Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 In a message dated 2/27/04 3:20:04 PM Eastern Standard Time, bc.price@... writes: << p the recent MAS info and put it in a folder on my desk. I labeled it " For emergency use " . Hopefully, none of the systemic kids here will ever need this info. (n, 15, systemic) >> I hope and pray no child ever needs this info. How do I get the latest info on MAS? Do you have any web addresses to the ones you printed? THIS really scares me. A part of me wishes I never heard of it, but a part of me knows I need to know all about it and all aspects of JRA. Thank you. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2004 Report Share Posted February 27, 2004 I have printed up the recent MAS info and put it in a folder on my desk. I labeled it "For emergency use". Hopefully, none of the systemic kids here will ever need this info. (n, 15, systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2004 Report Share Posted October 31, 2004 I'll try replying thru the list with this, because the hotmail address was not available. It was returned. nancoolfool_98 wrote: > Georgina could you please let me know what is Macrophage activate syndrome (MAS) how effects to sustemic JRA. > > > Systemic JRA age - 16 Subject: Re: MAS From: Georgina <gmckin@...> Date: Sat, 30 Oct 2004 12:21:28 -1000 nancoolfool_98 <tsut@...> Hello, Kruti, How is your daughter? It's been a while since the last time I saw a message from you. I hope things are alright? MAS is a rare but very serious, sometimes life-threatening, condition which can occur in some children who have rheumatic diseases. Particularly systemic JRA. They think it's triggered by an infection or, sometimes, just from using anti-inflammatory drugs. Often, there's abnormal liver function and a lowered platelet count, a lowered SED rate and raised SGOT/PT levels, as well as high grade fever and enlargement of the liver, spleen, and lymph nodes (swollen glands). These are some of the common clinical features. To know for certain, I believe they do a bone marrow aspiration to look for macrophages. To successfully treat it, they usually use high dose steroids and/or cyclosporin. Is this what your daughter is facing now? Or did you just want more information about it? Through our JRA List, I have known of several children with systemic JRA who have had MAS. Two, unfortunately, passed away. The others were able to be treated in a timely manner and recovered from it. It can be a very scary situation, one that requires prompt medical attention. Please, when you have a chance, write to let me know how everything is. Aloha, Georgina Quote Link to comment Share on other sites More sharing options...
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