Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 Bridget- Same thing happened with . She initially only had swelling in her right knee. Then she was in remission. When she came out of it, she had swelling in the right knee, her left ankle, her left elbow and her right wrist. Since it seemed to be getting more aggressive, we put her on methotrexate. She is currently in remission again, but is having a bout of iritis. Get her on some meds fast. Sounds like she may need something stronger than she was on before. Best of luck. Diane (, 4, pauci) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 My daughter Meaghan is 3 years old and was diagnosed with pauci jra 1 1/2 years ago. We took her to her rheumy last month and was told she was in remission. However, just in the last 2-3 days we have noticed that her left knee( the jra started in her right knee) has begun to swell as well as her ankle(left). We know she has not injured herself lately. She has also complained with her elbow. Does anyone else have a child with pauci that has had the same problems? I know that pauci means 5 or fewer joints, but it seems to be spreading. Bridget Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 Hi,Bridget. It does sound like she is starting a flare. I know this happens with my son as well. Originally it was only one ankle, then the other. Then those felt better then his big toes swelled up for a while. Then his back and tendons became involved (which added spondy to his diagnosis). What meds does your daughter take? She may need a new one, or a temporary increase in something she is taking. When do you go back to the dr? If it is not soon, I would call and let them know of her new symptoms. Your daughter can absolutely come out of a medicated remission. Has she been sick recently? Or has the weather changed recently where you are? These things have caused my son to flare when he had been doing well. I hope that Meaghan is feeling better soon, Michele (16,pauci & spondy) pauci jra My daughter Meaghan is 3 years old and was diagnosed with pauci jra 1 1/2 years ago. We took her to her rheumy last month and was told she was in remission. However, just in the last 2-3 days we have noticed that her left knee( the jra started in her right knee) has begun to swell as well as her ankle(left). We know she has not injured herself lately. She has also complained with her elbow. Does anyone else have a child with pauci that has had the same problems? I know that pauci means 5 or fewer joints, but it seems to be spreading. Bridget Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2004 Report Share Posted January 12, 2004 Bridget, My daughter (age 6) is also in the " pauci " category. For the longest time (four years, in fact), her left knee was the only joint affected, and it had been responding well to medication (although we've tried quite a variety!). She had an appointment in December, and her arthritis has spread to her other knee and her big toe. We also battle uveitis (albeit mild). Was Meaghan taken off medication when you were told she was in remission? has never truly been in remission, so she has been on NSAIDs continuously for four years. However, it was still a shock (after all this time) to find out that her arthritis had spread. I wasn't expecting that at all. has been taking Vioxx for well over a year, and her doctor has just added sulfasalazine. It's too early yet to know whether the sulfasalazine will help. We just started giving that to her a few days before Christmas. I'm so sorry that Meaghan's arthritis has come back and spread. I know how you feel. I know that if I noticed in the things that you are noticing, 's pediatric rheumatologist would want me to call him. Let us know what happens. Tammy > My daughter Meaghan is 3 years old and was diagnosed with pauci jra > 1 1/2 years ago. We took her to her rheumy last month and was told > she was in remission. However, just in the last 2-3 days we have > noticed that her left knee( the jra started in her right knee) has > begun to swell as well as her ankle(left). We know she has not > injured herself lately. She has also complained with her elbow. > Does anyone else have a child with pauci that has had the same > problems? I know that pauci means 5 or fewer joints, but it seems to > be spreading. > > Bridget Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2004 Report Share Posted January 13, 2004 Michele, Thanks for your help. The doctors have taken Meaghan off of all her meds.(UGH) Some days are better than others. She is due to see her eye doctor in 3 days. She complains of the sun being too bright and is constantly squinting outside. But back to her swelling-she has not been sick, but we did have a cold snap come through lately. Thanks again, Bridget RE: pauci jra Hi,Bridget. It does sound like she is starting a flare. I know thishappens with my son as well. Originally it was only one ankle, then theother. Then those felt better then his big toes swelled up for a while.Then his back and tendons became involved (which added spondy to hisdiagnosis). What meds does your daughter take? She may need a new one,or a temporary increase in something she is taking. When do you go backto the dr? If it is not soon, I would call and let them know of her newsymptoms. Your daughter can absolutely come out of a medicatedremission. Has she been sick recently? Or has the weather changedrecently where you are? These things have caused my son to flare when hehad been doing well. I hope that Meaghan is feeling better soon, Michele(16,pauci & spondy)-----Original Message-----From: rbfrith0821 [mailto:rbfrith0821@...] Sent: Monday, January 12, 2004 11:55 AM Subject: pauci jraMy daughter Meaghan is 3 years old and was diagnosed with pauci jra 1 1/2 years ago. We took her to her rheumy last month and was told she was in remission. However, just in the last 2-3 days we have noticed that her left knee( the jra started in her right knee) has begun to swell as well as her ankle(left). We know she has not injured herself lately. She has also complained with her elbow. Does anyone else have a child with pauci that has had the same problems? I know that pauci means 5 or fewer joints, but it seems to be spreading.Bridget Quote Link to comment Share on other sites More sharing options...
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