Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 Hey all, It's the middle of the night, and I'm in pain and can't sleep. I don't want to complain any more to my husband; it's just not fair to him. I have to figure out what to do with myself. I can't really focus on anything because of the pain. It's in my hips and jaw and wrists. I started the prednisone today, 15 mg...the doctor said to start with 20 but I refused. But I don't have any pain meds, which I'd like right now. Argh....I hate how one week I can be doing great and go on an 8 mile hike in the mountains with my husband, and then the next week I'm practically immobile. My husband doesn't really get it, and he feels bad because he doesn't know what to do when I'm in pain. Also I get sort of a temper when I'm in pain, and the prednisone certainly doesn't help my mood! okay just wanted to vent Elisheva Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 Hey Elisheva!!! Vent away hun and you know here " we get it " . It is so frustrating to see ourselves one day fully functioning and as you indicate a week (or a day) later barely moving. I have still yet to lose the post AJAO conference flare. I used all adrenaline in San Diego and now that I am back home my energy is zapped and I need it!!!!!! Darn this crud!!!!! You know hear you can dump those feling, vent all ya want and we dont have a problem. I do hope you are feeling well soon...hugs! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 Vent away! And get some pain relief if possible - any NSAIDs work for you? What about a warm bath, even in the middle of the night, might help. I would definitely ask the dr about it. Perhaps there is some prescription you could keep on hand to use for nights like this. Sorry can't help more. I know how it is with husbands too. They tend to want to fix things for us, and get frustrated when they can't make it better. Gentle hugs and hope you have a better night, Michele ( 17,pauci & spondy) night, pain, can't sleep...VENT Hey all, It's the middle of the night, and I'm in pain and can't sleep. I don't want to complain any more to my husband; it's just not fair to him. I have to figure out what to do with myself. I can't really focus on anything because of the pain. It's in my hips and jaw and wrists. I started the prednisone today, 15 mg...the doctor said to start with 20 but I refused. But I don't have any pain meds, which I'd like right now. Argh....I hate how one week I can be doing great and go on an 8 mile hike in the mountains with my husband, and then the next week I'm practically immobile. My husband doesn't really get it, and he feels bad because he doesn't know what to do when I'm in pain. Also I get sort of a temper when I'm in pain, and the prednisone certainly doesn't help my mood! okay just wanted to vent Elisheva Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 Thanks so much Michele. I'm doing much better tonight. The prednisone has kicked in and my inflammation is down. I really appreciate your note :-) thanks Elisheva p.s. that's definitely the truth about husbands...isn't it sweet? :-) > Vent away! And get some pain relief if possible - any NSAIDs work for > you? What about a warm bath, even in the middle of the night, might > help. I would definitely ask the dr about it. Perhaps there is some > prescription you could keep on hand to use for nights like this. Sorry > can't help more. I know how it is with husbands too. They tend to want > to fix things for us, and get frustrated when they can't make it better. > Gentle hugs and hope you have a better night, Michele ( 17,pauci & > spondy) > > night, pain, can't sleep...VENT > > > Hey all, > > It's the middle of the night, and I'm in pain and can't sleep. I > don't want to complain any more to my husband; it's just not fair to > him. I have to figure out what to do with myself. I can't really > focus on anything because of the pain. It's in my hips and jaw and > wrists. I started the prednisone today, 15 mg...the doctor said to > start with 20 but I refused. But I don't have any pain meds, which > I'd like right now. Argh....I hate how one week I can be doing great > and go on an 8 mile hike in the mountains with my husband, and then > the next week I'm practically immobile. My husband doesn't really > get it, and he feels bad because he doesn't know what to do when I'm > in pain. Also I get sort of a temper when I'm in pain, and the > prednisone certainly doesn't help my mood! > > okay just wanted to vent > > Elisheva > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 Elisheva: So glad to hear that the prednisone has kicked in. May you have some restful sleep tonight. and Rob 15 Spondy On Thu, 05 Aug 2004 02:53:10 -0000 " queensheevah " <elishevachaya@...> writes: Thanks so much Michele. I'm doing much better tonight. The prednisone has kicked in and my inflammation is down. I really appreciate your note :-) thanks Elisheva p.s. that's definitely the truth about husbands...isn't it sweet? :-) > Vent away! And get some pain relief if possible - any NSAIDs work for > you? What about a warm bath, even in the middle of the night, might > help. I would definitely ask the dr about it. Perhaps there is some > prescription you could keep on hand to use for nights like this. Sorry > can't help more. I know how it is with husbands too. They tend to want > to fix things for us, and get frustrated when they can't make it better. > Gentle hugs and hope you have a better night, Michele ( 17,pauci & > spondy) > > night, pain, can't sleep...VENT > > > Hey all, > > It's the middle of the night, and I'm in pain and can't sleep. I > don't want to complain any more to my husband; it's just not fair to > him. I have to figure out what to do with myself. I can't really > focus on anything because of the pain. It's in my hips and jaw and > wrists. I started the prednisone today, 15 mg...the doctor said to > start with 20 but I refused. But I don't have any pain meds, which > I'd like right now. Argh....I hate how one week I can be doing great > and go on an 8 mile hike in the mountains with my husband, and then > the next week I'm practically immobile. My husband doesn't really > get it, and he feels bad because he doesn't know what to do when I'm > in pain. Also I get sort of a temper when I'm in pain, and the > prednisone certainly doesn't help my mood! > > okay just wanted to vent > > Elisheva > > > > > > Quote Link to comment Share on other sites More sharing options...
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