Guest guest Posted March 9, 2001 Report Share Posted March 9, 2001 Hi , I like your approach...to look at the diet from the perspective of what you CAN have. Remember, you don't have to go cold turkey into it. In fact, it might be too much of a shock to your system and to your self-discipline. You don't want to jump ship. Do what you need to to be able to hang in there. If that means going at it slower, then that's what you should do. You said you've tried everything you know to deal with CF & Fibromyalgia. I have a lengthy article written by a doctor who has a wife with CF & Fibromyalgia. I'd be happy to send you (or anyone else) the whole article if you want. Here's a portion of it: The frustration felt by a physician when he is unable to do anything for his patient cannot be overstated. I realize the frustration patients with fibromyalgia have with their doctors. Since there is only symptomatic treatment for chronic fatigue syndrome and fibromyalgia, it is truly frustrating for both physician and patient (especially when that patient happens to be your wife). When my wife was struggling with the most difficult fatigue, she asked if she could try some nutritional supplements given to her by a friend. For 23 years, I would do most anything to get my patients off any kind of supplements. However, my response to her question shocked even me. I told her she could try these products since we had not been able to do anything to help her through traditional medicine. Within a week she was better and within three weeks she was back to her normal self and off all medications. Over the next year she not only totally recovered but also had more energy than she has had in years. She has added about three to four hours to each of her days and now only sleeps six or seven hours each night. She has significantly less pain and fewer muscle spasms, and her energy level has surpassed mine. ... I have now been involved with over 500 patients who have fibromyalgia and chronic fatigue. I am able to achieve good to excellent results in over 70 to 75% of these patients. The article goes on to give his exact recommendations. Let me know if you want it. Blessings! Have a great weekend! Kathleen jacobson@... Hello - I'm New Hello! I just wanted to introduce myself. My name is (type 0), I'm 27 and I've just started the ER4YT diet a week ago. I have had Chronic Fatigue and Fibromyalgia for 2+ years and have been trying everything possible to shake it. The ER4YT diet was recommended to me a year ago, so I pick up the book from the library and went about it all WRONG! I immediately looked at the lists of food I couldn't have and said " no way! " Now a year later, it was suggested to me again. This time I looked at all the good things I could still eat and though- yeah, maybe I can give this a chance! So far so good, but it's only been a week and I'm sure the cravings will begin soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Yes, thank you, I am ALWAYS interested in reading anything on CFS or FMS and would love if you would send me the article! Thanks! > Hi , > > I like your approach...to look at the diet from the perspective of > what you CAN have. Remember, you don't have to go cold turkey into it. > In fact, it might be too much of a shock to your system and to your > self-discipline. You don't want to jump ship. Do what you need to to > be able to hang in there. If that means going at it slower, then > that's what you should do. > > You said you've tried everything you know to deal with CF & > Fibromyalgia. I have a lengthy article written by a doctor who has a > wife with CF & Fibromyalgia. I'd be happy to send you (or anyone else) > the whole article if you want. Here's a portion of it: > > The frustration felt by a physician when he is unable to do > anything for his patient cannot be overstated. I realize the > frustration patients with fibromyalgia have with their doctors. Since > there is only symptomatic treatment for chronic fatigue syndrome and > fibromyalgia, it is truly frustrating for both physician and patient > (especially when that patient happens to be your wife). > > When my wife was struggling with the most difficult fatigue, she > asked if she could try some nutritional supplements given to her by a > friend. For 23 years, I would do most anything to get my patients off > any kind of supplements. However, my response to her question shocked > even me. I told her she could try these products since we had not been > able to do anything to help her through traditional medicine. > > Within a week she was better and within three weeks she was back > to her normal self and off all medications. Over the next year she not > only totally recovered but also had more energy than she has had in > years. She has added about three to four hours to each of her days and > now only sleeps six or seven hours each night. She has significantly > less pain and fewer muscle spasms, and her energy level has surpassed > mine. > > ... > > I have now been involved with over 500 patients who have > fibromyalgia and chronic fatigue. I am able to achieve good to > excellent results in over 70 to 75% of these patients. > > The article goes on to give his exact recommendations. Let me know if > you want it. > > Blessings! Have a great weekend! > > Kathleen > jacobson@t... > > > > Hello - I'm New > > > Hello! I just wanted to introduce myself. My name is (type > 0), I'm 27 and I've just started the ER4YT diet a week ago. I have > had Chronic Fatigue and Fibromyalgia for 2+ years and have been > trying everything possible to shake it. The ER4YT diet was > recommended to me a year ago, so I pick up the book from the library > and went about it all WRONG! I immediately looked at the lists of > food I couldn't have and said " no way! " Now a year later, it was > suggested to me again. This time I looked at all the good things I > could still eat and though- yeah, maybe I can give this a chance! So > far so good, but it's only been a week and I'm sure the cravings will > begin soon! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 Me too! Thanks Tricia In a message dated 3/10/01 10:21:36 AM, info@... writes: << Yes, thank you, I am ALWAYS interested in reading anything on CFS or FMS and would love if you would send me the article! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2001 Report Share Posted March 11, 2001 Me too, thanks, Lilla Re: Hello - I'm New Yes, thank you, I am ALWAYS interested in reading anything on CFS or FMS and would love if you would send me the article! Thanks! --- Lilla Luoma --- lillabell@... "I saw the wheel, I saw the web, I saw the weaver's hands. I heard the drum, I joined in the dance and I was born again." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2001 Report Share Posted March 12, 2001 In a message dated 3/9/01 3:47:43 PM Mountain Standard Time, jacobson@... writes: You said you've tried everything you know to deal with CF & Fibromyalgia. I have a lengthy article written by a doctor who has a wife with CF & Fibromyalgia. I'd be happy to send you (or anyone else) the whole article if you want. Here's a portion of it: Kathleen, Please send me this article. Thanks so much. Pam in ID Pamacs Selkirk Rex Home of GRCH Pamacs Winnie The Blue The first CFA Grand Champion Selkirk Rex Check out my home page at http://hometown.aol.com/sharpcats/myhomepage/index.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 Hi Cheryl, Going through old e mails and cleaning up. Just wanted to share that I had a similar experience with finding ER right after I had wished that I really knew which foods were good for me, etc. Frances Cheryl Baker wrote: > HI , > Hang in there, baby!!! In the beginning it is almost overwhelming, but > the > longer you hang in there the easier it gets. I am a 3 1/2 year veteran > of > this lifestyle change and am very happy I hung in there!!! MEMORIZE > your > avoid lists and go from there! Get rid of all the avoids and you will > profit > from it in a BIG way!!! When I started this diet ALL of the avoid > lists were > in my cabinets and fridge. Couldn't believe how badly I was eating. I > always > said, If I only knew WHAT to eat then I would be fine on a diet. And, > BAM!!! > I was introduced to the ER4YT within several days of wishing for an > eating > list. I am SUCH a happy camper on this diet. . . it has improved > EVERYTHING > in my life!!! I can't say enough GREAT things about dear Dr. D's > guidance. > aloha > CB > > > > > ---------------------------------------------------------------- > > Subject: Hello - I'm New > Date: Fri, 9 Mar 2001 09:19:21 -1000 > From: and Brett Snyder <info@...> > Reply- > > > Hello! I just wanted to introduce myself. My name is (type > 0), I'm 27 and I've just started the ER4YT diet a week ago. I have > had Chronic Fatigue and Fibromyalgia for 2+ years and have been > trying everything possible to shake it. The ER4YT diet was > recommended to me a year ago, so I pick up the book from the library > and went about it all WRONG! I immediately looked at the lists of > food I couldn't have and said " no way! " Now a year later, it was > suggested to me again. This time I looked at all the good things I > could still eat and though- yeah, maybe I can give this a chance! So > far so good, but it's only been a week and I'm sure the cravings will > begin soon! > > > > > > - > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 Hi Dawn, Thanks so much. That's very useful. I know I will have a real uphill battle with my GP, but you never know unless you try, eh? Deborah x > > Hi hon > First thing I would do would be get as many of these tests below done as I could. They tend to refuse certain ones like the FT3 unless they suspect hyperthyroidism not hypo. > > If you can get these done and get back to us with results and ranges it will be much easier to get a kind of picture where you are with your symptoms too. > lotsa luv > DAwnx > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 Hi Deborah and welcome to our forum where I hope you get all the help and support you need. Any questions you need to ask, do so, and hopefully, somebody will come along to try to give you an answer. If they don't have it, they will do what they can to try to find an anwer. Have you actually been given a diagnosis of hypothyroidism or is this a condition you feel that might be your problem? What natural and herbal medications have you been taking and did you feel they did you any good? What symptoms are you still suffering and do you have any of the 'signs' of hypothyroidism? You can check these out against those in our web site www.tpa-uk.org.uk - just click on 'Hypothyroidism' and then click on 'Symptoms and Signs' in the drop down Menu. Also, while you are there, check 'Associated Conditions' and see whether you might be suffering from any of these. Sadly, none of these associated conditions that go along with being hypothyroid are recognised within the NHS - so doctors don't go looking for these. Sadly, the British Thyroid Association (highly respected by all NHS GP's and endocrinologists' made a statement years ago on their web site that to reach a precise diagnosis of hypothyroidism, ONLY blood tests will do. They say that symptoms, signs, family history etc should be taken into account, but doctors don't do this - they follow the BTA teachings to the letter. The ex-President of the BTA (Professor Weetman) is now Head of all Medical Schools in the UK - so it is a frightening prospect that the diagnosing and treatment could get even worse in the future. Doctors perform a thyroid function test for patients suffering the symptoms, but a FULL thyroid function test should consist of Thyroid Stimulating Hormone (TSH) which is a petuitary hormone, Free thyroxine (FT4), Free T3 (free triiodothyronine (FT3) and the patient should be tested to see if they have antibodies to their thyroid. Doctors don't do this, they mainly test for TSH, and occasionally, Free T4 - but local laboratories now do not test for Free T3, which they should, because this is the ONLY way of knowing whether a patient is converting the mainly inactive thyroxine (T4) to the active hormone T3. It is T3 our body requires to make every cell in the body and brain function. Without T3, we is dead!! Our problem, and the reason we are campaigning so hard to get the diagnosing and treatment protocol changed within the NHS, is that now, the Royal College of Physicians have authored a new guidance on the diagnosing and treatment of hypothyroidism, along with the BTA and other endocrine and thyroid associations. They state that ONLY levothyroxine should be used for ALL patients diagnosed as being hypothoyroid and that ONLY thyroid function test results should be used to get a diagnosis. There have been hundreds of letters and papers sent to the RCP asking them to review their guidance because there is scientific evidence, that has been around for over 40 years showing them that their diagnostic and treatment protocol is WRONG. These letters and papers came from Researchers, master endocrinologists, patients throughout the world - but the RCP refused to review their guidance. The effect their new guidance will have on hypothyroid patients in the UK is quite terrifying and will cause unnecessary harm to tens of thousands of patients. Problem - BIG PHARMA. This is what we are up against, as well as the monumental ego's of the members of these associations. Have you had any thyroid function tests to see whether your thyroid is functioning as it should. If so, please give us the results, together with the reference range for each of the tests done. The main problem with these Thyroid function tests is that they should be called THYROID GLAND FUNCTION TESTS, because they ONLY test the thyroid function - Type 1 hypothyroidism. They do not test to see whether the patient is suffering from Type 2 . Type 2 hypothyroidism is defined as peripheral resistance to thyroid hormones at the cellular level. It is not due to a lack of thyroid hormones. Normal amounts of thyroid hormones and TSH are usually detected by the blood tests mentioned; therefore, THYROID GLAND BLOOD TESTS DO NOT DETECT TYPE 2 HYPOTHYROIDISM. Type 2 is usually inherited. However, environmental toxins may also cause or exacerbate the problem. The pervasiveness of Type 2 hypothyroidism has yet to be recognised by mainstream medicine, but already, it is in epidemic proportions. We have sent this information to the RCP and the BTA citing the relevant references to the scientific evidence, but they refuse to listen. It might save you some time to get as many blood tests done as you can at the same time. These would include TSH, FT4, FT3, tests to see if you have antibodies to your thyroid. Ferritin (stored iron), vitamin B12, vitamin 3, copper, zinc, magnesium and folate. If any of the last 7 blood results are low in the reference range, these will stop your thyroid hormone from being absorbed into the cells. You would need to supplement with whatever you are low in. We always recommend also that patients get tested privately to check for adrenal insufficiency and systemic candidiasis. The NHS do not recognise these conditions, but they are associated strongly with people being hypothyroid. You can get these test done through Genova Diagnostics www.gdx.uk.net . Both these tests cost £70 each unfortunately, but if necessary, I would beg, borrow or steal to get these tests done. I can assure you that the many people who have been forced into taking their health into their own hands and who step outside the NHS diagnostic and treatment protocol are those who do get back their normal health. There are natural products you can use for both replacement of thyroid hormone and adrenal insufficiency, but we can discuss these later once we have the results of your tests. Doctors, however, within the NHS are reluctant to treat using natural thyroid extract because it is not licensed. It actually never required a license because it has been used safely and successfully for over 100 years, and was the ONLY thyroid hormone replacement used for ALL sufferers of hypothyroidism until the synthetic levothyroxine became the treatment of choice in the mid 1970's. You are now not alone anymore, the more you read here, the more you will understand why so many remain so ill within the NHS, and the more you read the information in both our web site and the files section of this forum, the more you will understand and the more confident you will become of treating yourself. I would highly recommend that you buy Dr Barry Durrant-Peatfield's Book 'Your Thyroid and How to Keep it Healthy' - he wrote this mainly for patients to help them understand the workings of the thyroid and the adrenal connection and how they can take their health into their own hands. He wrote it also for doctors, but somehow, I get the feeling they are not reading it, because if they were, they would not be treatment (or not treating) their patients the way they are. Well, that's my ten pennyworth. I know I go on a bit and I do easily get carried away, but I get so angry when I hear more and more dreadful stories on a daily basis - about the harm the NHS is causing. You will have gathered that there is an awful lot to learn, but little by little , you will find it all sinking in. Look forward to hearing further from you after you have done some reading and got back the results from the above tests. Luv - Sheila > I'm not sure how to approach this forum as I do not want to ask you to re-invent the wheel for me as I'm sure there must be a huge amount of the basic starter information here. I'm looking to start on some self-medication and wondered if you could point me in the direction of where to look on the forum? > > Thanks so much and I look forward to meeting you. :-)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 Oh, thank you Dawn. I hadn't realized that you sent me this respond. I will be taking you all advice to me, I really appreciate it from the bottom of my heart. From: stfluffybrain <stfluffybrain@...>Subject: Re: Hello - I'm newthyroid treatment Date: Wednesday, September 23, 2009, 6:27 PM Hi honSorry you are feeling unwell.There are all kinds of great things you can read and clue yourself up on in the Files section.First thing I would do would be get as many of these tests below done as I could. They tend to refuse certain ones like the FT3 unless they suspect hyperthyroidism not hypo. Recent Activity 12 New Members 1 New Links 10 New FilesVisit Your Group Give Back for Good Get inspired by a good cause. Y! Toolbar Get it Free! easy 1-click access to your groups. Start a group in 3 easy steps. Connect with others. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2010 Report Share Posted May 18, 2010 Hello Bee and others, In a way I feel new as I haven't 'introduced' myself yet, even though I have been lurking in cyberspace since September last year. Like many of you I have also been disppointed by traditional Western, medicine; this has lead me on my own journey in the search for good health. Since about the age of 15, (some 20 years ago), I have been dealing with allergies in some form or another. I have juggled the breadth of 'dietry fix-its' such as eliminating eggs, wheat, milk and soy etc, but with limited success. Whilst I had heard of Candida in the past, since I wasn't suffering from 'the usual' female symptoms, I brushed it aside. However, I am convinced that I suffer from Candida, especially in the sinus and my head. I used to suffer from dreadful sinus, but have since got this under control, but I have terrible brain fog and it the past couple of months a white'ish tongue which is often covered with blisters along the side and almost lesion-like looking marks on top. Twice late last year, and once early this year I was fully on the program, up to 4 tbl spoons of CO, but had such bad die off, that I had to take a huge step backwards and start again. So here I am, I have been SLOWLY eliminating the no-no foods (almost there), and am up to taking 3 tsp of CO a day. I get up an hour earlier each morning for a dry skin brush followed by a salt bath. I have most of the vitamins although I can't locate a fish liver oil aside from the Cod liver, here in Germany (I am unable to import from outside the EU - German law, but maybe other members in Europe can help me?) Having read from other members how beneficial a consultation with Bee is :-), I woud like to do this but thought I shoud say hello here first. I do however have a quick question: For the past couple of days I have an almost constant pain in the back of my head - at the top - could this be detoxing? I have never had a head injury, so I wouldn't be retracing. I am also often shaky, and my heart is racing, although I have read that these are symptoms of dis-ease. I would appreciate any feedback. Kind regards Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2010 Report Share Posted May 18, 2010 Hei , I am German but now in Finnland, and I dont have problems to order at iHerb; even though one of the things in the B-Complex from iHerb is on some sort of " medicine " list here, I asked the customs and got a nicely unfriendly reply that its ok Just ask the Zoll...no clue how helpful they are but its worth a try welcome to the group, and Gute Besserung!! Tini > > Hello Bee and others, > > In a way I feel new as I haven't 'introduced' myself yet, even though I have been lurking in cyberspace since September last year. > > Like many of you I have also been disppointed by traditional Western, medicine; this has lead me on my own journey in the search for good health. Since about the age of 15, (some 20 years ago), I have been dealing with allergies in some form or another. I have juggled the breadth of 'dietry fix-its' such as eliminating eggs, wheat, milk and soy etc, but with limited success. Whilst I had heard of Candida in the past, since I wasn't suffering from 'the usual' female symptoms, I brushed it aside. However, I am convinced that I suffer from Candida, especially in the sinus and my head. I used to suffer from dreadful sinus, but have since got this under control, but I have terrible brain fog and it the past couple of months a white'ish tongue which is often covered with blisters along the side and almost lesion-like looking marks on top. > > Twice late last year, and once early this year I was fully on the program, up to 4 tbl spoons of CO, but had such bad die off, that I had to take a huge step backwards and start again. So here I am, I have been SLOWLY eliminating the no-no foods (almost there), and am up to taking 3 tsp of CO a day. I get up an hour earlier each morning for a dry skin brush followed by a salt bath. I have most of the vitamins although I can't locate a fish liver oil aside from the Cod liver, here in Germany (I am unable to import from outside the EU - German law, but maybe other members in Europe can help me?) > > Having read from other members how beneficial a consultation with Bee is :-), I woud like to do this but thought I shoud say hello here first. I do however have a quick question: For the past couple of days I have an almost constant pain in the back of my head - at the top - could this be detoxing? I have never had a head injury, so I wouldn't be retracing. I am also often shaky, and my heart is racing, although I have read that these are symptoms of dis-ease. > > I would appreciate any feedback. > > Kind regards > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2010 Report Share Posted May 18, 2010 Hi Tini, Nice to hear from you.  A number of years ago, when I learned about NOW products I tried to order some vitamins from the USA and was issued with a notice from the Zollamt ...zitat ... " Die Einfuhr von Arzneimittel durch privatpersonen im postversand aus den übrigen Staaten (nicht EU Ländern) ist generell verboten " . I lost a bit of money and my nerves after fighting with the Zollamt for a few weeks, unsuccesfully. So, now I am restricted to buying within the EU. :-( Do you order all your supplements from iherb, or do you purchase some more locally? Oh, and by the way, I am Australian, but have been living in Germany for nearly 10 years. Cheers From: tini.lorey <tini.lorey@...> Subject: [ ] Re: hello - I'm new Date: Tuesday, May 18, 2010, 4:17 PM Hei , I am German but now in Finnland, and I dont have problems to order at iHerb; even though one of the things in the B-Complex from iHerb is on some sort of " medicine " list here, I asked the customs and got a nicely unfriendly reply that its ok Just ask the Zoll...no clue how helpful they are but its worth a try welcome to the group, and Gute Besserung!! Tini Quote Link to comment Share on other sites More sharing options...
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