Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Hi has recently been started on a small dose of Trileptal in an effort to control seizures that were occurring during sleep. This is the 6th day on it, and today she seems to be having difficulty speaking. She either moves her mouth to speak, and can't get the words out; or she gets the words out but it is all gobblygook and not understandable. I am wondering whether it could be a side-effect from the Trileptal? Has anyone else had this experience? Prior to starting the Trileptal she was having a great number of sz in her sleep. The benzo drugs did not halt them, they just turned her into a dribbling vegetable. So I don't know whether this speech problem is the result of those sz/benzos, or the Trileptal. I'd be glad of any input! If this doesn't change by tomorrow I will be contacting her neuro. Many thanks Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 Jill I take trileptal for over a year now. I have complex partial seizures. Talking like she is I am wandering if she had alot of seizures in the night that caused her to talk like that. I do have problems speaking somedays especially if I need more sleep. But I wonder if that is my problem the medication. Second of all trileptal takes away the sodium. That can cause seizures also if your sodium is too low. I only have complex partial but I had a grand mal in dec and one very close call. I have to keep up with my sodium alot. I am getting off at the end of june. I have been getting blood work every month to keep an eye on it. Start putting more salt on her foods or eating pistatios or something with salt. I do not salt my food so I am always forgetting to do it. My sodium was pretty low a couple of weeks ago. I could feel seizures were trying to come out. > Hi > has recently been started on a small dose of Trileptal in an effort > to control seizures that were occurring during sleep. This is the 6th day > on it, and today she seems to be having difficulty speaking. She either > moves her mouth to speak, and can't get the words out; or she gets the > words out but it is all gobblygook and not understandable. > > I am wondering whether it could be a side-effect from the Trileptal? Has > anyone else had this experience? > Prior to starting the Trileptal she was having a great number of sz in her > sleep. The benzo drugs did not halt them, they just turned her into a > dribbling vegetable. So I don't know whether this speech problem is the > result of those sz/benzos, or the Trileptal. > > I'd be glad of any input! > If this doesn't change by tomorrow I will be contacting her neuro. > Many thanks > Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2004 Report Share Posted April 22, 2004 I don't know yet because I only have one or two options left. I am also on phenobarbital which I can't seem to get off of. Everytime I try I have a grand mal. So we put it at a stand still for one year. So that is going to be changed also in time. good luck with the ketogentic diet. I was on that too as an adult about 5 years ago. > > > Hi > > > has recently been started on a small dose of Trileptal in > >an effort > > > to control seizures that were occurring during sleep. This is the > >6th day > > > on it, and today she seems to be having difficulty speaking. She > >either > > > moves her mouth to speak, and can't get the words out; or she gets > >the > > > words out but it is all gobblygook and not understandable. > > > > > > I am wondering whether it could be a side-effect from the > >Trileptal? Has > > > anyone else had this experience? > > > Prior to starting the Trileptal she was having a great number of > >sz in her > > > sleep. The benzo drugs did not halt them, they just turned her > >into a > > > dribbling vegetable. So I don't know whether this speech problem > >is the > > > result of those sz/benzos, or the Trileptal. > > > > > > I'd be glad of any input! > > > If this doesn't change by tomorrow I will be contacting her neuro. > > > Many thanks > > > Jill > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Jill, My daughter, , was on Trileptal and we took her off due to the increase in seizures, but her speech was fine, but we currently have her on Zonegran and her speech is somewhat slurred and hard to understand sometimes. How long has she been on it? Sometimes you might have to give it at least three weeks to see if it goes away, if after three weeks it doesn't go away, then I'd mention it to the neuro. Good Luck! Grace On Thu, 22 Apr 2004 16:48:50 +0800 Jill <jill@...> writes: > Hi > has recently been started on a small dose of Trileptal in an > effort > to control seizures that were occurring during sleep. This is the > 6th day > on it, and today she seems to be having difficulty speaking. She > either > moves her mouth to speak, and can't get the words out; or she gets > the > words out but it is all gobblygook and not understandable. > > I am wondering whether it could be a side-effect from the Trileptal? > Has > anyone else had this experience? > Prior to starting the Trileptal she was having a great number of sz > in her > sleep. The benzo drugs did not halt them, they just turned her into > a > dribbling vegetable. So I don't know whether this speech problem is > the > result of those sz/benzos, or the Trileptal. > > I'd be glad of any input! > If this doesn't change by tomorrow I will be contacting her neuro. > Many thanks > Jill > > > > > Quote Link to comment Share on other sites More sharing options...
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