Re: Re: To Alia.

[Guest guest]

Hi Alia:

Glad to hear some of her liver panels are coming back much improved.

How did she do with her next dose of Prednisone? How much is she taking?

How is she feeling?

Take care.

Patty

[Guest guest]

Alia,

IM so happy to read that Carolines liver levels are coming down. Im so relived that you are able to give her some mediciations to help her.

You are right about Prednisone... its such a quick acting wonder drug. Now if only it was not soo bad we could give it all the time and not worry about it. How much pred is she taking? I hope she was able to keep down the next dose.

I tapered Nick down on thursday and so far so good.. hes now on 5mg in the am and just 1mg in the afternoon )))) By the time we see the rhuemy on the 25th he should be off the afternoon dose completely )))

Hugs Helen, mom to (6,systemic)

www.caringbridge.org/mn/nicholasb

Hugs..Helen DH Dan DS's (20)(14)(12)Zachary(9)(6)

DD (4)>From: "Alia Wegener-Pranke" >Reply- > >Subject: Re: To Alia. >Date: Sat, 13 Mar 2004 22:44:14 -0000 > >Hi Helen. Thanks for asking. > >Yes, we did finally get her labs back and they looked good. Her AST >labs were 41 down from 147 and her ALT labs were 138 down from 288. >Her ALT labs are still high (normal is 0-65), but is showing >significant progress. Her sed rate is at 51 right now. Not sure how >bad that is but it was 44 last week. Her doc says she can't be on >any type of NSAIDS now after the reactions from Vioxx and Naproxen. >She says there are still many options, but that we would discuss >them on the 24th at her appointment. We did start her on the >Prednisone and are going to start the MTX tomorrow. I have already >noticed a difference in 24 hours after starting the Prednisone! >Yeah! > >Although I just gave it to her and she puked all over the place. I >hope it just went down the wrong tube? Not sure. We are going to try >again later since I am positive it all came back up! Yuk!! > >Alia and Caroline, age 2, pacui and uveitis > > > Any word on Carolines labs and any possible restart of any > > medications?? > > > > I hope shes doing ok... > > > > Been thinking of you guys > > > > Hugs Helen and (6,systemic) > > www.caringbridge.org.mn.nicholasb > Create a Job Alert on MSN Careers and enter for a chance to win $1000!

[Guest guest]

Alia..

Yes I believe 30mg a day of prednisone is considered as a high dose. I hope it helps her quickly and you can start to taper. Did they say how long she would be on 30 before tapering??

I hope she continues to improve. Are you still doing the MTX in juice or have they recommended the shots???

Nick had a good weekend... he did complain of hand pain, shoulder pain and one ankle looked a little swollen and red. But he still seemed happy and it didnt bother him too much so im putitng down to the tapering of the pred. he seems good today and went off to school happy, although he wanted a piggy back ride to the bus stop.

I took some pics of Nicks legs yesterday.. i cant believe the number of bruises on them. He looks like someone has beaten him below the knees with a stick. Today they look even worse, like the bruises have spread??? Ill take more pics when he gets home so the rhuemy can see at the next appt.

Hugs Helen, mom to (6,systemic)

www.caringbridge.org/mn/nicholasb

Hugs..Helen DH Dan DS's (20)(14)(12)Zachary(9)(6)

DD (4)>From: "Alia Wegener-Pranke" >Reply- > >Subject: Re: To Alia. >Date: Sun, 14 Mar 2004 22:28:02 -0000 > >thanks Helen. There is much relief in the Pranke house! She is on 15 >mg 2 times a day. Is that high? > >I'm glad Nick's is being tapered. How's he feeling this weekend? >Still bouncing around? > >Alia and Caroline, age 2, pacui and uveitis > > > > Get business advice and resources to improve your work life, from bCentral.