Guest guest Posted February 3, 2009 Report Share Posted February 3, 2009 Time to bring sunshine to the UHMS KP Stoller, MD, FACHM President, International Hyperbaric Medical Assoc Medical Director, Hyperbaric Medical Center of New Mexico www.hbotnm.com ____________________________________________________________ FTD.com Shop now and save $15 on Flowers and Gifts from FTD! http://thirdpartyoffers.netzero.net/TGL2241/fc/u4MuSdTxakFxfTgMXXvpZrmHJq0sMJZaW\ xE8URBZe9887pw6opiRZ/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2009 Report Share Posted February 3, 2009 I am fighting in Michigan for HBOT for my husband who was in an automobile accident 13 years ago which left him with a TBI. We drove 51/2 hours away to receive HBOT treatments in St. Clair Shores, MI. in January of 2008. I needed to see if he would tolerate the treatments, check out the clinic, doctors and accomodations. Our BC/BS approved the treatment. I was shocked but excited. I received a call post treatment from the Clinic's owner stating that BC/BS had called him saying that they were not going to cover the treatments in the future but would extend the benefits for 2 months. I set up as many treatments as possible so that my insurance would cover as many treatments at possible in the amount of time they said they would extend the benefits. I got 2 weeks off work, arranged for accomodations and health aid workers to help me and scheduled as many treatments as possible. Two days before we left, BC/BS informed the facility that they would not be paying...they recanted. We went anyway, I paid out of pocket. My husband, for the first time in 13 years, after only 12 treatments, is able to lift his right and left leg (with much effort and encouragement) can focus and is more alert, acknowledging those around him. He turns his head when asked and has improved his swallowing so much that he now enjoys tasting foods through a net bag and actually swallowing puddings, ice cream and such. He can lift his right shoulder and move his right arm when prompted. My husband could do none of these things for 13 years prior to HBOT. I always knew he was in there, many thought he was in a vegetatiive state. HBOT helped with only 12 treatments and I am anxious to get back to do a round of 40 as suggested. That will be happening soon but I have been fighting with the auto insurance over much more than just HBOT treatments and it is a difficult journey. I am trying to sue for treatments as they are helping and improving his condition. It is always a fight...my lawyers don't seem to know much on how to fight this, my husband's doctors are supportive but not experts such as Dr. Harch and don't have all the evidence and documentation. ANY help is appreciated and HBOT is our only hope for more improvement. My husband could of given up, he hasn't and I'm very proud of him. He deserves the opportunity to improve and get better...especially when it is such an non-invasive, inexpensive, proven treatment. Yes, please persuade this evidence to be exposed...How could ANYONE in good consciousness NOT want to reveal it and help the world of people who see it as their only hope. Thank you for my husband and thank you for all the others out there who can't speak it themselves. Greenwood medicaid@...: dfreels@...: Tue, 3 Feb 2009 20:17:03 -0500Subject: [ ] New evidence of HBOT efficacy. Two weeks ago I was informed that a person within the off-label HBOT community is holding documentation from the Undersea and Hyperbaric Medical Society (UHMS) wherein the UHMS leadership acknowledges that HBOT corrects brain-injury and brain-injured people--adults and children--are improved through hyperbaric therapy. However, the documentation further states the UHMS believes the correction/amelioration is not enough to move brain-injured people from a state of dependence to a state of independence--therefore the UHMS will not " approve " brain-injury as an accepted indication for HBOT.The UHMS justifies this position based upon a cost/benefit analysis--albeit at UHMS prices which are typically 1000% higher than the prices charged at freestanding, non-UHMS facilities.The relevance to the parents is this: Federal law mandates providing whatever is " necessary to correct or ameliorate " and does not require a minimum level of correction and/or amelioration. There certainly is no asterisk at the end of Paragraph 5 that says *unless the UHMS says " No. " If this documentation of UHMS recognition of HBOT improvement were available to parents, HBOT would immediately and universally be recognized. This would inevitably lead to near-immediate investment in HBOT research in the tens of millions of dollars--if not even more. Given Harch's data on the effect of HBOT in induced-TBI in rat brain (see http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & itool=EntrezSystem2.PEn\ trez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum), i.e., the growth of new tissue, it's very possible a cure for brain-injury could be discovered if the research investment were made.Obviously, this is incredibly frustrating. I have known of this document's existence for a couple of weeks. I contacted UHMS leadership and have not heard any reply despite four requests for information--which, to me, means the UHMS does have some heretofore undisclosed acknowledgement and/or documentation.I never withhold relevant information, but it's my understanding this person refuses to release this information--despite the fact they have a brain-injured loved one and despite the fact this person has claimed very, very publicly for years to be an advocate for making HBOT for brain-injury universally available. This person now has the power to make that dream a reality for not just hundreds, not just thousands, but for millions of people around the world--and for all time. Yet this individual will not release this documentation.I am raising this issue now because there have been many, many good people who have been in the trenches fighting this fight in courtrooms and hearings, and now yet another Mom is stepping into the Arizona ring to do battle.A couple of months ago I had the privilege to sit in on a telephone hearing, attempting to help Meleah Corner in her fight with North Carolina Medicaid. Mrs. Corner has not one, not two, but three autistic children.Three. Three. Can you imagine?And Mrs. Corner is visually impaired. She's blind. Can you imagine how difficult just one day in her life is? Multiply that times everyday. Do you realize how much better her life and the life of her children would be if this UHMS document were released?I am thinking of releasing this person's name publicly in the hope that other people (by the hundreds) will pressure this person to release this document.Thoughts? Freelshttp://www.davidfreels.comdaviddavidfreels _________________________________________________________________ Windows Live™ Hotmail®…more than just e-mail. http://windowslive.com/howitworks?ocid=TXT_TAGLM_WL_t2_hm_justgotbetter_howitwor\ ks_012009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2009 Report Share Posted February 3, 2009 I agree, . It's time! From: KP Stoller, MD <hbotnm@...> Subject: Re: [ ] New evidence of HBOT efficacy. medicaid Date: Tuesday, February 3, 2009, 8:24 PM Time to bring sunshine to the UHMS KP Stoller, MD, FACHM President, International Hyperbaric Medical Assoc Medical Director, Hyperbaric Medical Center of New Mexico www.hbotnm.com ____________ _________ _________ _________ _________ _________ _ FTD.com Shop now and save $15 on Flowers and Gifts from FTD! http://thirdpartyof fers.netzero. net/TGL2241/ fc/u4MuSdTxakFxf TgMXXvpZrmHJq0sM JZaWxE8URBZe9887 pw6opiRZ/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 , Release the name! Anyone who has info that could help our children but doesn¹t share it deserves our full attention. To be willing to keep important info hidden certainly requires someone to have no compassion, empathy or morals. We will always have these types in society but we will be far safer if we all know exactly who they are! Janet On 2/3/09 8:17 PM, " Freels " <dfreels@...> wrote: > > > > Two weeks ago I was informed that a person within the off-label HBOT community > is holding documentation from the Undersea and Hyperbaric Medical Society > (UHMS) wherein the UHMS leadership acknowledges that HBOT corrects > brain-injury and brain-injured people--adults and children--are improved > through hyperbaric therapy. However, the documentation further states the UHMS > believes the correction/amelioration is not enough to move brain-injured > people from a state of dependence to a state of independence--therefore the > UHMS will not " approve " brain-injury as an accepted indication for HBOT. > > The UHMS justifies this position based upon a cost/benefit analysis--albeit at > UHMS prices which are typically 1000% higher than the prices charged at > freestanding, non-UHMS facilities. > > The relevance to the parents is this: Federal law mandates > providing whatever is " necessary to correct or ameliorate " and does not > require a minimum level of correction and/or amelioration. There certainly is > no asterisk at the end of Paragraph 5 that says *unless the UHMS says " No. " > > If this documentation of UHMS recognition of HBOT improvement were available > to parents, HBOT would immediately and universally be > recognized. This would inevitably lead to near-immediate investment in HBOT > research in the tens of millions of dollars--if not even more. Given > Harch's data on the effect of HBOT in induced-TBI in rat brain (see > http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & itool=EntrezSystem2.P > Entrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum > <http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & amp;itool=EntrezSyst > em2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum> ), i.e., the growth of > new tissue, it's very possible a cure for brain-injury could be discovered if > the research investment were made. > > Obviously, this is incredibly frustrating. I have known of this document's > existence for a couple of weeks. I contacted UHMS leadership and have not > heard any reply despite four requests for information--which, to me, means the > UHMS does have some heretofore undisclosed acknowledgement and/or > documentation. > > I never withhold relevant information, but it's my understanding this person > refuses to release this information--despite the fact they have a > brain-injured loved one and despite the fact this person has claimed very, > very publicly for years to be an advocate for making HBOT for brain-injury > universally available. This person now has the power to make that dream a > reality for not just hundreds, not just thousands, but for millions of people > around the world--and for all time. Yet this individual will not release this > documentation. > > I am raising this issue now because there have been many, many good people who > have been in the trenches fighting this fight in courtrooms and hearings, and > now yet another Mom is stepping into the Arizona ring to do battle. > > A couple of months ago I had the privilege to sit in on a telephone hearing, > attempting to help Meleah Corner in her fight with North Carolina Medicaid. > Mrs. Corner has not one, not two, but three autistic children. > > Three. Three. Can you imagine? > > And Mrs. Corner is visually impaired. She's blind. Can you imagine how > difficult just one day in her life is? Multiply that times everyday. Do you > realize how much better her life and the life of her children would be if this > UHMS document were released? > > I am thinking of releasing this person's name publicly in the hope that other > people (by the hundreds) will pressure this person to release this document. > > Thoughts? > > Freels > http://www.davidfreels.com > david@... <mailto:david%40davidfreels.com> > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 , Does this person have the initials A. C.? On Wed, Feb 4, 2009 at 8:43 AM, janet presson < janet.presson@...> wrote: > , > > Release the name! Anyone who has info that could help our children but > doesn¹t share it deserves our full attention. To be willing to keep > important info hidden certainly requires someone to have no compassion, > empathy or morals. We will always have these types in society but we will > be far safer if we all know exactly who they are! > > Janet > > On 2/3/09 8:17 PM, " Freels " <dfreels@...<dfreels%40mindspring.com>> > wrote: > > > > > > > > > Two weeks ago I was informed that a person within the off-label HBOT > community > > is holding documentation from the Undersea and Hyperbaric Medical Society > > (UHMS) wherein the UHMS leadership acknowledges that HBOT corrects > > brain-injury and brain-injured people--adults and children--are improved > > through hyperbaric therapy. However, the documentation further states the > UHMS > > believes the correction/amelioration is not enough to move brain-injured > > people from a state of dependence to a state of independence--therefore > the > > UHMS will not " approve " brain-injury as an accepted indication for HBOT. > > > > The UHMS justifies this position based upon a cost/benefit > analysis--albeit at > > UHMS prices which are typically 1000% higher than the prices charged at > > freestanding, non-UHMS facilities. > > > > The relevance to the parents is this: Federal law > mandates > > providing whatever is " necessary to correct or ameliorate " and does not > > require a minimum level of correction and/or amelioration. There > certainly is > > no asterisk at the end of Paragraph 5 that says *unless the UHMS says > " No. " > > > > If this documentation of UHMS recognition of HBOT improvement were > available > > to parents, HBOT would immediately and universally be > > recognized. This would inevitably lead to near-immediate investment in > HBOT > > research in the tens of millions of dollars--if not even more. Given > > Harch's data on the effect of HBOT in induced-TBI in rat brain (see > > > http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & itool=EntrezSystem2.P > > Entrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum > > < > http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & amp;itool=EntrezSyst<ht\ tp://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & itool=EntrezSyst> > > em2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum> ), i.e., the > growth of > > new tissue, it's very possible a cure for brain-injury could be > discovered if > > the research investment were made. > > > > Obviously, this is incredibly frustrating. I have known of this > document's > > existence for a couple of weeks. I contacted UHMS leadership and have not > > heard any reply despite four requests for information--which, to me, > means the > > UHMS does have some heretofore undisclosed acknowledgement and/or > > documentation. > > > > I never withhold relevant information, but it's my understanding this > person > > refuses to release this information--despite the fact they have a > > brain-injured loved one and despite the fact this person has claimed > very, > > very publicly for years to be an advocate for making HBOT for > brain-injury > > universally available. This person now has the power to make that dream a > > reality for not just hundreds, not just thousands, but for millions of > people > > around the world--and for all time. Yet this individual will not release > this > > documentation. > > > > I am raising this issue now because there have been many, many good > people who > > have been in the trenches fighting this fight in courtrooms and hearings, > and > > now yet another Mom is stepping into the Arizona ring to do battle. > > > > A couple of months ago I had the privilege to sit in on a telephone > hearing, > > attempting to help Meleah Corner in her fight with North Carolina > Medicaid. > > Mrs. Corner has not one, not two, but three autistic children. > > > > Three. Three. Can you imagine? > > > > And Mrs. Corner is visually impaired. She's blind. Can you imagine how > > difficult just one day in her life is? Multiply that times everyday. Do > you > > realize how much better her life and the life of her children would be if > this > > UHMS document were released? > > > > I am thinking of releasing this person's name publicly in the hope that > other > > people (by the hundreds) will pressure this person to release this > document. > > > > Thoughts? > > > > Freels > > http://www.davidfreels.com > > david@... <david%40davidfreels.com> <mailto: > david%40davidfreels.com <david%2540davidfreels.com>> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 e Creacy has the initials A.C. > > > > > > > > > > > > > > Two weeks ago I was informed that a person within > the off-label HBOT > > community > > > is holding documentation from the Undersea and > Hyperbaric Medical Society > > > (UHMS) wherein the UHMS leadership acknowledges > that HBOT corrects > > > brain-injury and brain-injured people--adults and > children--are improved > > > through hyperbaric therapy. However, the > documentation further states the > > UHMS > > > believes the correction/amelioration is not > enough to move brain-injured > > > people from a state of dependence to a state of > independence--therefore > > the > > > UHMS will not " approve " brain-injury as > an accepted indication for HBOT. > > > > > > The UHMS justifies this position based upon a > cost/benefit > > analysis--albeit at > > > UHMS prices which are typically 1000% higher than > the prices charged at > > > freestanding, non-UHMS facilities. > > > > > > The relevance to the parents is > this: Federal law > > mandates > > > providing whatever is " necessary to correct > or ameliorate " and does not > > > require a minimum level of correction and/or > amelioration. There > > certainly is > > > no asterisk at the end of Paragraph 5 that says > *unless the UHMS says > > " No. " > > > > > > If this documentation of UHMS recognition of HBOT > improvement were > > available > > > to parents, HBOT would > immediately and universally be > > > recognized. This would inevitably lead to > near-immediate investment in > > HBOT > > > research in the tens of millions of dollars--if > not even more. Given > > > Harch's data on the effect of HBOT in > induced-TBI in rat brain (see > > > > > > http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & itool=EntrezSystem2.P > > > Entrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum > > > < > > > http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & amp;itool=EntrezSyst<ht\ tp://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & itool=EntrezSyst> > > > > em2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum> > ), i.e., the > > growth of > > > new tissue, it's very possible a cure for > brain-injury could be > > discovered if > > > the research investment were made. > > > > > > Obviously, this is incredibly frustrating. I have > known of this > > document's > > > existence for a couple of weeks. I contacted UHMS > leadership and have not > > > heard any reply despite four requests for > information--which, to me, > > means the > > > UHMS does have some heretofore undisclosed > acknowledgement and/or > > > documentation. > > > > > > I never withhold relevant information, but > it's my understanding this > > person > > > refuses to release this information--despite the > fact they have a > > > brain-injured loved one and despite the fact this > person has claimed > > very, > > > very publicly for years to be an advocate for > making HBOT for > > brain-injury > > > universally available. This person now has the > power to make that dream a > > > reality for not just hundreds, not just > thousands, but for millions of > > people > > > around the world--and for all time. Yet this > individual will not release > > this > > > documentation. > > > > > > I am raising this issue now because there have > been many, many good > > people who > > > have been in the trenches fighting this fight in > courtrooms and hearings, > > and > > > now yet another Mom is stepping into the Arizona > ring to do battle. > > > > > > A couple of months ago I had the privilege to sit > in on a telephone > > hearing, > > > attempting to help Meleah Corner in her fight > with North Carolina > > Medicaid. > > > Mrs. Corner has not one, not two, but three > autistic children. > > > > > > Three. Three. Can you imagine? > > > > > > And Mrs. Corner is visually impaired. She's > blind. Can you imagine how > > > difficult just one day in her life is? Multiply > that times everyday. Do > > you > > > realize how much better her life and the life of > her children would be if > > this > > > UHMS document were released? > > > > > > I am thinking of releasing this person's name > publicly in the hope that > > other > > > people (by the hundreds) will pressure this > person to release this > > document. > > > > > > Thoughts? > > > > > > Freels > > > http://www.davidfreels.com > > > david@... > <david%40davidfreels.com> <mailto: > > david%40davidfreels.com > <david%2540davidfreels.com>> > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 , I’ve been terribly busy as you can imagine with a zillion therapies, constantly advocating for my children, ect. Our hearing is scheduled for the week of March 2nd, but a date hasn’t been put on the court calendar yet. I am in the midst of writing the prehearing statement ordered by the ALJ in the case. We are going to request the hearing be postponed a few weeks because we received our documents a month late. The judge has allowed discovery, so I’m open to any suggestions that you or anyone else can give me on what to ask for from the state. I am planning to request they disclose to me all diagnosis codes that have been used in a pediatric case where HBOT was paid for by NC Medicaid since you have a letter in your possession that states they’ve been covering it for TBI since 1994. Any other suggestions? As if I don’t have enough to do, I now have filed an appeal because we submitted an EPSDT request for ABA that was denied. It was reviewed by Value Options whom the state hires to review request, and either recommend treatment be denied or covered. VO recommended it be covered, and Medicaid then denied it anyway. We also now have a request submitted for specialized nutritional supplements, so we’ll see if they deny that. I have more lab work than they can shake a stick at to document the need. I’ll let you know when the hearing date is set. Pray for us. Meleah From: medicaid [mailto:medicaid ] On Behalf Of Freels Sent: Tuesday, February 03, 2009 8:17 PM medicaid Subject: [ ] New evidence of HBOT efficacy. Two weeks ago I was informed that a person within the off-label HBOT community is holding documentation from the Undersea and Hyperbaric Medical Society (UHMS) wherein the UHMS leadership acknowledges that HBOT corrects brain-injury and brain-injured people--adults and children--are improved through hyperbaric therapy. However, the documentation further states the UHMS believes the correction/amelioration is not enough to move brain-injured people from a state of dependence to a state of independence--therefore the UHMS will not " approve " brain-injury as an accepted indication for HBOT. The UHMS justifies this position based upon a cost/benefit analysis--albeit at UHMS prices which are typically 1000% higher than the prices charged at freestanding, non-UHMS facilities. The relevance to the parents is this: Federal law mandates providing whatever is " necessary to correct or ameliorate " and does not require a minimum level of correction and/or amelioration. There certainly is no asterisk at the end of Paragraph 5 that says *unless the UHMS says " No. " If this documentation of UHMS recognition of HBOT improvement were available to parents, HBOT would immediately and universally be recognized. This would inevitably lead to near-immediate investment in HBOT research in the tens of millions of dollars--if not even more. Given Harch's data on the effect of HBOT in induced-TBI in rat brain (see http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 <http://www.ncbi.nlm.nih.gov/pubmed/17869230?ordinalpos=1 & itool=EntrezSystem2.PE\ ntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum> & itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum), i.e., the growth of new tissue, it's very possible a cure for brain-injury could be discovered if the research investment were made. Obviously, this is incredibly frustrating. I have known of this document's existence for a couple of weeks. I contacted UHMS leadership and have not heard any reply despite four requests for information--which, to me, means the UHMS does have some heretofore undisclosed acknowledgement and/or documentation. I never withhold relevant information, but it's my understanding this person refuses to release this information--despite the fact they have a brain-injured loved one and despite the fact this person has claimed very, very publicly for years to be an advocate for making HBOT for brain-injury universally available. This person now has the power to make that dream a reality for not just hundreds, not just thousands, but for millions of people around the world--and for all time. Yet this individual will not release this documentation. I am raising this issue now because there have been many, many good people who have been in the trenches fighting this fight in courtrooms and hearings, and now yet another Mom is stepping into the Arizona ring to do battle. A couple of months ago I had the privilege to sit in on a telephone hearing, attempting to help Meleah Corner in her fight with North Carolina Medicaid. Mrs. Corner has not one, not two, but three autistic children. Three. Three. Can you imagine? And Mrs. Corner is visually impaired. She's blind. Can you imagine how difficult just one day in her life is? Multiply that times everyday. Do you realize how much better her life and the life of her children would be if this UHMS document were released? I am thinking of releasing this person's name publicly in the hope that other people (by the hundreds) will pressure this person to release this document. Thoughts? Freels http://www.davidfreels.com david@... <mailto:david%40davidfreels.com> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2009 Report Share Posted February 4, 2009 Please release it!!!! That information would help so many people! Along with contact information so we can plead our cases! > > Two weeks ago I was informed that a person within the off-label HBOT community is holding documentation from the Undersea and Hyperbaric Medical Society (UHMS) wherein the UHMS leadership acknowledges that HBOT corrects brain-injury and brain-injured people-- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 The annual conference is in June I beleve. Show up and present with facts and double blind studies and maybe you can get " some sunshine into the UHMS " . Wayne McHowell, RN, BSN, ONC, CHRNA From: KP Stoller, MD <hbotnmnetzero (DOT) net> Subject: Re: [ ] New evidence of HBOT efficacy. medicaid Date: Tuesday, February 3, 2009, 8:24 PM Time to bring sunshine to the UHMS KP Stoller, MD, FACHM President, International Hyperbaric Medical Assoc Medical Director, Hyperbaric Medical Center of New Mexico www.hbotnm.com ____________ _________ _________ _________ _________ _________ _ FTD.com Shop now and save $15 on Flowers and Gifts from FTD! http://thirdpartyof fers.netzero. net/TGL2241/ fc/u4MuSdTxakFxf TgMXXvpZrmHJq0sM JZaWxE8URBZe9887 pw6opiRZ/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 Who is this mysterious person with secret documentation? Let me guess its the Men in Black and another governmental conspiracy. Wayne D. McHowell, RN, BSN, ONC, CHRNA From: Freels <dfreels@...> Subject: [ ] New evidence of HBOT efficacy. medicaid Date: Tuesday, February 3, 2009, 8:17 PM Two weeks ago I was informed that a person within the off-label HBOT community is holding documentation from the Undersea and Hyperbaric Medical Society (UHMS) wherein the UHMS leadership acknowledges that HBOT corrects brain-injury and brain-injured people--adults and children--are improved through hyperbaric therapy. However, the documentation further states the UHMS believes the correction/ameliora tion is not enough to move brain-injured people from a state of dependence to a state of independence- -therefore the UHMS will not " approve " brain-injury as an accepted indication for HBOT. The UHMS justifies this position based upon a cost/benefit analysis--albeit at UHMS prices which are typically 1000% higher than the prices charged at freestanding, non-UHMS facilities. The relevance to the parents is this: Federal law mandates providing whatever is " necessary to correct or ameliorate " and does not require a minimum level of correction and/or amelioration. There certainly is no asterisk at the end of Paragraph 5 that says *unless the UHMS says " No. " If this documentation of UHMS recognition of HBOT improvement were available to parents, HBOT would immediately and universally be recognized. This would inevitably lead to near-immediate investment in HBOT research in the tens of millions of dollars--if not even more. Given Harch's data on the effect of HBOT in induced-TBI in rat brain (see http://www..ncbi. nlm.nih.gov/ pubmed/17869230? ordinalpos= 1 & itool=EntrezSy stem2..PEntrez. Pubmed.Pubmed_ ResultsPanel. Pubmed_RVDocSum), i.e., the growth of new tissue, it's very possible a cure for brain-injury could be discovered if the research investment were made. Obviously, this is incredibly frustrating. I have known of this document's existence for a couple of weeks. I contacted UHMS leadership and have not heard any reply despite four requests for information- -which, to me, means the UHMS does have some heretofore undisclosed acknowledgement and/or documentation. I never withhold relevant information, but it's my understanding this person refuses to release this information- -despite the fact they have a brain-injured loved one and despite the fact this person has claimed very, very publicly for years to be an advocate for making HBOT for brain-injury universally available. This person now has the power to make that dream a reality for not just hundreds, not just thousands, but for millions of people around the world--and for all time. Yet this individual will not release this documentation. I am raising this issue now because there have been many, many good people who have been in the trenches fighting this fight in courtrooms and hearings, and now yet another Mom is stepping into the Arizona ring to do battle. A couple of months ago I had the privilege to sit in on a telephone hearing, attempting to help Meleah Corner in her fight with North Carolina Medicaid. Mrs. Corner has not one, not two, but three autistic children. Three. Three. Can you imagine? And Mrs. Corner is visually impaired. She's blind. Can you imagine how difficult just one day in her life is? Multiply that times everyday. Do you realize how much better her life and the life of her children would be if this UHMS document were released? I am thinking of releasing this person's name publicly in the hope that other people (by the hundreds) will pressure this person to release this document. Thoughts? Freels http://www.davidfre els.com daviddavidfreels (DOT) com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2009 Report Share Posted February 11, 2009 I wish people would wake up and get over the double blind study crap. It is not necessary. Approval can be done without it, as has been seen in many cases, especially in the pharma industry. Re: [ ] New evidence of HBOT efficacy. medicaid Date: Tuesday, February 3, 2009, 8:24 PM Time to bring sunshine to the UHMS KP Stoller, MD, FACHM President, International Hyperbaric Medical Assoc Medical Director, Hyperbaric Medical Center of New Mexico www.hbotnm.com ____________ _________ _________ _________ _________ _________ _ FTD.com Shop now and save $15 on Flowers and Gifts from FTD! http://thirdpartyof fers.netzero. net/TGL2241/ fc/u4MuSdTxakFxf TgMXXvpZrmHJq0sM JZaWxE8URBZe9887 pw6opiRZ/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 So just because it is something that you want it shouldn't have to go through the same verification process that the other indications were required for approval? If its not your way its " double blind crap " ? Hyperbarics within the last five year had to prove all the accepted indications were evidence based practice to continue medicare/medicaid reimburesement. In case you are not aware evidence based medicine is not reports from families of improvements, case studies that lack comparison studies, etc. Most of the " studies " that I have seen presented could not pass consideration for publication in JAMA, etc. The studies for TBI in verterans is looking promising, but until they have significant numbers of both patients treated with HBO and placebo treated patients the studies are not much better than case studies. Wayne D. McHowell, RN, BSN, ONC, CHRNA From: KP Stoller, MD <hbotnmnetzero (DOT) net> Subject: Re: [ ] New evidence of HBOT efficacy. medicaid Date: Tuesday, February 3, 2009, 8:24 PM Time to bring sunshine to the UHMS KP Stoller, MD, FACHM President, International Hyperbaric Medical Assoc Medical Director, Hyperbaric Medical Center of New Mexico www.hbotnm.com ____________ _________ _________ _________ _________ _________ _ FTD.com Shop now and save $15 on Flowers and Gifts from FTD! http://thirdpartyof fers.netzero. net/TGL2241/ fc/u4MuSdTxakFxf TgMXXvpZrmHJq0sM JZaWxE8URBZe9887 pw6opiRZ/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 Wayne, The studies are there. They problem with the US system is most everyone is too ignorant to recognize the studies done in other countries. We think we are so much smarter than everyone else, and that is the reason our health care system is broken and ineffective in too many cases. Second, take the time to review a PDR. Over 50% of the drugs in the PDR have not undergone any placebo controlled studies. It is a double standard. Most are approved with nothing more than clinical trials. If you have it all figured out, explain to me why drugs are approved with clinical trails, than recalled a year later because of the dangerous side effects, and that doesn't even take into account those that are still on the market that have less than acceptable side effects. However, thousands of people have gotten better, the same quality clinical trials have been done, but yet HBOT is still not approved. I'm not saying the studies shouldn't be done. What I am saying is that the studies are there, more are being done, yet we are so far from insurance coverage it makes me sick. Brett From: KP Stoller, MD <hbotnmnetzero (DOT) net> Subject: Re: [ ] New evidence of HBOT efficacy. medicaid Date: Tuesday, February 3, 2009, 8:24 PM Time to bring sunshine to the UHMS KP Stoller, MD, FACHM President, International Hyperbaric Medical Assoc Medical Director, Hyperbaric Medical Center of New Mexico www.hbotnm.com ____________ _________ _________ _________ _________ _________ _ FTD.com Shop now and save $15 on Flowers and Gifts from FTD! http://thirdpartyof fers.netzero. net/TGL2241/ fc/u4MuSdTxakFxf TgMXXvpZrmHJq0sM JZaWxE8URBZe9887 pw6opiRZ/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 Wayne, Where's the randomized, double-blind, placebo-controlled study proving HBOT efficacy for decompression sickness? DF Re: [ ] New evidence of HBOT efficacy. >medicaid >Date: Tuesday, February 3, 2009, 8:24 PM > >Time to bring sunshine to the UHMS > >KP Stoller, MD, FACHM > >President, International Hyperbaric Medical Assoc > >Medical Director, Hyperbaric Medical Center of New Mexico > >www.hbotnm.com > >____________ _________ _________ _________ _________ _________ _ > >FTD.com > >Shop now and save $15 on Flowers and Gifts from FTD! > >http://thirdpartyof fers.netzero. net/TGL2241/ fc/u4MuSdTxakFxf TgMXXvpZrmHJq0sM JZaWxE8URBZe9887 pw6opiRZ/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 I suppose the studies by the Navy when they developed the compression tables don't count? Wayne D. McHowell, RN, BSN, ONC, CHRNA > >From: KP Stoller, MD <hbotnmnetzero (DOT) net> > >Subject: Re: [ ] New evidence of HBOT > efficacy. > >medicaid > >Date: Tuesday, February 3, 2009, 8:24 PM > > > >Time to bring sunshine to the UHMS > > > >KP Stoller, MD, FACHM > > > >President, International Hyperbaric Medical Assoc > > > >Medical Director, Hyperbaric Medical Center of New > Mexico > > > >www.hbotnm.com > > > >____________ _________ _________ _________ _________ > _________ _ > > > >FTD.com > > > >Shop now and save $15 on Flowers and Gifts from FTD! > > > >http://thirdpartyof fers.netzero. net/TGL2241/ > fc/u4MuSdTxakFxf TgMXXvpZrmHJq0sM JZaWxE8URBZe9887 pw6opiRZ/ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 No actually, as they are not derived from double blind clinicl trials. They were made by people who had common sense, which these days seems to be lacking. Re: [ ] New evidence of HBOT > efficacy. > >medicaid > >Date: Wednesday, February 11, 2009, 11:03 AM > > > > > > > > > > > > > >I wish people would wake up and get over the double > blind study crap. It is not necessary. Approval can be done > without it, as has been seen in many cases, especially in > the pharma industry. > > > >-----Original Message----- > > > >From: Wayne McHowell <mackhborn (DOT) com> > >Subj: Re: [ ] New evidence of HBOT > efficacy. > >Date: Wed Feb 11, 2009 7:36 am > >Size: 15K > >medicaid > > > >The annual conference is in June I beleve. Show up > and present with facts and double blind studies and maybe > you can get " some sunshine into the UHMS " . > > > >Wayne McHowell, RN, BSN, ONC, CHRNA --- message truncated --- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2009 Report Share Posted February 15, 2009 Wayne If you read the legal brief I wrote for my HBOT case ( has it archived as one of the documents on this list)you will understand the duplicity in the double-blind requirement. If insurance companies want to require that all treatments and drugs will only be approved and paid for, if supported by double-blind studies, then that is their perogtive. But they must be consistent and require it of all treatments and drugs. The problem is insurance companies cherry pick as to what does and does not have double-blind studies supporting the treatment or drug. Again if you read my brief your eyes will be opened. I documented the findings with the use of supporting literature. > > > > > >From: szymonski@... <szymonski@...> > > >Subject: Re: [ ] New evidence of HBOT > > efficacy. > > >medicaid > > >Date: Wednesday, February 11, 2009, 11:03 AM > > > > > > > > > > > > > > > > > > > > >I wish people would wake up and get over the double > > blind study crap. It is not necessary. Approval can be done > > without it, as has been seen in many cases, especially in > > the pharma industry. > > > > > >-----Original Message----- > > > > > >From: Wayne McHowell <mackhborn (DOT) com> > > >Subj: Re: [ ] New evidence of HBOT > > efficacy. > > >Date: Wed Feb 11, 2009 7:36 am > > >Size: 15K > > >medicaid > > > > > >The annual conference is in June I beleve. Show up > > and present with facts and double blind studies and maybe > > you can get " some sunshine into the UHMS " . > > > > > >Wayne McHowell, RN, BSN, ONC, CHRNA > > --- message truncated --- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2009 Report Share Posted February 15, 2009 Wayne, The direct link to 's brief is medicaid/files/Bals_Summary_Brief.PD\ F , Always good to hear from you. Don't be such a stranger. DF Re: [ ] New evidence of HBOT >> > efficacy. >> > >medicaid >> > >Date: Wednesday, February 11, 2009, 11:03 AM >> > > >> > > >> > > >> > > >> > > >> > > >> > >I wish people would wake up and get over the double >> > blind study crap. It is not necessary. Approval can be done >> > without it, as has been seen in many cases, especially in >> > the pharma industry. >> > > >> > >-----Original Message----- >> > > >> > >From: Wayne McHowell <mackhborn (DOT) com> >> > >Subj: Re: [ ] New evidence of HBOT >> > efficacy. >> > >Date: Wed Feb 11, 2009 7:36 am >> > >Size: 15K >> > >medicaid >> > > >> > >The annual conference is in June I beleve. Show up >> > and present with facts and double blind studies and maybe >> > you can get " some sunshine into the UHMS " . >> > > >> > >Wayne McHowell, RN, BSN, ONC, CHRNA >> >> --- message truncated --- >> > > Freels http://www.davidfreels.com david@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2009 Report Share Posted February 15, 2009 Thanks for the link, . I forwarded it to one of Congressman Oberstar's aides. I was listening to Minnesota Public Radio tonight, as I was moving my car from one side of the street to the other (alternate side of the street parking requires this), and heard a discussion about economic policy. One of the economists remarked, and I thought it was worth remembering, " A politician will hurry to get to the head of any parade. " The more letters to your US Congressman in support of HR 7299 and making HBOT the standard of treatment for TBI, the better. I would prefer an approach which Texas uses, which as I understand it, requires that insurance pay for any treatment for a neurologic condition which has been prescribed by that patient's physician. However, think of HR 7299 as having a foot in the door. Once medical facilities have HBOT available, it will be easier for everyone to have access to treatment locally, and medical clinics and hospitals which have HBOT chambers will start advocating for expanded indications, in order to make their facilities more cost effective. Or at least that's my belief. > From: Freels <dfreels@...> > Subject: Re: [ ] Re: New evidence of HBOT efficacy. > medicaid > Date: Sunday, February 15, 2009, 3:38 PM > Wayne, > > The direct link to 's brief is > medicaid/files/Bals_Summary_Brief.PD\ F > > > > , > > Always good to hear from you. Don't be such a stranger. > > DF > > > > Re: [ ] New > evidence of HBOT > >> > efficacy. > >> > >medicaid > >> > >Date: Wednesday, February 11, 2009, 11:03 > AM > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > >I wish people would wake up and get over > the double > >> > blind study crap. It is not necessary. > Approval can be done > >> > without it, as has been seen in many cases, > especially in > >> > the pharma industry. > >> > > > >> > >-----Original Message----- > >> > > > >> > >From: Wayne McHowell <mackhborn (DOT) > com> > >> > >Subj: Re: [ ] New evidence > of HBOT > >> > efficacy. > >> > >Date: Wed Feb 11, 2009 7:36 am > >> > >Size: 15K > >> > >medicaid > >> > > > >> > >The annual conference is in June I > beleve. Show up > >> > and present with facts and double blind > studies and maybe > >> > you can get " some sunshine into the > UHMS " . > >> > > > >> > >Wayne McHowell, RN, BSN, ONC, CHRNA > >> > >> --- message truncated --- > >> > > > > > > > Freels > http://www.davidfreels.com > david@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2009 Report Share Posted February 15, 2009 , Can you contact me off list? Brett > From: Freels <dfreelsmindspring (DOT) com> > Subject: Re: [ ] Re: New evidence of HBOT efficacy. > medicaid > Date: Sunday, February 15, 2009, 3:38 PM > Wayne, > > The direct link to 's brief is > http://health. groups.. com/group/ medicaid/ files/Bals_ Summary_Brief. PDF > > > > , > > Always good to hear from you. Don't be such a stranger. > > DF > > > > Re: [ ] New > evidence of HBOT > >> > efficacy. > >> > >medicaid > >> > >Date: Wednesday, February 11, 2009, 11:03 > AM > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > >I wish people would wake up and get over > the double > >> > blind study crap. It is not necessary. > Approval can be done > >> > without it, as has been seen in many cases, > especially in > >> > the pharma industry. > >> > > > >> > >-----Original Message----- > >> > > > >> > >From: Wayne McHowell <mackhborn (DOT) > com> > >> > >Subj: Re: [ ] New evidence > of HBOT > >> > efficacy. > >> > >Date: Wed Feb 11, 2009 7:36 am > >> > >Size: 15K > >> > >medicaid > >> > > > >> > >The annual conference is in June I > beleve. Show up > >> > and present with facts and double blind > studies and maybe > >> > you can get " some sunshine into the > UHMS " . > >> > > > >> > >Wayne McHowell, RN, BSN, ONC, CHRNA > >> > >> --- message truncated --- > >> > > > > > > > Freels > http://www.davidfre els.com > daviddavidfreels (DOT) com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2009 Report Share Posted February 15, 2009 I have faithfully read the digest of this group for all these years. I just have not had much to say. Hope all is well. > >> > > > >> > >From: szymonski@ <szymonski@> > >> > >Subject: Re: [ ] New evidence of HBOT > >> > efficacy. > >> > >medicaid > >> > >Date: Wednesday, February 11, 2009, 11:03 AM > >> > > > >> > > > >> > > > >> > > > >> > > > >> > > > >> > >I wish people would wake up and get over the double > >> > blind study crap. It is not necessary. Approval can be done > >> > without it, as has been seen in many cases, especially in > >> > the pharma industry. > >> > > > >> > >-----Original Message----- > >> > > > >> > >From: Wayne McHowell <mackhborn (DOT) com> > >> > >Subj: Re: [ ] New evidence of HBOT > >> > efficacy. > >> > >Date: Wed Feb 11, 2009 7:36 am > >> > >Size: 15K > >> > >medicaid > >> > > > >> > >The annual conference is in June I beleve. Show up > >> > and present with facts and double blind studies and maybe > >> > you can get " some sunshine into the UHMS " . > >> > > > >> > >Wayne McHowell, RN, BSN, ONC, CHRNA > >> > >> --- message truncated --- > >> > > > > > > > Freels > http://www.davidfreels.com > david@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2009 Report Share Posted February 16, 2009 We live in Texas and I don't think that insurance companies who operate in TX are required to pay for HBOT treatment if the patient has a prescription for it. I wish that were true, but I do not think it is. Texas Medicaid statutes state that Medicaid will pay for hyperbaric if a physician is present during the hyperbaric session (s). However, that's a Catch 22 because the medical facilities with hyperbaric chambers and physicians attending will not treat children with CP because it is not FDA approved for that condition and they don't care if we have a prescription or not. > > > >> > > > > > >> > >From: szymonski@ . <szymonski@ ..> > > > >> > >Subject: Re: [ ] New > > > evidence of HBOT > > > >> > efficacy. > > > >> > >medicaid > > > >> > >Date: Wednesday, February 11, 2009, 11:03 > > > AM > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > >I wish people would wake up and get over > > > the double > > > >> > blind study crap. It is not necessary. > > > Approval can be done > > > >> > without it, as has been seen in many cases, > > > especially in > > > >> > the pharma industry. > > > >> > > > > > >> > >-----Original Message----- > > > >> > > > > > >> > >From: Wayne McHowell <mackhborn (DOT) > > > com> > > > >> > >Subj: Re: [ ] New evidence > > > of HBOT > > > >> > efficacy. > > > >> > >Date: Wed Feb 11, 2009 7:36 am > > > >> > >Size: 15K > > > >> > >medicaid > > > >> > > > > > >> > >The annual conference is in June I > > > beleve. Show up > > > >> > and present with facts and double blind > > > studies and maybe > > > >> > you can get " some sunshine into the > > > UHMS " . > > > >> > > > > > >> > >Wayne McHowell, RN, BSN, ONC, CHRNA > > > >> > > > >> --- message truncated --- > > > >> > > > > > > > > > > > > > > > > > Freels > > > http://www.davidfre els.com > > > daviddavidfreels (DOT) com > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2009 Report Share Posted February 16, 2009 Call me darin 2149240202 Sent from my Verizon Wireless BlackBerry Re: [ ] New > > > evidence of HBOT > > > >> > efficacy. > > > >> > >medicaid > > > >> > >Date: Wednesday, February 11, 2009, 11:03 > > > AM > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > > >> > >I wish people would wake up and get over > > > the double > > > >> > blind study crap. It is not necessary. > > > Approval can be done > > > >> > without it, as has been seen in many cases, > > > especially in > > > >> > the pharma industry. > > > >> > > > > > >> > >-----Original Message----- > > > >> > > > > > >> > >From: Wayne McHowell <mackhborn (DOT) > > > com> > > > >> > >Subj: Re: [ ] New evidence > > > of HBOT > > > >> > efficacy. > > > >> > >Date: Wed Feb 11, 2009 7:36 am > > > >> > >Size: 15K > > > >> > >medicaid > > > >> > > > > > >> > >The annual conference is in June I > > > beleve. Show up > > > >> > and present with facts and double blind > > > studies and maybe > > > >> > you can get " some sunshine into the > > > UHMS " . > > > >> > > > > > >> > >Wayne McHowell, RN, BSN, ONC, CHRNA > > > >> > > > >> --- message truncated --- > > > >> > > > > > > > > > > > > > > > > > Freels > > > http://www.davidfre els.com > > > daviddavidfreels (DOT) com > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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