Guest guest Posted May 13, 2009 Report Share Posted May 13, 2009 Dr. Aisen, We corresponded a few months ago, when you quoted from a nonpublished HBOT-for-cp " study " headed by UCLA's Oppenheim, an orthopedic surgeon, who's stated that " cerebral palsy is big business. " The study was organized and financed by UCP's Murray Goldstein (see " Keeping the Palsy in Cerebral Palsy " at http://ihausa.org/newsletters/newsletter/pdf/2004_Oct_Nov.pdf) .. The monies from this study originated from contributions made to UCP from the Volcker Foundation. It's now come to my attention that before, during, and after this time period your predecessor, Goldstein, was a member of the Board of Directors of WEMOVE (http://www.wemove.org), whereas WEMOVE was created/formed by Allergan--the manufacturer of Botox. See page 26 of the 2006 Form 990 at http://www.guidestar.org/FinDocuments/2007/133/847/2007-133847563-03b54e5f-9.pdf This is a clear and direct conflict of interest for Goldstein. When cerebral palsy children get hyperbaric oxygen therapy their spasticity is relieved and they have no need of Botox. The FDA has confirmed nearly 60 deaths from Botox, including about a dozen deaths of cerebral palsy children from off-label Botox. This resulted in the FDA mandating a change in labeling of Botox, surely unprecedented since Botox for CP is already off-label. See http://www.fda.gov/cder/drug/early_comm/botulinum_CP_response.pdf No child has died from off-label HBOT. A few questions. 1. What other conflicts of interest did Goldstein have at UCP? 2. Do you have any conflicts of interest in your position at UCP? 3. Will you please provide me a copy of the UCLA HBOT " study " financed by Goldstein/UCP. Thank you, Freels 2948 Windfield Circle Tucker, GA 30084-6714 770-491-6776 (phone) 404-725-4520 (cell) 815-366-7962 (fax) mailto:david@... fearlessparents/ http://www. .com http://www.davidfreels.com Quote Link to comment Share on other sites More sharing options...
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