Re: San Francisco Arthritis Walk

[Guest guest]

:

It sounds like your walk was certainly terrific! That is so awesome!!!

Wow, $4000 is so incredible!! Rob's Raiders, our team, raised $2300, of

which we were pretty proud too! Our walk was today. It was the very first

walk in this area. It was pretty good. We had clear weather and though it

was hot, there was a breeze. We had a pretty good turnout. I wish that

instead of at a park, it would have been in a more populated area so we

could have raised more awareness. I do think that people with adult onset

arthritis who were there really had their awareness level raised about

KIDS GET ARTHRITIS TOO, because FACES shirts were all over the place! Go

Team FACES!!

I do wish they would have announced how much money was raised, etc. There

were no announcements about teams. I think they could have at least

announced the team names or something. I was really disappointed. I do

hope we get some sort of follow up communication about how much was

raised and how many people actually participated. Maybe next year it will

be more comprehensive!!

I was proud to be a part of the day. Rob is mad at me because I talked

about him in my speech, but oh well, he'll get over it. He walked one

mile and then went tree-climbing with Donna's boys. He is not feeling too

well at the moment. My 78 year old aunt made it the whole way. My 80 year

old uncle did one mile! We had about 13 walkers in our group. It did our

hearts good to have them come out to support Rob. It meant so much to us!

, you are an inspiration to us all and I am so glad that you had such

a fun day. Soak in a hot bath, take some Tylenol, and hope that you don't

feel much worse than you do now. I am so glad that you wrote in today to

let us know how awesome your experience was!!

and Rob 15 Spondy

On Sat, 22 May 2004 16:31:17 EDT bncknwurnumber@... writes:

The San Francisco Arthritis Walk was awesome. Team Walking For

raised

$4,000 (Pretty good for our first year)! We we're the third highest

raising

team. The top two teams raised way more Walking For Lulu ($11,000) and

s

Jesters, a tribute to a woman who fought JRA and found her cure in

heaven, I

believe its the same friend of Donna and Rusty they raised like $13,000.

They

had a great tribute to and so many people on the team (had to be at

least

50) all wearing jester hats. I got to read my JRA poem which was a

little

nerve wrecking. I hate public speaking. But everyone said I did really

great

and a lot of people like it. They want to put it on the Arthritis

Foundation

website. A bunch of people from the Stanford Clinic were there and they

made

these awesome shirts for all the kids from the Stanford Rheumi Clinic

their

team was called the " Pedirhoom Boom Boom Shakers " and they brought me

one! That

was very cool. There was face painting, a band, and balloon animals,

some

food and a decent amount of people. It was their 3rd Annual Walk. All

in all

it was a great day. And I walked the entire 5k. My legs and back are

killing

me now, I'm going to be hurting tonight.. but that's ok it was worth it.

I

don't know what the total amount for the entire walk was. But it was

pretty

awesome. Oh and I saw the girl Jenna who I met at JA Day and she is

starting up

a kids empowerment group and she wants to talk to me about being one of

the

leaders... So that was very cool too.

(Poly JRA and Spondy, 19)

[Guest guest]

Hi ,

Wow! It was so great to hear about your local walk. Thanks for sharing

all the details. You must be so proud of your accomplishments. And we're

very proud of you, too! Your team did great, as did the others, and I'm

so glad that you worked up the courage to read your JRA Poem in front of

the crowd.

Sounds like it was really nice to meet with Jenna again. I have a

feeling you guys are going to do some marvelous things together, for the

kids with JRA.

Aloha,

Georgina

bncknwurnumber@... wrote:

> The San Francisco Arthritis Walk was awesome. Team Walking For

raised

> $4,000 (Pretty good for our first year)! We we're the third highest

raising

> team. The top two teams raised way more Walking For Lulu ($11,000)

and s

> Jesters, a tribute to a woman who fought JRA and found her cure in

heaven, I

> believe its the same friend of Donna and Rusty they raised like

$13,000. They

> had a great tribute to and so many people on the team (had to

be at least

> 50) all wearing jester hats. I got to read my JRA poem which was a

little

> nerve wrecking. I hate public speaking. But everyone said I did

really great

> and a lot of people like it. They want to put it on the Arthritis

Foundation

> website. A bunch of people from the Stanford Clinic were there and

they made

> these awesome shirts for all the kids from the Stanford Rheumi Clinic

their

> team was called the " Pedirhoom Boom Boom Shakers " and they brought

me one! That

> was very cool. There was face painting, a band, and balloon animals,

some

> food and a decent amount of people. It was their 3rd Annual Walk.

All in all

> it was a great day. And I walked the entire 5k. My legs and back

are killing

> me now, I'm going to be hurting tonight.. but that's ok it was worth

it. I

> don't know what the total amount for the entire walk was. But it was

pretty

> awesome. Oh and I saw the girl Jenna who I met at JA Day and she is

starting up

> a kids empowerment group and she wants to talk to me about being one

of the

> leaders... So that was very cool too.

>

>

> (Poly JRA and Spondy, 19)

[Guest guest]

Hi ,

I just LOVE hearing about these local walks. Congratulations, on a job

well done! I am so proud of you ... and the entire FACES group! Sounds

like you have some good ideas about how the Walk can be even better next

year. Please be sure you share them with the foundation, so next time

around it can be even more successful. Poor Rob. You're right, though.

He'll get over it. It's just a stage. Next time around, maybe he'll be

the one making the speech.

Aloha,

Georgina

snooksmama@... wrote:

> :

> It sounds like your walk was certainly terrific! That is so awesome!!!

> Wow, $4000 is so incredible!! Rob's Raiders, our team, raised $2300, of

> which we were pretty proud too! Our walk was today. It was the very first

> walk in this area. It was pretty good. We had clear weather and though it

> was hot, there was a breeze. We had a pretty good turnout. I wish that

> instead of at a park, it would have been in a more populated area so we

> could have raised more awareness. I do think that people with adult onset

> arthritis who were there really had their awareness level raised about

> KIDS GET ARTHRITIS TOO, because FACES shirts were all over the place! Go

> Team FACES!!

> I do wish they would have announced how much money was raised, etc. There

> were no announcements about teams. I think they could have at least

> announced the team names or something. I was really disappointed. I do

> hope we get some sort of follow up communication about how much was

> raised and how many people actually participated. Maybe next year it will

> be more comprehensive!!

> I was proud to be a part of the day. Rob is mad at me because I talked

> about him in my speech, but oh well, he'll get over it. He walked one

> mile and then went tree-climbing with Donna's boys. He is not feeling too

> well at the moment. My 78 year old aunt made it the whole way. My 80 year

> old uncle did one mile! We had about 13 walkers in our group. It did our

> hearts good to have them come out to support Rob. It meant so much to us!

> , you are an inspiration to us all and I am so glad that you had such

> a fun day. Soak in a hot bath, take some Tylenol, and hope that you don't

> feel much worse than you do now. I am so glad that you wrote in today to

> let us know how awesome your experience was!!

> and Rob 15 Spondy

[Guest guest]

Wow ! Amazing. You are so awesome. You are a true testament to the

strength and will of these JRA kids. Thanks for being such a wonderful

ambassador for all of us!

Alia and Caroline, age 2, poly and uveitis

San Francisco Arthritis Walk

The San Francisco Arthritis Walk was awesome. Team Walking For raised

$4,000 (Pretty good for our first year)! We we're the third highest raising

team. The top two teams raised way more Walking For Lulu ($11,000) and

s

Jesters, a tribute to a woman who fought JRA and found her cure in heaven, I

believe its the same friend of Donna and Rusty they raised like $13,000.

They

had a great tribute to and so many people on the team (had to be at

least

50) all wearing jester hats. I got to read my JRA poem which was a little

nerve wrecking. I hate public speaking. But everyone said I did really

great

and a lot of people like it. They want to put it on the Arthritis

Foundation

website. A bunch of people from the Stanford Clinic were there and they

made

these awesome shirts for all the kids from the Stanford Rheumi Clinic their

team was called the " Pedirhoom Boom Boom Shakers " and they brought me one!

That

was very cool. There was face painting, a band, and balloon animals, some

food and a decent amount of people. It was their 3rd Annual Walk. All in

all

it was a great day. And I walked the entire 5k. My legs and back are

killing

me now, I'm going to be hurting tonight.. but that's ok it was worth it. I

don't know what the total amount for the entire walk was. But it was pretty

awesome. Oh and I saw the girl Jenna who I met at JA Day and she is

starting up

a kids empowerment group and she wants to talk to me about being one of the

leaders... So that was very cool too.

(Poly JRA and Spondy, 19)

[Guest guest]

Great job ! That is cool about being one of the leaders - you would

be a great role model for the younger kids, I'm sure. Michele

San Francisco Arthritis Walk

The San Francisco Arthritis Walk was awesome. Team Walking For

raised

$4,000 (Pretty good for our first year)! We we're the third highest

raising

team. The top two teams raised way more Walking For Lulu ($11,000) and

s

Jesters, a tribute to a woman who fought JRA and found her cure in

heaven, I

believe its the same friend of Donna and Rusty they raised like $13,000.

They

had a great tribute to and so many people on the team (had to be

at least

50) all wearing jester hats. I got to read my JRA poem which was a

little

nerve wrecking. I hate public speaking. But everyone said I did really

great

and a lot of people like it. They want to put it on the Arthritis

Foundation

website. A bunch of people from the Stanford Clinic were there and they

made

these awesome shirts for all the kids from the Stanford Rheumi Clinic

their

team was called the " Pedirhoom Boom Boom Shakers " and they brought me

one! That

was very cool. There was face painting, a band, and balloon animals,

some

food and a decent amount of people. It was their 3rd Annual Walk. All

in all

it was a great day. And I walked the entire 5k. My legs and back are

killing

me now, I'm going to be hurting tonight.. but that's ok it was worth it.

I

don't know what the total amount for the entire walk was. But it was

pretty

awesome. Oh and I saw the girl Jenna who I met at JA Day and she is

starting up

a kids empowerment group and she wants to talk to me about being one of

the

leaders... So that was very cool too.

(Poly JRA and Spondy, 19)