Finally a diagnosis for !!!

[Guest guest]

Hi All,

We had our 1st Pediatric Rheumatology appt today at University of

Alabama. has been diagnosed with Pauciarticular Juvenile

Rheumatoid Arthritis. We ae being started on Naprosin tomorrow and

the Dr gave us a pamplet on a med called Plaquenil to read over and

decide if we want to try it? Is anyone on this and are there very

bad side effects?

We are having to get a eye exam soon and more recent lab work done.

We have to go back in 3 weeks to follow up.

I am thankful we now have a name for all of s problems, but i

just wish it wasn't this! know what i mean?

Thanks to everyone for there help and i am sure i will have more

questions soon.

Kyla mom to ( pauciarticular)

[Guest guest]

Kyla, n has been on plaquenil for five years, and we have never seen any

side effects. It can rarely cause retina damage that is reversible, so one has

to be monitored every six months by a pediatric opthomalogist. Plaquenil is the

least toxic of the Dmard's , but the least effective. I have read somewhere

that it is only about 20% effective. Good luck. (n, 15, systemic)

Finally a diagnosis for !!!

Hi All,

We had our 1st Pediatric Rheumatology appt today at University of

Alabama. has been diagnosed with Pauciarticular Juvenile

Rheumatoid Arthritis. We ae being started on Naprosin tomorrow and

the Dr gave us a pamplet on a med called Plaquenil to read over and

decide if we want to try it? Is anyone on this and are there very

bad side effects?

We are having to get a eye exam soon and more recent lab work done.

We have to go back in 3 weeks to follow up.

I am thankful we now have a name for all of s problems, but i

just wish it wasn't this! know what i mean?

Thanks to everyone for there help and i am sure i will have more

questions soon.

Kyla mom to ( pauciarticular)

[Guest guest]

Kyla, I am sure it seemed like forever until you got into the Rheumy, but I

am so glad it finally came. While it is good to put a name to all these

symptoms it is sad to face the realities for you and . I am glad that

they are started Naprosyn. Keep in mind it does take 6-8 weeks for results

so don't get discouraged if you don't see immediate results. I know there

are some kids on Planquenil here. We haven't tried it because I believe it

doesn't come in a liquid form.

Good luck on your decision!

Alia and Caroline, age 2, poly and uveitis

Finally a diagnosis for !!!

Hi All,

We had our 1st Pediatric Rheumatology appt today at University of

Alabama. has been diagnosed with Pauciarticular Juvenile

Rheumatoid Arthritis. We ae being started on Naprosin tomorrow and

the Dr gave us a pamplet on a med called Plaquenil to read over and

decide if we want to try it? Is anyone on this and are there very

bad side effects?

We are having to get a eye exam soon and more recent lab work done.

We have to go back in 3 weeks to follow up.

I am thankful we now have a name for all of s problems, but i

just wish it wasn't this! know what i mean?

Thanks to everyone for there help and i am sure i will have more

questions soon.

Kyla mom to ( pauciarticular)

[Guest guest]

Hi,

I am so sorry you are now " an official " member of this list. Every

one of us on this list has had the same feelings that you are going

through right now!!! What will all the meds do long term, how long

will this last, when will the next flare happen, will they " out

grow " it or live a miserable life, how can we plan for the unknown,

etc., etc. I am not minimizing your feelings, just confirming that

we all still have a lot of those thoughts and questions.

One day at a time, is the only answer I can come up with.

My son was on Plaquenil for about a month. We stopped it because he

got an all-over body rash. We didn't know if it was from the plaq.

or if it was a flare. We'll never know but it cleared up in 3

days. It is a mild DMARD and has mild side-effects. Don't be

scared about the eye side-effects....our ped. ophth. told me that it

is a rare side-effect and he's only seen it in a few people that had

been on plaq for many many years.

I'm glad you got a diagnosis and can now move forward with an action

plan.

Stacia and Hunter,8,systemic,iritis

[Guest guest]

Kyla,

I am glad that you got some answers and I hope that things will start

improving for .

My daughter, Aundrea is 8 and we just had her rheumy visit a couple of

weeks ago. She had a pretty tough winter and ended up missing 7 weeks

of school. She was started on Plaquenil and Ibuprofen. (She had upset

tummy and dizziness with the Naprosyn) Anyway, after about 2 months

on the Plaquenil she showed a remarkable improvement. Her joints

rarely ever bother her and the sorethroats are gone. The only side

effects that we have noticed from the Plaquenil is that she bruises

very easily and she is sensitive to sunlight.

Her condition improved so much she was able to play softball this

summer. She is running and jumping and acting like her old self.

During the winter months she had put on a little weight due to

inactivity. But all of that resolved as soon as she was able to be

active again.

I sure hope that has good luck with the Plaquenil if you decide

to try it. We waited for about 7 months trying different types of

NSAIDS before we started Aundrea on the Plaquenil. In her case she

didn't have any relief of symptoms until after about 2 months on the

Plaquenil.

God Bless,

(mom to Aundrea jra age 8)

- In , " Pranke, Alia " <Alia.Pranke@t...>

wrote:

> Kyla, I am sure it seemed like forever until you got into the

Rheumy, but I

> am so glad it finally came. While it is good to put a name to all

these

> symptoms it is sad to face the realities for you and . I am

glad that

> they are started Naprosyn. Keep in mind it does take 6-8 weeks for

results

> so don't get discouraged if you don't see immediate results. I know

there

> are some kids on Planquenil here. We haven't tried it because I

believe it

> doesn't come in a liquid form.

>

> Good luck on your decision!

>

> Alia and Caroline, age 2, poly and uveitis

>

> Finally a diagnosis for !!!

>

>

> Hi All,

>

> We had our 1st Pediatric Rheumatology appt today at University of

> Alabama. has been diagnosed with Pauciarticular Juvenile

> Rheumatoid Arthritis. We ae being started on Naprosin tomorrow and

> the Dr gave us a pamplet on a med called Plaquenil to read over and

> decide if we want to try it? Is anyone on this and are there very

> bad side effects?

>

> We are having to get a eye exam soon and more recent lab work done.

> We have to go back in 3 weeks to follow up.

>

> I am thankful we now have a name for all of s problems, but i

> just wish it wasn't this! know what i mean?

>

> Thanks to everyone for there help and i am sure i will have more

> questions soon.

>

> Kyla mom to ( pauciarticular)

>

>

>

>