Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 Can someone explain to me about auras? My daughter a, is for the most part, non-verbal... how would I know if she was having them? I can tell when Bri is about to have a seizure, cuz of her aura. She doesn't tell me, but she will get this look on her face . then grab her stomach. She's 8 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 Sophie, Whenever my daughter had an aura she could tell me but I'm not sure what was happening as she's developmentally delayed and cannot explain what she's either feeling or seeing. Whenever she had those, they would last anywhere from 15 to 25 seconds and it was over but for some people an aura is a warning that a generalized seizure is coming and this gives them time to go to a safe place. Grace Can someone explain to me about auras? My daughter a, is for the most part, non-verbal... how would I know if she was having them? Is there discomfort associated with them? Are they a precurser to a seizure? Do they effect your vision? etc. Thanks, Sophie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 SOPHIE,WHEN I WAS YOUNG I COULD TELL SOMEONE I WAS GOING TO HAVE A SEIZURE. AS WELL ALSO,WHEN I FELT ONE COMING I COULD TAKE MY RIGHT ARM IN BETWEEN MY LEGS A SQUEEZE AND ALOT OF THE TIMES I WOULD COME OUT OF HAVING A SEIZURE. I'M 46 AND HAVE ALOT OF EXPERIENCE PLUS,I'M TELLING YOU WHAT I KNOW WHEN I WAS YOUNGER NOW I'VE GONE OVER 5 MONTHS WITHOUT ONE.I DON'T PLAN TO HAVE ANOTHER ONE EITHER I KNOW GOD HAS HEALED ME BUT I ALSO PRAY FOR SO MANY OTHERS THAT STILL HAVE THEM.MAY GOD BLESS YOU AND HEAL WHOEVER HAS SEIZURES THEY ARE NOT FUN I WOULD HAVE BAD HEADACHES AFTER HAVING SEIZURES AND HAVE A BLESSED DAY,MARK HOGUE Grace <foxyfoxgrace@...> wrote:Sophie, Whenever my daughter had an aura she could tell me but I'm not sure what was happening as she's developmentally delayed and cannot explain what she's either feeling or seeing. Whenever she had those, they would last anywhere from 15 to 25 seconds and it was over but for some people an aura is a warning that a generalized seizure is coming and this gives them time to go to a safe place. Grace Can someone explain to me about auras? My daughter a, is for the most part, non-verbal... how would I know if she was having them? Is there discomfort associated with them? Are they a precurser to a seizure? Do they effect your vision? etc. Thanks, Sophie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 When my son was going to begin seizing he would get these stomach aches and his heart would race, he would lay down where ever he was and this happened before every seizure he ever had. He has been seizure free for 133 days(19 weeks). His seizures had become every 14-21 days but since being on supplements he hasn't appeared to have any during the night or day. My son's seizures became more regular when he was put on seizure meds. He would have clusters of seizures on the meds but he would go into status epileptus before we started meds. Dawn mom to Noah --- sarahbri813@... wrote: > > Can someone explain to me about auras? > My daughter a, is for the most part, > non-verbal... how would > I know if she was having them? > > I can tell when Bri is about to have a seizure, cuz > of her aura. She doesn't > tell me, but she will get this look on her face . > then grab her stomach. > She's 8 > > > > [Non-text portions of this message have been > removed] > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2004 Report Share Posted December 12, 2004 Thank you all for the feedback on auras. , some of what you discribed with your own aura experiences sounds like what happens with my daughter a (special needs...CP/developmentally delayed/autisic tendencies). There are times when she'll stop in her tracks and do this lip smacking sound and wierd deep breathing for a few seconds then it seems to pass and she continues on. To me it seems like she's griped by some kind of pain but perhaps it's just because she can't see well so she stops until it goes away. The toughest part is not knowing...I only wish she could articulate better so we could have an idea of what she is experiencing...the guess work is grueling. I know I'm not alone here. a had another seizure on Wednesday. She had been saying " headache " for a few days before that. Headache is a fairly new word in her limited vocabulary but I do think that she is having them so I'm glad she can tell us. However, I haven't been giving her any pain medication...I'm a bit worried the Tylenol or Advil will cause further problems?? This is also the week before her period when she's at her worst. Sophie Quote Link to comment Share on other sites More sharing options...
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