Re: Fw: Brain waves, Medicine, and vitamins

[Guest guest]

DearTricia

is very nice and Iam glad to talk with all of you .At least I

know I'm not alone .Its nice to know someone understands ; Today was a

tired day so my grandaughter and I took a nap while we watched the lady

and the tramp we both fell asleep .I know I will never be seizure free

so I'll just give Thanks to God for my good days and ask him to be with

me durning my hard ones. I take 5 pills in the morning and 2 in the

afternoon and 6 at bedtime ahah . what a pill ha ha. being punny.

Hope all was well with you today

[Guest guest]

Dear Tricia

I'm just learning how to use my daughters web tv .I wrote you

a message.Sorry I didn't finsh with my name.

God Bless

Lou

[Guest guest]

Dear Lou,

No, you are not alone and never will be. I know how you feel. For the

longest time I knew of no one that had epilepsy or admit to it if they did.

I felt kind of alone because of my feelings of fear that no one could

understand unless they were in my shoes. I take 3 pills in the morning, 3 in

the afternoon and 7 at bedtime. I laugh when I see those day of the week

pill containers. I can't fit 1/2 of my pills in there. Walgreen's drug store

does make a good one. You need to refill it daily and there are only 2

compartments, but it comes with an alarm. I need to buy another one. I gave

mine to my father-in-law who takes a lot of pills every day as well. He has

many health problems, poor thing. He was not about to pay $20 for a pill

holder, he needs it though. He and my mother-in-law are both 79 and were

getting confused as to if he had taken his pills. I'm so glad the visit with

your granddaughter is going well. I used to love taking a nap with mine as

well. In Oct. she is going to try and teach me how to quilt, I don't even

know how to hem. We both have our work cut out for us!! HAHA!!

Love,

Tricia

Re: [ ] Fw: Brain waves, Medicine, and vitamins

>DearTricia

>

> is very nice and Iam glad to talk with all of you .At least I

>know I'm not alone .Its nice to know someone understands ; Today was a

>tired day so my grandaughter and I took a nap while we watched the lady

>and the tramp we both fell asleep .I know I will never be seizure free

>so I'll just give Thanks to God for my good days and ask him to be with

>me durning my hard ones. I take 5 pills in the morning and 2 in the

>afternoon and 6 at bedtime ahah . what a pill ha ha. being punny.

>

>

>

>Hope all was well with you today

>

>

>

>

>_

>

>

[Guest guest]

You did just fine Lou, I knew it was you!!

Tricia

Re: [ ] Fw: Brain waves, Medicine, and vitamins

>Dear Tricia

>

> I'm just learning how to use my daughters web tv .I wrote you

>a message.Sorry I didn't finsh with my name.

>

>

>God Bless

> Lou

>

>

>

>

>

>_

>

>

[Guest guest]

Dear Tricia

Hope your day was a good one yesterday . Its 12:49 friday but I

wanted to say hi write back soon . I really like chatting

God Bless

lou

[Guest guest]

Listmates-

Have any of you ever had a very very focal seizure on your TONGUE? I am

seeing this of late in my son? My suspicion is mercury poisining.

(rhythemic in and out of the mouth)

Re: [ ] Fw: Brain waves,

>> >> Medicine, and vitamins

>> >>

>> >>

>> >> >Can you describe your auras? I don't think I " ve

>> >> ever had an aura. The

>> >> only

>> >> >way I can describe my grand mal seizures is one

>> >> minute I'm fine and the

>> >> next

>> >> >minute I'm in the ER with wet pants, a cut in my

>> >> tongue and someone leaning

>> >> >over me asking if I know where I am. Of course,

>> >> I've only had this happen

>> >> 5

>> >> >times in my life, but 3 of them are in the last

>> 6

>> >> months, with 2 on the

>> >> same

>> >> >day. Before this it wasn't normal for me even

>> to

>> >> have 2 in the same

>> >> decade,

>> >> >let alone the same day. For just about all of

>> them

>> >> I've either had

>> >> >bronchitis or had just been getting over

>> bronchitis

>> >> though.

>> >> >

>> >> >Jeanne

>> >> >>>

[Guest guest]

My only experience would be biting my tongue during a seizure, but not a

seizure JUST involving the tongue...is that what youmean?

Jeanne

Re: [ ] Fw: Brain waves,

>>> >> Medicine, and vitamins

>>> >>

>>> >>

>>> >> >Can you describe your auras? I don't think I " ve

>>> >> ever had an aura. The

>>> >> only

>>> >> >way I can describe my grand mal seizures is one

>>> >> minute I'm fine and the

>>> >> next

>>> >> >minute I'm in the ER with wet pants, a cut in my

>>> >> tongue and someone leaning

>>> >> >over me asking if I know where I am. Of course,

>>> >> I've only had this happen

>>> >> 5

>>> >> >times in my life, but 3 of them are in the last

>>> 6

>>> >> months, with 2 on the

>>> >> same

>>> >> >day. Before this it wasn't normal for me even

>>> to

>>> >> have 2 in the same

>>> >> decade,

>>> >> >let alone the same day. For just about all of

>>> them

>>> >> I've either had

>>> >> >bronchitis or had just been getting over

>>> bronchitis

>>> >> though.

>>> >> >

>>> >> >Jeanne

>>> >> >>>

[Guest guest]

you can have a very focal, localized seizure involving

absolutely any part of your body. mercury poisoning?

whatever.

epilepsy causes seizures, seizures can be localized or

generalized, and localized ones can be so focal that

only an eye (or eyelid!!)twitches, or one finger, or

your tongue or whatever. i've had abdominal seizures,

ive had sudden fits of laughter for no reason

whatsoever that turned out to be seizure activity, ive

had coughing fits that were really localized seizures,

ive had one eye shake, ive had my jaw shake, all

kinds...it all depends on where the electrical misfire

in the brain is, and if it spreads or not. the thing

with localized ones is that they very often spread and

what starts as your eyelid twitching, ends with you on

your face on the floor somewhere. blah.

--- jeashe <jeashe@...> wrote:

> My only experience would be biting my tongue during

> a seizure, but not a

> seizure JUST involving the tongue...is that what

> youmean?

>

>

> Jeanne

> Re: [ ] Fw: Brain waves,

> >>> >> Medicine, and vitamins

> >>> >>

> >>> >>

> >>> >> >Can you describe your auras? I don't think

> I " ve

> >>> >> ever had an aura. The

> >>> >> only

> >>> >> >way I can describe my grand mal seizures is

> one

> >>> >> minute I'm fine and the

> >>> >> next

> >>> >> >minute I'm in the ER with wet pants, a cut

> in my

> >>> >> tongue and someone leaning

> >>> >> >over me asking if I know where I am. Of

> course,

> >>> >> I've only had this happen

> >>> >> 5

> >>> >> >times in my life, but 3 of them are in the

> last

> >>> 6

> >>> >> months, with 2 on the

> >>> >> same

> >>> >> >day. Before this it wasn't normal for me

> even

> >>> to

> >>> >> have 2 in the same

> >>> >> decade,

> >>> >> >let alone the same day. For just about all

> of

> >>> them

> >>> >> I've either had

> >>> >> >bronchitis or had just been getting over

> >>> bronchitis

> >>> >> though.

> >>> >> >

> >>> >> >Jeanne

> >>> >> >>>

[Guest guest]

It's lip smacking or " mouthing "

It's actually a very common type of absence seizure.

My son does it also, The nuero says if you can distract him it's not seizure

activity.

[Guest guest]

could also be self-stim

Jeanne

Re: [ ] Fw: Brain waves, Medicine, and vitamins

>It's lip smacking or " mouthing "

>It's actually a very common type of absence seizure.

>My son does it also, The nuero says if you can distract him it's not

seizure

>activity.

>

>

>_

>

>

[Guest guest]

Thanks for this info, I think now I know what is going on, we are moving the

mercury out to other parts of the brain but it is not coming out of the

blood brain barrier as it should, we are trying to work on that at present.

He never had this tongue thing until I started chelating, so now I know I am

moving the crap, but unfortunately, we may have to take this a notch higher?

Kathy

Re: [ ] Fw: Brain waves,

>> >>> >> Medicine, and vitamins

>> >>> >>

>> >>> >>

>> >>> >> >Can you describe your auras? I don't think

>> I " ve

>> >>> >> ever had an aura. The

>> >>> >> only

>> >>> >> >way I can describe my grand mal seizures is

>> one

>> >>> >> minute I'm fine and the

>> >>> >> next

>> >>> >> >minute I'm in the ER with wet pants, a cut

>> in my

>> >>> >> tongue and someone leaning

>> >>> >> >over me asking if I know where I am. Of

>> course,

>> >>> >> I've only had this happen

>> >>> >> 5

>> >>> >> >times in my life, but 3 of them are in the

>> last

>> >>> 6

>> >>> >> months, with 2 on the

>> >>> >> same

>> >>> >> >day. Before this it wasn't normal for me

>> even

>> >>> to

>> >>> >> have 2 in the same

>> >>> >> decade,

>> >>> >> >let alone the same day. For just about all

>> of

>> >>> them

>> >>> >> I've either had

>> >>> >> >bronchitis or had just been getting over

>> >>> bronchitis

>> >>> >> though.

>> >>> >> >

>> >>> >> >Jeanne

>> >>> >> >>>

[Guest guest]

im just not connecting on why you think mercury is

whats doing all this....i mean i do understand that it

causes brain injury, but wouldnt it then be the injury

thats causing the issues?

--- Jim Blanco <kblanco@...> wrote:

>

> Thanks for this info, I think now I know what is

> going on, we are moving the

> mercury out to other parts of the brain but it is

> not coming out of the

> blood brain barrier as it should, we are trying to

> work on that at present.

> He never had this tongue thing until I started

> chelating, so now I know I am

> moving the crap, but unfortunately, we may have to

> take this a notch higher?

> Kathy

> Re: [ ] Fw: Brain

> waves,

> >> >>> >> Medicine, and vitamins

> >> >>> >>

> >> >>> >>

> >> >>> >> >Can you describe your auras? I don't

> think

> >> I " ve

> >> >>> >> ever had an aura. The

> >> >>> >> only

> >> >>> >> >way I can describe my grand mal seizures

> is

> >> one

> >> >>> >> minute I'm fine and the

> >> >>> >> next

> >> >>> >> >minute I'm in the ER with wet pants, a

> cut

> >> in my

> >> >>> >> tongue and someone leaning

> >> >>> >> >over me asking if I know where I am. Of

> >> course,

> >> >>> >> I've only had this happen

> >> >>> >> 5

> >> >>> >> >times in my life, but 3 of them are in

> the

> >> last

> >> >>> 6

> >> >>> >> months, with 2 on the

> >> >>> >> same

> >> >>> >> >day. Before this it wasn't normal for me

> >> even

> >> >>> to

> >> >>> >> have 2 in the same

> >> >>> >> decade,

> >> >>> >> >let alone the same day. For just about

> all

> >> of

> >> >>> them

> >> >>> >> I've either had

> >> >>> >> >bronchitis or had just been getting over

> >> >>> bronchitis

> >> >>> >> though.

> >> >>> >> >

> >> >>> >> >Jeanne

> >> >>> >> >>>

[Guest guest]

Hi Lou!!

In your message you said it was 12:49 (I'm assuming you meant p.m.). However

as I am replying to you it is 4:00 AM. I've never had insomnia before, but I

sure feel for the people who do. Anyway I'm sure this message will be short,

but if you see many typo's, you'll know why(:

I was reading a little while ago. I thought I would come and answer some

e-mail since that was apparently not doing the trick. After this I will read

a little more and maybe make some herbal tea. I hate to miss church, but if

I go to sleep in the next hour that will only give me 5 hrs., not enough for

me. I may stay in and catch church on t.v..

I went to the Dr. today for my well woman exam (that's always fun, huh?).

Anyway she wants to increase my Effexor that I take for anxiety due to

seizures and mild depression. She thinks my depression may be worse due to

the fact that my husbands working a lot more, I cannot drive without a car,

cannot afford a car at this time and friends are all busy with family, work

or both. I'm not sure how I feel about the increase but my neurologist will

make that decision anyway. Depression is no fun, but as sad as it sounds I

think I would choose that over seizures as long as the depression was just

mild. I just hate to tamper with my meds now that I am finally allowed to

drive again.

Write back soon. I love hearing from you!!

Tricia

Re: [ ] Fw: Brain waves, Medicine, and vitamins

>Dear Tricia

>

> Hope your day was a good one yesterday . Its 12:49 friday but I

>wanted to say hi write back soon . I really like chatting

>

>God Bless

> lou

>

>

>

>

>_

>

>

[Guest guest]

I had a focal seizure that only involved my lip curling up. It wasn't funny

at the time, but my husband said had it not been for his concern of me and

his knowledge of my seizures, he would have thought I was doing a perfect

impersonation of Elvis Presley, the King of Rock N Roll.

Thank you very much!!!

Tricia (LOL!!!!)

Re: [ ] Fw: Brain waves,

>> >>> >> Medicine, and vitamins

>> >>> >>

>> >>> >>

>> >>> >> >Can you describe your auras? I don't think

>> I " ve

>> >>> >> ever had an aura. The

>> >>> >> only

>> >>> >> >way I can describe my grand mal seizures is

>> one

>> >>> >> minute I'm fine and the

>> >>> >> next

>> >>> >> >minute I'm in the ER with wet pants, a cut

>> in my

>> >>> >> tongue and someone leaning

>> >>> >> >over me asking if I know where I am. Of

>> course,

>> >>> >> I've only had this happen

>> >>> >> 5

>> >>> >> >times in my life, but 3 of them are in the

>> last

>> >>> 6

>> >>> >> months, with 2 on the

>> >>> >> same

>> >>> >> >day. Before this it wasn't normal for me

>> even

>> >>> to

>> >>> >> have 2 in the same

>> >>> >> decade,

>> >>> >> >let alone the same day. For just about all

>> of

>> >>> them

>> >>> >> I've either had

>> >>> >> >bronchitis or had just been getting over

>> >>> bronchitis

>> >>> >> though.

>> >>> >> >

>> >>> >> >Jeanne

>> >>> >> >>>

[Guest guest]

, I will send you something....

Kathy

Re: [ ] Fw: Brain

>> waves,

>> >> >>> >> Medicine, and vitamins

>> >> >>> >>

>> >> >>> >>

>> >> >>> >> >Can you describe your auras? I don't

>> think

>> >> I " ve

>> >> >>> >> ever had an aura. The

>> >> >>> >> only

>> >> >>> >> >way I can describe my grand mal seizures

>> is

>> >> one

>> >> >>> >> minute I'm fine and the

>> >> >>> >> next

>> >> >>> >> >minute I'm in the ER with wet pants, a

>> cut

>> >> in my

>> >> >>> >> tongue and someone leaning

>> >> >>> >> >over me asking if I know where I am. Of

>> >> course,

>> >> >>> >> I've only had this happen

>> >> >>> >> 5

>> >> >>> >> >times in my life, but 3 of them are in

>> the

>> >> last

>> >> >>> 6

>> >> >>> >> months, with 2 on the

>> >> >>> >> same

>> >> >>> >> >day. Before this it wasn't normal for me

>> >> even

>> >> >>> to

>> >> >>> >> have 2 in the same

>> >> >>> >> decade,

>> >> >>> >> >let alone the same day. For just about

>> all

>> >> of

>> >> >>> them

>> >> >>> >> I've either had

>> >> >>> >> >bronchitis or had just been getting over

>> >> >>> bronchitis

>> >> >>> >> though.

>> >> >>> >> >

>> >> >>> >> >Jeanne

>> >> >>> >> >>>

[Guest guest]

autismandmercury4400

(http://www.geo-mark.com/docs/autismandmercury4400.rtf)

Go to this page and read the chart graphs

Kathy

Re: [ ] Fw: Brain

>> waves,

>> >> >>> >> Medicine, and vitamins

>> >> >>> >>

>> >> >>> >>

>> >> >>> >> >Can you describe your auras? I don't

>> think

>> >> I " ve

>> >> >>> >> ever had an aura. The

>> >> >>> >> only

>> >> >>> >> >way I can describe my grand mal seizures

>> is

>> >> one

>> >> >>> >> minute I'm fine and the

>> >> >>> >> next

>> >> >>> >> >minute I'm in the ER with wet pants, a

>> cut

>> >> in my

>> >> >>> >> tongue and someone leaning

>> >> >>> >> >over me asking if I know where I am. Of

>> >> course,

>> >> >>> >> I've only had this happen

>> >> >>> >> 5

>> >> >>> >> >times in my life, but 3 of them are in

>> the

>> >> last

>> >> >>> 6

>> >> >>> >> months, with 2 on the

>> >> >>> >> same

>> >> >>> >> >day. Before this it wasn't normal for me

>> >> even

>> >> >>> to

>> >> >>> >> have 2 in the same

>> >> >>> >> decade,

>> >> >>> >> >let alone the same day. For just about

>> all

>> >> of

>> >> >>> them

>> >> >>> >> I've either had

>> >> >>> >> >bronchitis or had just been getting over

>> >> >>> bronchitis

>> >> >>> >> though.

>> >> >>> >> >

>> >> >>> >> >Jeanne

>> >> >>> >> >>>

[Guest guest]

I'm catching up on some old mail. Just wanted to add some input here. I am

able to get some pharmacies to package medications for my clients in blister

packs. It's much better than those pill boxes and the package comes marked

with what day of the week, am, noon, pm...etc. There aren't too many

pharmacies that do it (around here the only two are small privately owned

pharmacies, not the big ones like Eckard, rite aid, etc.) but it's

definately worth asking. the blister packs then hold one month's supply

Jeanne

Re: [ ] Fw: Brain waves, Medicine, and vitamins

>

>

>>DearTricia

>>

>> is very nice and Iam glad to talk with all of you .At least I

>>know I'm not alone .Its nice to know someone understands ; Today was a

>>tired day so my grandaughter and I took a nap while we watched the lady

>>and the tramp we both fell asleep .I know I will never be seizure free

>>so I'll just give Thanks to God for my good days and ask him to be with

>>me durning my hard ones. I take 5 pills in the morning and 2 in the

>>afternoon and 6 at bedtime ahah . what a pill ha ha. being punny.

>>

>>

>>

>>Hope all was well with you today

>>

>>

>>

>>

>>_

>>

>>

[Guest guest]

--- Tricia Strain <callie2@...> wrote:

>I just hate to tamper with my meds now that I

> am finally allowed to

> drive again.

>

how long do you have to be seizure free to be able to

drive? do you have to be?

i've never really gotten into the whole driving

thing...i was told a long time ago that i would never

be able to, and i never followed that up. it seemed

pretty useless to me to waste time figuring out the

rules about epilepsy and driving, when my

consciousness blinks on and off like a christmas tree

light. i dont even dare ride a bike anymore, after a

few too many incidents. i'm curious now though...what

do you have to do to be allowed to drive?

=====

" ...old enough to know what's right,and young enough not to choose it. " Rush

__________________________________________________

[Guest guest]

would have liked to...but the page tried to save

itself to my hard drive. i asked it not to (ie: open

from current location as opposed to save to disk) and

it tried to download as a doc file...and well when

things begin to spontaneously download, i'm not going

there.

--- Jim Blanco <kblanco@...> wrote:

> autismandmercury4400

>

(http://www.geo-mark.com/docs/autismandmercury4400.rtf)

> Go to this page and read the chart graphs

> Kathy

> Re: [ ] Fw: Brain

> >> waves,

> >> >> >>> >> Medicine, and vitamins

> >> >> >>> >>

> >> >> >>> >>

> >> >> >>> >> >Can you describe your auras? I don't

> >> think

> >> >> I " ve

> >> >> >>> >> ever had an aura. The

> >> >> >>> >> only

> >> >> >>> >> >way I can describe my grand mal

> seizures

> >> is

> >> >> one

> >> >> >>> >> minute I'm fine and the

> >> >> >>> >> next

> >> >> >>> >> >minute I'm in the ER with wet pants, a

> >> cut

> >> >> in my

> >> >> >>> >> tongue and someone leaning

> >> >> >>> >> >over me asking if I know where I am.

> Of

> >> >> course,

> >> >> >>> >> I've only had this happen

> >> >> >>> >> 5

> >> >> >>> >> >times in my life, but 3 of them are in

> >> the

> >> >> last

> >> >> >>> 6

> >> >> >>> >> months, with 2 on the

> >> >> >>> >> same

> >> >> >>> >> >day. Before this it wasn't normal for

> me

> >> >> even

> >> >> >>> to

> >> >> >>> >> have 2 in the same

> >> >> >>> >> decade,

> >> >> >>> >> >let alone the same day. For just

> about

> >> all

> >> >> of

> >> >> >>> them

> >> >> >>> >> I've either had

> >> >> >>> >> >bronchitis or had just been getting

> over

> >> >> >>> bronchitis

> >> >> >>> >> though.

> >> >> >>> >> >

> >> >> >>> >> >Jeanne

> >> >> >>> >> >>>

[Guest guest]

Is Effexor an antidepressant? just curious because most antidepressents are

known to lower seizure threshold. There may be some other seizure

medications that can fill a dual role.

Jeanne

Re: [ ] Fw: Brain waves, Medicine, and vitamins

>

>

>>Dear Tricia

>>

>> Hope your day was a good one yesterday . Its 12:49 friday but I

>>wanted to say hi write back soon . I really like chatting

>>

>>God Bless

>> lou

>>

>>

>>

>>

>>_

>>

>>

[Guest guest]

The rules for driving are different in every state. For example, in NJ

(where I grew up)you have to be seizure free for at least a year....in PA

(where I live now) it's 6 months. The state gives you a form for the

neurologist to fill out.

Jeanne

Re: [ ] Fw: Brain waves, Medicine, and vitamins

>

>--- Tricia Strain <callie2@...> wrote:

>>I just hate to tamper with my meds now that I

>> am finally allowed to

>> drive again.

>>

>

>how long do you have to be seizure free to be able to

>drive? do you have to be?

>

>i've never really gotten into the whole driving

>thing...i was told a long time ago that i would never

>be able to, and i never followed that up. it seemed

>pretty useless to me to waste time figuring out the

>rules about epilepsy and driving, when my

>consciousness blinks on and off like a christmas tree

>light. i dont even dare ride a bike anymore, after a

>few too many incidents. i'm curious now though...what

>do you have to do to be allowed to drive?

>

>=====

>

>

> " ...old enough to know what's right,and young enough not to choose it. "

Rush

>

>__________________________________________________

>

[Guest guest]

I will get a copy and paste version

Kathy

Re: [ ] Fw: Brain

>> >> waves,

>> >> >> >>> >> Medicine, and vitamins

>> >> >> >>> >>

>> >> >> >>> >>

>> >> >> >>> >> >Can you describe your auras? I don't

>> >> think

>> >> >> I " ve

>> >> >> >>> >> ever had an aura. The

>> >> >> >>> >> only

>> >> >> >>> >> >way I can describe my grand mal

>> seizures

>> >> is

>> >> >> one

>> >> >> >>> >> minute I'm fine and the

>> >> >> >>> >> next

>> >> >> >>> >> >minute I'm in the ER with wet pants, a

>> >> cut

>> >> >> in my

>> >> >> >>> >> tongue and someone leaning

>> >> >> >>> >> >over me asking if I know where I am.

>> Of

>> >> >> course,

>> >> >> >>> >> I've only had this happen

>> >> >> >>> >> 5

>> >> >> >>> >> >times in my life, but 3 of them are in

>> >> the

>> >> >> last

>> >> >> >>> 6

>> >> >> >>> >> months, with 2 on the

>> >> >> >>> >> same

>> >> >> >>> >> >day. Before this it wasn't normal for

>> me

>> >> >> even

>> >> >> >>> to

>> >> >> >>> >> have 2 in the same

>> >> >> >>> >> decade,

>> >> >> >>> >> >let alone the same day. For just

>> about

>> >> all

>> >> >> of

>> >> >> >>> them

>> >> >> >>> >> I've either had

>> >> >> >>> >> >bronchitis or had just been getting

>> over

>> >> >> >>> bronchitis

>> >> >> >>> >> though.

>> >> >> >>> >> >

>> >> >> >>> >> >Jeanne

>> >> >> >>> >> >>>

[Guest guest]

Dear Jeanne,

As far as I know Effexor is an anti-anxiety, but can also be used for

depression. I was on Prozac and had a grand-mal seizure and the Dr. took me

off of it immediately. I really don't think he will approve the increase.

I'm on the minimum dosage now, 75 mg, but you can be on as high as 375 mg.

He may agree to raise it a little. I think my depression derives from my

environment. My husband works 14 hrs. a day. My sister works and is always

busy with her family. The few friends I have are consumed with work or

family. I know I have to find happiness in myself and not others and I'm

working on that. I think it's just been a hard adjustment losing my sister

as my best friend. First she got married and she pretty much divided her

time between us (her husband and me). Then she had a baby (now 3) and add on

a bunch of couples with kids and that's it, there is nothing left of her. We

used to be so close, but if I get a phone call or a visit now I feel so

honored. She only lives 5 minutes away, but she might as well live in

another state. Anyway, that may sound so pathetic, but I miss her so much.

She knows how I feel. I have told her, but there is nothing she can do to

change it so I'm learning to accept it.

Sorry about all this, I know it had nothing to do really with your original

question. I just thought I would let you know what was behind the decision

to increase the medication. There are so many medications that lower the

seizure threshold. We have to be careful. Thanks so much for your concern!!

I hope you have a great seizure-free day!!

Love,

Tricia

Re: [ ] Fw: Brain waves, Medicine, and vitamins

>Is Effexor an antidepressant? just curious because most antidepressents

are

>known to lower seizure threshold. There may be some other seizure

>medications that can fill a dual role.

>

>Jeanne

>>>

>>>

[Guest guest]

chelating is the removal of heavy metals from the

body, i believe.( i know my cousin had high lead

levels and was chelated) and doesnt have anything to

do with epilepsy directly.

--- Tricia Strain <callie2@...> wrote:

> O.K., I'm really in the dark here, I've had epilepsy

> for 15 yrs and have no

> idea what chelating is. Can someone fill me in?

>

> Thanks,

>

> Tricia

> Re: [ ] Fw: Brain

> waves,

> >>>> >>> >> Medicine, and vitamins

> >>>> >>> >>

> >>>> >>> >>

> >>>> >>> >> >Can you describe your auras? I don't

> think

> >>>> I " ve

> >>>> >>> >> ever had an aura. The

> >>>> >>> >> only

> >>>> >>> >> >way I can describe my grand mal

> seizures is

> >>>> one

> >>>> >>> >> minute I'm fine and the

> >>>> >>> >> next

> >>>> >>> >> >minute I'm in the ER with wet pants, a

> cut

> >>>> in my

> >>>> >>> >> tongue and someone leaning

> >>>> >>> >> >over me asking if I know where I am.

> Of

> >>>> course,

> >>>> >>> >> I've only had this happen

> >>>> >>> >> 5

> >>>> >>> >> >times in my life, but 3 of them are in

> the

> >>>> last

> >>>> >>> 6

> >>>> >>> >> months, with 2 on the

> >>>> >>> >> same

> >>>> >>> >> >day. Before this it wasn't normal for

> me

> >>>> even

> >>>> >>> to

> >>>> >>> >> have 2 in the same

> >>>> >>> >> decade,

> >>>> >>> >> >let alone the same day. For just about

> all

> >>>> of

> >>>> >>> them

> >>>> >>> >> I've either had

> >>>> >>> >> >bronchitis or had just been getting

> over

> >>>> >>> bronchitis

> >>>> >>> >> though.

> >>>> >>> >> >

> >>>> >>> >> >Jeanne

> >>>> >>> >> >>>

[Guest guest]

its hard to be careful about drugs, too. i have so

many doctors and they seem to just prescribe with no

care in the world for things outside their area.

and when you tell them they nod, make some neutral

noise, and keep on writing out the scrip.

for a long time i was on a lot of antianxiety,

antidepressant, antipsychotic drugs..all of which had

seizures as a side effect. to compensate my seizure

meds were increased.

hello, daze anyone?

--- Tricia Strain <callie2@...> wrote:

> Dear Jeanne,

>

> As far as I know Effexor is an anti-anxiety, but can

> also be used for

> depression. I was on Prozac and had a grand-mal

> seizure and the Dr. took me

> off of it immediately. I really don't think he will

> approve the increase.

> I'm on the minimum dosage now, 75 mg, but you can be

> on as high as 375 mg.

> He may agree to raise it a little. I think my

> depression derives from my

> environment. My husband works 14 hrs. a day. My

> sister works and is always

> busy with her family. The few friends I have are

> consumed with work or

> family. I know I have to find happiness in myself

> and not others and I'm

> working on that. I think it's just been a hard

> adjustment losing my sister

> as my best friend. First she got married and she

> pretty much divided her

> time between us (her husband and me). Then she had a

> baby (now 3) and add on

> a bunch of couples with kids and that's it, there is

> nothing left of her. We

> used to be so close, but if I get a phone call or a

> visit now I feel so

> honored. She only lives 5 minutes away, but she

> might as well live in

> another state. Anyway, that may sound so pathetic,

> but I miss her so much.

> She knows how I feel. I have told her, but there is

> nothing she can do to

> change it so I'm learning to accept it.

>

> Sorry about all this, I know it had nothing to do

> really with your original

> question. I just thought I would let you know what

> was behind the decision

> to increase the medication. There are so many

> medications that lower the

> seizure threshold. We have to be careful. Thanks so

> much for your concern!!

> I hope you have a great seizure-free day!!

>

> Love,

>

> Tricia

> Re: [ ] Fw: Brain waves,

> Medicine, and vitamins

>

>

> >Is Effexor an antidepressant? just curious because

> most antidepressents

> are

> >known to lower seizure threshold. There may be

> some other seizure

> >medications that can fill a dual role.

> >

> >Jeanne

>

> >>>

> >>>