Re: A familiar-sounding story from the Stills website

[Guest guest]

hi contact this man blend.solution@...

his name is barry and he may be able to help your son........ my son has the same disease and about the same severity......... talk to him, he is a scientist and wants to help..... thank you trishGeorgina <gmckin@...> wrote:

My son's name is ***** and he has Stills disease. He is 14 years old. I am writting this for him as he is too weak and sick right now to write after just being released from the hospital yesterday after his second severe flare-up.He was just diagnosed this fall. We had just moved to NY from DE in the beginning of the summer. Towards the middle of summer, we noticed a decrease in appetite, weight loss, and general fatigue, but he never complained.Towards the end of August, the rash began. It started on his upper thighs, arms and trunk. It didn't itch, but at this time, the sore throats started and joint pains. He was at his family doctor about 6 times, everytime having a strept culture that would come back negative, unexplained fever, and a few pounds lighter at each visit. They

couldn't figure out what was wrong with him, and explained he might have a virus that would eventually work itself out. On the 7th visit, they finally decided to do some bloodwork. The doctor called me that night and said his wbc was quite high, and if he still wasn't feeling well in the moring, bring him back in. Late that evening, his fever spiked to 104, couldn't raise his head off the pillow, and was in tremendous pain. His doctor advised me over the phone to get him to the er.There, they did bloodwork, and said his wbc was at 27,000 and told me they thought he might have an infection in the sac around the heart...pericarditis. He was admitted and starteted on an i.v. of antibiotics. He was seen by all kinds of doctors, including infectious disease, which was ruled out. After 5 days here at our local hospital seeing him get gradually worse with the fevers, severe joint pain in

every joint, chills, more weight loss, we took him to Dupont Hospital for Children in DE, where he was finally diagnosed with Stills Disease.They first had to do a bone marrow biopsy to rule out leukemia as it is very dangerous to start steriod treatment if it had been. They started him on a i.v. drip of prednisone which had a remarkable effect. He left there a few days later taking 60 mg of prednisone and Ibiprophen for pain. He started seeing a doctor here, and was doing fine gradually being tapered down from the predisone and adding methotrexate and folic acid. He has gained 75 pounds in 5 months, and has had the terrible side effects of large purple stretch marks covering most of his body. He had just gotten down to 10 mg. of prednisone and 20 mgs of methotrexate, when he developed another terrible flare about a month ago. In addition of his Stills, he was diagnosed with hytertension when

he was 12 years old, which has been hard to control even with all the drugs he has been on for that over the years because the prednisone tends to raise your blood pressure.His sed rate last week was 95 and his wbc was at 29,000, so was given 3,000 mg of prednisone i.v. over the couse of 4 days, and given his methotrexate by shot this time which was increased to 25 mg. On his last day of treatment (this last Friday), he experienced severe nausua and a feeling like his head "exploded" late at night. He was rushed to the er here, where they found his blood pressure to be 175/107, heart rate at only 42, severe vomiting, and a vice like pain in his head.They thought he might have had a bleed in the brain, which was ruled out by a cat scan. He was admitted and the next day given a spinal tap to rule out meningitis. They did 2 more cat scans, one with contrast this time and they still were

negative. He was still very sick, heart rate still in the low 40's and pain still in the head. He was taken by ambulance to a specialty hospital in upstate NY, where he was seen by numerous specialistists. The neurologist there saw changes in the pressure in his eyes, and recommended he be seen by an opthomologist there.Well, to summerize, we left there with little explaination as to what might have happened to cause all of this except to say that maybe it was the large amout of steriods in such a short amount of time. He's back to 20 mg of prednisone per day and weekly shots of 25 mg of methotrexate.As his parents, we are still very concerned about all the effects of these drugs over the course of his young years. We realize that he needs the prednisone right now and the methotexate, but hope new treatments will develope with less severe side effects. He's been home schooled by the

school he was to attend here in September and had just gotten to start attending and trying to meet friends here in this new area when this latest flare hit.We are worrried about this whole disease effecting him now socially as well as physically. He's had a wonderful attitude so far, but wonder how much more pain and social withdrawl a normally active and social 14 year old can take.I am meeting with his guidance counselor tomorrow to see how we can get him to successfully complete the 8th grade. Hopefully, he will be able to come out of this flare he's currently in, get regulated on the right doses of medications, and get back to a somewhat normal routine and life by the summer.Post your free ad now! Canada Personals

[Guest guest]

Good Lord. This puts me right back with Caitlin in November when she was so

sick, going back and forth to the pediatrician, the fevers, the rash, the

severe pain, hospitalization, fear, worry, etc.! I NEVER want to go back to

that

time!!!!!!!!!!!!

[Guest guest]

Hi Trish,

That young boy's history was one that I found while browsing the

internet. It was not sent to our group by the child's parent, which is

the reason I deleted identifying info. Therefore, they will not be able

to see your reply.

Has your son used the Blend products? If so, which ones? The water

filter, air filter, natural energy regenerating disks, herbal tea, or

topical pain relief spray? (INGREDIENTS: Compressed oxygenated flax oil,

clove oil, leptotaneia oil, basil oil, wintergreen oil, spearmint oil,

oxygenated aloe vera oil, oil of capsicum, emu oil, bitters, trace

minerals in an oxygenated and compressed boron crystal solution,

oxygenated cell stain, factor principle + = - in all four directions.)

Which products did you use and what did you find?

Yes. I did do a search for the individual you mentioned. If there's a

scientist who is willing to help children with severe systemic JRA I

felt it would be important to share this information with all of our

group members, rather than taking it off-list.

I found out, according to his website,

( http://mysite.verizon.net/vze1kvrj/id1.html ) that:

Barry L. Edelman, is a Natural Doctor who ....

Studied Holistic Sciences since 1974, first under Dr. Sam Getlan, a

biophysicist from Princeton, an original pioneer of mega-vitamin

therapy. Studied extensively the work of Dr. Krueger, original pioneer

of understanding the phenomena of serotonin irritation syndrome caused

primarily by poor indoor air quality. In 1994 successfully completed

Naturapathic study at the American Holistic College, Clayton School of

Natural Healing in Birmingham, Alabama. Developed successful proven

techniques in improving this condition.

Clayton School of Natural Healing

In 1988 did extensive research in electromedicine sciences due to a

serious illness in my family. This led to extensive research in the

study of microzymian molecular granulations developed by the French

physician Antoine Bechamp. Dr. Bechamp's work and electromedicine prove

the need for an order of events to be realized for the re-impressioning

of the living particle called the microzyma. It is only by establishing

an order of events that will allow the microzyma which may be the chief

agent of life in the physical systems to be unthreatened.

Background

The order of events is (1) enhancing and establishing the electronic

field or life force (not related to energy), (2) stabilizing the

electronic field with oxygen, (3) building and maintaining the correct

nutritional electronic balance. When applied in this order, conditions

can thus be corrected. The last ten years of my research has been

dedicated to this field and has developed proven clinical applications

of this principle in establishing improved health.

Kethleen Edelman is the owner of BLEND

They accept Paypal

If you have any Questions you can phone them at: (413) 528-8844

------------------------------------------------------

tisha wrote:

> hi contact this man blend.solution@...

> his name is barry and he may be able to help your son........ my son

> has the same disease and about the same severity......... talk to

him, > he is a scientist and wants to help..... thank you trish

> Georgina <gmckin@...> wrote:

>

> My son's name is ***** and he has Stills disease. He is 14 years old.

> I am writting this for him as he is too weak and sick right now to

> write

> after just being released from the hospital yesterday after his second

> severe flare-up.

>

> He was just diagnosed this fall. We had just moved to NY from DE in

> the

> beginning of the summer. Towards the middle of summer, we noticed a

> decrease in appetite, weight loss, and general fatigue, but he never

> complained.

>

> Towards the end of August, the rash began. It started on his upper

> thighs, arms and trunk. It didn't itch, but at this time, the sore

> throats started and joint pains. He was at his family doctor about 6

> times, everytime having a strept culture that would come back negative,

> unexplained fever, and a few pounds lighter at each visit. They

> couldn't figure out what was wrong with him, and explained he might

> have

> a virus that would eventually work itself out. On the 7th visit, they

> finally decided to do some bloodwork. The doctor called me that night

> and said his wbc was quite high, and if he still wasn't feeling well in

> the moring, bring him back in. Late that evening, his fever spiked to

> 104, couldn't raise his head off the pillow, and was in tremendous

> pain.

> His doctor advised me over the phone to get him to the er.

>

> There, they did bloodwork, and said his wbc was at 27,000 and told me

> they thought he might have an infection in the sac around the

> heart...pericarditis. He was admitted and starteted on an i.v. of

> antibiotics. He was seen by all kinds of doctors, including infectious

> disease, which was ruled out. After 5 days here at our local hospital

> seeing him get gradually worse with the fevers, severe joint pain in

> every joint, chills, more weight loss, we took him to Dupont Hospital

> for Children in DE, where he was finally diagnosed with Stills Disease.

>

> They first had to do a bone marrow biopsy to rule out leukemia as it is

> very dangerous to start steriod treatment if it had been. They started

> him on a i.v. drip of prednisone which had a remarkable effect. He

> left

> there a few days later taking 60 mg of prednisone and Ibiprophen for

> pain. He started seeing a doctor here, and was doing fine gradually

> being tapered down from the predisone and adding methotrexate and folic

> acid. He has gained 75 pounds in 5 months, and has had the terrible

> side effects of large purple stretch marks covering most of his body.

> He had just gotten down to 10 mg. of prednisone and 20 mgs of

> methotrexate, when he developed another terrible flare about a month

> ago.

>

> In addition of his Stills, he was diagnosed with hytertension when he

> was 12 years old, which has been hard to control even with all the

> drugs

> he has been on for that over the years because the prednisone tends to

> raise your blood pressure.

>

> His sed rate last week was 95 and his wbc was at 29,000, so was given

> 3,000 mg of prednisone i.v. over the couse of 4 days, and given his

> methotrexate by shot this time which was increased to 25 mg. On his

> last day of treatment (this last Friday), he experienced severe nausua

> and a feeling like his head " exploded " late at night. He was rushed to

> the er here, where they found his blood pressure to be 175/107, heart

> rate at only 42, severe vomiting, and a vice like pain in his head.

>

> They thought he might have had a bleed in the brain, which was ruled

> out

> by a cat scan. He was admitted and the next day given a spinal tap to

> rule out meningitis. They did 2 more cat scans, one with contrast this

> time and they still were negative. He was still very sick, heart rate

> still in the low 40's and pain still in the head. He was taken by

> ambulance to a specialty hospital in upstate NY, where he was seen by

> numerous specialistists. The neurologist there saw changes in the

> pressure in his eyes, and recommended he be seen by an opthomologist

> there.

>

> Well, to summerize, we left there with little explaination as to what

> might have happened to cause all of this except to say that maybe it

> was

> the large amout of steriods in such a short amount of time. He's back

> to 20 mg of prednisone per day and weekly shots of 25 mg of

> methotrexate.

>

> As his parents, we are still very concerned about all the effects of

> these drugs over the course of his young years. We realize that he

> needs the prednisone right now and the methotexate, but hope new

> treatments will develope with less severe side effects. He's been home

> schooled by the school he was to attend here in September and had just

> gotten to start attending and trying to meet friends here in this new

> area when this latest flare hit.

>

> We are worrried about this whole disease effecting him now socially as

> well as physically. He's had a wonderful attitude so far, but wonder

> how much more pain and social withdrawl a normally active and social 14

> year old can take.

>

> I am meeting with his guidance counselor tomorrow to see how we can get

> him to successfully complete the 8th grade. Hopefully, he will be able

> to come out of this flare he's currently in, get regulated on the right

> doses of medications, and get back to a somewhat normal routine and

> life

> by the summer.

[Guest guest]

hi, personally i didnt know how or whom to respond to, but my son has still's disease and severe as well........ i am a bit of a rebel, and have opted for antibiotic approach, homeo, and rife, and with barry elderman we use neurosequencing discs..... programs that help to get the body to correct and balance any of its properties that have been out of whack........... he has another term for it, and it is something that most layman cannot understand, but it is designed to reorganize ones body for the best and fullest response ........ which in turn can produce the better results from persay digestion, medications........... everything, your body is able to function at its highest and best.........this is how i understand it at least........he is wise and has worked with many problems......... and directs and helps me at his cost....... so he mentioned that he can help others as well with similiar problems as my son danny, so i want to help others, because i know first hand what

this disease can do to everyone in the family............. you take the info or not i dont know, but i felt compelled to tell the group what i have done..... thanks trishGeorgina <gmckin@...> wrote:

Hi Trish,That young boy's history was one that I found while browsing the internet. It was not sent to our group by the child's parent, which is the reason I deleted identifying info. Therefore, they will not be able to see your reply.Has your son used the Blend products? If so, which ones? The water filter, air filter, natural energy regenerating disks, herbal tea, or topical pain relief spray? (INGREDIENTS: Compressed oxygenated flax oil, clove oil, leptotaneia oil, basil oil, wintergreen oil, spearmint oil, oxygenated aloe vera oil, oil of capsicum, emu oil, bitters, trace minerals in an oxygenated and compressed boron crystal solution, oxygenated cell stain, factor principle + = - in all four directions.)Which products did you use and what did you find?Yes. I did do a search for the individual you mentioned.

If there's a scientist who is willing to help children with severe systemic JRA I felt it would be important to share this information with all of our group members, rather than taking it off-list.I found out, according to his website,( http://mysite.verizon.net/vze1kvrj/id1.html ) that:Barry L. Edelman, is a Natural Doctor who ....Studied Holistic Sciences since 1974, first under Dr. Sam Getlan, a biophysicist from Princeton, an original pioneer of mega-vitamin therapy. Studied extensively the work of Dr. Krueger, original pioneer of understanding the phenomena of serotonin irritation syndrome caused primarily by poor indoor air quality. In 1994 successfully completed Naturapathic study at the American Holistic College, Clayton School of Natural Healing in Birmingham, Alabama. Developed successful proven techniques in improving this condition.Clayton

School of Natural HealingIn 1988 did extensive research in electromedicine sciences due to a serious illness in my family. This led to extensive research in the study of microzymian molecular granulations developed by the French physician Antoine Bechamp. Dr. Bechamp's work and electromedicine prove the need for an order of events to be realized for the re-impressioning of the living particle called the microzyma. It is only by establishing an order of events that will allow the microzyma which may be the chief agent of life in the physical systems to be unthreatened.BackgroundThe order of events is (1) enhancing and establishing the electronic field or life force (not related to energy), (2) stabilizing the electronic field with oxygen, (3) building and maintaining the correct nutritional electronic balance. When applied in this order, conditions can thus be corrected. The last ten years of my research has been

dedicated to this field and has developed proven clinical applications of this principle in establishing improved health.Kethleen Edelman is the owner of BLENDThey accept PaypalIf you have any Questions you can phone them at: (413) 528-8844------------------------------------------------------tisha wrote:> hi contact this man blend.solution@...> his name is barry and he may be able to help your son........ my son> has the same disease and about the same severity......... talk to him, > he is a scientist and wants to help..... thank you trish> Georgina <gmckin@...> wrote:> > My son's name is ***** and he has Stills disease. He is 14 years old.> I am writting this for him as he is too weak and sick right now to> write> after just being

released from the hospital yesterday after his second> severe flare-up.> > He was just diagnosed this fall. We had just moved to NY from DE in> the> beginning of the summer. Towards the middle of summer, we noticed a> decrease in appetite, weight loss, and general fatigue, but he never> complained.> > Towards the end of August, the rash began. It started on his upper> thighs, arms and trunk. It didn't itch, but at this time, the sore> throats started and joint pains. He was at his family doctor about 6> times, everytime having a strept culture that would come back negative,> unexplained fever, and a few

pounds lighter at each visit. They> couldn't figure out what was wrong with him, and explained he might> have> a virus that would eventually work itself out. On the 7th visit, they> finally decided to do some bloodwork. The doctor called me that night> and said his wbc was quite high, and if he still wasn't feeling well in> the moring, bring him back in. Late that evening, his fever spiked to> 104, couldn't raise his head off the pillow, and was in tremendous> pain.> His doctor advised me over the phone to get him to the er.> > There, they did bloodwork, and said his wbc was at 27,000 and told me> they

thought he might have an infection in the sac around the> heart...pericarditis. He was admitted and starteted on an i.v. of> antibiotics. He was seen by all kinds of doctors, including infectious> disease, which was ruled out. After 5 days here at our local hospital> seeing him get gradually worse with the fevers, severe joint pain in> every joint, chills, more weight loss, we took him to Dupont Hospital> for Children in DE, where he was finally diagnosed with Stills Disease.> > They first had to do a bone marrow biopsy to rule out leukemia as it is> very dangerous to start steriod treatment if it had been. They started> him on a i.v. drip of prednisone which had a remarkable

effect. He> left> there a few days later taking 60 mg of prednisone and Ibiprophen for> pain. He started seeing a doctor here, and was doing fine gradually> being tapered down from the predisone and adding methotrexate and folic> acid. He has gained 75 pounds in 5 months, and has had the terrible> side effects of large purple stretch marks covering most of his body.> He had just gotten down to 10 mg. of prednisone and 20 mgs of> methotrexate, when he developed another terrible flare about a month> ago.> > In addition of his Stills, he was diagnosed with hytertension when he> was 12 years old, which has been hard

to control even with all the> drugs> he has been on for that over the years because the prednisone tends to> raise your blood pressure.> > His sed rate last week was 95 and his wbc was at 29,000, so was given> 3,000 mg of prednisone i.v. over the couse of 4 days, and given his> methotrexate by shot this time which was increased to 25 mg. On his> last day of treatment (this last Friday), he experienced severe nausua> and a feeling like his head "exploded" late at night. He was rushed to> the er here, where they found his blood pressure to be 175/107, heart> rate at only 42, severe vomiting, and a vice like pain in his head.>

> They thought he might have had a bleed in the brain, which was ruled> out> by a cat scan. He was admitted and the next day given a spinal tap to> rule out meningitis. They did 2 more cat scans, one with contrast this> time and they still were negative. He was still very sick, heart rate> still in the low 40's and pain still in the head. He was taken by> ambulance to a specialty hospital in upstate NY, where he was seen by> numerous specialistists. The neurologist there saw changes in the> pressure in his eyes, and recommended he be seen by an opthomologist> there.> > Well, to summerize, we left there with

little explaination as to what> might have happened to cause all of this except to say that maybe it> was> the large amout of steriods in such a short amount of time. He's back> to 20 mg of prednisone per day and weekly shots of 25 mg of> methotrexate.> > As his parents, we are still very concerned about all the effects of> these drugs over the course of his young years. We realize that he> needs the prednisone right now and the methotexate, but hope new> treatments will develope with less severe side effects. He's been home> schooled by the school he was to attend here in September and had just> gotten to start attending

and trying to meet friends here in this new> area when this latest flare hit.> > We are worrried about this whole disease effecting him now socially as> well as physically. He's had a wonderful attitude so far, but wonder> how much more pain and social withdrawl a normally active and social 14> year old can take.> > I am meeting with his guidance counselor tomorrow to see how we can get> him to successfully complete the 8th grade. Hopefully, he will be able> to come out of this flare he's currently in, get regulated on the right> doses of medications, and get back to a somewhat normal routine and> life> by the

summer.Post your free ad now! Canada Personals

[Guest guest]

Hi Trish,

The woman who wrote her son's history is (or was) a member of the

International Stills Foundation. They have an area where people can send

in stories about their experiences with Stills Disease at their website.

( http://www.stillsdisease.org/ )

Thank you, for sharing more about the approach you're taking in treating

your son's JRA. I think it's wonderful that Mr. Edelman chooses to help

children. I noticed, too, that all of his products have a money-back

guarantee ~ which certainly helps in terms of credibility for those who

might be interested but a little bit wary.

The neurosequencing discs sound very interesting. Since there are no

reported adverse side effects, they won't hurt ... and they might

actually do some good.

I hope your son Danny's JRA symptoms continue to improve. That's what

counts. That is, after all, the goal for all of us, no matter which path

we take in terms of treatment.

Aloha,

Georgina

tisha wrote:

> hi, personally i didnt know how or whom to respond to, but my son has

> still's disease and severe as well........ i am a bit of a rebel, and

> have opted for antibiotic approach, homeo, and rife, and with barry

> elderman we use neurosequencing discs..... programs that help to get the

> body to correct and balance any of its properties that have been out of

> whack........... he has another term for it, and it is something that

> most layman cannot understand, but it is designed to reorganize ones

> body for the best and fullest response ........ which in turn can

> produce the better results from persay digestion, medications...........

> everything, your body is able to function at its highest and

> best.........this is how i understand it at least........he is wise and

> has worked with many problems......... and directs and helps me at his

> cost....... so he mentioned that he can help others as well with

> similiar problems as my son danny, so i want to help others, because i

> know first hand what this disease can do to everyone in the

> family............. you take the info or not i dont know, but i felt

> compelled to tell the group what i have done..... thanks trish

>

> Georgina <gmckin@...> wrote:

>

Blend website ( http://mysite.verizon.net/vze1kvrj/id1.html )

If you have any Questions you can phone them at: (413) 528-8844