Guest guest Posted November 10, 1999 Report Share Posted November 10, 1999 Hello All, what is going on I as usual have been having problems with the puter and am catching up on 552 e-mails. Raven BU007@... wrote: In a message dated 1/7/00 3:24:48 AM !!!First Boot!!!, DearEsther@... writes: << We can also send a cyber-petition to the Thyroid Society and Thyroid Foundation, written by or someone else, and signed by as many of us as possible. I agree it should be written so that it represents our intelligence in this matter, rather than sounding like we're just a bit of radical weirdos. >> Hi Esther and everyone, I think this is a good idea. By starting at the top of the thyroid industry, maybe we can start getting people to think differently and stop this barbaric practice. Let me think about this a bit and I'll come up with something. eGroups.com Home: hyperthyroidism www. - Simplifying group communications -- MZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 Dear Esther, What great information--I have printed it out. Maybe we should orchestrate some kind of letter-writing or petition campaign. I hesitate to ask to take on even more, but he probably has the most impressive background, and most extensive knowledge--although others on this board, such as those who have written books, and, I think, some who are doctors, have excellent credentials as well. We should perhaps have a form letter that we all can print out, sign and send, written by one of us who can write w/medical/technical language. What do you all think of this idea? AntJoan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2000 Report Share Posted January 6, 2000 We can also send a cyber-petition to the Thyroid Society and Thyroid Foundation, written by or someone else, and signed by as many of us as possible. I agree it should be written so that it represents our intelligence in this matter, rather than sounding like we're just a bit of radical weirdos. I honor my body, including my thyroid and will not willfully let anyone destroy any part of it. Period! I don't think that's radical, I think that's intelligent and sensible. E. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2000 Report Share Posted January 7, 2000 In a message dated 1/7/00 3:24:48 AM !!!First Boot!!!, DearEsther@... writes: << We can also send a cyber-petition to the Thyroid Society and Thyroid Foundation, written by or someone else, and signed by as many of us as possible. I agree it should be written so that it represents our intelligence in this matter, rather than sounding like we're just a bit of radical weirdos. >> Hi Esther and everyone, I think this is a good idea. By starting at the top of the thyroid industry, maybe we can start getting people to think differently and stop this barbaric practice. Let me think about this a bit and I'll come up with something. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2000 Report Share Posted January 7, 2000 Hey fellow listers, I'm glad that Shomon wants to do a feature article ar her website, one of the most informative sites for thyroid patients. I've already emailed her, and would like to ask those concerned by RAI to do the same, and join efforts. Yes, it is a very good idea to start sending letters to all thyroid associations, but I would suggest to get organized first. This is why I have founded " Atomic Women " club http://clubs./clubs/atomicwomen so that we could start sticking together, sharing stories and problems caused by RAI treatment, so that a massive sending can be done, and not only one dozen or two of individuals writing, what might happen they wouldn't be taken into account... In addition, this sharing would provide with many data to be quoted in our mailing to doctors and associations. I'm a RAI'ed gravesian -to my eternal regret- RAI has contributed to the development of my opthalmopathy. I went through two walls, both eyes, decompression surgery. No fun!. So I'm not very fond of RAI, and there is no doctor in the world who can convince me that RAI does some good as a treatment for Graves' disease. Many more data can be quoted. How RAI affects other organs. How dose is calculated (???), according to the " estimated " weight of the gland. How hypo-stage is even desirable, as many doctors suggest. How AMA does recommend it, mainly because it is the cheapest and " easy to take " , as it is one only dose. The miss to say that we should be obliged to take " daily pill doses " for the rest of our lives... Etc. Let's stop this mutilation to our healthy gland. Graves' is a functional problem, and the thyroid itself has nothig wrong. Let's be more pro-active crying out loud for more research. This campaign, as Elaine said, has in some way started a couple of months ago, when as few as two persons ('Redhen' and me), started a mailing list called atomicwomenonelist and a site called " International League of Atomic Women " . You might want to visit this (evolving) page at: http://members.tripod.com/~LittleRed_2/index.htm Esther, we are grown up people, and sage people too. I agree with you and also wouldn't like to be taken as a bit of radical weirdos. Kind regards. Quote Link to comment Share on other sites More sharing options...
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