Guest guest Posted January 17, 2004 Report Share Posted January 17, 2004 Donna, I remember Jess from the VA conference as well. She and Amye Leong shared a room, if I’m not mistaken, and when we were gathering up Pandas at the dinner Todd made a point of finding a couple of big and very cute bears for Jess. I had a lovely chat with Jess’s mom at one point during the conference. Has anyone cc’d Dr Lovell on this? He is the one who got up in the middle of the night at the conference when Jess needed medical attention. Do you have contact info for Jess’s family? Our prayers are with her family and friends. Liz once again Once again we must deal with the sadness of losing a fellow JRAer and for me a very dear friend. This is extremely hard for me as I got close to Todd and Jess at the VA conference as I too was battling for my very life.The three of us spoke about the real monster of JRA and the secondary conditions that have proven fatal for 2 of the 3 of us. This has once again awoken my deepest fears and the realities of this demon invading our bodies. Let us once again bond as we remember another dear friend and please keep the family and friends of Jess close in our hearts, thoughts and prayers. Big Hugs to you, my closest and dearest friends!!!! I love you all! Donna Hello Everyone, It breaks my heart to read this e-mail. As some of you may have heard, Saal passed away today. I still can't believe, we have lost another young adult. Please feel free to forward this e-mail to anyone I forgot to include. I will keep you guys updated with any information on the funeral service. Take care, Fuentes >Hi Friends, I'm writing with terrible news... Saal died today -- >it was her 34th birthday. > >We had planned a trip to Las Vegas this weekend to meet up with other young >adults with arthritis in memory of Todd Mullins, but Jess had a seizure >early Sunday morning, after having another one last week. So she checked >into Stanford Hospital for two days where they determined she had a >peritoneal infection in the area where she had her dialysis shunt. Put her >on introvenous antibiotics for a couple of days and sent her home on >Tuesday. Yesterday (Thursday) she wasn't feeling well, and on advice of her >doctor, she cancelled the Vegas trip. > >So today, Jess was at her parents house celebrating her birthday, had a >seizure, her heart stopped, and she died. I still can't believe this. I >spoke to her dad a few minutes ago and he said services might be Sunday or >Monday, but they don't know yet. As soon as I know more, I'll let you know. > > 's been calling our local advocacy group so that's why this >distribution list is rather short, but those of you out of state, please >feel free to pass this on to friends of Jess who should have this new. > >Love to you all, Joan > >joan wong > Links · To visit your group on the web, go to: / · Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2004 Report Share Posted January 17, 2004 Hi Liz, If the family or someone is wanting to get in contact with Dr.Lovell to let him know what happened I can get that info real easily.I have his direct office number somewhere.I do have two numbers right in front of me to get in touch on evenings and weekends.(513)636-4676 and (513)-636-4200.I am not sure if you are positive to get ahold of Dr.Lovell.This number is to get ahold of him,Dr.Passo or Dr.Glass.Tomorrow I can find Dr.Lovells personal office number and his E-mail addy. I am so sorry for the loss of your friend. Hugs Becki and 5 systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2004 Report Share Posted January 17, 2004 Hi Liz, Dr.Lovell's e-mail addy is daniel.lovell@... thing to try is (513)636-4495.This is actualy Tina Sherrard's number the cliniacal Research coordinator for the Enbrel study.She isn't there Mondays and Fridays so Dr.Lovell answers all her messages.I called this number the first time to find out about the study and Dr,Lovell answered the phone.I hope some of this helps.The very first number I gave you on the previous post is also the direct clinic number.He is so sweet.I think he would like to know and that her family remembers what he did for at the VA conferance. Hugs Becki and 5 systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2004 Report Share Posted January 18, 2004 Hey gang. It is to my knowledge that Dr. Lovell has been contacted regarding 's passing. As I get info I will pass it along. Many, many thanks! Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2004 Report Share Posted January 18, 2004 So sad, Donna. Very heartbreaking. My sympathies and condolences, to 's loved ones, family and friends. She will be missed by many but will be remembered, always. Aloha, Georgina faces1999@... wrote: > Once again we must deal with the sadness of losing a fellow JRAer and > for me a very dear friend. This is extremely hard for me as I got close > to Todd and Jess at the VA conference as I too was battling for my very > life.The three of us spoke about the real monster of JRA and the > secondary conditions that have proven fatal for 2 of the 3 of us. This > has once again awoken my deepest fears and the realities of this demon > invading our bodies. Let us once again bond as we remember another dear > friend and please keep the family and friends of Jess close in our > hearts, thoughts and prayers. Big Hugs to you, my closest and dearest > friends!!!! I love you all! Donna > Hello Everyone, > It breaks my heart to read this e-mail. As some of you may have heard, > Saal passed away today. I still can't believe, we have lost > another young adult. > Please feel free to forward this e-mail to anyone I forgot to include. I > will keep you guys updated with any information on the funeral service. > > Take care, > Fuentes > > >Hi Friends, I'm writing with terrible news... Saal died today > -- >it was her 34th birthday. > >We had planned a trip to Las Vegas this > weekend to meet up with other young >adults with arthritis in memory of > Todd Mullins, but Jess had a seizure >early Sunday morning, after having > another one last week. So she checked >into Stanford Hospital for two > days where they determined she had a >peritoneal infection in the area > where she had her dialysis shunt. Put her >on introvenous antibiotics > for a couple of days and sent her home on >Tuesday. Yesterday (Thursday) > she wasn't feeling well, and on advice of her >doctor, she cancelled the > Vegas trip. > >So today, Jess was at her parents house celebrating her > birthday, had a >seizure, her heart stopped, and she died. I still can't > believe this. I >spoke to her dad a few minutes ago and he said services > might be Sunday or >Monday, but they don't know yet. As soon as I know > more, I'll let you know. > > 's been calling our local > advocacy group so that's why this >distribution list is rather short, > but those of you out of state, please >feel free to pass this on to > friends of Jess who should have this new. > >Love to you all, Joan > > >joan wong > Quote Link to comment Share on other sites More sharing options...
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