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Re: MTX Question/Patty

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Patty:

Becki would be our resident expert to answer that question, right Beck??

How much MTX is Caitlin on right now???

and Rob 14 Spondy

On Fri, 5 Mar 2004 17:02:51 EST Emeraldsx3@... writes:

> Hello All:

>

> I have been trying to figure out what is causing Caitlin's headaches

> and one

> thing I questioned was the MTX. So I placed a call on Tuesday, but

> because

> the person who answered the phone was in such a rush she didn't hear

> me ask the

> MTX part of the headache. Today is Caitlin's MTX day so I called

> back. The

> rheumy had already gone for the day, guess Friday is a short day.

> They said

> they would get in touch with him and see what he thought. I went to

> pick Jen up

> from school and then got busy (you know when they all come home from

> school

> the fun begins LOL). Well, I finally remembered to check the

> answering machine

> to see if they called and sure enough they did. I tried to call

> back, but it

> was 3:57 and they had closed darn it! So......this is what I was

> told he

> said: Per the woman who left the message, he said that since she

> has been doing

> so wonderful and continues to do so that we should STOP the MTX

> COMPLETELY.

> No tapering, just cold turkey. I have read, from this list, of

> tapering MTX.

> Has anyone quit MTX cold turkey? I appreciate any information. Of

> course,

> I would love to get her off of it, but am concerned that going cold

> turkey

> could cause a flare.

>

> Take care.

> Patty

>

>

>

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Patty:

That does seem kind of odd he would just have you drop it cold turkey. I

don't know if I would go along with that...hmmmm...might want to talk to

him yourself...

and Rob 14 Spondy

On Fri, 5 Mar 2004 17:33:49 EST Emeraldsx3@... writes:

> HI :

>

> Caitlin is on 10 mg. of MTX.

>

> Thanks.

> Patty

>

>

>

>

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Hi :

We didn't give Caitlin her dose yesterday and will see if headaches improve

at all during the week. I can put her back on it on Friday if headaches appear

to be the same. An aunt of mine quit MTX cold turkey and was okay. I am

hoping if we do not go back on it, Caitlin is fortunate and doesn't flare. I

have to call him this week to see if he and the ID doctor have hashed it out

over

Caitlin if she should stay on prophylactic antibiotics or not. I prefer she

does as I have read that even if a child has post streptococcal reactive

arthritis that they get still have rheumatic fever with another episode of

strep.

Take care.

Patty

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