Re: MTX Tapers (was ... s appointment)

[Guest guest]

Hi Georgina,

I remember.I even asked Vandy if we could try after reading the study done on it.Shot down cold and was told no way. can't take 5mg folic acid pills once a week either.It's strange that they will allow some things that are new but not others,but atleast from the knowledge I gain on this list I can ask and sometimes I get my way.They did allow to go back to oral even though it didn't touch him in the beginning.

Love and Hugs

Becki and 5 systemic

[Guest guest]

Hi,

Becki, don't forget ! He tapered his MTX, too, albeit in an

unorthodox sort of way. He stayed on the same dose, 15mg, but switched

from weekly to every other week injections.

Aloha,

Georgina

Arthurnator@... wrote:

> Hi Diane,

> Since being on this list the only ones I have read about MTX tapers were

> and Riley.Both girls were on 5mg and just assumed that was the

> end.Other then the first drop from 25mg to 20mg it's been 2.5mg every 2

> months.It's kind of neat,my b-day is

> Sat July 17,that is the last dose of MTX.s b-day is Sat July 24 his

> first Sat without it.It may not seem like a b-day gift to him but does

> to me.

> Love and Hugs

> Becki and 5 systemic

> PS)I hope you get great news at 's next optho appointment.

[Guest guest]

Hi Becki,

So true. Even if we cannot get all of our questions answered, it does

help sometimes just knowing better which questions we should be asking.

Aloha,

Georgina

Arthurnator@... wrote:

> Hi Georgina,

> I remember.I even asked Vandy if we could try after reading the study

> done on it.Shot down cold and was told no way. can't take 5mg folic

> acid pills once a week either.It's strange that they will allow some

> things that are new but not others,but atleast from the knowledge I gain

> on this list I can ask and sometimes I get my way.They did allow

> to go back to oral even though it didn't touch him in the beginning.

> Love and Hugs

> Becki and 5 systemic