Re: Seizures and what they look like PLEASE tell me what yours/childs are like

[Guest guest]

Leighanne,

With my son (who is also on the Spectrum) depakote was the cause of his

aggression and self-injury. He was taking it for absence seizures. If you want

more info I can give it later but I am rushed at the moment. Tell me what you

want to know about our experience, if anything.

[Guest guest]

Hello,

My son has lennox gastaut syndrome, Its a severe seizure disorder

with many types of seizures. He has had seizures where he would be

in status once for three straight days. His eyes would be at one

corner and slowly move to the other corner and then he would go limp

like he had died. He has a lot of drop attacks...every muscle just

colapses. he has seizures where his leg would go straight out ...he

had a lot of head nods. Hes on nitrazepam and lamictal. Nitrazepam

has been a miracle drug for him....Hes been on depakene, tegretol,

acth, klonopin you name it hes been on it.

The nitrazepam helps with one type of seizure and the lamictal helps

with another type...He has had thousands of seizures in a day. they

last for a few seconds then 3 minutes later he would have another.

nitrazepma is not available in the US...Big pharma wasnt going to

make BIG money on nitrazepam, so they cancelled the study and came

out with Viagra! Now theres a drug that saves lives!

Donna

> hi all

> I have a nearly 5 year old with autism and eplilepsy and all but 2

> seizures in the last several years are subclinical or complex

parital

> seizures. I have to assume that I know when they did and do occur

> and want to have as many people as can reply to me and tell me

what

> yours or your childs look like in as much detail as possible.

Also

> what happens before and after, pain, aggression, self injury, loud

> sounds. My son is on Depakote and levels have been theraputic but

> that does not mean he is not having seizures. Please help me sort

> out this as we are in a crisis right now with severe aggression

and

> self injury with no known cause.

>

> Thanks

> Leighanne

> mainecollier@a...

[Guest guest]

Hello,

Read this article about Seizures and epilepsy, hope you will get

better insight.

http://free_treatment.tripod.com/disease_list/epilepsy.html

thanks

> hi all

> I have a nearly 5 year old with autism and eplilepsy and all but 2

> seizures in the last several years are subclinical or complex

parital

> seizures. I have to assume that I know when they did and do occur

> and want to have as many people as can reply to me and tell me what

> yours or your childs look like in as much detail as possible. Also

> what happens before and after, pain, aggression, self injury, loud

> sounds. My son is on Depakote and levels have been theraputic but

> that does not mean he is not having seizures. Please help me sort

> out this as we are in a crisis right now with severe aggression and

> self injury with no known cause.

>

> Thanks

> Leighanne

> mainecollier@a...