of life depend on them - so we forge ahead - and you keep looking for a

better answer, to keep them going.

I hope this helps - you and your child are in our thoughts and prayers.

Val

Rob's Mom (6,systemic)

In a message dated 9/15/2004 4:08:12 PM Eastern Daylight Time,

Arthurnator@... writes:

>Tamara,

>Forget it and put it out of your mind.JRA is an auto immune disease and has

>nothing to do with diet or food allergies.There is no magic cure or a cure

>period.It's best to follow your ped rheumies advise and just simply tell people

>that try and talk you into things that while they mean well,you trust your

>doctor and there is ABSOLUTELY no proof that any of those things do any good

and

>could cause harm and they are not FDA regulated.

>If you ever feel the need to try any of those things please talk to your

>rheumy first.

>Hugs

>Becki and 6 systemic

>

>

>