Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 Hello everyone. We are back finally! We thought we were coming home Tuesday, but had some plane trouble and didn't make it home until 1:00am this morning! Boy am I tired!! It was soo nice to meet everyone. We wished we could have spent more time with everyone, but that just didn't happen. Caroline was miserable the whole trip. She was cranky and crying and just didn't want to do much. She had one good night (the beach party) so we did get out for that. It was nice meeting everyone from FACES that evening.. There is so much information from the conference. I will share what I have once I can decipher my notes! Val - my heart was breaking right along sides yours during the steroid round table. I hope that you were able to take something positive away from that! Stacia - is soo cute!! Caroline has asked for her a few times. The pictures turned out great - I will send you them! I encourage everyone to attend next year in Rhode Island. I can assure you are a first time conference attendee it WAS worth it! The plethora of knowledge was unbelievable. I walked away from this conference ready to take on the world! Hugs to everyone and we are sorry that we didn't get to spend more time with everyone!! Alia and Caroline, age 2, poly and uveitis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 Alia, your right it was worth it and next year will be even better Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 How good it is to be home and I like others are dealing with a combo of jet lag and post conference flair. I am so glad so many from the list were there and I had the privilege to meet almost everyone, even though the visits were short. Alia, Stacia, Robbin, Becki, AJ, , , and whomever I leave out (forgive my slow brain) it was so great to put a face to a name. The conferences are indeed an educational experience for many but for me being able to meet and chat in person means so much. I only wish I had more time and could have divided my time better between YAs, families and of course being a tourist.I am looking forward to 2005 in RI and hope to see all again. I also want to take a sec to welcome all the newbies...tho we do not like knowing there are others dealing with JA I am glad you found the list. This is an incredible group of caring, loving and knowledgable folks who will be here no matter what. To all a good day....Hugs! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2004 Report Share Posted July 30, 2004 -Welcome home Alia... IM sorry to hear Caroline had a tough trip.... whats going on with her treatment plan, any news on the enbrel yet????? IM really going to try and go to RI next year sound like its sooo worth it!!!. Hugs Helen and (6,systemic) -- In , " Pranke, Alia " <Alia.Pranke@t...> wrote: > Hello everyone. We are back finally! We thought we were coming home Tuesday, > but had some plane trouble and didn't make it home until 1:00am this > morning! Boy am I tired!! > > It was soo nice to meet everyone. We wished we could have spent more time > with everyone, but that just didn't happen. Caroline was miserable the whole > trip. She was cranky and crying and just didn't want to do much. She had one > good night (the beach party) so we did get out for that. It was nice meeting > everyone from FACES that evening.. > > There is so much information from the conference. I will share what I have > once I can decipher my notes! Val - my heart was breaking right along sides > yours during the steroid round table. I hope that you were able to take > something positive away from that! Stacia - is soo cute!! Caroline > has asked for her a few times. The pictures turned out great - I will send > you them! > > I encourage everyone to attend next year in Rhode Island. I can assure you > are a first time conference attendee it WAS worth it! The plethora of > knowledge was unbelievable. I walked away from this conference ready to take > on the world! > > Hugs to everyone and we are sorry that we didn't get to spend more time with > everyone!! > > Alia and Caroline, age 2, poly and uveitis Quote Link to comment Share on other sites More sharing options...
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