Re: L-carnitine- safe or not-

[Guest guest]

No , never heard of that one, (goodness what a looong name!) the carnitine

was added in with more as a neccessity from the valproate/keto diet mix,

and I have to say I didn't know toooo much about it till I had to go searching

after it hit the fan with him seizure wise each time we tried it.

You could maybe give the carnitine one more go to make sure it wasn't just

coincidental timing seizure wise, but I guess if you are like me with ,

you are probably not too keen on taking that risk....

----- Original Message -----

From: angel_lts@...

, Thanks for the info. I really didnt know this. I thought it

would be safe for me. I was hoping to get my metabolism working a

little better so I dont keep gaining weight so easily. I was thinking

about trying cla-conjugated-linoleic-acid-tonalin. Do you know

anything about this product? How safe it is for people with epilepsy?

thanks again

[Guest guest]

No It is to risky and I dont feel like going through that again.

thanks

lisa

> No , never heard of that one, (goodness what a looong name!)

the carnitine was added in with more as a neccessity from the

valproate/keto diet mix, and I have to say I didn't know toooo much

about it till I had to go searching after it hit the fan with him

seizure wise each time we tried it.

> You could maybe give the carnitine one more go to make sure it

wasn't just coincidental timing seizure wise, but I guess if you are

like me with , you are probably not too keen on taking that risk....

>

>

>

> ----- Original Message -----

> From: angel_lts@y...

>

>

>

> , Thanks for the info. I really didnt know this. I thought it

> would be safe for me. I was hoping to get my metabolism working a

> little better so I dont keep gaining weight so easily. I was

thinking

> about trying cla-conjugated-linoleic-acid-tonalin. Do you know

> anything about this product? How safe it is for people with

epilepsy?

> thanks again

>

>

>

>

>

>

>

[Guest guest]

Listmates,

I just had lunch with Crayhon who wrote the book " The Carnitine

Miracle " and his thoughts were that since carnitine gets right into the

mitochondria and may kick out toxins that the reaction some of you are

having is do to this action. My daughter Tasya is on 500 mg of pure

L-carnitine from Labs with no side-effects. My suggestion

(purely through observation and not to be construed as medical advice)

is if you have these reactions, adding 250-500 mg of glycine may resolve

that.

In health,

Mark Schauss

www.carbonbased.com

Re: [ ] Re: L-carnitine- safe or not-

No , never heard of that one, (goodness what a looong name!) the

carnitine was added in with more as a neccessity from the

valproate/keto diet mix, and I have to say I didn't know toooo much

about it till I had to go searching after it hit the fan with him

seizure wise each time we tried it.

You could maybe give the carnitine one more go to make sure it wasn't

just coincidental timing seizure wise, but I guess if you are like me

with , you are probably not too keen on taking that risk....

----- Original Message -----

From: angel_lts@...

, Thanks for the info. I really didnt know this. I thought it

would be safe for me. I was hoping to get my metabolism working a

little better so I dont keep gaining weight so easily. I was

thinking

about trying cla-conjugated-linoleic-acid-tonalin. Do you know

anything about this product? How safe it is for people with

epilepsy?

thanks again

[Guest guest]

This is something similar to what happened with - both times we tried

it with him he was on a benzodiazepene medication, the doses of which, he was

borderline intolerant to. Adding the carnitine helped with more efficient

tansportation of waste products ( I guess in any detoxification process the

inital result will be a form of toxicity as the toxins eek out) and also more

efficent utilisation of caloric fat from his ketogenic diet. Higher levels of

ketosis usually brings with it a more acidic ph, and that ph change can also

affect the protein binding mechanisms of medications.

This is what I meant in my earlier post where I said that in 's case I

don't believe it was an adverse reaction to the carnitine itself per se, it was

more of a chain reaction scenario that happened as a result of supplementing

with it.

Altogether it proved to be overkill for him, benzos and the valproate he was

also on, are both ones that store in fatty tissues. He basically did go plain

'toxic' and in his case ufortunately with that, came what we surmise were

toxicity induced seizures. He ended up having to have the carnitine AND the

benzodiazepines cold turkied, and for anyone who has ever tried to wean

themselves or their children off the benzo class of med will know how very

dangerous that can be, and therefore not a decision that was made lightly, by

either us or the hospital staff.

We have a happy ending (well for the past 10 mths anyways) with a seizure free

kiddie no longer on the toxic benzos, but that was not a path that came easily.

Re: [ ] Re: L-carnitine- safe or not-

No , never heard of that one, (goodness what a looong name!) the

carnitine was added in with more as a neccessity from the

valproate/keto diet mix, and I have to say I didn't know toooo much

about it till I had to go searching after it hit the fan with him

seizure wise each time we tried it.

You could maybe give the carnitine one more go to make sure it wasn't

just coincidental timing seizure wise, but I guess if you are like me

with , you are probably not too keen on taking that risk....

[Guest guest]

Mark, I am afraid to try again. But I really took it for metabolising,

for I feel my system is so screwed up. I really didnt know how good or

bad it was for epilepsy. I am going to try

cla-conjugated-linoleic-acid-tonalin instead. But I am trying to find

out as much info as possible so I dont have a seizure. Do you know

anything about it? Is it safe for epilepsy?

Thanks

> Listmates,

>

> I just had lunch with Crayhon who wrote the book " The Carnitine

> Miracle " and his thoughts were that since carnitine gets right into the

> mitochondria and may kick out toxins that the reaction some of you are

> having is do to this action. My daughter Tasya is on 500 mg of pure

> L-carnitine from Labs with no side-effects. My suggestion

> (purely through observation and not to be construed as medical advice)

> is if you have these reactions, adding 250-500 mg of glycine may resolve

> that.

>

> In health,

> Mark Schauss

> www.carbonbased.com

>

>

> Re: [ ] Re: L-carnitine- safe or not-

>

>

> No , never heard of that one, (goodness what a looong name!) the

> carnitine was added in with more as a neccessity from the

> valproate/keto diet mix, and I have to say I didn't know toooo much

> about it till I had to go searching after it hit the fan with him

> seizure wise each time we tried it.

> You could maybe give the carnitine one more go to make sure it wasn't

> just coincidental timing seizure wise, but I guess if you are like me

> with , you are probably not too keen on taking that risk....

>

>

>

> ----- Original Message -----

> From: angel_lts@y...

>

>

>

> , Thanks for the info. I really didnt know this. I thought it

> would be safe for me. I was hoping to get my metabolism working a

> little better so I dont keep gaining weight so easily. I was

> thinking

> about trying cla-conjugated-linoleic-acid-tonalin. Do you know

> anything about this product? How safe it is for people with

> epilepsy?

> thanks again

>

>

>

>

>

>

>